While I do agree with some of the negatives listed, I have done quite a few things in my 24 years of being a quad that I would not have otherwise done.
- started support group for quads - started support group for vent users - started support group for people with transverse myelitis - made a disability resources web site - made a transverse myelitis web site, with information I found people to translate to many languages, which led to international support groups that didn't exist before - personally raised more that $30,000 for charities Ya, lot of down sides to (besides what has already been listed) - being worried every time the power goes out that the ventilator might stop working - worried when the vent tube comes off that someone might not come fast enough to fix it - never being able to be left completely alone On Sat, Jul 13, 2013 at 6:24 PM, <[email protected]> wrote: > The list is indeed endless. There is not one damn positive thing about > being a quad. We speak out our hats about new doors opening, spiritual > growth, inspiration, and all that rot, but I have done nothing in my 43 > years of quadom that I could not have done better on two feet. A life of > complete dependence, constant pain, depression, dysfunctional body > functions, and endless physical breakdowns has nothing to commend it. At > present I have 3 pressure sores, cellulitis in my left leg, sinus > infection, stomach and bladder pain, chronic constipation, and myriad other > fun ailments. The positive I always hear? "Well, it could be worse." Sure, > and hell could be a little hotter. Now that I have cheered you all up, > good night and God bless, quad buds. Sleep tight. I won't; the arthritis in > my neck and shoulders is killing me. > > Begin forwarded message: > > *Resent-From:* [email protected] > *From:* "shirley bell" <[email protected]> > *Date:* July 12, 2013, 12:43:31 PM EDT > *To:* "donald scott" <[email protected]> > *Cc:* <[email protected]> > *Subject:* *Re: [QUAD-L] Top 5 things I hate about being a Quad* > > The list is endless! I agree with everyones complaints. But I try to focus > on > Best, > Shirley Bell > > www.ShirleyBellDesigns.com > > ----- Original Message ----- > *From:* donald scott <[email protected]> > *To:* [email protected] > *Sent:* Thursday, July 11, 2013 6:50 PM > *Subject:* Re: [QUAD-L] Top 5 things I hate about being a Quad > > My top 5 would be. > > 1. Worrying about current and future cuts in caregiver hours and > Medicare/MediCal. > > 2. Not being able to make enough money to be comfortable. > > 3. Having to depending on others for life's routine crap. > > 4. Knowing how to do things like mechanical, electrical, construction, > engineering, etc. and not being physically able to do it alone. > > 5. No more normal SEX...Along with other fun activities like off roading, > camping, hiking, hunting, rollercoasters, etc.. > *From:* Gmail <[email protected]> > *To:* [email protected] > *Sent:* Thursday, July 11, 2013 10:58 AM > *Subject:* [QUAD-L] Top 5 things I hate about being a Quad > > > > > These are my top 5 things I hate about being a Quad. > > > 1. Having someone else prepare food for YOU their way. > > 2. Getting up and in bed when your aid can make it, not when you wish to. > > 3. People telling me "... how lucky you are not to have to work." > > 4. Limited selection of clothing. > > 5. Aging and Quadrum. > > > Bobbie > > > Sent from my iPad > > > > >
