You are spot on about sitting on wrinkles! Even a small one feels like a thumb tack! My right buttock has enough feeling to cause misery, not to mention sweats, chills, and spasms.
Sent from my iPad Begin forwarded message: > From: alcibiates2 <[email protected]> > Date: December 6, 2014 at 2:21:43 PM EST > To: Quadius <[email protected]>, Don Price <[email protected]> > Cc: Larry Willis <[email protected]>, "[email protected]" > <[email protected]> > Subject: Re: [QUAD-L] Autonomic Dysreflexia and pain > > I just thought of a problem that I have from time to time. Check for wrinkles > under you. After several hours they can feel like knives. > Best wishes > john s > > > Sent from my Verizon Wireless 4G LTE smartphone > > > -------- Original message -------- > From: Quadius > Date:12/05/2014 6:28 PM (GMT-05:00) > To: Don Price > Cc: Larry Willis ,[email protected] > Subject: Re: [QUAD-L] Autonomic Dysreflexia and pain > > If you're having lactose intolerance you can try multiple things to > ameliorate the situation. Lactase, avoiding dairy, using substitutes. Me I > have more of a dairy allergy most of the time. > >> On Thursday, December 4, 2014, Don Price <[email protected]> wrote: >> Sounds like you might have some food allergies. Remember that allergies CAN >> develop over time, so just because you've never been lactose intolerant >> doesn't mean that hasn't changed. The one you hear about now is gluten >> sensitivity, but there are many foods that could be causing you to have >> reactions. Excessive gas in the stomach or intestines could easily cause >> A.D., as well as inflame your digestive tract. It might be worth seeing and >> allergist, or at least trying a change in diet to see what happens. For >> example, no dairy products for two weeks. Other common allergens include: >> eggs, nuts, shellfish, soy and wheat products. Carbonated beverages can >> cause gas too. >> >> Good luck. I hope you guys can figure it out! >> >> Don. >> >> From: Larry Willis <[email protected]> >> To: "[email protected]" <[email protected]> >> Sent: Thursday, December 4, 2014 9:24 AM >> Subject: Fwd: [QUAD-L] Autonomic Dysreflexia and pain >> >> Empty bowels always makes me feel better. Sometimes I wish I could get by >> without eating anything at all. But, alas, hunger pangs interfere. I eat, >> become bloated and painful, and the whole thing starts over again. Bummer. >> >> Sent from my iPad >> >> Begin forwarded message: >> >>> Resent-From: [email protected] >>> From: [email protected] >>> Date: November 24, 2014 at 5:25:01 PM EST >>> To: alcibiates2 <[email protected]>, quad-list <[email protected]> >>> Subject: Re: [QUAD-L] Autonomic Dysreflexia and pain >> >> >>> You are correct and I do that. Also, i have noticed that when you have a >>> thorough bowel movement it helps the medicine work better...weird I know, >>> but true for me. Anyone else notice that? >>> >>> From: "alcibiates2" <[email protected]> >>> To: [email protected], "quad-list" <[email protected]> >>> Sent: Monday, November 24, 2014 1:21:23 PM >>> Subject: Re: [QUAD-L] Autonomic Dysreflexia and pain >>> >>> I think that the first thing everyone needs to know about most pain drugs >>> is that you must continually break the forming addiction. Staying on one >>> drug will cause it to lose its effectiveness.at that point you are taking >>> the drug and its not doing anything but feeding an addiction. No one in >>> pain wants to hear this but the fact is you must find another drug or >>> device while you detox. >>> The drug needs to come from another family of drugs. Altering your >>> medications and using milder drugs whatever the pain isn't quite as bad can >>> help extend the use of Norco or vicodin. >>> Don't get me wrong, I'm totally sympathetic I've been on the trip myself. >>> >>> john s >>> >>> >>> Sent from my Verizon Wireless 4G LTE smartphone >>> >>> >>> -------- Original message -------- >>> From: [email protected] >>> Date:11/24/2014 3:40 PM (GMT-05:00) >>> To: quad-list >>> Subject: Re: [QUAD-L] Autonomic Dysreflexia and pain >>> >>> I have the same thing with pinched nerves from my disc. Also, when I first >>> broke my neck My hip on one side got inflamed with calcium deposits >>> (hetertopicosification) witch has left me crooked. The last few years my >>> whole other side has deterorated and so Norco has stopped working very >>> well. What is the next step up in pain management.? They won't operate. >>> >>> Meredith >>> From: "alcibiates2" <[email protected]> >>> To: "Danny Hearn" <[email protected]>, "quad-list" <[email protected]> >>> Sent: Monday, November 24, 2014 5:57:02 AM >>> Subject: Re: [QUAD-L] Autonomic Dysreflexia >>> >>> I was told it was disintegrating disc disease. There's no cure for it. It >>> causes nerves to be pinched as well as making it impossible to position >>> comfortably. Spending long times sitting in the chair is really painful.I'm >>> to the point now where I get out of bed for a couple hours each day. >>> Best wishes. >>> john s >>> >>> >>> Sent from my Verizon Wireless 4G LTE smartphone >>> >>> >>> -------- Original message -------- >>> From: Danny Hearn >>> Date:11/24/2014 5:44 AM (GMT-05:00) >>> To: alcibiates2 ,[email protected] >>> Subject: Re: [QUAD-L] Autonomic Dysreflexia >>> >>> John, I read that many quads develope disc problems in their backs, did >>> they do anything for yours or do you just get by as best you can with >>> that?? thanks, Dan** >>> >>> >>> On Sunday, November 23, 2014 6:55 PM, alcibiates2 <[email protected]> >>> wrote: >>> >>> >>> Dan, I've had some fractures that were almost undetectable but really sent >>> my bp up and pulse way down. Just the weight of my foot separated my tibia >>> at the mantle below the knee. Chalky bones and deterioration of spinal >>> disc's have played hell with me. Try sitting straight up and take something >>> for pain. Don't recline until your pulse returns to your normal never be >>> afraid to 911 yourself to an er. >>> Tip:take a copy of a medical definition of AD with you along with your med >>> list. I swear they can be pig ignorant of what is going on and what to do. >>> Help has gotten ambivalent in Cincinnati. >>> Best Wishes, >>> John s >>> >>> >>> >>> >>> >>> >>> >>> Sent from my Verizon Wireless 4G LTE smartphone >>> >>> >>> -------- Original message -------- >>> From: Danny Hearn >>> Date:11/23/2014 4:42 AM (GMT-05:00) >>> To: [email protected] >>> Subject: [QUAD-L] Autonomic Dysreflexia >>> >>> Man, I hate having dysreflexia and unable to find the cause, I have been >>> having it on and off for about 3 days and have had almost no sleep for the >>> last 2 days. Bladder and bowels all seem fine-no pressure sores or etc. >>> that we can find. When I try to lay down at night after a while I get real >>> hot and clammy, my heart begins to pound and act up. I do have a syrinx and >>> bad neck and back pain but not sure if that can be the problem. I guess >>> Monday I'll try to call my primary doctor and get checkup and bloodwork for >>> a start, This stuff is depressing and drives my wife crazy making her lose >>> sleep also, plus she is a caregiver to an elderly woman with alzheimers 4 >>> days a week. This Quad related stuff can be so challenging at times ! Well >>> I guess i'm done venting...it's about 3:45 am. Hope To get better before >>> long. Dan H***
