I am familiar with the syrinx, because I have one. Doing is not allowed to get an MRI because her accident was due to kids playing with a gun in the house and she was accidentally shot in the neck, she has metal fragments from the bullet in her neck. She also has a UTI about every 6 to 8 weeks like clockwork. Her GP is completely useless as far as following up with the UTI checks and she won't go to a urologist unless it is absolutely necessary.
When I went to college and stayed in a dorm I was seven years post and could get myself in bed, on dress, dress, and transfer into my chair and also I could take a shower by myself. When I moved into my apartment 10 years post I could transfer in and out of bed but had a tub in my apartment. So I know what it is like to be able to take care of myself if I have to, although in the past 25+ years I've had Pete with me and he has spoiled me so terribly that I don't do anything for myself anymore. I asked my family not too long ago "What am I going to do if anything happens to Pete?" My youngest sister DeeDee said she would take me in and take care of me. It was such a load off my mind and I had always feared that I would be put in a nursing home. Ron, I think this is a conversation you need to have with your family now and not wait till you may not have a choice. Bobbie Smile Everyday > On Jan 23, 2014, at 3:23 AM, RONALD L PRACHT <[email protected]> wrote: > > That's terrible. I would have never guessed she would be having so many > issues. The good part is she is thankful to Pete, she is going to need more > help now than ever. Her abdominal pain/ function loss in the right hand > sounds like it could be a fluid filled cyst in the center of the spine at the > initial injury site called a spinal syrinx. A simple mri of her back would > reveal this. > > Im concerned right now, my father who is 66 yrs old with a history of heart > problems is having hot flashes, dizziness and feeling faint. He already has > had 5 shunts put in his arteries to keep them open. He is a machine repairman > and is trying to keep going to work. Im not sure what I will do when/if my > dad gets put out of commission. I can get myself in/out of the bed and take a > shower once in awhile on my own ( although the transfer to my shower chair is > risky due to the design of the shower chair), but I do have a roll in shower. > My bowell routines which are every other day will be the issue. I need help > with that. I can get dressed on my own and make basic survival meals using > the microwave or sandwiches. Im 16 yrs into my injury and things could get > scary really quickly. The house Im living in is paid off and so is my van. > > Ronny > > > > > From: Gmail <[email protected]> > To: RONALD L PRACHT <[email protected]> > Cc: "[email protected]" <[email protected]> > Sent: Wednesday, January 22, 2014 9:31 PM > Subject: Re: [QUAD-L] whats up with Dawn? > > Ron, > Something has happened to change her was within the past 6 months. For > the very first time she gave Pete a Birthday day gift (his birthday is Dec. > 15th) she brought him a gift card to his favorite eatery and right before > that we had a snow storm, after Pete cleaned her van off, she called him to > say " Thank-you" She did this without my asking her to. > This past summer she told me that the money from her law suit, from her > accident back in 1991, is all but gone. She will not have enough money to buy > a news van and her family can't help her. The mini van she has now, a 2002 > Chrysler ramp-van, has about 135,000K on it. She doesn't work so I have know > idea where she drives. But all of a sudden she is not going out much at all. > She also has quite a bit of some heavy duty properties right now like > gallstones, severe abdominal pains that she's been struggling with for about > one year. She is a C-7,8 and use to have movement of her fingers on her right > hand but she's lost that function and doesn't know why ... I think it's > carpal tunnel syndrome. She wears a size 12 shoe, as a women that size is > extremely rare. So her has NEVER worn shoes ever since her accident (she > wears slippers) resulting in the toes on both her feet to curl under > severely. Enough that her podiatrists wants to amputat ALL HER TOES!! She > also has an open sore on her heal. > She live alone and NOBODY EVER comes to visit her ... not even family. She > can get herself in bed at night, which she dose around 4:09-5:00am everyday. > She dose not cook and nerve, ever has her aids cook for her, so her nutrition > is hideous. > Pete and I TRY to help her out whenever we can but she doesn't like anybody > to help. I really do feel bad for her because of all she's going through > ALONE! > Bobbie > > Smile Everyday > >> On Jan 22, 2014, at 8:10 PM, RONALD L PRACHT <[email protected]> wrote: >> >> do you have any new stories about dawn and her selfish activities >> >> ronny >> From: Gmail <[email protected]> >> To: RONALD L PRACHT <[email protected]> >> Cc: "[email protected]" <[email protected]> >> Sent: Wednesday, January 22, 2014 2:32 PM >> Subject: Re: [QUAD-L] Handcycle Dan hearn >> >> Ron, >> Good for you! I love to hear clods working out in any way shape or >> form. It is so much fun to physically do something ... again, isn't it? >> Bobbie >> >> Smile Everyday >> >>> On Jan 22, 2014, at 5:42 AM, RONALD L PRACHT <[email protected]> wrote: >>> >>> I was going to buy a handcycle back in 09. I did a lot of research and >>> figured out I needed one that had a transfer level about the same height as >>> my wheelchair. I was going to buy a quickie mach 2 in toxic green. Then I >>> ran across a company called Rio Mobilty out of California. They had this >>> attachable handbike called a rio dragonfly. Once you attach four brackets >>> to your manual chair and do some adjusting, you can take the bike on and >>> off in about 5 minutes unassisted. It has seven gears, a brake and c5 quad >>> grips to propel the trike. Whats great about it that you are still in your >>> chair with your cushion and everything so no worries about skin breakdown >>> or falling out of the bike. I purchased it for around 1000.00 dollars and >>> have been using it ever since. in fact, ive already worn a tire off of it. >>> I use it 30-40 times a year because its so simple to take on and off the >>> chair. Those paras you see at creve couer park are led by the same man that >>> runs the disabled swim organization I was involved with. we should meet >>> over there one afternoon Dan this year. >>> >>> Ron >>> >>> >>> >>> >>> >>> >>> rom: Danny Hearn <[email protected]> >>> To: RONALD L PRACHT <[email protected]>; "[email protected]" >>> <[email protected]> >>> Sent: Tuesday, January 21, 2014 3:31 PM >>> Subject: Re: [QUAD-L] stationary hand bike >>> >>> Yeah, Ron- I got cabin fever from the winter also, Can't wait until spring >>> gets here ! My pain is usually worse in the winter also....Hey do you have >>> one of those 3 wheeled hand bikes? A few years back I met some para's and >>> quads all riding those at Creve Couer Lake, they told me to buy one and >>> ride the trails around the Lake--said they meet on like 2 days a week..One >>> was thursday but can't remember the other day. I watched them ride and >>> chatted with them, it did seem cool, I never got around to buying the >>> trike, but at times I go there and ride around in my power chair....Now I >>> will soon be able to ride the trail they have built down the street by >>> aquaport and dogport.. I heard that it is another extension to the Katie >>> Trail. Later, Dan H*** >>> >>> From: RONALD L PRACHT <[email protected]> >>> To: "[email protected]" <[email protected]> >>> Sent: Tuesday, January 21, 2014 2:24 PM >>> Subject: [QUAD-L] stationary hand bike >>> >>> Hey guys. im going crazy with this cold winter. Does anybody have a >>> stationary handbike/armbike that they are willing to sell? Something decent >>> quality, not the 39.99 job. I was looking on ebay and like the sci/fit >>> bikes, but would consider anything. Ive got a prefect easystand 5000 with >>> the mobility option Im willing to sell or trade. >>> >>> >>> Ron > >
