Jim, You should be very proud with all that you have accomplished. We are grateful for you
Meredith . ----- Original Message ----- From: "Jim Lubin" <[email protected]> To: [email protected] Cc: [email protected] Sent: Sunday, July 14, 2013 2:37:55 PM Subject: Re: [QUAD-L] Infinite things I hate about being a Quad While I do agree with some of the negatives listed, I have done quite a few things in my 24 years of being a quad that I would not have otherwise done. • started support group for quads • started support group for vent users • started support group for people with transverse myelitis • made a disability resources web site • made a transverse myelitis web site, with information I found people to translate to many languages, which led to international support groups that didn't exist before • personally raised more that $30,000 for charities Ya, lot of down sides to (besides what has already been listed) • being worried every time the power goes out that the ventilator might stop working • worried when the vent tube comes off that someone might not come fast enough to fix it • never being able to be left completely alone On Sat, Jul 13, 2013 at 6:24 PM, < [email protected] > wrote: The list is indeed endless. There is not one damn positive thing about being a quad. We speak out our hats about new doors opening, spiritual growth, inspiration, and all that rot, but I have done nothing in my 43 years of quadom that I could not have done better on two feet. A life of complete dependence, constant pain, depression, dysfunctional body functions, and endless physical breakdowns has nothing to commend it. At present I have 3 pressure sores, cellulitis in my left leg, sinus infection, stomach and bladder pain, chronic constipation, and myriad other fun ailments. The positive I always hear? "Well, it could be worse." Sure, and hell could be a little hotter. Now that I have cheered you all up, good night and God bless, quad buds. Sleep tight. I won't; the arthritis in my neck and shoulders is killing me. Begin forwarded message: <blockquote> Resent-From: [email protected] From: "shirley bell" < [email protected] > Date: July 12, 2013, 12:43:31 PM EDT To: "donald scott" < [email protected] > Cc: < [email protected] > Subject: Re: [QUAD-L] Top 5 things I hate about being a Quad <blockquote> The list is endless! I agree with everyones complaints. But I try to focus on Best, Shirley Bell www.ShirleyBellDesigns.com <blockquote> ----- Original Message ----- From: donald scott To: [email protected] Sent: Thursday, July 11, 2013 6:50 PM Subject: Re: [QUAD-L] Top 5 things I hate about being a Quad My top 5 would be. 1. Worrying about current and future cuts in caregiver hours and Medicare/MediCal. 2. Not being able to make enough money to be comfortable. 3. Having to depending on others for life's routine crap. 4. Knowing how to do things like mechanical, electrical, construction, engineering, etc. and not being physically able to do it alone. 5. No more normal SEX...Along with other fun activities like off roading, camping, hiking, hunting, rollercoasters, etc.. From: Gmail < [email protected] > To: [email protected] Sent: Thursday, July 11, 2013 10:58 AM Subject: [QUAD-L] Top 5 things I hate about being a Quad These are my top 5 things I hate about being a Quad. 1. Having someone else prepare food for YOU their way. 2. Getting up and in bed when your aid can make it, not when you wish to. 3. People telling me "... how lucky you are not to have to work." 4. Limited selection of clothing. 5. Aging and Quadrum. Bobbie Sent from my iPad </blockquote> </blockquote> </blockquote>
