I had my Urostomy surgery in 1999 and I change it every 7-10 days. I wish I had done it sooner. If you REALLY want to KNOW really, really than email me off list. Bobbie
Smile Everyday > On Nov 17, 2014, at 6:21 PM, Gentrie Pool <[email protected]> wrote: > > Hi Gail, > > We were told on Friday and today (2 different urologists) the exact > opposite...that cutting the sphincter is becoming obsolete and instead, SCI > people are getting the conduit. Can you tell me the good, the bad, the ugly > that he is experienced with his conduit? > > Please excuse any typos or brevity of tone as this was typed using an iPhone > (and possibly Siri, in an effort to be as safe as possible while en route.) > > G > > On Nov 17, 2014, at 4:52 PM, Gail Holmes <[email protected]> wrote: > > I'm a caregiver for a C 4/5 quad complete. He's 37 years post injury and now > in his early 50 's. > > He tells me that not long after he got the ileal conduit he was told by > another urologist that the procedure had already become obsolete for spinal > cord injuries and that he should have had a different surgical procedure in > which the sphincter muscle is cut I believe. > > He has no colostomy but he does of course have a stoma on the right side of > his abdomen over which is a urostomy bag which is changed every third night. > > He does still have his bladder and prostate. > > > > > Sent from my iPhone > >> On Nov 17, 2014, at 11:41 AM, Gentrie Pool <[email protected]> wrote: >> >> 1. Anyone here have an Illeal conduit? >> >> 2. If so, why did you get it? (To eliminate pain? To reduce infections?) >> >> 3. Did they remove your bladder? >> >> 4. Your prostate? >> >> 5. Do you also have a colostomy? >> >> 7. Are you glad you did it? >> >> 8. Male or female? >> >> 9. What level injury? >> >> My BF is c5/6 incomplete since 1992 at age 17. 39 yrs old now. He has a >> suprapubic which has caused him intense burning, stinging pain, bladder >> pressure, and reflux in to his kidneys since he got an indwelling cath in >> 2006 (the kind that goes up the penis which they replaced with the SP in >> 2008). He's had two infections (both were psuedomonas) requiring IV >> antibiotics. >> >> Please excuse any typos or brevity of tone as this was typed using an iPhone >> (and possibly Siri, in an effort to be as safe as possible while en route.) >> >> G >
