How do you deal with the bag? Do you have to empty it often? Dan
At 01:25 PM 3/11/2012 -0400, [email protected] said something that elicited my response: > >When I was going through bladder cancer, it might be the same thing they >offered me, but I cannot Myself so they decided an ilio conduit would be >better as it requires no regular cathetering. I remember he referred to it as >a artificial bladder, that was in 86. I don't mind the ilio conduit, it seems >easier than having to be catheterized. > >It was considered rare for a woman to have bladder cancer in 86. They had not >had very many patients that were female with bladder cancer. Craig did a study >about those and later called me. > >Dana > > >In a message dated 3/10/2012 8:48:19 P.M. Central Daylight Time, >[email protected] writes: >>I asked about this and they assure me it is not the same. I think with the >>conduit one still has to cath themselves. I was also told by some people it >>could be referred to as a Florida pouch, but they tell me that is not the >>same procedure. They kept referring to it as a chimney. >> >> >>On Sun, Feb 26, 2012 at 12:57 PM, Quadius >><<mailto:[email protected]>[email protected]> wrote: >>>They tell me that is the common name, although some people tell me the ileo >>>conduit is another name, but I'm not sure. >>> >>>On Fri, Feb 24, 2012 at 12:01 PM, >>><<mailto:[email protected]>[email protected]> wrote: >>>>Quadius, does this procedure have any common names? >>>>Best Wishes >>>> >>>>In a message dated 2/21/2012 5:51:34 P.M. Central Standard Time, >>>><mailto:[email protected]>[email protected] writes: >>>>>I have been experiencing a multitude of problems over the last year and >>>>>finally I had a cystoscopy done in August which showed there were no >>>>>stones or any other obstructions. I had been experiencing a lot of pain >>>>>from the catheter rubbing against the back of the bladder wall. >>>>> >>>>>I have managed to tape my suprapubic (SP) against a stat lock device that >>>>>I'm using on my lower abdomen. This is working well with the pain most of >>>>>the time, but I am still having problems with my catheter not draining >>>>>properly at times. Repositioning the bag so that the urine has to travel >>>>>up seems to help about 50% of the time, but there also seems to be those >>>>>times when we have to flush with some saline in order to get it draining >>>>>again. >>>>> >>>>>When I explain this to be urologist, who works on a multitude of >>>>>quadriplegics here in Tampa and as been my urologist for the last 10 >>>>>years) she informed me that I would be an ideal candidate for the >>>>>ileovesicostomy. She told me that my catheter had atrophied so >>>>>significantly that it was probably one of the only options left up to me. >>>>>I have been procrastinating and thought I had everything resolved, but I >>>>>have been experiencing a lot of problems lately. I think I'm just >>>>>delaying the inevitable. >>>>> >>>>>Has anyone on this list have the procedure and if so would they mind >>>>>telling me their experiences? >>>>> >>>>>I am searching through forums right now and trying to gather as much >>>>>information as I can. I'm planning on scheduling another meeting with my >>>>>urologist in order to allay my fears. I haven't had surgery since I have >>>>>been paralyzed and I'm terribly frightened of general anesthetic. I don't >>>>>want to be put back on a ventilator after spending four months of what I >>>>>now think were the worst months of my life fighting to get off the >>>>>ventilator. >>>>> >>>>>Anyway, if you can help out I really appreciated. >>>>>Quadius >>>>>PS please excuse any errors. Among the backup to my backup microphone and >>>>>it has some static bursts into it right now. I really need to get my >>>>>computer and microphones within working order again. >
