Re: [CMLHope] Today's
Beth, hugs and prayers to you and your dog. Hope she's getting stronger every day. Much love, Marcie Sent from my iPad > On May 24, 2015, at 11:01 PM, ANGELYN ESDERS wrote: > > I am so sorry that your dog was attacked and brutalized! We love our dog like > a 3rd child and hate so much to see them in pain. I am so sorry this > happened to you. Hoping she will recover soon~~ > Angie > > From: bkbarney via CMLHope > To: cmlhope@googlegroups.com > Sent: Sunday, May 24, 2015 9:00 PM > Subject: Re: [CMLHope] Today's > > Happy Birthday to Marty and your sweet wife. > You do kick a...and you are our hero..inspiration and all around nice > guy. :) > > Great news from Richard too!! > > I will do BCR abl in a couple weeks and let the group know how I am.. > > Rough week...Monday I was walking my dog and she got attacked by a very large > dog.., picked up three feet in the air and shaken...so we have been in the > dog ICU since Monday...tried to take her home, 12 hour later back in the ICU, > complications, abyses, etc..drains, surgery to remove dead tissuebut she > is amazing...when I brought her home..today...( tomorrow she goes in for a > new drain because the old one did not work properly..) she looked at the > stairs and one at a time...very slowly... > she went up to her favorite place to lay down...it's like Marty doing push > ups on the commode, ..and by the way 3500 .I don't know anyone who can do > that number at any age Marty..so you are amazing... > > anyway...we are taking it one day at at time..but making progress towards > healing...each and everyone of us. > Love and 18's to all, Beth > > > -Original Message- > From: Richard H > To: cmlhope > Sent: Thu, May 21, 2015 11:01 pm > Subject: Re: [CMLHope] Today's > > Yeah, Marty! Another challenge another kick AZZ success. Happy Birthday to > you (2x) and your wife. I know you are soaking up that beautiful View from > you picture window and that is charging your energy level beyond belief. > > Richard H. > > On Thursday, May 21, 2015 at 5:59:59 AM UTC-5, wa2yyx wrote: > Hi Susan and everyone else. > > Well another hospital stay but I just got home yesterday. This time it was > phenomena so I was started on an iv antibiotic which I will have with me for > about two more weeks. Anyway it was my goal to celebrate my wife's birthday > which was on May 20th and mine is actually today and also my second birthday > of my bone marrow transplant back in May 21st 1989. > > So I just put my golden attitude hat on (Zavie Millers zero club number one > is what he personally assigned to me in my home a very long time ago. > > So what happened? I got my AZZ right out of bed with my IV pole and got out > of my room and started walking. I walked three times a day up and down the > hallways of my ward. Once I got back to my room I rested then grabbed onto > the sinks counter top and did some modified push up's. I kept on using that > plastic breathing machine to suck air into my lungs so that I was able to > cough up whatever was in my lungs I was finally able to make the float reach > 3,500 and do it for ten consecutive times in a row. > > One of my doctors was standing right there and he said that he couldn't even > do that himself. > Well I did all of this for a week and I was finally discharged but with a > picc line and a portable antibiotic pump that I am able to carry around with > me. I have a home care nurse that changes the IV bag every other day or so. > > Today is some of my doctor appointments as well as my blood work. Man am I > happy about that picc line no more needle holes all over my black and blue > arms > > Listen folks please don't consider me to be a super hero but someone that has > a kick AZZ healing attitude, and as long as I am alive it will always be with > me. > > I told all of you this story so that you will realize that you can help > yourself by having this kind of attitude. This is what I did when I used to > live in that small plastic bubble (luminous Air Flow Chamber, and I will > never forgot how it helped me. Not the chamber but my attitude. > > I beg each one of you to try and do what I did because it works for me and > with a little effort it can for you. Just start very slowly and let your mind > control your body. Remember what I once told you, Leukemia is a disease of > not only the body but the mind as we.. > > 8's, > > Marty > > On Wed, May 20, 2015 at 4:28 PM, rszim0702 via CMLHope > wrote: > Guess you and I are kind of on the same track.both were off everything > for quite some time, now my number is .01%, near 0and you are, too! > Every day is a gift. We will be on vacay next week in Virginia, but I will > catch up to your results sometime after Tuesday! > Going to the Shenandoah Mountains for some R & R for my stressed-out husband. > Best wishes! > 18's, > Susan F. Zimmerman > > > -Original Message--
Re: [CMLHope] Today's
Hi Beth, First Shelly and I would like to thank you for your birthday wishes. Now for a couple of corrections. Yes I do try to kick azz but I don't do any pushups on the commode, there are only two things that I use the commode for. Up until recently it was only one thing but since my kidney transplant and TURP operation I am happy to report that I now can do both of those things on the commode[?] How I do my pushups is by holding the edge of my kitchen sink countertop so as not to fall and use my arms to do those pushups using an up and down motion. When I'm feeling good i can usually can do up to 50, then later on another 50. As far as that number 3500, that is how high I can get using that plastic machine i believe is called a spirometer. It is where you put the end of the tube in your mouth and suck inward and the float inside starts to rise. I can do it for about 10 times consecutive, some times I can get it up to 3500 and sometimes just a bit lower to about 3000. Anyway my wife is not so sweet if these doctors or hospital try to mess with me or her, but I think that I have already mentioned it to everyone. If not then let me know and I will send it out that story once again. The one thing that I have learned in our almost 40 years of marriage is to never, and I mean never call her Rachel. Her name is Rochelle, so I call her Shelly. When ever anyone calls her Rachel she is always ready to correct them and makes a point of it.[?] Now I have learned from her whenever someone calls me Marin instead of Martin which is a sign of having a lazy tongue or a lack of attention on their part. Good luck to Richard on his upcoming test Beth, I am very sorry to hear what happened to your dog I hope that it is finally able to recover and is comfortably able to rest. I am an animal lover and when I rescued my current dog from the pound just a day before she was going to be put down I made a pact with her that I always do with any of my previous dogs. As I was petting her I told her that no matter what she did that I would never hit her, and she has to respect me and my family and never bite any of us. So far it has been more then 8 years and our pact is still in order. 18's, Marty Happy Birthday to Marty and your sweet wife. You do kick a...and you are our hero..inspiration and all around nice guy. :) Great news from Richard too!! I will do BCR abl in a couple weeks and let the group know how I am.. Rough week...Monday I was walking my dog and she got attacked by a very large dog.., picked up three feet in the air and shaken...so we have been in the dog ICU since Monday...tried to take her home, 12 hour later back in the ICU, complications, abyses, etc..drains, surgery to remove dead tissuebut she is amazing...when I brought her home..today...( tomorrow she goes in for a new drain because the old one did not work properly..) she looked at the stairs and one at a time...very slowly... she went up to her favorite place to lay down...it's like Marty doing push ups on the commode, ..and by the way 3500 .I don't know anyone who can do that number at any age Marty..so you are amazing... anyway...we are taking it one day at at time..but making progress towards healing...each and everyone of us. Love and 18's to all, Beth On Sun, May 24, 2015 at 9:00 PM, bkbarney via CMLHope < cmlhope@googlegroups.com> wrote: > Happy Birthday to Marty and your sweet wife. > You do kick a...and you are our hero..inspiration and all around nice > guy. :) > > Great news from Richard too!! > > I will do BCR abl in a couple weeks and let the group know how I am.. > > Rough week...Monday I was walking my dog and she got attacked by a very > large dog.., picked up three feet in the air and shaken...so we have been > in the dog ICU since Monday...tried to take her home, 12 hour later back in > the ICU, complications, abyses, etc..drains, surgery to remove dead > tissuebut she is amazing...when I brought her home..today...( tomorrow > she goes in for a new drain because the old one did not work properly..) > she looked at the stairs and one at a time...very slowly... > she went up to her favorite place to lay down...it's like Marty doing push > ups on the commode, ..and by the way 3500 .I don't know anyone who can > do that number at any age Marty..so you are amazing... > > anyway...we are taking it one day at at time..but making progress > towards healing...each and everyone of us. > Love and 18's to all, Beth > > > -Original Message- > From: Richard H > To: cmlhope > Sent: Thu, May 21, 2015 11:01 pm > Subject: Re: [CMLHope] Today's > > Yeah, Marty! Another challenge another kick AZZ success. Happy > Birthday to you (2x) and your wife. I know you are soaking up that > beautiful View from you picture window and that is charging your energy > level beyond belief. > > Richard H. > > On Thursday, May 21, 2015 at 5:59:59 AM UTC-5, wa2yyx wrote: > >> Hi Susan and everyone else. >> >>
Re: [CMLHope] Today's
I am so sorry that your dog was attacked and brutalized! We love our dog like a 3rd child and hate so much to see them in pain. I am so sorry this happened to you. Hoping she will recover soon~~Angie From: bkbarney via CMLHope To: cmlhope@googlegroups.com Sent: Sunday, May 24, 2015 9:00 PM Subject: Re: [CMLHope] Today's Happy Birthday to Marty and your sweet wife.You do kick a...and you are our hero..inspiration and all around nice guy. :) Great news from Richard too!! I will do BCR abl in a couple weeks and let the group know how I am.. Rough week...Monday I was walking my dog and she got attacked by a very large dog.., picked up three feet in the air and shaken...so we have been in the dog ICU since Monday...tried to take her home, 12 hour later back in the ICU, complications, abyses, etc..drains, surgery to remove dead tissuebut she is amazing...when I brought her home..today...( tomorrow she goes in for a new drain because the old one did not work properly..) she looked at the stairs and one at a time...very slowly...she went up to her favorite place to lay down...it's like Marty doing push ups on the commode, ..and by the way 3500 .I don't know anyone who can do that number at any age Marty..so you are amazing... anyway...we are taking it one day at at time..but making progress towards healing...each and everyone of us. Love and 18's to all, Beth -Original Message- From: Richard H To: cmlhope Sent: Thu, May 21, 2015 11:01 pm Subject: Re: [CMLHope] Today's Yeah, Marty! Another challenge another kick AZZ success. Happy Birthday to you (2x) and your wife. I know you are soaking up that beautiful View from you picture window and that is charging your energy level beyond belief. Richard H. On Thursday, May 21, 2015 at 5:59:59 AM UTC-5, wa2yyx wrote: Hi Susan and everyone else. Well another hospital stay but I just got home yesterday. This time it was phenomena so I was started on an iv antibiotic which I will have with me for about two more weeks. Anyway it was my goal to celebrate my wife's birthday which was on May 20th and mine is actually today and also my second birthday of my bone marrow transplant back in May 21st 1989. So I just put my golden attitude hat on (Zavie Millers zero club number one is what he personally assigned to me in my home a very long time ago. So what happened? I got my AZZ right out of bed with my IV pole and got out of my room and started walking. I walked three times a day up and down the hallways of my ward. Once I got back to my room I rested then grabbed onto the sinks counter top and did some modified push up's. I kept on using that plastic breathing machine to suck air into my lungs so that I was able to cough up whatever was in my lungs I was finally able to make the float reach 3,500 and do it for ten consecutive times in a row. One of my doctors was standing right there and he said that he couldn't even do that himself. Well I did all of this for a week and I was finally discharged but with a picc line and a portable antibiotic pump that I am able to carry around with me. I have a home care nurse that changes the IV bag every other day or so. Today is some of my doctor appointments as well as my blood work. Man am I happy about that picc line no more needle holes all over my black and blue arms Listen folks please don't consider me to be a super hero but someone that has a kick AZZ healing attitude, and as long as I am alive it will always be with me. I told all of you this story so that you will realize that you can help yourself by having this kind of attitude. This is what I did when I used to live in that small plastic bubble (luminous Air Flow Chamber, and I will never forgot how it helped me. Not the chamber but my attitude. I beg each one of you to try and do what I did because it works for me and with a little effort it can for you. Just start very slowly and let your mind control your body. Remember what I once told you, Leukemia is a disease of not only the body but the mind as we.. 8's, Marty On Wed, May 20, 2015 at 4:28 PM, rszim0702 via CMLHope wrote: Guess you and I are kind of on the same track.both were off everything for quite some time, now my number is .01%, near 0and you are, too! Every day is a gift. We will be on vacay next week in Virginia, but I will catch up to your results sometime after Tuesday! Going to the Shenandoah Mountains for some R & R for my stressed-out husband. Best wishes! 18's, Susan F. Zimmerman -Original Message- From: Richard H < rbhuf...@gmail.com> To: cmlhope < cml...@googlegroups.com> Sent: Tue, May 19, 2015 11:59 pm Subject: Re: [CMLHope] Today's CBC Thanks! But after a 15-17 log reduction three months ago I only had a 1.795% left to go to zero.. I am expecting the best. I had a phone call from ONC's nu
Re: [CMLHope] Today's
Happy Birthday to Marty and your sweet wife. You do kick a...and you are our hero..inspiration and all around nice guy. :) Great news from Richard too!! I will do BCR abl in a couple weeks and let the group know how I am.. Rough week...Monday I was walking my dog and she got attacked by a very large dog.., picked up three feet in the air and shaken...so we have been in the dog ICU since Monday...tried to take her home, 12 hour later back in the ICU, complications, abyses, etc..drains, surgery to remove dead tissuebut she is amazing...when I brought her home..today...( tomorrow she goes in for a new drain because the old one did not work properly..) she looked at the stairs and one at a time...very slowly... she went up to her favorite place to lay down...it's like Marty doing push ups on the commode, ..and by the way 3500 .I don't know anyone who can do that number at any age Marty..so you are amazing... anyway...we are taking it one day at at time..but making progress towards healing...each and everyone of us. Love and 18's to all, Beth -Original Message- From: Richard H To: cmlhope Sent: Thu, May 21, 2015 11:01 pm Subject: Re: [CMLHope] Today's Yeah, Marty! Another challenge another kick AZZ success. Happy Birthday to you (2x) and your wife. I know you are soaking up that beautiful View from you picture window and that is charging your energy level beyond belief. Richard H. On Thursday, May 21, 2015 at 5:59:59 AM UTC-5, wa2yyx wrote: Hi Susan and everyone else. Well another hospital stay but I just got home yesterday. This time it was phenomena so I was started on an iv antibiotic which I will have with me for about two more weeks. Anyway it was my goal to celebrate my wife's birthday which was on May 20th and mine is actually today and also my second birthday of my bone marrow transplant back in May 21st 1989. So I just put my golden attitude hat on (Zavie Millers zero club number one is what he personally assigned to me in my home a very long time ago. So what happened? I got my AZZ right out of bed with my IV pole and got out of my room and started walking. I walked three times a day up and down the hallways of my ward. Once I got back to my room I rested then grabbed onto the sinks counter top and did some modified push up's. I kept on using that plastic breathing machine to suck air into my lungs so that I was able to cough up whatever was in my lungs I was finally able to make the float reach 3,500 and do it for ten consecutive times in a row. One of my doctors was standing right there and he said that he couldn't even do that himself. Well I did all of this for a week and I was finally discharged but with a picc line and a portable antibiotic pump that I am able to carry around with me. I have a home care nurse that changes the IV bag every other day or so. Today is some of my doctor appointments as well as my blood work. Man am I happy about that picc line no more needle holes all over my black and blue arms Listen folks please don't consider me to be a super hero but someone that has a kick AZZ healing attitude, and as long as I am alive it will always be with me. I told all of you this story so that you will realize that you can help yourself by having this kind of attitude. This is what I did when I used to live in that small plastic bubble (luminous Air Flow Chamber, and I will never forgot how it helped me. Not the chamber but my attitude. I beg each one of you to try and do what I did because it works for me and with a little effort it can for you. Just start very slowly and let your mind control your body. Remember what I once told you, Leukemia is a disease of not only the body but the mind as we.. 8's, Marty On Wed, May 20, 2015 at 4:28 PM, rszim0702 via CMLHope wrote: Guess you and I are kind of on the same track.both were off everything for quite some time, now my number is .01%, near 0and you are, too! Every day is a gift. We will be on vacay next week in Virginia, but I will catch up to your results sometime after Tuesday! Going to the Shenandoah Mountains for some R & R for my stressed-out husband. Best wishes! 18's, Susan F. Zimmerman -Original Message- From: Richard H < rbhuf...@gmail.com> To: cmlhope < cml...@googlegroups.com> Sent: Tue, May 19, 2015 11:59 pm Subject: Re: [CMLHope] Today's CBC Thanks!
Re: [CMLHope] Platelets
I have stayed in Chennaiwith its beautiful long beach. The water of the Indian Ocean was as warm as bath water! Wonderful memories~~Here in Canada, of course, we have no papaya trees, so I must order the purest product I can find from elsewhere.Angie From: 'Icandoallttc' via CMLHope To: "cmlhope@googlegroups.com" Sent: Sunday, May 24, 2015 12:29 PM Subject: Re: [CMLHope] Platelets Yes my onc stopped my meds which were Tasigna at the time and also insisted on blood transfusion. Good luck. Prayers & Blessings Jeanie 🐟🐟18,sDx 1/2004Started Gleevec 2/2004Started Tasigna 9/2009Started Sprycel 11/2009Started Ponatinib January 2015 On May 24, 2015, at 9:24 AM, Gopalsamy Ragavan wrote: Please take care. Because low platelet counts need more self care. My counts also went low. But my oncologist stops the medicine once it reaches low and then allows to recover to restart the medicine. I didnt know organic papaya leaf tea is available readily made. I collect Papaya leaves from friends and make the powder at home. I live in Chennai, which is a metro city in south of India. Hope your platelet counts improve soon. regards, Ragavan On Sun, May 24, 2015 at 7:37 AM, ANGELYN ESDERS wrote: Thank you very much, Ragavan, for your suggestion.I immediately ordered some organic papaya leaf tea and I am awaiting its arrival.I can't wait to try it as my platelets are still so very low in number. Minimum level is 150-450.I have 9. I have red spots all over me and big, purple "bruises" from anywhere I am touched.I have traveled in India 3 times. In which part of India do you live?Angie From: Gopalsamy Ragavan To: cmlhope@googlegroups.com Sent: Tuesday, May 19, 2015 8:15 AM Subject: Re: [CMLHope] Platelets I am in India. I have given the method below. You can prepare it very easily. Or you can drink two spoons of papaya leaf extract in the morning. Procedure: Dry papaya leaves completely. Add cumin seeds and little black pepper and powder the dried papaya leaves. Keep it safe in a container. Add water to spoon full of papaya leaf powder and boil it. Filter it and drink warm. regards, Ragavan On Sun, May 17, 2015 at 6:33 PM, ANGELYN ESDERS wrote: Thank you very much for your reply.I will try to find papaya leaf tea.I am in Canada...where are you?Angie From: Gopalsamy Ragavan To: cmlhope@googlegroups.com Sent: Sunday, May 17, 2015 7:08 AM Subject: Re: [CMLHope] Platelets I have problems with platelet count. Diagnosed in 2012 Started with Gleevec. Now with Sprycel. With Sprycel, platelet counts go down. Started with 140mg per day and now taking 50mg per day. One moth of Sprycel medication and two months rest for platelet recovery. This is how current medication is going on. I take papaya leaf tea everyday to improve platelets. On Sat, May 16, 2015 at 9:29 AM, ANGELYN ESDERS wrote: Does anyone have problems maintaining their platelet level?Mine fall down to almost ZERO, which is a dangerous place to be. I am covered with big purple bruises and petechiae and look like I have been in a bar fight. Even a light scratch on my skin brings the blood to the surface. It is called Thrombocytopenia. My red cells also plummet and I had 6 blood transfusions last week.My confidence waivers a little as it seems they don't really know what to do about me. I have lots of complications. More specialists on the horizon, but every step forward is followed by 3 steps back. I am on massive prednisone for the moment.Can anyone share info on this?Angie in CanadaGleevec pioneer since 2001-- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://g
Re: [CMLHope] Platelets
Yes my onc stopped my meds which were Tasigna at the time and also insisted on blood transfusion. Good luck. Prayers & Blessings Jeanie 🐟🐟18,s Dx 1/2004 Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 > On May 24, 2015, at 9:24 AM, Gopalsamy Ragavan wrote: > > Please take care. Because low platelet counts need more self care. My counts > also went low. But my oncologist stops the medicine once it reaches low and > then allows to recover to restart the medicine. > > I didnt know organic papaya leaf tea is available readily made. I collect > Papaya leaves from friends and make the powder at home. > > I live in Chennai, which is a metro city in south of India. > > Hope your platelet counts improve soon. > > regards, > Ragavan > >> On Sun, May 24, 2015 at 7:37 AM, ANGELYN ESDERS wrote: >> Thank you very much, Ragavan, for your suggestion. >> I immediately ordered some organic papaya leaf tea and I am awaiting its >> arrival. >> I can't wait to try it as my platelets are still so very low in number. >> Minimum level is 150-450.I have 9. I have red spots all over me and big, >> purple "bruises" from anywhere I am touched. >> I have traveled in India 3 times. In which part of India do you live? >> Angie >> >> From: Gopalsamy Ragavan >> To: cmlhope@googlegroups.com >> Sent: Tuesday, May 19, 2015 8:15 AM >> Subject: Re: [CMLHope] Platelets >> >> I am in India. I have given the method below. >> >> You can prepare it very easily. Or you can drink two spoons of papaya leaf >> extract in the morning. >> >> Procedure: >> Dry papaya leaves completely. >> Add cumin seeds and little black pepper and powder the dried papaya leaves. >> Keep it safe in a container. >> >> Add water to spoon full of papaya leaf powder and boil it. >> Filter it and drink warm. >> >> regards, >> Ragavan >> >> >> >> >> >> >> On Sun, May 17, 2015 at 6:33 PM, ANGELYN ESDERS wrote: >> Thank you very much for your reply. >> I will try to find papaya leaf tea. >> I am in Canada...where are you? >> Angie >> >> From: Gopalsamy Ragavan >> To: cmlhope@googlegroups.com >> Sent: Sunday, May 17, 2015 7:08 AM >> Subject: Re: [CMLHope] Platelets >> >> I have problems with platelet count. Diagnosed in 2012 Started with Gleevec. >> Now with Sprycel. With Sprycel, platelet counts go down. Started with 140mg >> per day and now taking 50mg per day. One moth of Sprycel medication and two >> months rest for platelet recovery. This is how current medication is going >> on. I take papaya leaf tea everyday to improve platelets. >> >> >> >> On Sat, May 16, 2015 at 9:29 AM, ANGELYN ESDERS wrote: >> Does anyone have problems maintaining their platelet level? >> Mine fall down to almost ZERO, which is a dangerous place to be. I am >> covered with big purple bruises and petechiae and look like I have been in a >> bar fight. Even a light scratch on my skin brings the blood to the surface. >> It is called Thrombocytopenia. My red cells also plummet and I had 6 blood >> transfusions last week. >> My confidence waivers a little as it seems they don't really know what to do >> about me. I have lots of complications. More specialists on the horizon, but >> every step forward is followed by 3 steps back. I am on massive prednisone >> for the moment. >> Can anyone share info on this? >> Angie in Canada >> Gleevec pioneer since 2001 >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. >> >> >> -- >> -- >> [CMLHope] >> A suppo
Re: [CMLHope] Platelets
Hi Angie I don't remember my number either. It took so long for me to teach pcr. I finally reached it on Sprycel. If anybody has the list please let us know. Hang in there!! Prayers & Blessings Jeanie 🐟🐟18,s Dx 1/2004 Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 > On May 24, 2015, at 9:31 AM, ANGELYN ESDERS wrote: > > Dear ZavieI really don't remember my number on his list...maybe about > #68. It was in July 2001. We met him in Ottawa and he guided us through the > National Art Galler, and we had lunch together. . > Thanks for all the information. > Angie > > > > From: Marty Gartenberg > To: cmlhope@googlegroups.com > Sent: Sunday, May 24, 2015 8:58 AM > Subject: Re: [CMLHope] Platelets > > Hi Again Angie, > > Now it makes sense, so you are also "blessed" (yea right) with Lupus. Yes > that makes things more interesting. However you are also fighting your way > through it and I take my Zavies zero number one hat off to you. I hope that > you know what I'm talking about. > > Anyway I don't necessarily recommend papaya tea extract but you already > ordered it so you can start off with that, but I just sent you a site from > Puritans Pride with a lot of information. Please read it. > > 18's, > > Marty > > Thanks, Marty. I have ordered organic papaya leaf tea and will mix it as > Ragavan suggests. My excitement for this week was a "silent" heart attack. I > missed it. Felt nothing at all. Felt great all week. A blood test revealed a > high level of > Troponins in my blood and they got all excited and kept me in hospital for 3 > days doing various tests. I will learn the results this week. I see a > platelet specialist tomorrow. Maybe he will have more words of wisdom. I am > really happy to hear that you recommend papaya tea also and that it works. I > had 9 platelets on Friday (normal level 150-450) and my hemoglobin > had dropped into the low 80's. This seems to be an ongoing battle as my lupus > tries to kill my body one cell at a time. > Wishing all the best to you! 18's~ > Angie > > > > On Sun, May 24, 2015 at 8:43 AM, ANGELYN ESDERS wrote: > Thanks, Marty. I have ordered organic papaya leaf tea and will mix it as > Ragavan suggests. My excitement for this week was a "silent" heart attack. I > missed it. Felt nothing at all. Felt great all week. A blood test revealed a > high level of > Troponins in my blood and they got all excited and kept me in hospital for 3 > days doing various tests. I will learn the results this week. I see a > platelet specialist tomorrow. Maybe he will have more words of wisdom. I am > really happy to hear that you recommend papaya tea also and that it works. I > had 9 platelets on Friday (normal level 150-450) and my hemoglobin > had dropped into the low 80's. This seems to be an ongoing battle as my lupus > tries to kill my body one cell at a time. > Wishing all the best to you! 18's~ > Angie > From: Marty Gartenberg > To: cmlhope@googlegroups.com > Sent: Sunday, May 24, 2015 8:24 AM > Subject: Re: [CMLHope] Platelets > > Hi Angie, > > Please read this about the effects to not only your platelet counts but also > your red cell count. Ragavan gave you some valuable advice but you need to > find the best supplement that contains the best form of Papya leaf extract. > By the way when I had my bone marrow transplant one of my friends got me some > of it and it did work. > > Let me do some research and get back to you. In the meantime you must be > extremely careful not to injure your self. don't walk around barefoot or even > use slippers. It will not offer any protection if you should stub one of your > toes. I know all about that because it happened to me. > > OK on to some research. By the way I am slowly starting to recover from the > Staff infection in my lungs. I have a picc line and wear an infusion pump > 24/7 for the next few weeks. > > I will get back to you > > 18's, > > Marty > > http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3757281/ > > > > On Sat, May 23, 2015 at 10:07 PM, ANGELYN ESDERS wrote: > Thank you very much, Ragavan, for your suggestion. > I immediately ordered some organic papaya leaf tea and I am awaiting its > arrival. > I can't wait to try it as my platelets are still so very low in number. > Minimum level is 150-450.I have 9. I have red spots all over me and big, > purple "bruises" from anywhere I am touched. > I have traveled in India 3 times. In which part of India do you live? > Angie > > From: Gopalsamy Ragavan > To: cmlhope@googlegroups.com > Sent: Tuesday, May 19, 2015 8:15 AM > Subject: Re: [CMLHope] Platelets > > I am in India. I have given the method below. > > You can prepare it very easily. Or you can drink two spoons of papaya leaf > extract in the morning. > > Procedure: > Dry papaya leaves completely. > Add cumin seeds and little black pepper and powder the dried papaya leaves. > Ke
Re: [CMLHope] Platelets
Dear ZavieI really don't remember my number on his list...maybe about #68. It was in July 2001. We met him in Ottawa and he guided us through the National Art Galler, and we had lunch together. .Thanks for all the information.Angie From: Marty Gartenberg To: cmlhope@googlegroups.com Sent: Sunday, May 24, 2015 8:58 AM Subject: Re: [CMLHope] Platelets Hi Again Angie, Now it makes sense, so you are also "blessed" (yea right) with Lupus. Yes that makes things more interesting. However you are also fighting your way through it and I take my Zavies zero number one hat off to you. I hope that you know what I'm talking about. Anyway I don't necessarily recommend papaya tea extract but you already ordered it so you can start off with that, but I just sent you a site from Puritans Pride with a lot of information. Please read it. 18's, Marty Thanks, Marty. I have ordered organic papaya leaf tea and will mix it as Ragavan suggests. My excitement for this week was a "silent" heart attack. I missed it. Felt nothing at all. Felt great all week. A blood test revealed a high level of Troponins in my blood and they got all excited and kept me in hospital for 3 days doing various tests. I will learn the results this week. I see a platelet specialist tomorrow. Maybe he will have more words of wisdom. I am really happy to hear that you recommend papaya tea also and that it works. I had 9 platelets on Friday (normal level 150-450) and my hemoglobinhad dropped into the low 80's. This seems to be an ongoing battle as my lupus tries to kill my body one cell at a time.Wishing all the best to you! 18's~ Angie On Sun, May 24, 2015 at 8:43 AM, ANGELYN ESDERS wrote: Thanks, Marty. I have ordered organic papaya leaf tea and will mix it as Ragavan suggests. My excitement for this week was a "silent" heart attack. I missed it. Felt nothing at all. Felt great all week. A blood test revealed a high level of Troponins in my blood and they got all excited and kept me in hospital for 3 days doing various tests. I will learn the results this week. I see a platelet specialist tomorrow. Maybe he will have more words of wisdom. I am really happy to hear that you recommend papaya tea also and that it works. I had 9 platelets on Friday (normal level 150-450) and my hemoglobinhad dropped into the low 80's. This seems to be an ongoing battle as my lupus tries to kill my body one cell at a time.Wishing all the best to you! 18's~ Angie From: Marty Gartenberg To: cmlhope@googlegroups.com Sent: Sunday, May 24, 2015 8:24 AM Subject: Re: [CMLHope] Platelets Hi Angie, Please read this about the effects to not only your platelet counts but also your red cell count. Ragavan gave you some valuable advice but you need to find the best supplement that contains the best form of Papya leaf extract. By the way when I had my bone marrow transplant one of my friends got me some of it and it did work. Let me do some research and get back to you. In the meantime you must be extremely careful not to injure your self. don't walk around barefoot or even use slippers. It will not offer any protection if you should stub one of your toes. I know all about that because it happened to me. OK on to some research. By the way I am slowly starting to recover from the Staff infection in my lungs. I have a picc line and wear an infusion pump 24/7 for the next few weeks. I will get back to you 18's, Marty http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3757281/ On Sat, May 23, 2015 at 10:07 PM, ANGELYN ESDERS wrote: Thank you very much, Ragavan, for your suggestion.I immediately ordered some organic papaya leaf tea and I am awaiting its arrival.I can't wait to try it as my platelets are still so very low in number. Minimum level is 150-450.I have 9. I have red spots all over me and big, purple "bruises" from anywhere I am touched.I have traveled in India 3 times. In which part of India do you live?Angie From: Gopalsamy Ragavan To: cmlhope@googlegroups.com Sent: Tuesday, May 19, 2015 8:15 AM Subject: Re: [CMLHope] Platelets I am in India. I have given the method below. You can prepare it very easily. Or you can drink two spoons of papaya leaf extract in the morning. Procedure: Dry papaya leaves completely. Add cumin seeds and little black pepper and powder the dried papaya leaves. Keep it safe in a container. Add water to spoon full of papaya leaf powder and boil it. Filter it and drink warm. regards, Ragavan On Sun, May 17, 2015 at 6:33 PM, ANGELYN ESDERS wrote: Thank you very much for your reply.I will try to find papaya leaf tea.I am in Canada...where are you?Angie From: Gopalsamy Ragavan To: cmlhope@googlegroups.com Sent: Sunday, May 17, 2015 7:08 AM Subject: Re: [CMLHope] Platelets I have problems with platelet count. Diagnosed in 2012 Started with Gleevec. Now with Sprycel. With Sprycel, platelet counts go down. Started with 140mg per
Re: [CMLHope] Platelets
Please take care. Because low platelet counts need more self care. My counts also went low. But my oncologist stops the medicine once it reaches low and then allows to recover to restart the medicine. I didnt know organic papaya leaf tea is available readily made. I collect Papaya leaves from friends and make the powder at home. I live in Chennai, which is a metro city in south of India. Hope your platelet counts improve soon. regards, Ragavan On Sun, May 24, 2015 at 7:37 AM, ANGELYN ESDERS wrote: > Thank you very much, Ragavan, for your suggestion. > I immediately ordered some organic papaya leaf tea and I am awaiting its > arrival. > I can't wait to try it as my platelets are still so very low in number. > Minimum level is 150-450.I have 9. I have red spots all over me and > big, purple "bruises" from anywhere I am touched. > I have traveled in India 3 times. In which part of India do you live? > Angie > > -- > *From:* Gopalsamy Ragavan > *To:* cmlhope@googlegroups.com > *Sent:* Tuesday, May 19, 2015 8:15 AM > *Subject:* Re: [CMLHope] Platelets > > I am in India. I have given the method below. > > You can prepare it very easily. Or you can drink two spoons of papaya leaf > extract in the morning. > > Procedure: > Dry papaya leaves completely. > Add cumin seeds and little black pepper and powder the dried papaya leaves. > Keep it safe in a container. > > Add water to spoon full of papaya leaf powder and boil it. > Filter it and drink warm. > > regards, > Ragavan > > > > > > > On Sun, May 17, 2015 at 6:33 PM, ANGELYN ESDERS wrote: > > Thank you very much for your reply. > I will try to find papaya leaf tea. > I am in Canada...where are you? > Angie > > -- > *From:* Gopalsamy Ragavan > *To:* cmlhope@googlegroups.com > *Sent:* Sunday, May 17, 2015 7:08 AM > *Subject:* Re: [CMLHope] Platelets > > I have problems with platelet count. Diagnosed in 2012 Started with > Gleevec. Now with Sprycel. With Sprycel, platelet counts go down. Started > with 140mg per day and now taking 50mg per day. One moth of Sprycel > medication and two months rest for platelet recovery. This is how current > medication is going on. I take papaya leaf tea everyday to improve > platelets. > > > > On Sat, May 16, 2015 at 9:29 AM, ANGELYN ESDERS wrote: > > Does anyone have problems maintaining their platelet level? > Mine fall down to almost ZERO, which is a dangerous place to be. I am > covered with big purple bruises and petechiae and look like I have been in > a bar fight. Even a light scratch on my skin brings the blood to the > surface. It is called Thrombocytopenia. My red cells also plummet and I had > 6 blood transfusions last week. > My confidence waivers a little as it seems they don't really know what to > do about me. I have lots of complications. More specialists on the horizon, > but every step forward is followed by 3 steps back. I am on massive > prednisone for the moment. > Can anyone share info on this? > Angie in Canada > Gleevec pioneer since 2001 > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You
Re: [CMLHope] Platelets
Hi Again Angie, Now it makes sense, so you are also "blessed" (yea right) with Lupus. Yes that makes things more interesting. However you are also fighting your way through it and I take my Zavies zero number one hat off to you. I hope that you know what I'm talking about. Anyway I don't necessarily recommend papaya tea extract but you already ordered it so you can start off with that, but I just sent you a site from Puritans Pride with a lot of information. Please read it. 18's, Marty Thanks, Marty. I have ordered organic papaya leaf tea and will mix it as Ragavan suggests. My excitement for this week was a "silent" heart attack. I missed it. Felt nothing at all. Felt great all week. A blood test revealed a high level of Troponins in my blood and they got all excited and kept me in hospital for 3 days doing various tests. I will learn the results this week. I see a platelet specialist tomorrow. Maybe he will have more words of wisdom. I am really happy to hear that you recommend papaya tea also and that it works. I had 9 platelets on Friday (normal level 150-450) and my hemoglobin had dropped into the low 80's. This seems to be an ongoing battle as my lupus tries to kill my body one cell at a time. Wishing all the best to you! 18's~ Angie On Sun, May 24, 2015 at 8:43 AM, ANGELYN ESDERS wrote: > Thanks, Marty. I have ordered organic papaya leaf tea and will mix it as > Ragavan suggests. My excitement for this week was a "silent" heart attack. > I missed it. Felt nothing at all. Felt great all week. A blood test > revealed a high level of > Troponins in my blood and they got all excited and kept me in hospital for > 3 days doing various tests. I will learn the results this week. I see a > platelet specialist tomorrow. Maybe he will have more words of wisdom. I > am really happy to hear that you recommend papaya tea also and that it > works. I had 9 platelets on Friday (normal level 150-450) and my hemoglobin > had dropped into the low 80's. This seems to be an ongoing battle as my > lupus tries to kill my body one cell at a time. > Wishing all the best to you! 18's~ > Angie > -- > *From:* Marty Gartenberg > *To:* cmlhope@googlegroups.com > *Sent:* Sunday, May 24, 2015 8:24 AM > *Subject:* Re: [CMLHope] Platelets > > Hi Angie, > > Please read this about the effects to not only your platelet counts but > also your red cell count. Ragavan gave you some valuable advice but you > need to find the best supplement that contains the best form of Papya leaf > extract. By the way when I had my bone marrow transplant one of my friends > got me some of it and it did work. > > Let me do some research and get back to you. In the meantime you must be > extremely careful not to injure your self. don't walk around barefoot or > even use slippers. It will not offer any protection if you should stub one > of your toes. I know all about that because it happened to me. > > OK on to some research. By the way I am slowly starting to recover from > the Staff infection in my lungs. I have a picc line and wear an infusion > pump 24/7 for the next few weeks. > > I will get back to you > > 18's, > > Marty > > http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3757281/ > > > > On Sat, May 23, 2015 at 10:07 PM, ANGELYN ESDERS > wrote: > > Thank you very much, Ragavan, for your suggestion. > I immediately ordered some organic papaya leaf tea and I am awaiting its > arrival. > I can't wait to try it as my platelets are still so very low in number. > Minimum level is 150-450.I have 9. I have red spots all over me and > big, purple "bruises" from anywhere I am touched. > I have traveled in India 3 times. In which part of India do you live? > Angie > > -- > *From:* Gopalsamy Ragavan > *To:* cmlhope@googlegroups.com > *Sent:* Tuesday, May 19, 2015 8:15 AM > *Subject:* Re: [CMLHope] Platelets > > I am in India. I have given the method below. > > You can prepare it very easily. Or you can drink two spoons of papaya leaf > extract in the morning. > > Procedure: > Dry papaya leaves completely. > Add cumin seeds and little black pepper and powder the dried papaya leaves. > Keep it safe in a container. > > Add water to spoon full of papaya leaf powder and boil it. > Filter it and drink warm. > > regards, > Ragavan > > > > > > > On Sun, May 17, 2015 at 6:33 PM, ANGELYN ESDERS wrote: > > Thank you very much for your reply. > I will try to find papaya leaf tea. > I am in Canada...where are you? > Angie > > -- > *From:* Gopalsamy Ragavan > *To:* cmlhope@googlegroups.com > *Sent:* Sunday, May 17, 2015 7:08 AM > *Subject:* Re: [CMLHope] Platelets > > I have problems with platelet count. Diagnosed in 2012 Started with > Gleevec. Now with Sprycel. With Sprycel, platelet counts go down. Started > with 140mg per day and now taking 50mg per day. One moth of Sprycel > medication and two months rest for platelet recovery. This is how current > medic
Re: [CMLHope] Platelets
Hi Angie, I am back with some important information for you There is a company called Puritans Pride that sells exactly what I am talking about. But one and get a total of three for only $13.95. They also sell six bottles buy just buy the three for now and give it some time and see how it works on you. http://www.puritan.com/papaya-enzymes-129/chewable-super-papaya-enzyme-plus-000982 Also I think that you might want to find out the root cause of your low platelet count. I am betting on the TKI your on now. Depending on what your PCR shows your doctor may think about lowering your dose, or in the future think about switching you to another TKI. I would also get in contact with Dr. Brian Druker and or Dr. Moshie Talpaz for their advice. I hope that I was able to help you out. I believe that if you help someone then it will come back to you when you really need it. Maybe my kidney transplant? Maybe my bone marrow transplant? Who knows but no matter what I will still dedicate my life to try and help people if I possibly can. Now you know why I always end with 18's (life) Marty On Sun, May 24, 2015 at 8:24 AM, Marty Gartenberg wrote: > Hi Angie, > > Please read this about the effects to not only your platelet counts but > also your red cell count. Ragavan gave you some valuable advice but you > need to find the best supplement that contains the best form of Papya leaf > extract. By the way when I had my bone marrow transplant one of my friends > got me some of it and it did work. > > Let me do some research and get back to you. In the meantime you must be > extremely careful not to injure your self. don't walk around barefoot or > even use slippers. It will not offer any protection if you should stub one > of your toes. I know all about that because it happened to me. > > OK on to some research. By the way I am slowly starting to recover from > the Staff infection in my lungs. I have a picc line and wear an infusion > pump 24/7 for the next few weeks. > > I will get back to you > > 18's, > > Marty > > http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3757281/ > > On Sat, May 23, 2015 at 10:07 PM, ANGELYN ESDERS > wrote: > >> Thank you very much, Ragavan, for your suggestion. >> I immediately ordered some organic papaya leaf tea and I am awaiting its >> arrival. >> I can't wait to try it as my platelets are still so very low in number. >> Minimum level is 150-450.I have 9. I have red spots all over me and >> big, purple "bruises" from anywhere I am touched. >> I have traveled in India 3 times. In which part of India do you live? >> Angie >> >> -- >> *From:* Gopalsamy Ragavan >> *To:* cmlhope@googlegroups.com >> *Sent:* Tuesday, May 19, 2015 8:15 AM >> *Subject:* Re: [CMLHope] Platelets >> >> I am in India. I have given the method below. >> >> You can prepare it very easily. Or you can drink two spoons of papaya >> leaf extract in the morning. >> >> Procedure: >> Dry papaya leaves completely. >> Add cumin seeds and little black pepper and powder the dried papaya >> leaves. >> Keep it safe in a container. >> >> Add water to spoon full of papaya leaf powder and boil it. >> Filter it and drink warm. >> >> regards, >> Ragavan >> >> >> >> >> >> >> On Sun, May 17, 2015 at 6:33 PM, ANGELYN ESDERS >> wrote: >> >> Thank you very much for your reply. >> I will try to find papaya leaf tea. >> I am in Canada...where are you? >> Angie >> >> -- >> *From:* Gopalsamy Ragavan >> *To:* cmlhope@googlegroups.com >> *Sent:* Sunday, May 17, 2015 7:08 AM >> *Subject:* Re: [CMLHope] Platelets >> >> I have problems with platelet count. Diagnosed in 2012 Started with >> Gleevec. Now with Sprycel. With Sprycel, platelet counts go down. Started >> with 140mg per day and now taking 50mg per day. One moth of Sprycel >> medication and two months rest for platelet recovery. This is how current >> medication is going on. I take papaya leaf tea everyday to improve >> platelets. >> >> >> >> On Sat, May 16, 2015 at 9:29 AM, ANGELYN ESDERS >> wrote: >> >> Does anyone have problems maintaining their platelet level? >> Mine fall down to almost ZERO, which is a dangerous place to be. I am >> covered with big purple bruises and petechiae and look like I have been in >> a bar fight. Even a light scratch on my skin brings the blood to the >> surface. It is called Thrombocytopenia. My red cells also plummet and I had >> 6 blood transfusions last week. >> My confidence waivers a little as it seems they don't really know what to >> do about me. I have lots of complications. More specialists on the horizon, >> but every step forward is followed by 3 steps back. I am on massive >> prednisone for the moment. >> Can anyone share info on this? >> Angie in Canada >> Gleevec pioneer since 2001 >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Gr
Re: [CMLHope] Platelets
Thanks, Marty. I have ordered organic papaya leaf tea and will mix it as Ragavan suggests. My excitement for this week was a "silent" heart attack. I missed it. Felt nothing at all. Felt great all week. A blood test revealed a high level of Troponins in my blood and they got all excited and kept me in hospital for 3 days doing various tests. I will learn the results this week. I see a platelet specialist tomorrow. Maybe he will have more words of wisdom. I am really happy to hear that you recommend papaya tea also and that it works. I had 9 platelets on Friday (normal level 150-450) and my hemoglobinhad dropped into the low 80's. This seems to be an ongoing battle as my lupus tries to kill my body one cell at a time.Wishing all the best to you! 18's~ Angie From: Marty Gartenberg To: cmlhope@googlegroups.com Sent: Sunday, May 24, 2015 8:24 AM Subject: Re: [CMLHope] Platelets Hi Angie, Please read this about the effects to not only your platelet counts but also your red cell count. Ragavan gave you some valuable advice but you need to find the best supplement that contains the best form of Papya leaf extract. By the way when I had my bone marrow transplant one of my friends got me some of it and it did work. Let me do some research and get back to you. In the meantime you must be extremely careful not to injure your self. don't walk around barefoot or even use slippers. It will not offer any protection if you should stub one of your toes. I know all about that because it happened to me. OK on to some research. By the way I am slowly starting to recover from the Staff infection in my lungs. I have a picc line and wear an infusion pump 24/7 for the next few weeks. I will get back to you 18's, Marty http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3757281/ On Sat, May 23, 2015 at 10:07 PM, ANGELYN ESDERS wrote: Thank you very much, Ragavan, for your suggestion.I immediately ordered some organic papaya leaf tea and I am awaiting its arrival.I can't wait to try it as my platelets are still so very low in number. Minimum level is 150-450.I have 9. I have red spots all over me and big, purple "bruises" from anywhere I am touched.I have traveled in India 3 times. In which part of India do you live?Angie From: Gopalsamy Ragavan To: cmlhope@googlegroups.com Sent: Tuesday, May 19, 2015 8:15 AM Subject: Re: [CMLHope] Platelets I am in India. I have given the method below. You can prepare it very easily. Or you can drink two spoons of papaya leaf extract in the morning. Procedure: Dry papaya leaves completely. Add cumin seeds and little black pepper and powder the dried papaya leaves. Keep it safe in a container. Add water to spoon full of papaya leaf powder and boil it. Filter it and drink warm. regards, Ragavan On Sun, May 17, 2015 at 6:33 PM, ANGELYN ESDERS wrote: Thank you very much for your reply.I will try to find papaya leaf tea.I am in Canada...where are you?Angie From: Gopalsamy Ragavan To: cmlhope@googlegroups.com Sent: Sunday, May 17, 2015 7:08 AM Subject: Re: [CMLHope] Platelets I have problems with platelet count. Diagnosed in 2012 Started with Gleevec. Now with Sprycel. With Sprycel, platelet counts go down. Started with 140mg per day and now taking 50mg per day. One moth of Sprycel medication and two months rest for platelet recovery. This is how current medication is going on. I take papaya leaf tea everyday to improve platelets. On Sat, May 16, 2015 at 9:29 AM, ANGELYN ESDERS wrote: Does anyone have problems maintaining their platelet level?Mine fall down to almost ZERO, which is a dangerous place to be. I am covered with big purple bruises and petechiae and look like I have been in a bar fight. Even a light scratch on my skin brings the blood to the surface. It is called Thrombocytopenia. My red cells also plummet and I had 6 blood transfusions last week.My confidence waivers a little as it seems they don't really know what to do about me. I have lots of complications. More specialists on the horizon, but every step forward is followed by 3 steps back. I am on massive prednisone for the moment.Can anyone share info on this?Angie in CanadaGleevec pioneer since 2001-- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support grou
Re: [CMLHope] Platelets
Hi Angie, Please read this about the effects to not only your platelet counts but also your red cell count. Ragavan gave you some valuable advice but you need to find the best supplement that contains the best form of Papya leaf extract. By the way when I had my bone marrow transplant one of my friends got me some of it and it did work. Let me do some research and get back to you. In the meantime you must be extremely careful not to injure your self. don't walk around barefoot or even use slippers. It will not offer any protection if you should stub one of your toes. I know all about that because it happened to me. OK on to some research. By the way I am slowly starting to recover from the Staff infection in my lungs. I have a picc line and wear an infusion pump 24/7 for the next few weeks. I will get back to you 18's, Marty http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3757281/ On Sat, May 23, 2015 at 10:07 PM, ANGELYN ESDERS wrote: > Thank you very much, Ragavan, for your suggestion. > I immediately ordered some organic papaya leaf tea and I am awaiting its > arrival. > I can't wait to try it as my platelets are still so very low in number. > Minimum level is 150-450.I have 9. I have red spots all over me and > big, purple "bruises" from anywhere I am touched. > I have traveled in India 3 times. In which part of India do you live? > Angie > > -- > *From:* Gopalsamy Ragavan > *To:* cmlhope@googlegroups.com > *Sent:* Tuesday, May 19, 2015 8:15 AM > *Subject:* Re: [CMLHope] Platelets > > I am in India. I have given the method below. > > You can prepare it very easily. Or you can drink two spoons of papaya leaf > extract in the morning. > > Procedure: > Dry papaya leaves completely. > Add cumin seeds and little black pepper and powder the dried papaya leaves. > Keep it safe in a container. > > Add water to spoon full of papaya leaf powder and boil it. > Filter it and drink warm. > > regards, > Ragavan > > > > > > > On Sun, May 17, 2015 at 6:33 PM, ANGELYN ESDERS wrote: > > Thank you very much for your reply. > I will try to find papaya leaf tea. > I am in Canada...where are you? > Angie > > -- > *From:* Gopalsamy Ragavan > *To:* cmlhope@googlegroups.com > *Sent:* Sunday, May 17, 2015 7:08 AM > *Subject:* Re: [CMLHope] Platelets > > I have problems with platelet count. Diagnosed in 2012 Started with > Gleevec. Now with Sprycel. With Sprycel, platelet counts go down. Started > with 140mg per day and now taking 50mg per day. One moth of Sprycel > medication and two months rest for platelet recovery. This is how current > medication is going on. I take papaya leaf tea everyday to improve > platelets. > > > > On Sat, May 16, 2015 at 9:29 AM, ANGELYN ESDERS wrote: > > Does anyone have problems maintaining their platelet level? > Mine fall down to almost ZERO, which is a dangerous place to be. I am > covered with big purple bruises and petechiae and look like I have been in > a bar fight. Even a light scratch on my skin brings the blood to the > surface. It is called Thrombocytopenia. My red cells also plummet and I had > 6 blood transfusions last week. > My confidence waivers a little as it seems they don't really know what to > do about me. I have lots of complications. More specialists on the horizon, > but every step forward is followed by 3 steps back. I am on massive > prednisone for the moment. > Can anyone share info on this? > Angie in Canada > Gleevec pioneer since 2001 > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > > > -- > --
