Hey Q, Can you tell me the good, the bad, the ugly about your conduit? My guy already has a colostomy and is concerned about having a bag on both sides of his stomach. He's also concerned long term about drainage, infections, etc.
Please excuse any typos or brevity of tone as this was typed using an iPhone (and possibly Siri, in an effort to be as safe as possible while en route.) G On Nov 17, 2014, at 4:58 PM, Quadius <[email protected]> wrote: Sounds like he has one similar to the one I have. I don't change my every third day though. I use a specially fit abdominal binder when I am up in the chair and this helps me keep my waffer for much longer. I just had my surgery about 2 1/2 years ago and it is definitely not obsolete. As far as I know there is no need to cut Any sphincter. Q > On Monday, November 17, 2014, Gail Holmes <[email protected]> wrote: > I'm a caregiver for a C 4/5 quad complete. He's 37 years post injury and now > in his early 50 's. > > He tells me that not long after he got the ileal conduit he was told by > another urologist that the procedure had already become obsolete for spinal > cord injuries and that he should have had a different surgical procedure in > which the sphincter muscle is cut I believe. > > He has no colostomy but he does of course have a stoma on the right side of > his abdomen over which is a urostomy bag which is changed every third night. > > He does still have his bladder and prostate. > > > > > Sent from my iPhone > > > On Nov 17, 2014, at 11:41 AM, Gentrie Pool <[email protected]> wrote: > > > > 1. Anyone here have an Illeal conduit? > > > > 2. If so, why did you get it? (To eliminate pain? To reduce infections?) > > > > 3. Did they remove your bladder? > > > > 4. Your prostate? > > > > 5. Do you also have a colostomy? > > > > 7. Are you glad you did it? > > > > 8. Male or female? > > > > 9. What level injury? > > > > My BF is c5/6 incomplete since 1992 at age 17. 39 yrs old now. He has a > > suprapubic which has caused him intense burning, stinging pain, bladder > > pressure, and reflux in to his kidneys since he got an indwelling cath in > > 2006 (the kind that goes up the penis which they replaced with the SP in > > 2008). He's had two infections (both were psuedomonas) requiring IV > > antibiotics. > > > > Please excuse any typos or brevity of tone as this was typed using an > > iPhone (and possibly Siri, in an effort to be as safe as possible while en > > route.) > > > > G >
