Re: [Felvtalk] Aloe Acemannan

[Ardy Robertson]

Tina,

You could ask Diamond Back Drugs in Arizona – www.diamondbackdrugs.com 
  – they are a compounding pharmacy, and you 
can call and get an actual person and ask about it.

Ardy

 

From: Felvtalk [mailto:felvtalk-boun...@felineleukemia.org] On Behalf Of Tina 
Terrell
Sent: Sunday, December 25, 2016 7:14 AM
To: felvtalk@felineleukemia.org
Subject: [Felvtalk] Aloe Acemannan

 

Hello and Merry Christmas.  I am in need of finding freeze dried acemannan. 
They have discontinued and it is helping my Charlie leaps and bounds. He has 
been off of it for 2 weeks and now he is sick with uri. Is steroid and 
antibiotic typical protocol?  Thanks in advance!

Tina Terrell

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Re: [Felvtalk] Felvtalk Digest, Vol 32, Issue 58

[Ardy Robertson]

Hi Robert,
I'm so sorry it might be coming to the end for your little sweetie. When I lost 
my Tigger, I could not decide what to do either. By the time I was ready to 
call the vet to put him down, they were closed, and their emergency answering 
service said they were all over an hour away, so they were not available, and 
in the end - it ended up being the best solution. We held Tigger and he felt 
comfortable with us. He hated going to the vet and was afraid, and I did not 
like putting him through it at this most critical time. He passed within a few 
minutes, and was comfortable and not afraid with us talking to him, telling him 
how much we loved him. Of course it was horrible for us, but in this situation, 
it turned out to be better for him to be at home. But whatever decision you 
make, it will be the best one because you have done so much for your 
fur-babies, they love and appreciate you.
Ardy


-Original Message-
From: Felvtalk [mailto:felvtalk-boun...@felineleukemia.org] On Behalf Of ROBERT 
CHAPEL
Sent: Saturday, December 24, 2016 1:54 PM
To: felvtalk@felineleukemia.org
Subject: Re: [Felvtalk] Felvtalk Digest, Vol 32, Issue 58

Amani et al

Any idea of the life expectancy of untreated non regenerative anemia in a FeLV 
catGot a call on Yogi's  Most Recent Bloodwork and the vet states HCT of 14 
and non regenerative anemia  I was taken aback and didn't ask nearly enough 
questions but it was VERY clear that she felt it was time to put the little guy 
down.   I am at the end of my money at this point and cannot take him to a 
bunch of other vets hoping one will be willing to prescribe the cocktail that 
is showing itself to be effective with others cats...( I don't think I am going 
to get a lot of cooperation from the Vet I was using after I gave her my 
opinion of her unwillingness to help me through unconventional means).Nor 
can I afford Bone Marrow Biopsies and more definitive narrowing of the 
parameters of his drop in blood values ( it's Xmas eve and they are all gone 
from the office)   As much as I would like to save this little guy... He 
has so many other things wrong with him that I don't know that I a
 m doing him any favors. Temp is 104...weight has dropped a full pound in 
the last 6 months If it weren't for the fact that he is still eating 
heartily I'd put him down Without further treatment is it kinder to put him 
down or allow nature to take it's course??.The idea of him suffering from 
an inability to get enough O2 is unacceptable
any suggestions are welcome but... please...  no admonitions re: 
what I _ should_ do.I have learned an immense amount from this 
experience and will NOT repeat it...  My other boy is still doing OK and I WILL 
find someone eventually that is willing to work with me..



On Sat, Dec 24, 2016 at 01:00 PM, felvtalk-requ...@felineleukemia.org
wrote:

> Send Felvtalk mailing list submissions to
>   felvtalk@felineleukemia.org
>
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>
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>
> or, via email, send a message with subject or body 'help' to
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>
> When replying, please edit your Subject line so it is more specific 
> than "Re: Contents of Felvtalk digest..."
>
>
> Today's Topics:
>
>1. FW:  FW: Questioning FELV diagnosis (Amani Oakley)
>
>
> --
>
> Message: 1
> Date: Fri, 23 Dec 2016 18:16:02 +
> From: Amani Oakley To: "felvtalk@felineleukemia.org" Subject: 
> [Felvtalk] FW:  FW: Questioning FELV diagnosis
> Message-ID:
>   
> Content-Type: text/plain; charset="utf-8"
>
> Randy
>
> The news is good. Whatever works. I am a big believer in keeping close 
> tabs on the bloodwork and adjusting the medication, depending on what 
> the lab results show.
>
> Given that Curley is eating and you are getting an improvement on the 
> red cells already, I agree that the Winstrol and Doxy should help even 
> more. Keep track of the blood work and adjust accordingly.
>
> Amani
>
> From: Felvtalk [mailto:felvtalk-boun...@felineleukemia.org] On Behalf 
> Of Randy Henke
> Sent: December-23-16 11:02 AM
> To: felvtalk@felineleukemia.org
> Subject: Re: [Felvtalk] FW: Questioning FELV diagnosis
>
> The situation with Curly is getting a bit more complicated but in a 
> good way. Her blood work a week ago showed an RBC of 9 which is 
> critically low. White cell count was 3.1. After one week of Prednisone 
> her white cell count is 3.7 which is the low end of normal and her red 
> blood cell count is up to 13 which is still very low but a very 
> significant increase in just one week. So the Prednisone alone is 
> making a big difference. We've now had two positive ELISA tests, a 
> negative IFA and severe 

Re: [Felvtalk] My Location...should you find an open minded vet...

[dlgegg]

Robert, I know how it is, I am on SS myself.  I have a great vet who will let 
me pay off large bills in payments which helps.  Just keep praying that things 
will go better.

 ROBERT CHAPEL  wrote: 
> Thank you Amani and Ardy for thinking of me   I am located in a part 
of NYS called Southern Orange County... The largest nearby towns are 
Middletown, Monroe,Newburgh but I'd be willing to travel a distance for 
a chance at a real result ( eg The Vet Opthalmologist I am using is 
50 miles away)... NYC is 60 miles from me. Problem is that soon my 
time availability is going to be compromised by my need to return to 
work in order to afford the basics of life.  I know for some a few 
thousand dollars is not much but for me in retirement it comprises a 
very large portion of my living expenses for a few months ( I 
do...after all, have a couple of needs of my own as wellsuch as food 
and gas and a mortgage to pay  : )
Any assistance you could lend would be well appreciated   I've done 
more than a bit of asking around but am not well connected enough in 
this "other" medical world yet to have confidence that I won't be 
wasting still more money to hear crap that I already know 10 times 
over.  Kind of the same conundrum as my going to a new MD for a drug 
I've been on for 40 years He knows nothing about it but I need HIS 
sig to  get it and until he knows me he's not going to trust that I know 
what I'm talking about... or if he's really full of himself may not take 
the time to listen to whether I even do It's THAT kind of money 
wasting I am no longer willing to do Please forgive the building 
frustration but being held captive by someones prescription pad while 
their brain is too closed to allow me a chance at saving my little boy 
is REALLY working on me    Winstrol,Doxy and Pred in combo don't 
come near the price of one Bone Marrow aspiration and are a heck of a 
lot cheaper than Epopoieten which is of little use in a non regenerative 
anemia Don't tell me there's nothing tha you CAN do when it's 
actually that there is nothing that you WILL do. Ok... I'll stop

On Sun, Dec 25, 2016 at 01:00 PM, felvtalk-requ...@felineleukemia.org 
wrote:

> Send Felvtalk mailing list submissions to
>   felvtalk@felineleukemia.org
>
> To subscribe or unsubscribe via the World Wide Web, visit
>
> http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org
>
> or, via email, send a message with subject or body 'help' to
>   felvtalk-requ...@felineleukemia.org
>
> You can reach the person managing the list at
>   felvtalk-ow...@felineleukemia.org
>
> When replying, please edit your Subject line so it is more specific
> than "Re: Contents of Felvtalk digest..."
>
>
> Today's Topics:
>
>1. Re: Felvtalk Digest, Vol 32, Issue 58 (Amani Oakley)
>2. Re: FelV kitten (Amani Oakley)
>3. Aloe Acemannan (Tina Terrell)
>4. Re: FelV kitten (Margo)
>
>
> --
>
> Message: 1
> Date: Sun, 25 Dec 2016 05:18:21 +
> From: Amani Oakley To: "felvtalk@felineleukemia.org" Subject: Re: 
> [Felvtalk] Felvtalk Digest, Vol 32, Issue 58
> Message-ID:
>   
> Content-Type: text/plain; charset="utf-8"
>
> Bob
>
> At 14 haematocrit, you've got a ways to go before your boy is in 
> crisis. I know you have tried everything Bob, and you are struggling 
> with costs, but if you could find a vet to prescribe the drug 
> combination we have discussed, would you do it? It isn?t all that 
> expensive really. If you tell me or Ardy directly , where you are 
> located, we can try to find a vet through Diamond Back compounding 
> pharmacy. I know how attached you are to your little boy, and frankly, 
> if he is still eating, I wouldn?t give up on him yet.
>
> Amani
>
> -Original Message-
> From: Felvtalk [mailto:felvtalk-boun...@felineleukemia.org] On Behalf 
> Of ROBERT CHAPEL
> Sent: December-24-16 2:54 PM
> To: felvtalk@felineleukemia.org
> Subject: Re: [Felvtalk] Felvtalk Digest, Vol 32, Issue 58
>
> Amani et al
>
> Any idea of the life expectancy of untreated non regenerative anemia 
> in a FeLV catGot a call on Yogi's? Most Recent Bloodwork and the 
> vet states HCT of 14 and non regenerative anemia? I was taken 
> aback and didn't ask nearly enough questions but it was VERY clear 
> that she felt it was time to put the little guy down.?? I am at 
> the end of my money at this point and cannot take him to a bunch of 
> other vets hoping one will be willing to prescribe the cocktail that 
> is showing itself to be effective with others cats...( I don't think I 
> am going to get a lot of cooperation from the Vet I was using after I 
> gave her my opinion of her unwillingness to help me through 
> unconventional means).Nor can I afford Bone Marrow Biopsies and 
> more definitive narrowing of the parameters of his drop in blood 
> 

Re: [Felvtalk] My Location...should you find an open minded vet...

[ROBERT CHAPEL]

Thank you Amani and Ardy for thinking of me   I am located in a part 
of NYS called Southern Orange County... The largest nearby towns are 
Middletown, Monroe,Newburgh but I'd be willing to travel a distance for 
a chance at a real result ( eg The Vet Opthalmologist I am using is 
50 miles away)... NYC is 60 miles from me. Problem is that soon my 
time availability is going to be compromised by my need to return to 
work in order to afford the basics of life.  I know for some a few 
thousand dollars is not much but for me in retirement it comprises a 
very large portion of my living expenses for a few months ( I 
do...after all, have a couple of needs of my own as wellsuch as food 
and gas and a mortgage to pay  : )
Any assistance you could lend would be well appreciated   I've done 
more than a bit of asking around but am not well connected enough in 
this "other" medical world yet to have confidence that I won't be 
wasting still more money to hear crap that I already know 10 times 
over.  Kind of the same conundrum as my going to a new MD for a drug 
I've been on for 40 years He knows nothing about it but I need HIS 
sig to  get it and until he knows me he's not going to trust that I know 
what I'm talking about... or if he's really full of himself may not take 
the time to listen to whether I even do It's THAT kind of money 
wasting I am no longer willing to do Please forgive the building 
frustration but being held captive by someones prescription pad while 
their brain is too closed to allow me a chance at saving my little boy 
is REALLY working on me    Winstrol,Doxy and Pred in combo don't 
come near the price of one Bone Marrow aspiration and are a heck of a 
lot cheaper than Epopoieten which is of little use in a non regenerative 
anemia Don't tell me there's nothing tha you CAN do when it's 
actually that there is nothing that you WILL do. Ok... I'll stop


On Sun, Dec 25, 2016 at 01:00 PM, felvtalk-requ...@felineleukemia.org 
wrote:



Send Felvtalk mailing list submissions to
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or, via email, send a message with subject or body 'help' to
felvtalk-requ...@felineleukemia.org

You can reach the person managing the list at
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When replying, please edit your Subject line so it is more specific
than "Re: Contents of Felvtalk digest..."


Today's Topics:

   1. Re: Felvtalk Digest, Vol 32, Issue 58 (Amani Oakley)
   2. Re: FelV kitten (Amani Oakley)
   3. Aloe Acemannan (Tina Terrell)
   4. Re: FelV kitten (Margo)


--

Message: 1
Date: Sun, 25 Dec 2016 05:18:21 +
From: Amani Oakley To: "felvtalk@felineleukemia.org" Subject: Re: 
[Felvtalk] Felvtalk Digest, Vol 32, Issue 58

Message-ID:

Content-Type: text/plain; charset="utf-8"

Bob

At 14 haematocrit, you've got a ways to go before your boy is in 
crisis. I know you have tried everything Bob, and you are struggling 
with costs, but if you could find a vet to prescribe the drug 
combination we have discussed, would you do it? It isn?t all that 
expensive really. If you tell me or Ardy directly , where you are 
located, we can try to find a vet through Diamond Back compounding 
pharmacy. I know how attached you are to your little boy, and frankly, 
if he is still eating, I wouldn?t give up on him yet.


Amani

-Original Message-
From: Felvtalk [mailto:felvtalk-boun...@felineleukemia.org] On Behalf 
Of ROBERT CHAPEL

Sent: December-24-16 2:54 PM
To: felvtalk@felineleukemia.org
Subject: Re: [Felvtalk] Felvtalk Digest, Vol 32, Issue 58

Amani et al

Any idea of the life expectancy of untreated non regenerative anemia 
in a FeLV catGot a call on Yogi's? Most Recent Bloodwork and the 
vet states HCT of 14 and non regenerative anemia? I was taken 
aback and didn't ask nearly enough questions but it was VERY clear 
that she felt it was time to put the little guy down.?? I am at 
the end of my money at this point and cannot take him to a bunch of 
other vets hoping one will be willing to prescribe the cocktail that 
is showing itself to be effective with others cats...( I don't think I 
am going to get a lot of cooperation from the Vet I was using after I 
gave her my opinion of her unwillingness to help me through 
unconventional means).Nor can I afford Bone Marrow Biopsies and 
more definitive narrowing of the parameters of his drop in blood 
values ( it's Xmas eve and they are all gone from the office)?? As 
much as I would like to save this little guy... He has so many other 
things wrong with him that I don't know that I a
 m doing him any favors. Temp is 104...weight has dropped a full 
pound in the last 6 months If it weren't for the fact that he is 
still eating 

Re: [Felvtalk] Felvtalk Digest, Vol 32, Issue 60

[ROBERT CHAPEL]

If I could find a vet that I KNEW would prescribe the med combination I 
need and not charge me for a dozen visits before doing so I would 
DEFINITELY do it...  It's very strange for me to be part of this 
Veterinary world now  where my word holds no sway after years in the 
Human medical world where I needed only ask an MD colleague for anything 
I needed and " price free " would have a script in hand in moments  
Yeah, I get that stanazol is a scheduled drug but the risk to the vet 
can't be all that large given the ridiculously small dosages we're 
talking about..   I am getting progressively more and more 
frustrated and angry about having MY OWN and my animals very lives held 
captive by " business" men and women who are ( more often than not) 
either disinclined to step outside their comfort zone or simply do not 
care enough to try harder ( all while charging us plenty to NOT provide 
what we need and want)  I would also like the opportunity to "Educate" 
those vets who refused  to prescribe Winstrol/Doxy/Pred and recommended 
that my cat be either Euthanized or allowed to fade away because there 
was really nothing they could do, definitively,to prolong his life 
to send pictures of a functional cat that they would have had dead on a 
table had I listened and urge that they rethink their priorities when 
another pet owner comes to them hoping to get more time with the little 
friend they love What are they there for ANYWAY!!  It's not like the 
old days where a vet visit was the price of a sandwich and you didn't 
have to remortgage your house to take quality care of a pet.  This 
is simply UNACCEPTABLE...



On Sun, Dec 25, 2016 at 01:00 PM, felvtalk-requ...@felineleukemia.org 
wrote:



Send Felvtalk mailing list submissions to
felvtalk@felineleukemia.org

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or, via email, send a message with subject or body 'help' to
felvtalk-requ...@felineleukemia.org

You can reach the person managing the list at
felvtalk-ow...@felineleukemia.org

When replying, please edit your Subject line so it is more specific
than "Re: Contents of Felvtalk digest..."


Today's Topics:

   1. Re: Felvtalk Digest, Vol 32, Issue 58 (Amani Oakley)
   2. Re: FelV kitten (Amani Oakley)
   3. Aloe Acemannan (Tina Terrell)
   4. Re: FelV kitten (Margo)


--

Message: 1
Date: Sun, 25 Dec 2016 05:18:21 +
From: Amani Oakley To: "felvtalk@felineleukemia.org" Subject: Re: 
[Felvtalk] Felvtalk Digest, Vol 32, Issue 58

Message-ID:

Content-Type: text/plain; charset="utf-8"

Bob

At 14 haematocrit, you've got a ways to go before your boy is in 
crisis. I know you have tried everything Bob, and you are struggling 
with costs, but if you could find a vet to prescribe the drug 
combination we have discussed, would you do it? It isn?t all that 
expensive really. If you tell me or Ardy directly , where you are 
located, we can try to find a vet through Diamond Back compounding 
pharmacy. I know how attached you are to your little boy, and frankly, 
if he is still eating, I wouldn?t give up on him yet.


Amani

-Original Message-
From: Felvtalk [mailto:felvtalk-boun...@felineleukemia.org] On Behalf 
Of ROBERT CHAPEL

Sent: December-24-16 2:54 PM
To: felvtalk@felineleukemia.org
Subject: Re: [Felvtalk] Felvtalk Digest, Vol 32, Issue 58

Amani et al

Any idea of the life expectancy of untreated non regenerative anemia 
in a FeLV catGot a call on Yogi's? Most Recent Bloodwork and the 
vet states HCT of 14 and non regenerative anemia? I was taken 
aback and didn't ask nearly enough questions but it was VERY clear 
that she felt it was time to put the little guy down.?? I am at 
the end of my money at this point and cannot take him to a bunch of 
other vets hoping one will be willing to prescribe the cocktail that 
is showing itself to be effective with others cats...( I don't think I 
am going to get a lot of cooperation from the Vet I was using after I 
gave her my opinion of her unwillingness to help me through 
unconventional means).Nor can I afford Bone Marrow Biopsies and 
more definitive narrowing of the parameters of his drop in blood 
values ( it's Xmas eve and they are all gone from the office)?? As 
much as I would like to save this little guy... He has so many other 
things wrong with him that I don't know that I a
 m doing him any favors. Temp is 104...weight has dropped a full 
pound in the last 6 months If it weren't for the fact that he is 
still eating heartily I'd put him down Without further treatment 
is it kinder to put him down or allow nature to take it's 
course??.The idea of him suffering from an inability to get enough 
O2 is unacceptable
any suggestions are welcome but... please...? no admonitions re: 
what I _ 

Re: [Felvtalk] FelV kitten

[Margo]

 Lorrie wrote "If you had started your little guy on Winstrol a few weeks ago it
might have saved his life, but it is probably too late now."

And it might have done nothing. Th young ones seem to have little in reserve to 
let them fight the disease. No point in second-guessing what might have been, 
it can only be hurtful. If you can't find a Vet that will cooperate, there's 
not much that can be done by a lay-person, except to love them and do the best 
you can with what you have available.

Margo


-Original Message-
>From: Lorrie 
>Sent: Dec 24, 2016 5:49 PM
>To: felvtalk@felineleukemia.org
>Subject: [Felvtalk] FelV kitten
>
>Robert,  I am so sorry you are going thru this. I have lost many
>kittens who were born with the virus, which they got from their
>mother who was feral. All these precious kittens died at less than a
>year.  At first they were so playful and looked so healthy I thought
>the two tests I'd had were surely wrong, but at 8 months I started to
>lose them one by one.  The 4th and last (my favorite) made it to 11
>months.  I was devastated.
>
>On the other hand I have had several older cats at my sanctuary who must 
>have contracted the virus when older.  One died suddenly at 7 years
>old and the other is now 8 years old, and she has never been sick. 
>You never know what will happen.  
>
>If you had started your little guy on Winstrol a few weeks ago it
>might have saved his life, but it is probably too late now. 
>
>I just wanted to tell you I am so sorry, and I know what you are
>going thru.
>
>Lorrie with 13 rescued cats at home and 32 in my sanctuary.
>
>
>On 12-24, ROBERT CHAPEL wrote:
>> Amani et al
>> 
>> Any idea of the life expectancy of untreated non regenerative anemia in 
>> a FeLV catGot a call on Yogi's  Most Recent Bloodwork and the vet 
>> states HCT of 14 and non regenerative anemia  I was taken aback and 
>> didn't ask nearly enough questions but it was VERY clear that she felt 
>> it was time to put the little guy down.   I am at the end of my 
>> money at this point and cannot take him to a bunch of other vets hoping 
>> one will be willing to prescribe the cocktail that is showing itself to 
>> be effective with others cats...( I don't think I am going to get a lot 
>> of cooperation from the Vet I was using after I gave her my opinion of 
>> her unwillingness to help me through unconventional means).Nor can I 
>> afford Bone Marrow Biopsies and more definitive narrowing of the 
>> parameters of his drop in blood values ( it's Xmas eve and they are all 
>> gone from the office)   As much as I would like to save this little 
>> guy... He has so many other things wrong with him that I don't know that 
>> I am doing him any favors. Temp is 104...weight has dropped a full 
>> pound in the last 6 months If it weren't for the fact that he is 
>> still eating heartily I'd put him down Without further treatment is 
>> it kinder to put him down or allow nature to take it's course??.The 
>> idea of him suffering from an inability to get enough O2 is 
>> unacceptable
>> any suggestions are welcome but... please...  no admonitions re: 
>> what I _ should_ do.    I have learned an immense amount from this 
>> experience and will NOT repeat it...  My other boy is still doing OK and 
>> I WILL find someone eventually that is willing to work with me..
>> 
>
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[Felvtalk] Aloe Acemannan

[Tina Terrell]

Hello and Merry Christmas.  I am in need of finding freeze dried acemannan.
They have discontinued and it is helping my Charlie leaps and bounds. He
has been off of it for 2 weeks and now he is sick with uri. Is steroid and
antibiotic typical protocol?  Thanks in advance!
Tina Terrell
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