Hello,
My name is Eric Olson. I am from Milwaukee. I was a member of the
Quad-list forever until my daughter was born about 9 years ago. I just
didn't have time after she was born. I am a C3 Ventilator dependent
spinal cord injury. This July 1st will be 30 years post injury for me.
Anyway from the onset of my injury, I suffered from awful sensations of
cold in my arms. My arms felt like they were soaking in ice water. I
actually met someone else on the Quad-list with similar sensations. I
think his name was Greg and he eventually moved to Arizona where the
weather would be beneficial. I don't have that option. For most of the
30 years, I have been injured, I have been taking a medication called
Imipramine that helped take the edge off of the horrible cold
sensations. I recently had my second pseudo bowel obstruction (ileus)
and had my second abdominal surgery. The doctors stopped the
Imipramine, because of concerns that it contributed to decreasing bowel
peristalsis.
So now, I have to find a different medication for my cold sensations. I
am looking for input from anybody that uses medications for any spinal
cord associated pain. I have heard of people using medications like
Lyrica or Neurontin. Anyone else out there get intense sensations of
cold in their arms? I am desperate for any kind of relief.
Thanks,
Eric
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