I have same issue cold when 1st in bed, then 2 hours later iI'm hot. I
just went thru this last night. I used remote to turn on fan and able to
move covers off me. I cooled down to fall asleep, then I wake up cold
and sore throat from fan. No win situation.
all while, I am suppose to wear sleep apnea mask. That's not happening.
It is the small things that wear you down more than people think "he
just can't walk". Windows 10 is coming out with voice control so maybe
there will be more voice control home automation coming soon. I hard
others make pulling system with clothes pins to hold blanket.
Lets hope,
Derrick W in PA
On 4/25/2015 4:51 PM, Joan Anglin wrote:
I can’t move myself at all, unless I spasm which often sends me into
an uncomfortable position. It takes a good 10 to 15 minutes a night to
get me positioned so that I think I’ll be comfortable all night long.
I sleep on a memory foam mattress with the head and a foot slightly
elevated. Because I sleep on my back my hands and arms have always
been a problem because they will get wedged against my legs during the
night. And then they’d would push up my shoulders and in the morning I
would be a very sore. It looks ridiculous, but we found a way to keep
my shoulders relaxed. We just take the bottom of my nightshirt and
fold it back over my arms and pin it securely with my hand side by
side on my stomach. It has also lessened the spasms which I think were
caused by my fingers dating into my legs. Amazing what we have to go
through to just get a night’s sleep! I have my cell phone plugged in
on the table which has my Sicare turn on so I can watch TV. The phone
will wake up to a voice command and I can call somebody to come over
if I absolutely need to. Thank goodness it doesn’t happen very often.
The worst part is knowing I’m going to get too warm a couple of hours
after going to bed and adjusting everything so that I am warm enough
to go to sleep but not too warm so that I wake up hot and can’t do
anything about it!! I really need to design a pulley system to raise
and lower my blanket LOL. I can reach the water tube without moving so
I don’t get too thirsty, but the alternating too hot and too cold is
very frustrating. Anybody have any ideas? I’m open for suggestions.
I guess I could blame my temperature changes on living in Reno, today
the high is 46°with snow this morning, and Wednesday is suppose to be
a 82°record! Maybe I’ve lived here too long? Have a great day
everyone. Joan
*From:*Don Smith [mailto:[email protected]]
*Sent:* Saturday, April 25, 2015 11:42 AM
*To:* greg
*Cc:* [email protected]
*Subject:* Re: [QUAD-L] Hey Don
I'm able to move myself around some, I sleep on a low loss air
mattress and I have a phone by my bed incase of any issues I can't
deal with. We change my foley every two weeks which help cut down on
problems. As with most of us, I have had to call pca or a friend in
the middle of the night though.
On Sat, Apr 25, 2015 at 9:02 AM, greg <[email protected]
<mailto:[email protected]>> wrote:
I could not do it. I go most nights with no trouble, but now and then
I start sweating really bad at night. I either need moved around a
bit, or my cath is kinked somewhere. I would probably lay there all
night worrying that I would start sweating any minute.
Greg
> Good for you, Don. I would not have the onions to live by myself. I
> can imagine my night as one long panic attack. It is almost that
> way now. You are more man than I am my friend.
