I probably wake up 3-4 times a night, shaking cold (most of the time I'm warm though) sometimes I can't get back to sleep for hours. I maybe go all night not waking up shaking 3 nights a month. I've tried meds, changing position, a drink before bed, head raised, lowered, heavier blankets, lighter blankets, just a sheet, etc.
I say I'm overheated but really I'm just toasty warm. I can feel warm hands on my face, but temp is normal. It's only in bed, with a blanket. My arms feel like they are bruised and in ice water. During the day they kind of feel that way, but not so bad I shake uncontrollably. Once I get up, I stop shaking in about 10 minutes. Though my arms always feel like ice water. I was in the hospital about 8 months ago or so, and it did it in their bed too. So it's not my mattress. Thx, Greg > Greg, I have almost that same problem about once a week. I will > wake up very uncomfortable but I can't tell if I am hot or cold. My > hands are always like icicles regardless. And I have the shivers, > something my father used to do....and he was able-bodied. Our body > thermostats are screwed up. I get overheated, think I am cold, pile > on more covers and get even hotter. Sucks to the high heavens. Hate > it. > > Larry WillisRetired and proud of it > > > Begin forwarded message: > > >> Resent-From: [email protected] >> From: greg <[email protected]> >> Date: September 30, 2015 at 8:30:46 PM EDT >> To: <[email protected]> >> Subject: Re: Fwd: [QUAD-L] Getting Old, Panic >> >> >> I went 20 years before I had my first panic attack. I've only had >> a few what I would call panic attacks. Where I just had to get up >> in the middle of the night. The few bad ones I notice I got >> really overheated and could not get the blanket off. When I'm >> really hot, I just don't feel like I'm getting enough air. If I >> lay to flat I can't breath as good either. I have the bed remote, >> but it has fallen a few times. >> >> I more often get this obsessive worrying. Then that leads to >> worrying I'm going to have an attack if I lay down. Only once it >> was bad enough I stayed up all night in my chair. Then I feel bad >> I gave in to it. >> >> I have bed, fan, tv, remotes now. I have them all tied onto the >> bed remote. Unfortunately to use one I have to uncover my arm and >> often can't get it covered back up. Luckily, most of the tv is >> voice controlled. I still need to get control of my lights. I had >> it on my Sicare, but the switch receiver burned/shorted out. >> >> My biggest issue at night is for some reason just getting pretty >> warm, not even overheated, just enough to feel warm hands. My >> arms start feeling like they are frozen. I feel so cold I start >> uncontrollably shaking. I uncover my arms and it gets better, but >> just until I get for real cold. I only shake that bad when my >> arms get warm from blankets, temp normal, or my temp drops to >> 95.5 or lower. >> >> I don't think it's Dysreflexia, that usually drops my temp. No >> other way of getting warm causes this. Once I start shaking that >> bad I start feeling like I NEED to get up. >> >> Greg

