Ick. I shivered just reading this. In my opinion, any contact unrelated to care 
is inappropriate unless I give consent. Yes it is easy to get attached to 
certain aides and relax the rules a little bit but as a whole, just because 
these people take care of our bodies doesn't mean they have any special rights 
to our bodies outside of that care.


You're not crazy, dear. You're just listening to your instincts, which is very 
important.

Mandy, c5-7 quad
 

________________________________
 From: KK <[email protected]>
To: [email protected]; eric <[email protected]>; Lainie Batte 
<[email protected]>; MS Quads <[email protected]> 
Sent: Wednesday, September 12, 2012 8:21 AM
Subject: [QUAD-L] Is this inappropriate touching?
 

I am having a tough time deciding if this is wrong or I am being crazy.

I have Multiple Sclerosis.  I am paralyzed from the chest down except for my 
right arm.  No feeling at all.  I also can not speak.  This aide has been with 
me about 2 months, M-F 5 hours a day.  Yesterday we went outside on the front 
porch & she was talking to a neighbor.  Suddenly she took my keys & ran them 
across my feet.  I did nothing.  Didn't feel it but saw her movements.  She 
smiled & did it over & over again.  It was like she did not believe I could not 
feel it.  

Now I feel this was inappropriate but not sure what she expected to get out of 
her actions.  It has made me feel uncomfortable & dread her coming
 today.

Maybe I am being weird.  What do you think about it?

KK

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