I believe this is the procedure that is much like the maidenhoff --
spelling? Procedure except a removable pouch is attached to the
opening. Like they do with a colorectal procedure. From what I read
it is major surgery. The benefit is it is more easily undone then the
maidenoff.
Dan
At 12:01 PM 2/24/2012, [email protected] said something that
elicited my response:
Quadius, does this procedure have any common names?
Best Wishes
In a message dated 2/21/2012 5:51:34 P.M. Central Standard Time,
[email protected] writes:
I have been experiencing a multitude of problems over the last year
and finally I had a cystoscopy done in August which showed there
were no stones or any other obstructions. I had been experiencing a
lot of pain from the catheter rubbing against the back of the bladder wall.
I have managed to tape my suprapubic (SP) against a stat lock device
that I'm using on my lower abdomen. This is working well with the
pain most of the time, but I am still having problems with my
catheter not draining properly at times. Repositioning the bag so
that the urine has to travel up seems to help about 50% of the time,
but there also seems to be those times when we have to flush with
some saline in order to get it draining again.
When I explain this to be urologist, who works on a multitude of
quadriplegics here in Tampa and as been my urologist for the last 10
years) she informed me that I would be an ideal candidate for the
ileovesicostomy. She told me that my catheter had atrophied so
significantly that it was probably one of the only options left up
to me. I have been procrastinating and thought I had everything
resolved, but I have been experiencing a lot of problems lately. I
think I'm just delaying the inevitable.
Has anyone on this list have the procedure and if so would they mind
telling me their experiences?
I am searching through forums right now and trying to gather as much
information as I can. I'm planning on scheduling another meeting
with my urologist in order to allay my fears. I haven't had surgery
since I have been paralyzed and I'm terribly frightened of general
anesthetic. I don't want to be put back on a ventilator after
spending four months of what I now think were the worst months of my
life fighting to get off the ventilator.
Anyway, if you can help out I really appreciated.
Quadius
PS please excuse any errors. Among the backup to my backup
microphone and it has some static bursts into it right now. I
really need to get my computer and microphones within working order again.
" You are not enclosed within your bodies; nor confined to houses and
fields. That which is you dwells above the mountain and roves with the wind."
Kahlil Gibran
