I'm having stem cells harvested from my bone marrow after chemo treatment, frozen & getting my own cells back so I won't need a donor. I know this is much different than what you all are discussing but it does shine light on stem cell research for us one day. Dianna
Perhaps, A Day In The Life Of A Quad. Best Wishes In a message dated 8/23/2013 6:48:08 P.M. Central Daylight Time, [email protected] writes: Ron, I think you, and a few more of us, should record our years of knowledge, and put it on YouTube. Title it something like "How to surviving a broken neck" "What a Newley SPINAL CORD INJURY'D person should & shouldn't do" "10 steps to dealing with insurance" Anything along those lines. Bobbie -----Original Message----- From: wheelchair <[email protected]> To: bobbiehumphreys7 <[email protected]>; r.pracht <[email protected]> Cc: quad-list <[email protected]> Sent: Fri, Aug 23, 2013 10:08 pm Subject: Re: [QUAD-L] Anyone have stem cell therapy? Perhaps, A Day In The Life Of A Quad. Best Wishes In a message dated 8/23/2013 6:48:08 P.M. Central Daylight Time, [email protected] writes: Ron, I think you, and a few more of us, should record our years of knowledge, and put it on YouTube. Title it something like "How to surviving a broken neck" "What a Newley SPINAL CORD INJURY'D person should & shouldn't do" "10 steps to dealing with insurance" Anything along those lines. Bobbie Smile Everyday On Aug 22, 2013, at 11:51 PM, RONALD L PRACHT <[email protected]> wrote: I wont go in to my personal opinion on things such as stem cell therapy, acupuncture, voodoo or sun gods because whatever a person needs to do to deal with a spinal cord injury in a positive way is a good thing. What I will say is probally the best advice any newly injured person can get. When you get injured and are in a rehab setting for usually at least three months you have a window of opportunity to figure out vital things needed to be a success at living with sci. Learning to tranfer, catherize, feed oneself are a few as well as how you are going to build a ramp at your existing home or you may need to move somewhere else that can be modified. soak up all this information, work hard, write notes on people that can help you down the road. Once your out of the hospital the two things that will make or break you in my opinion are getting involved in a college and either getting a vehicle modified for driving or transport, depending on function level. These two things alone along with what you learned in rehab and family support will determine how successful your new life is going to be. This is the new you and that isnt necessarily a good or bad thing it just is. Its a chance to start over in any case and build new. This window of opportunity slowly closes and you are left with what you learned, wrote, adapted and so on. If you waste the first few years worrying about things like stem cells I believe you will be sorry. If I were involved with these sci magazines, I would write a three page special on what to do after you have a spinal cord injury. Im so angry at times at what people told me to do when I was first injured that was foolish and Im paying the price now.I hope someone can take something I said and make it useful to a newly injured, scared person. Sci is not the end, its just the beginning of a journey. Ron out of St. Louis c7 almost 16 yrs post From: Don Price <[email protected]> To: Don Price <[email protected]>; "[email protected]" <[email protected]> Sent: Thursday, August 22, 2013 1:43 PM Subject: Re: [QUAD-L] Anyone have stem cell therapy? Some info I got about Stem Cell Therapy: Trish Stressman-She has a blog where she talks about stem cell research. http://www.stemcelltherapy.tv/tag/trish-stressman/. Trish’s blog with her contact info- http://tstressman.blogspot.com/ email- [email protected] Also here’s an article about Trish as well from the local paper in 2011- http://www.eastvalleytribune.com/article_21eb2e96-3959-54de-bbd5-478c1121c26f.html From: Don Price <[email protected]> To: "[email protected]" <[email protected]> Sent: Wednesday, August 21, 2013 12:25 PM Subject: [QUAD-L] Anyone have stem cell therapy? Please email me if you have experience, good or bad, with stem cell therapy. Thanks, Don. >From my friend Karen: I know this is probably a long shot but have any of you had stem cell therapy done? I have a young man who is interested in checking into it more and would like to talk with someone who has had it done before. I’m drawing a blank so if you or someone you know has had it done, can you please let me know and I’ll put you in contact with him. Thanks! Karen Karen Halgren Community Resource Specialist Az Spinal Cord Injury Association =
