Empty bowels always makes me feel better. Sometimes I wish I could get by 
without eating anything at all. But, alas, hunger pangs interfere. I eat, 
become bloated and painful, and the whole thing starts over again. Bummer.

Sent from my iPad

Begin forwarded message:

> Resent-From: [email protected]
> From: [email protected]
> Date: November 24, 2014 at 5:25:01 PM EST
> To: alcibiates2 <[email protected]>, quad-list <[email protected]>
> Subject: Re: [QUAD-L] Autonomic Dysreflexia and pain
> 
> You are correct and I do that. Also, i have noticed that when you have a 
> thorough bowel movement it helps the medicine work better...weird I know, but 
> true for me. Anyone else notice that?
> 
> From: "alcibiates2" <[email protected]>
> To: [email protected], "quad-list" <[email protected]>
> Sent: Monday, November 24, 2014 1:21:23 PM
> Subject: Re: [QUAD-L] Autonomic Dysreflexia and pain
> 
> I think that the first thing everyone needs to know about most pain drugs is 
> that you must continually break the forming addiction.  Staying on one drug 
> will cause it to lose its effectiveness.at that point you are taking the drug 
> and its not doing anything but feeding an addiction. No one in pain wants to 
> hear this but the fact is you must find another drug or device while you 
> detox.
>  The drug needs to come from another family of drugs.  Altering your 
> medications and using milder drugs whatever the pain isn't quite as bad can 
> help extend the use of Norco or vicodin.
>   Don't get me wrong, I'm totally sympathetic I've been on the trip myself.  
> john s
> 
> 
> Sent from my Verizon Wireless 4G LTE smartphone
> 
> 
> -------- Original message --------
> From: [email protected] 
> Date:11/24/2014 3:40 PM (GMT-05:00) 
> To: quad-list 
> Subject: Re: [QUAD-L] Autonomic Dysreflexia and pain 
> 
> I have the same thing with pinched nerves from my disc. Also, when I first 
> broke my neck My hip on one side got inflamed with calcium deposits 
> (hetertopicosification) witch has left me crooked. The last few years my 
> whole other side has deterorated and so Norco has stopped working very well. 
> What is the next step up in pain management.? They won't operate.
> 
> Meredith
> From: "alcibiates2" <[email protected]>
> To: "Danny Hearn" <[email protected]>, "quad-list" <[email protected]>
> Sent: Monday, November 24, 2014 5:57:02 AM
> Subject: Re: [QUAD-L] Autonomic Dysreflexia
> 
> I was told it was disintegrating disc disease. There's no cure for it. It 
> causes nerves to be pinched as well as making it impossible to position 
> comfortably. Spending long times sitting in the chair is really painful.I'm 
> to the point now where I get out of bed for a couple hours each day.
> Best wishes. 
> john s
> 
> 
> Sent from my Verizon Wireless 4G LTE smartphone
> 
> 
> -------- Original message --------
> From: Danny Hearn 
> Date:11/24/2014 5:44 AM (GMT-05:00) 
> To: alcibiates2 ,[email protected] 
> Subject: Re: [QUAD-L] Autonomic Dysreflexia 
> 
> John, I read that many quads develope disc problems in their backs, did they 
> do anything for yours or do you just get by as best you can with that??  
> thanks, Dan**
> 
> 
> On Sunday, November 23, 2014 6:55 PM, alcibiates2 <[email protected]> 
> wrote:
> 
> 
> Dan, I've had some fractures that were almost undetectable but really sent my 
> bp up and pulse way down. Just the weight of my foot separated my tibia at 
> the mantle below the knee. Chalky bones and deterioration of spinal disc's 
> have played hell with me. Try sitting straight up and take something for 
> pain. Don't recline until your pulse returns to your normal never be afraid 
> to 911 yourself to an er.
> Tip:take a copy of a medical definition of AD with you along with your med 
> list. I swear they can be pig ignorant of what is going on and what to do. 
> Help has gotten ambivalent in Cincinnati. 
> Best Wishes,
> John s
> 
> 
> 
> 
> 
> 
> 
> Sent from my Verizon Wireless 4G LTE smartphone
> 
> 
> -------- Original message --------
> From: Danny Hearn 
> Date:11/23/2014 4:42 AM (GMT-05:00) 
> To: [email protected] 
> Subject: [QUAD-L] Autonomic Dysreflexia 
> 
> Man, I hate having dysreflexia and unable to find the cause, I have been 
> having it on and off for about 3 days and have had almost no sleep for the 
> last 2 days. Bladder and bowels all seem fine-no pressure sores or etc. that 
> we can find. When I try to lay down at night after a while I get real hot and 
> clammy, my heart begins to pound and act up. I do have a syrinx and bad neck 
> and back pain but not sure if that can be the problem. I guess Monday I'll 
> try to call my primary doctor and get checkup and bloodwork for a start, This 
> stuff is depressing and drives my wife crazy making her lose sleep also, plus 
> she is a caregiver to an elderly woman with alzheimers 4 days a week. This 
> Quad related stuff can be so challenging at times ! Well I guess i'm done 
> venting...it's about 3:45 am. Hope To get better before long.  Dan H***
> 
> 
> 
> 

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