Greg, that sounds like a nightly bit of hell. How do you get any rest? Like I 
said, I have a touch of it but nothing to the extent that you do. God bless 
you, my friend. I pray that you find relief and comfort and sweet gentle sleep. 
Larry

Larry Willis
Retired and proud of it


Begin forwarded message:

> Resent-From: [email protected]
> From: greg <[email protected]>
> Date: October 2, 2015 at 4:24:23 PM EDT
> To: <[email protected]>
> Subject: Re: Fwd: [QUAD-L] Getting Old, Panic
> 
> I probably wake up 3-4 times a night, shaking cold (most of the time I'm warm 
> though) sometimes I can't get back to sleep for hours. I maybe go all night 
> not waking up shaking 3 nights a month. I've tried meds, changing position, a 
> drink before bed, head raised, lowered, heavier blankets, lighter blankets, 
> just a sheet, etc.
> 
> I say I'm overheated but really I'm just toasty warm. I can feel warm hands 
> on my face, but temp is normal. It's only in bed, with a blanket. My arms 
> feel like they are bruised and in ice water. During the day they kind of feel 
> that way, but not so bad I shake uncontrollably. Once I get up, I stop 
> shaking in about 10 minutes. Though my arms always feel like ice water.
> 
> I was in the hospital about 8 months ago or so, and it did it in their bed 
> too. So it's not my mattress.
> 
> Thx, Greg
> 
> 
>> Greg, I have almost that same problem about once a week. I will
>> wake up very uncomfortable but I can't tell if I am hot or cold. My
>> hands are always like icicles regardless. And I have the shivers,
>> something my father used to do....and he was able-bodied. Our body
>> thermostats are screwed up. I get overheated, think I am cold, pile
>> on more covers and get even hotter. Sucks to the high heavens. Hate
>> it.
>> 
>> Larry WillisRetired and proud of it
>> 
>> 
>> Begin forwarded message:
>> 
>> 
>>> Resent-From: [email protected]
>>> From: greg <[email protected]>
>>> Date: September 30, 2015 at 8:30:46 PM EDT
>>> To: <[email protected]>
>>> Subject: Re: Fwd: [QUAD-L] Getting Old, Panic
>>> 
>>> 
>>> I went 20 years before I had my first panic attack. I've only had
>>> a few what I would call panic attacks. Where I just had to get up
>>> in the middle of the night. The few bad ones I notice I got
>>> really overheated and could not get the blanket off. When I'm
>>> really hot, I just don't feel like I'm getting enough air. If I
>>> lay to flat I can't breath as good either. I have the bed remote,
>>> but it has fallen a few times.
>>> 
>>> I more often get this obsessive worrying. Then that leads to
>>> worrying I'm going to have an attack if I lay down. Only once it
>>> was bad enough I stayed up all night in my chair. Then I feel bad
>>> I gave in to it.
>>> 
>>> I have bed, fan, tv, remotes now. I have them all tied onto the
>>> bed remote. Unfortunately to use one I have to uncover my arm and
>>> often can't get it covered back up. Luckily, most of the tv is
>>> voice controlled. I still need to get control of my lights. I had
>>> it on my Sicare, but the switch receiver burned/shorted out.
>>> 
>>> My biggest issue at night is for some reason just getting pretty
>>> warm, not even overheated, just enough to feel warm hands. My
>>> arms start feeling like they are frozen. I feel so cold I start
>>> uncontrollably shaking. I uncover my arms and it gets better, but
>>> just until I get for real cold. I only shake that bad when my
>>> arms get warm from blankets, temp normal, or my temp drops to
>>> 95.5 or lower.
>>> 
>>> I don't think it's Dysreflexia, that usually drops my temp. No
>>> other way of getting warm causes this. Once I start shaking that
>>> bad I start feeling like I NEED to get up.
>>> 
>>> Greg
> 

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