Ron,
I think you, and a few more of us, should record our years of knowledge,
and put it on YouTube. Title it something like "How to surviving a broken neck"
"What a Newley SPINAL CORD INJURY'D person should & shouldn't do" "10 steps to
dealing with insurance" Anything along those lines. Bobbie
Smile Everyday
On Aug 22, 2013, at 11:51 PM, RONALD L PRACHT <[email protected]> wrote:
> I wont go in to my personal opinion on things such as stem cell
> therapy, acupuncture, voodoo or sun gods because whatever a person needs to
> do to deal with a spinal cord injury in a positive way is a good thing. What
> I will say is probally the best advice any newly injured person can get. When
> you get injured and are in a rehab setting for usually at least three months
> you have a window of opportunity to figure out vital things needed to be a
> success at living with sci. Learning to tranfer, catherize, feed oneself are
> a few as well as how you are going to build a ramp at your existing home or
> you may need to move somewhere else that can be modified. soak up all this
> information, work hard, write notes on people that can help you down the
> road. Once your out of the hospital the two things that will make or break
> you in my opinion are getting involved in a college and either getting a
> vehicle modified for driving or transport, depending on function level. These
> two things alone along with what you learned in rehab and family support will
> determine how successful your new life is going to be. This is the new you
> and that isnt necessarily a good or bad thing it just is. Its a chance to
> start over in any case and build new. This window of opportunity slowly
> closes and you are left with what you learned, wrote, adapted and so on. If
> you waste the first few years worrying about things like stem cells I
> believe you will be sorry. If I were involved with these sci magazines, I
> would write a three page special on what to do after you have a spinal cord
> injury. Im so angry at times at what people told me to do when I was first
> injured that was foolish and Im paying the price now.I hope someone can take
> something I said and make it useful to a newly injured, scared person. Sci is
> not the end, its just the beginning of a journey.
>
>
> Ron out of St. Louis c7 almost 16 yrs post
>
> From: Don Price <[email protected]>
> To: Don Price <[email protected]>; "[email protected]"
> <[email protected]>
> Sent: Thursday, August 22, 2013 1:43 PM
> Subject: Re: [QUAD-L] Anyone have stem cell therapy?
>
> Some info I got about Stem Cell Therapy:
>
> Trish Stressman-She has a blog where she talks about stem cell research.
> http://www.stemcelltherapy.tv/tag/trish-stressman/.
>
> Trish’s blog with her contact info- http://tstressman.blogspot.com/
>
> email- [email protected]
>
> Also here’s an article about Trish as well from the local paper in 2011-
> http://www.eastvalleytribune.com/article_21eb2e96-3959-54de-bbd5-478c1121c26f.html
>
>
> From: Don Price <[email protected]>
> To: "[email protected]" <[email protected]>
> Sent: Wednesday, August 21, 2013 12:25 PM
> Subject: [QUAD-L] Anyone have stem cell therapy?
>
> Please email me if you have experience, good or bad, with stem cell therapy.
>
> Thanks,
> Don.
>
> From my friend Karen:
>
> I know this is probably a long shot but have any of you had stem cell therapy
> done? I have a young man who is interested in checking into it more and would
> like to talk with someone who has had it done before. I’m drawing a blank so
> if you or someone you know has had it done, can you please let me know and
> I’ll put you in contact with him.
>
> Thanks!
> Karen
>
> Karen Halgren
> Community Resource Specialist
> Az Spinal Cord Injury Association
>
>
>
>
