Sorry I am responding so late, but I have been having several complications because of a terrible burning in my bladder. I have been experiencing this problem since September of last year. The doctors seem to think it is caused by my catheter rubbing up against the back of my bladder. I have tried to tether the catheter to my abdomen so it won't rub up against the back, but I still have a burning sensation, most likely caused because the catheter is to taut.
I have been able to take some medication which has helped significantly with the burning pain, but I have noticed that when I am sitting more upright in my wheelchair the burning pain is definitely exacerbated. Therefore I have been opening the hip angle of my chair using my recline feature on my wheelchair. This has helped, but I have been spending too much of my time till to back because of the pain and ended up getting a pressure ulcer just above my tail bone. After nine days in bed to remedy this problem, I developed a problem with my lungs and almost had to be hospitalized for a lengthy stay because of pneumonia. I'm on the road to recovery and have a cystoscopy (I think that's the name for it) scheduled on July 12. I also suspect there might be some stones floating around in my bladder, but they have not shown on sonograms or CAT scans as of yet. As for the medication that helps, I can't recall the name right now, but it does have its limitations. It can only be taken for a couple of days at a time, however, it does enable me to do things except sit around the house in misery. Take care and I'll hope your son is able to remedy a situation soon. Quadius On Wed, Jun 15, 2011 at 2:00 AM, Dollbug <[email protected]> wrote: > My 24 yr old son has been a quad almost 3 yrs. He got a super pubic > catheter about 6 months after he became a quad. He started to get a > horrible burning pain almost 24/7 around his bladder about 3 months ago. He > has had burning before but never this bad. They found he had bladder stones, > did laser surgery about a month ago and some came out. More pieces have come > out in urine since surgery. The urologist told him the burning pain would > never go away though. Has anyone had this and if so do you still have the > horrible pain? How do you deal with it? He is beside himself and is ready > to end his life - please help. > > Bless you, > Connie >
