My 24 yr old son has been a quad almost 3 yrs. He got a super pubic catheter
about 6 months after he became a quad. He started to get a horrible burning
pain almost 24/7 around his bladder about 3 months ago. He has had burning
before but never this bad. They found he had bladder stones, did laser surgery
about a month ago and some came out. More pieces have come out in urine since
surgery. The urologist told him the burning pain would never go away though.
Has anyone had this and if so do you still have the horrible pain? How do you
deal with it? He is beside himself and is ready to end his life - please help.
Bless you,
Connie
