most people cant insert the suppository and get on the chair in fifteen minutes.
 

________________________________
 From: Joan Anglin <[email protected]>
To: 'Patricia Brown-Tulee' <[email protected]>; [email protected] 
Sent: Thursday, November 7, 2013 2:40 PM
Subject: RE: [QUAD-L] b care
  


Hi Patricia
Rehab at San Jose, California recommended every three days. This was 23 years 
ago, and we found three days was really awkward to plan around and after the 
first year tried three days, and then four days. That worked for a few years, 
but I would sometimes be stopped up and then we would have to change the 
routine. Several years ago I had a twisted intestine which caused a lot of 
problems, when they finally got it untwisted and I then had a colonoscopy and 
spent quite a bit of time talking to the Dr. about what to do so that we were 
not working around a bowel program all the time.
We enjoy food and eat a pretty balanced diet, however eating is not one of my 
great pleasures as I am unable to feed myself and to this day do not enjoy 
“being fed”. With some people more than others of course, but I usually have to 
struggle to eat enough calories every day. He recommended that I use Benefiber, 
Align and Metamucil and work with the amounts until I find the combination that 
would work for me. He also believes that a daily bowel program is the best for 
most people, and encouraged me to try it. It did take several months to find 
the combination that works for me. I now do a bowel care every day, and when I 
hire new attendants (hate, hate, hate that job), I am up front and tell them 
that I do a daily bowel program. I have had a couple of prospective attendants 
explain to me that their former clients did not expect them to do that every 
day and I gave them the option of coming to work on my terms or not coming to 
work at all. Everyone is
 so different and I do not want an attendant that tells me how to run my life. J
This has worked so well that we usually only spend a maximum of 15 minutes 
daily on the bowel program, and if I just have a couple of days where I don’t 
go I can usually trace it back to my not drinking enough, or not eating enough 
roughage etc. It has freed up so much of my time that I would highly recommend 
a similar program to others. My Dr. Is a firm believer in a daily program and 
reminds me as we get older our systems do get worn out and that we need to 
modify eating behaviors to lessen problems. I just had my 23rd anniversary in 
October and I will be 75 on my next birthday and I have many things to do and 
many grandkids to watch grow up and I just don’t want to be dealing with 
problems that we can take care of ourselves whenever possible. Being a quad is 
a problem enough. Sorry that this went on so long, but I feel it is a big 
stumbling block for many. Hope this answers some of your questions. Joan
 
From:Patricia Brown-Tulee [mailto:[email protected]] 
Sent: Wednesday, November 06, 2013 5:59 PM
To: [email protected]
Subject: [QUAD-L] b care
 
what bowel care works for you? i'm almost  1 week w/out. longest w/out has been 
2-3  weeks. i've tried a lot in past 27 yrs, & wondering what works for others.
 
Patricia L. Brown-Tulee
[email protected]
 
while adding years to your life, add life to your years

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