You guys are right-- our bodies are different and we all need to pay attention 
and find what works best -- being coffee or medamucil or other methods that may 
help---I have an able bodied son that must take nexium?the purple pill i think 
it is...everyday or he has serious stomach problems, but with that he is 
fine--To sum it up----find what methods or products work best for your body an 
routines.  Dan H.*




________________________________
From: Joan Anglin <[email protected]>
To: [email protected]; [email protected]; [email protected]
Cc: [email protected]
Sent: Sun, October 7, 2012 10:43:23 PM
Subject: RE: [QUAD-L] Bp?


At Santa Clara they worked with us as much as possible to follow whatever 
routine we had had before.  I wasn’t an everyday girl, smiling, so we settled 
on 
every third day.  After I got home every third day was a pain in the you know 
what because I could never schedule anything very far ahead.  We then changed 
to 
three days and four days.  This worked for years and until I began to have 
problems with one, a twisted intestine, and two, bloating, gas and diarrhea.  A 
couple of years ago my gastroenterologist put me in on regular dosages of 
Metamucil, Align and a laxative.  It took a couple of weeks but I finally 
stabilized and I now do a bowel program every morning (being sure to drink a 
cup 
of coffee at least 30 minutes earlier, or tea or hot chocolate works also,) and 
once in awhile it will be 20 minutes, but usually less than 15 minutes.  I 
haven’t had a bowel accident in bed or up in the wheelchair for 18 months.  Ask 
me if I am now a believer in everyday!!!
>>However, each person is unique, and you’ll just have to experiment and find 
>>what 
>>works for your lifestyle.  My mother suffered from constipation as long as I 
>>can 
>>remember, and she had a stroke when she was 78 and was definitely a problem 
>>for 
>>us.  She had multiple blockages over the years, and she finally died from a 
>>blockage when she was 91.  The doctors thought that she was too frail to 
>>survive 
>>the operation.  So I have been cautious and have definitely been aware of 
>>problems that can arise.
>>On a lighter note, the first day I was home from Santa Clara rehab that we 
>>had 
>>to do a bowel care was one I will never forget.  My 15 year old daughter and 
>>my 
>>husband had trained at Santa Clara and were confident we have everything 
>>under 
>>control.  We didn’t count on my body adjusting very slowly to a new routine.  
>>Sea level to 5500 feet, totally different diet, less structured routine etc 
>>etc 
>>and so forth.  After quite awhile of no results we were all frustrated.  The 
>>radio was playing in the background, country music, and suddenly Hank 
>>Williams 
>>Sr.  song begins to play “please release me let me go” and we all collapsed 
>>in 
>>laughter.  So whenever we are having a bad BP day, somebody will start to 
>>sing 
>>and that will definitely light up the mood.  It does get better, we just have 
>>to 
>>remember that it was probably worse at one time or another.
>>Joan C4

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