Thank you Bobbie that is such wonderful advice. Are you able to get onto a State program for getting care? You would need To qualify for Medicaid. See if your state has self-directed care? Dana
Sent from my iPhone On Jan 25, 2014, at 4:42 PM, Gmail <[email protected]> wrote: > Ron, > Start making friends of every age and anywhere. Church's, clubs of > different kinds, start a club of your own (i've done this to make more > friends) join all kinds of organization's. When you meet people, invite them > over for lunch or dinner and ask for a little assistance - then they will see > what your needs are and what your capable of. > Bobbie > > Smile Everyday > > On Jan 24, 2014, at 11:35 PM, Danny Hearn <[email protected]> wrote: > >> Yes, Ron.. I can understand that worry about your Dad passing, that's why I >> sure hope I go before my wife. One good thing about your situation of the >> house being paid for is that you can get a live in caregiver and work out a >> deal for free room and board, over the years i've heard of quads doing this, >> I guess you just gotta find the right caregivers. Maybe even one that works >> part time or hours that would work out for you both. Another good Idea is to >> get a retired person or one on social security or disabled that can help >> with your care...then they could save their money they pay on home or >> apartment rent themselves. Just tossing out suggestions. Dan H*** >> >> From: RONALD L PRACHT <[email protected]> >> To: "[email protected]" <[email protected]> >> Sent: Friday, January 24, 2014 5:12 AM >> Subject: Re: [QUAD-L] whats up with Dawn? >> >> It will be so weird when my dad passes. I will suddenly be all alone to >> figure things out or not, it will be up to me and my ability to adapt and >> figure things out. Some things can be overcome, some will require hired >> help. The older I get, the harder it will be to make the changes needed . I >> remember in 99 my mom told me she was divorcing my father and leaving. At >> that point I was about a year post injury. I called my dad and told him "mom >> left and shes not coming back". Everybody thought I wouldn't be able to take >> care of myself because my dad works nights and I would be alone. I was 21 >> then and wasn't scared a bit, I looked at that like an opportunity to show >> people what can be done. I learned to wear a seatbelt, don't do foolish >> things you cant get out of. I was driving my old 84 Ford van everywhere and >> figuring out one problem at a time. At 37 yrs old things aren't as easy as >> they were then. I don't have tons of friends anymore, a bunch of physical >> ailments have popped up since then, but I have more knowledge at least. We >> will see what the future brings. You can only prepare for it so much. >> >> >> Ron >> >> >> >> >> >> >> >> >> From: Don Smith <[email protected]> >> To: RONALD L PRACHT <[email protected]> >> Sent: Thursday, January 23, 2014 2:00 PM >> Subject: Re: [QUAD-L] whats up with Dawn? >> >> Do you qualify for ihss hours, if so maybe now would be a good time to find >> someone to come in on a part tme bases to help you with things you need help >> with. It well give your dad some relief and backup for you if and when >> needed. >> >> >> From: RONALD L PRACHT <[email protected]> >> To: "[email protected]" <[email protected]> >> Sent: Thursday, January 23, 2014 12:23 AM >> Subject: Re: [QUAD-L] whats up with Dawn? >> >> That's terrible. I would have never guessed she would be having so many >> issues. The good part is she is thankful to Pete, she is going to need more >> help now than ever. Her abdominal pain/ function loss in the right hand >> sounds like it could be a fluid filled cyst in the center of the spine at >> the initial injury site called a spinal syrinx. A simple mri of her back >> would reveal this. >> >> Im concerned right now, my father who is 66 yrs old with a history of heart >> problems is having hot flashes, dizziness and feeling faint. He already has >> had 5 shunts put in his arteries to keep them open. He is a machine >> repairman and is trying to keep going to work. Im not sure what I will do >> when/if my dad gets put out of commission. I can get myself in/out of the >> bed and take a shower once in awhile on my own ( although the transfer to my >> shower chair is risky due to the design of the shower chair), but I do have >> a roll in shower. My bowell routines which are every other day will be the >> issue. I need help with that. I can get dressed on my own and make basic >> survival meals using the microwave or sandwiches. Im 16 yrs into my injury >> and things could get scary really quickly. The house Im living in is paid >> off and so is my van. >> >> Ronny >> >> >> >> >> From: Gmail <[email protected]> >> To: RONALD L PRACHT <[email protected]> >> Cc: "[email protected]" <[email protected]> >> Sent: Wednesday, January 22, 2014 9:31 PM >> Subject: Re: [QUAD-L] whats up with Dawn? >> >> Ron, >> Something has happened to change her was within the past 6 months. For >> the very first time she gave Pete a Birthday day gift (his birthday is Dec. >> 15th) she brought him a gift card to his favorite eatery and right before >> that we had a snow storm, after Pete cleaned her van off, she called him to >> say " Thank-you" She did this without my asking her to. >> This past summer she told me that the money from her law suit, from her >> accident back in 1991, is all but gone. She will not have enough money to >> buy a news van and her family can't help her. The mini van she has now, a >> 2002 Chrysler ramp-van, has about 135,000K on it. She doesn't work so I have >> know idea where she drives. But all of a sudden she is not going out much at >> all. >> She also has quite a bit of some heavy duty properties right now like >> gallstones, severe abdominal pains that she's been struggling with for about >> one year. She is a C-7,8 and use to have movement of her fingers on her >> right hand but she's lost that function and doesn't know why ... I think >> it's carpal tunnel syndrome. She wears a size 12 shoe, as a women that size >> is extremely rare. So her has NEVER worn shoes ever since her accident (she >> wears slippers) resulting in the toes on both her feet to curl under >> severely. Enough that her podiatrists wants to amputat ALL HER TOES!! She >> also has an open sore on her heal. >> She live alone and NOBODY EVER comes to visit her ... not even family. She >> can get herself in bed at night, which she dose around 4:09-5:00am everyday. >> She dose not cook and nerve, ever has her aids cook for her, so her >> nutrition is hideous. >> Pete and I TRY to help her out whenever we can but she doesn't like anybody >> to help. I really do feel bad for her because of all she's going through >> ALONE! >> Bobbie >> >> Smile Everyday >> >> On Jan 22, 2014, at 8:10 PM, RONALD L PRACHT <[email protected]> wrote: >> >>> do you have any new stories about dawn and her selfish activities >>> >>> ronny >>> From: Gmail <[email protected]> >>> To: RONALD L PRACHT <[email protected]> >>> Cc: "[email protected]" <[email protected]> >>> Sent: Wednesday, January 22, 2014 2:32 PM >>> Subject: Re: [QUAD-L] Handcycle Dan hearn >>> >>> Ron, >>> Good for you! I love to hear clods working out in any way shape or >>> form. It is so much fun to physically do something ... again, isn't it? >>> Bobbie >>> >>> Smile Everyday >>> >>> On Jan 22, 2014, at 5:42 AM, RONALD L PRACHT <[email protected]> wrote: >>> >>>> I was going to buy a handcycle back in 09. I did a lot of research and >>>> figured out I needed one that had a transfer level about the same height >>>> as my wheelchair. I was going to buy a quickie mach 2 in toxic green. Then >>>> I ran across a company called Rio Mobilty out of California. They had this >>>> attachable handbike called a rio dragonfly. Once you attach four brackets >>>> to your manual chair and do some adjusting, you can take the bike on and >>>> off in about 5 minutes unassisted. It has seven gears, a brake and c5 quad >>>> grips to propel the trike. Whats great about it that you are still in your >>>> chair with your cushion and everything so no worries about skin breakdown >>>> or falling out of the bike. I purchased it for around 1000.00 dollars and >>>> have been using it ever since. in fact, ive already worn a tire off of it. >>>> I use it 30-40 times a year because its so simple to take on and off the >>>> chair. Those paras you see at creve couer park are led by the same man >>>> that runs the disabled swim organization I was involved with. we should >>>> meet over there one afternoon Dan this year. >>>> >>>> Ron >>>> >>>> >>>> >>>> >>>> >>>> >>>> rom: Danny Hearn <[email protected]> >>>> To: RONALD L PRACHT <[email protected]>; "[email protected]" >>>> <[email protected]> >>>> Sent: Tuesday, January 21, 2014 3:31 PM >>>> Subject: Re: [QUAD-L] stationary hand bike >>>> >>>> Yeah, Ron- I got cabin fever from the winter also, Can't wait until spring >>>> gets here ! My pain is usually worse in the winter also....Hey do you have >>>> one of those 3 wheeled hand bikes? A few years back I met some para's and >>>> quads all riding those at Creve Couer Lake, they told me to buy one and >>>> ride the trails around the Lake--said they meet on like 2 days a week..One >>>> was thursday but can't remember the other day. I watched them ride and >>>> chatted with them, it did seem cool, I never got around to buying the >>>> trike, but at times I go there and ride around in my power chair....Now I >>>> will soon be able to ride the trail they have built down the street by >>>> aquaport and dogport.. I heard that it is another extension to the Katie >>>> Trail. Later, Dan H*** >>>> >>>> From: RONALD L PRACHT <[email protected]> >>>> To: "[email protected]" <[email protected]> >>>> Sent: Tuesday, January 21, 2014 2:24 PM >>>> Subject: [QUAD-L] stationary hand bike >>>> >>>> Hey guys. im going crazy with this cold winter. Does anybody have a >>>> stationary handbike/armbike that they are willing to sell? Something >>>> decent quality, not the 39.99 job. I was looking on ebay and like the >>>> sci/fit bikes, but would consider anything. Ive got a prefect easystand >>>> 5000 with the mobility option Im willing to sell or trade. >>>> >>>> >>>> Ron >> >> >> >> >> >> >> >>
