Yes my onc stopped my meds which were Tasigna at the time and also insisted on blood transfusion. Good luck.
Prayers & Blessings Jeanie 🐟🐟18,s Dx 1/2004 Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 > On May 24, 2015, at 9:24 AM, Gopalsamy Ragavan <graga...@gmail.com> wrote: > > Please take care. Because low platelet counts need more self care. My counts > also went low. But my oncologist stops the medicine once it reaches low and > then allows to recover to restart the medicine. > > I didnt know organic papaya leaf tea is available readily made. I collect > Papaya leaves from friends and make the powder at home. > > I live in Chennai, which is a metro city in south of India. > > Hope your platelet counts improve soon. > > regards, > Ragavan > >> On Sun, May 24, 2015 at 7:37 AM, ANGELYN ESDERS <esd...@rogers.com> wrote: >> Thank you very much, Ragavan, for your suggestion. >> I immediately ordered some organic papaya leaf tea and I am awaiting its >> arrival. >> I can't wait to try it as my platelets are still so very low in number. >> Minimum level is 150-450.....I have 9. I have red spots all over me and big, >> purple "bruises" from anywhere I am touched. >> I have traveled in India 3 times. In which part of India do you live? >> Angie >> >> From: Gopalsamy Ragavan <graga...@gmail.com> >> To: cmlhope@googlegroups.com >> Sent: Tuesday, May 19, 2015 8:15 AM >> Subject: Re: [CMLHope] Platelets >> >> I am in India. I have given the method below. >> >> You can prepare it very easily. Or you can drink two spoons of papaya leaf >> extract in the morning. >> >> Procedure: >> Dry papaya leaves completely. >> Add cumin seeds and little black pepper and powder the dried papaya leaves. >> Keep it safe in a container. >> >> Add water to spoon full of papaya leaf powder and boil it. >> Filter it and drink warm. >> >> regards, >> Ragavan >> >> >> >> >> >> >> On Sun, May 17, 2015 at 6:33 PM, ANGELYN ESDERS <esd...@rogers.com> wrote: >> Thank you very much for your reply. >> I will try to find papaya leaf tea. >> I am in Canada...where are you? >> Angie >> >> From: Gopalsamy Ragavan <graga...@gmail.com> >> To: cmlhope@googlegroups.com >> Sent: Sunday, May 17, 2015 7:08 AM >> Subject: Re: [CMLHope] Platelets >> >> I have problems with platelet count. Diagnosed in 2012 Started with Gleevec. >> Now with Sprycel. With Sprycel, platelet counts go down. Started with 140mg >> per day and now taking 50mg per day. One moth of Sprycel medication and two >> months rest for platelet recovery. This is how current medication is going >> on. I take papaya leaf tea everyday to improve platelets. >> >> >> >> On Sat, May 16, 2015 at 9:29 AM, ANGELYN ESDERS <esd...@rogers.com> wrote: >> Does anyone have problems maintaining their platelet level? >> Mine fall down to almost ZERO, which is a dangerous place to be. I am >> covered with big purple bruises and petechiae and look like I have been in a >> bar fight. Even a light scratch on my skin brings the blood to the surface. >> It is called Thrombocytopenia. My red cells also plummet and I had 6 blood >> transfusions last week. >> My confidence waivers a little as it seems they don't really know what to do >> about me. I have lots of complications. More specialists on the horizon, but >> every step forward is followed by 3 steps back. I am on massive prednisone >> for the moment. >> Can anyone share info on this? >> Angie in Canada.... >> Gleevec pioneer since 2001 >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. >> >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. >> >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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