You're not crass at all, Lucinda. I consider your recommendations profound and well spoken!
With love and warmest wishes, Steve - C4, 21 years From: LJT [mailto:[email protected]] Sent: Saturday, January 02, 2010 8:18 PM To: [email protected] Subject: Re: [QUAD-L] RECOMMENDATIONS don't be a bitch, don't be a prick to your help; don't blame the world for the fact that you're a quad, chances are it's your fault and/or your stupidity that put you in a chair in the first place; always have extra supplies on hand!!! Yeah I know I haven't been a quad for very long. And I know I sound a little crass, but remember these words are typed, not spoken. But there is one person on this board that I've spoken to over the phone (you know who you are) that can attest to the fact that I'm not crass when speaking. Lucinda C-4,5 complete July 31, '05 Mpls., MN --- On Fri, 1/1/10, medethics Cvlrights <[email protected]> wrote: From: medethics Cvlrights <[email protected]> Subject: Re: [QUAD-L] RECOMMENDATIONS To: "Tod E. Santee" <[email protected]> Cc: [email protected] Date: Friday, January 1, 2010, 5:40 PM I meant to say "right" Please don't mind the typos...been a long day. If I could offer the list a recommendation, it would be to give these emails an edit option AFTER being sent :-) Peace! _____ From: medethics Cvlrights <[email protected]> To: Tod E. Santee <[email protected]> Cc: [email protected] Sent: Fri, January 1, 2010 6:37:33 PM Subject: Re: [QUAD-L] RECOMMENDATIONS Ah, okay... What would I have done differently? Gosh, not gotten in the car that day when I was in the accident? Stayed in bed? Then I wouldn't have been there when that drunk driver took his truck, ran the stop sign and ran over my car... What else may I have done differently? I think I did the right thing after they dropped me on the floor- to go home by taxi- discharging myself. Maybe should have gone directly to a trauma 1 center. I would say continuing with education is tops...would have probably liked to been more active but pain, access issues, transportation too precedence. Probably would also be, if I were to give advice, look for any support you can. Apply for Medicaid Waivers to get more homecare options right away. Apply for funding for home modifications, get family educated and on board.. and be a good self- advocate.. When I was not able to talk well due to injury, could still write. Having someone with me during doctors appts was important. And other, is to avoid going for unneccessary tests to "prove" to someone that my nerve pain was real. Okay, just docs using this to make a buck.. and cover themselves for not listening or working with me, or not being educated in the field of spinal cord injury. Probably best recommendation to offer would be to stay away from community hospitals, and stick with experts in SCI, at almost all costs. Avoid neurologists, stick with physiatrists. And other thing I did write, keep my cats as my companions. May today be the best start for the rest of the year. Advice- make it this way... we can... one day at a time. Peace to you all--- _____ From: Tod E. Santee <[email protected]> To: medethics Cvlrights <[email protected]>; [email protected] Sent: Fri, January 1, 2010 5:58:04 PM Subject: Re: [QUAD-L] RECOMMENDATIONS (Ah.. but you DO know!) Anyway, the question was this: > For those of you with more living experience as quads, what would be the one thing you would do different > or maybe wish?you would have done/or not done over the years?? I took that to mean SINCE Quad-hood. There are several things I can think of pre-Quad that I might have done differently but had I done any of them, Quadhood might not even be on my radar (assuming I'd still have radar that functioned, that is). ---- medethics Cvlrights <[email protected]> wrote: > Not going there.. but question, was this thread about what we regret, or about what worked for us as a quad and suggestions to others for the future? ________________________________ From: Tod E. Santee <[email protected]> To: [email protected] Sent: Fri, January 1, 2010 5:45:00 PM Subject: Re: [QUAD-L] RECOMMENDATIONS Hmmm... It was over 20 years ago but there was that one "quad-hopping" chick in college. Maybe I shouldn't have said, "No Thanks." LOL! You GUYS must know I'm talking about, RIGHT? But how about you ladies? Are there "quad-hoppin'" men out there, too, just looking for a young chick in a chair? Happy New Year O'-10! --Tod ---- [email protected] wrote: > Hi Guys~ > This site has helped me in soooo many ways.??Your your input is valued~more than you could ever know. > I am only 3 years post injury and the longer I read the more questions I have.? At this point the following is most important: > ? > For those of you with more living experience as quads, what would be the one thing you would do different > or maybe wish?you would have done/or not done over the years?? > ? > Fortunately I quit smoking before my accident and I no longer drink alcohol~? > ? > THANK YOU AND HAPPY NEW YEAR TO ALL!!!! > MANY BLESSINGS! > ? > Shelly > 3 years post > C6-C7 incomplete > ??? >
