Hi Angie I don't remember my number either. It took so long for me to teach pcr. I finally reached it on Sprycel. If anybody has the list please let us know. Hang in there!!
Prayers & Blessings Jeanie 🐟🐟18,s Dx 1/2004 Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 > On May 24, 2015, at 9:31 AM, ANGELYN ESDERS <[email protected]> wrote: > > Dear Zavie....I really don't remember my number on his list...maybe about > #68. It was in July 2001. We met him in Ottawa and he guided us through the > National Art Galler, and we had lunch together. . > Thanks for all the information. > Angie > > > > From: Marty Gartenberg <[email protected]> > To: [email protected] > Sent: Sunday, May 24, 2015 8:58 AM > Subject: Re: [CMLHope] Platelets > > Hi Again Angie, > > Now it makes sense, so you are also "blessed" (yea right) with Lupus. Yes > that makes things more interesting. However you are also fighting your way > through it and I take my Zavies zero number one hat off to you. I hope that > you know what I'm talking about. > > Anyway I don't necessarily recommend papaya tea extract but you already > ordered it so you can start off with that, but I just sent you a site from > Puritans Pride with a lot of information. Please read it. > > 18's, > > Marty > > Thanks, Marty. I have ordered organic papaya leaf tea and will mix it as > Ragavan suggests. My excitement for this week was a "silent" heart attack. I > missed it. Felt nothing at all. Felt great all week. A blood test revealed a > high level of > Troponins in my blood and they got all excited and kept me in hospital for 3 > days doing various tests. I will learn the results this week. I see a > platelet specialist tomorrow. Maybe he will have more words of wisdom. I am > really happy to hear that you recommend papaya tea also and that it works. I > had 9 platelets on Friday (normal level 150-450) and my hemoglobin > had dropped into the low 80's. This seems to be an ongoing battle as my lupus > tries to kill my body one cell at a time. > Wishing all the best to you! 18's~~~~~ > Angie > > > > On Sun, May 24, 2015 at 8:43 AM, ANGELYN ESDERS <[email protected]> wrote: > Thanks, Marty. I have ordered organic papaya leaf tea and will mix it as > Ragavan suggests. My excitement for this week was a "silent" heart attack. I > missed it. Felt nothing at all. Felt great all week. A blood test revealed a > high level of > Troponins in my blood and they got all excited and kept me in hospital for 3 > days doing various tests. I will learn the results this week. I see a > platelet specialist tomorrow. Maybe he will have more words of wisdom. I am > really happy to hear that you recommend papaya tea also and that it works. I > had 9 platelets on Friday (normal level 150-450) and my hemoglobin > had dropped into the low 80's. This seems to be an ongoing battle as my lupus > tries to kill my body one cell at a time. > Wishing all the best to you! 18's~~~~~ > Angie > From: Marty Gartenberg <[email protected]> > To: [email protected] > Sent: Sunday, May 24, 2015 8:24 AM > Subject: Re: [CMLHope] Platelets > > Hi Angie, > > Please read this about the effects to not only your platelet counts but also > your red cell count. Ragavan gave you some valuable advice but you need to > find the best supplement that contains the best form of Papya leaf extract. > By the way when I had my bone marrow transplant one of my friends got me some > of it and it did work. > > Let me do some research and get back to you. In the meantime you must be > extremely careful not to injure your self. don't walk around barefoot or even > use slippers. It will not offer any protection if you should stub one of your > toes. I know all about that because it happened to me. > > OK on to some research. By the way I am slowly starting to recover from the > Staff infection in my lungs. I have a picc line and wear an infusion pump > 24/7 for the next few weeks. > > I will get back to you > > 18's, > > Marty > > http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3757281/ > > > > On Sat, May 23, 2015 at 10:07 PM, ANGELYN ESDERS <[email protected]> wrote: > Thank you very much, Ragavan, for your suggestion. > I immediately ordered some organic papaya leaf tea and I am awaiting its > arrival. > I can't wait to try it as my platelets are still so very low in number. > Minimum level is 150-450.....I have 9. I have red spots all over me and big, > purple "bruises" from anywhere I am touched. > I have traveled in India 3 times. In which part of India do you live? > Angie > > From: Gopalsamy Ragavan <[email protected]> > To: [email protected] > Sent: Tuesday, May 19, 2015 8:15 AM > Subject: Re: [CMLHope] Platelets > > I am in India. I have given the method below. > > You can prepare it very easily. Or you can drink two spoons of papaya leaf > extract in the morning. > > Procedure: > Dry papaya leaves completely. > Add cumin seeds and little black pepper and powder the dried papaya leaves. > Keep it safe in a container. > > Add water to spoon full of papaya leaf powder and boil it. > Filter it and drink warm. > > regards, > Ragavan > > > > > > > On Sun, May 17, 2015 at 6:33 PM, ANGELYN ESDERS <[email protected]> wrote: > Thank you very much for your reply. > I will try to find papaya leaf tea. > I am in Canada...where are you? > Angie > > From: Gopalsamy Ragavan <[email protected]> > To: [email protected] > Sent: Sunday, May 17, 2015 7:08 AM > Subject: Re: [CMLHope] Platelets > > I have problems with platelet count. Diagnosed in 2012 Started with Gleevec. > Now with Sprycel. With Sprycel, platelet counts go down. Started with 140mg > per day and now taking 50mg per day. One moth of Sprycel medication and two > months rest for platelet recovery. This is how current medication is going > on. I take papaya leaf tea everyday to improve platelets. > > > > On Sat, May 16, 2015 at 9:29 AM, ANGELYN ESDERS <[email protected]> wrote: > Does anyone have problems maintaining their platelet level? > Mine fall down to almost ZERO, which is a dangerous place to be. I am covered > with big purple bruises and petechiae and look like I have been in a bar > fight. Even a light scratch on my skin brings the blood to the surface. It is > called Thrombocytopenia. My red cells also plummet and I had 6 blood > transfusions last week. > My confidence waivers a little as it seems they don't really know what to do > about me. I have lots of complications. More specialists on the horizon, but > every step forward is followed by 3 steps back. I am on massive prednisone > for the moment. > Can anyone share info on this? > Angie in Canada.... > Gleevec pioneer since 2001 > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google 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