Re: [CMLHope] Questions,

['Jeanie' via CMLHope]

Thanks Marty
Do you take anything for or ointments for rubs?   Thanks. 

My Motto:
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 

> On Dec 22, 2017, at 4:47 PM, Marty Gartenberg  wrote:
> 
> Hey, we got a Jeanie, and we got a Greenie in here. Life doesn't get better. 
> 
> So Jeanie, you have this pain in you right little finger (we used to call it 
> our (pinkey) Hum right little finger? Well so do i. But not my legs, hands 
> and most of my bones BUT my left elbow and my neck really hurt but especially 
> my left elbow but they have a right to. All of them except my left little 
> finger. Do you know why? Well the little finger has my friend living inside 
> of it. His name is Author Right-es   But the rest were severely broken when i 
> broke my neck in three places along with my left elbow and had these metal 
> plates, screws, nuts and matching bolt put inside of me. Can you imagine that 
> nuts and bolts? Oh at times i have a pain in my butt but that doesn't really 
> count.
> 
> So maybe we should consider that we are getting older or you on TKI's or both 
> of us having Arthritis? 
>  
> Who knows, but the fact that we are still alive are all migrating 
> circumstances, 
> don't you think... We can see we can pee we can hear, well for the most part 
> for me anyway.
> 
> We can walk we can talk can do most everything that we can do. Oh yea I 
> almost forgot we can eat and drink. So let this be a lesson for us, right...
> 
> 18's,
> 
> Marty
> 
> 
> 
> 
> 
> 
> 
> 
> 
> 
> 
> 
> 9
> 
>> On Fri, Dec 22, 2017 at 3:18 PM, 'Jeanie' via CMLHope 
>>  wrote:
>> Hi all,
>> Have you considered Moffitt cancer center. I go there and like it. You go to 
>> the blood center and get your blood checked and then in about an hour they 
>> are faxed over to doctor and you see him. I go every three months. 
>> I was wonder if any of you have your bones aching?  My right little finger 
>> and hand ache and legs hurt sometimes at night. I've been fighting cml for 
>> almost 14 years and never had this. Blood counts are all good. Thanks all.  
>> 
>> My Motto:
>> Faith and Pills
>> With Love
>> 18's
>> Dx 1/2004 CML Leukemia
>> Started Gleevec 2/2004
>> Started Tasigna 9/2009
>> Started Sprycel 11/2009
>> Started Ponatinib 1/2015
>> Doctor Balducci Moffitt Cancer Center 
>> 
>>> On Dec 21, 2017, at 6:56 PM, Marty Gartenberg  wrote:
>>> 
>>> Listen Greenie,
>>> 
>>> This is what i do because of a promise that i once made to GOD. Let me tell 
>>> you about this.
>>> When i was about to receive my total body radiation almost 30 years ago,
>>> 
>>>  just before they were about to close and lock that radiation chamber door 
>>> i got down on my knees clasped my hands in front of me and prayed to GOD 
>>> asking HIM if he would spare me i would help people that were in my 
>>> situation that i would try to help them. So far i have helped 1,286 people 
>>> in the past 30 years, and wrote my journal about each and every one of 
>>> them. This will never be published because of confidentiality reasons, but 
>>> on occasion i will send some of them parts of my book in order to try and 
>>> help them.
>>> 
>>> Listen i am no saint just a plain human being but someone that once made a 
>>> promise to GOD and i am still here after many many death defying things 
>>> that i have gone trough. And that is why i do what i promised to do. I hope 
>>> that you understand why i do what i do...
>>> 
>>> There is also why i write 18's when ever i end any posts that i make, 
>>> because that is what i believe. 18's to me represents LIFE.
>>> 
>>> If you care to send me your personal email address i would like to send you 
>>> something. Mine is wa2yyx@gmail,com
>>> 
>>> 18's,
>>> 
>>> Marty 
>>> 
 On Thu, Dec 21, 2017 at 4:28 PM, Myvety2k via CMLHope 
  wrote:
 Marty, I want to thank you for your fast reply, I hear you.  I do have a 
 Nephrologist and he had me get some blood work last month and he seems to 
 be O.K. with the results.  I do have the paper work and will scan it and 
 send it out so you can check it out.  I want to thank you so much, you 
 have made me feel so much better and I will listen to what you wrote me.  
 Again I want to thank you.
  
 Greenie
  
 In a message dated 12/21/2017 11:31:29 A.M. Eastern Standard Time, 
 wa2...@gmail.com writes:
 Hi Greenie,
 
 First of all, you mention that you are worried. Why may i ask are you so 
 worried? When people worry about things that they have little or no 
 control over then it not only effects your mind but also your body. I know 
 all about this because that is exactly what i used to do and i learned to 
 direct my mind in more productive ways. Now just try to relax 

Re: [CMLHope] anemia

[Myvety2k via CMLHope]

I would rather go back to Chicago for my test but the cost to  fly at this 
time of the year is very costly.  I was just their on Dec 6 and  it was 
close to $600.  I checked the fly's for month of Jan and I can fly  their for 
$40 going but at $445 back.Have to see and Oncologist  on Jan 2nd and see if I 
can get it done at Lee Health Center a few miles from my  home.
 
greenie
 
 
In a message dated 12/22/2017 4:38:43 P.M. Eastern Standard Time,  
cmlhope@googlegroups.com writes:

Pcr
Hi Greenie
Doctors at Moffitt don't do BMA. They do PCR blood  test. My doctor Dr 
Baldicci, 
Is my doctor and head of the senior oncology center  of Moffitt and they 
are't doing BMA 
So instead of drawing 2 vials blood they draw  three. 
Dr Balducci is retiring the first of the year but  there are many 
specialist there. Good luck 

My Motto:  
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 


On Dec 22, 2017, at 3:47 PM, Marty Gartenberg  wrote:




Hi Ana,

It's not so much the question of changing one  of her TKI's, from Bosutinib 
 to Bosutinib after being on Gleevec for fourteen years. Since  there a lot 
of things that you and your mother need to consider like her  age, her 
general health like the low Hemoglobin and Red Cell Blood counts  which you 
didn't include in your email, and one important thing how are her  kidneys? 
What 
her Creatinine level are right now? And has she had a CBC  (Complete Blood 
Count lately? Also if she did what were the results? You  already know but 
what were they actually? Can  you specify what these counts were or are?? 


One  other thing, is his or her doctor, i assume that he or she is a 
qualified  Oncologist? And are any of their specialties for-instance is  CML?
Also how many mg of Gleevec is she taking and for  how long? I know that 
you mentioned that it was for the past 14 years, but  has she ever taken a 
"vacation" from it, and if so did she have any  effects of it reappearing ?  
Has she been tested for ABL/PCR  lately and what were her results? 


Finally,  has your mother seen a Nephroloigst lately? All of these 
questions are very  important and before any doctor/s makes any decisions about 
changing  any of her TKI's you have to know exactly what these answers are 
before  anyone can give you any advise.


I  will leave you with this advice:
Please  don't let any of this intimidate you or your mother because you
have the right to ask questions  and those that you have requested 
them from have the oblation to  answer them.  


If you get the chance would you  kindly let me know about my answers 
from  me to you.


I  don't recall if i ever have spoken to you before. So  just so you know i 
always
end  any of my posts with 18's which means LIFE.


18's,


Marty


On Fri, Dec 22, 2017 at 3:34 PM, Marty Gartenberg   wrote:

Hi Ana,

It's not so much the question of changing one of her TKI's, from  Bosutinib 
 to Bosutinib after being on Gleevec for fourteen years. Since  there a lot 
of things that you and your mother need to consider like her  age, her 
general health like the low Hemoglobin and Red Cell Blood counts  which you 
didn't include in your email, and one important thing how are  her kidneys? 
What 
her Creatinine level are right now? And has she had a  CBC (Complete Blood 
Count lately? Also if she did what were the results?  You already know but 
what were they actually? Can  you specify what these counts were or are?? 


One other thing, is his or her doctor, i assume  that he or she is a 
qualified Oncologist? And are any of their specialties  for-instance is CML?
Also how many mg of Gleevec is she taking and for  how long? Has she been 
tested you for ABL/PCR lately and what were her  results were her results?


Finally, has your mother seen a Nephroloigst  lately? All of these 
questions are very important and before any doctor/s  makes any decisions about 
changing any of her TKI's you have to know  exactly what these answers are 
before anyone can give you any  advise.


I  will leave you with this advice:
Please  don't let any of this intimidate you or your mother because  you
have the right to ask  questions and those that you have requested 
them from have the oblation  to answer them.  


If you get the chance would  you kindly let me know about my answers 
from  me to you.


I  don't recall if i ever have spoken to you before. So  just so you know i 
always
end  any of my posts with 18's which means LIFE.


18's,


Marty











 

On Fri, Dec 22, 2017 at 2:10 PM, Ana Burgos  wrote:


 
 
Hello, 
my mum is suffering from  very low hemoglobine and very low iron. 
any of you happen the  same? 
another question is what  do you think about bosutinib, after 14 years in 
gleevec the doc. is  thinking of changing to bosutinib 
what about side effects  

Re: [CMLHope] Questions,

[Marty Gartenberg]

Hey, we got a Jeanie, and we got a Greenie in here. Life doesn't get
better.

So Jeanie, you have this pain in you right little finger (we used to call
it our (pinkey) Hum right little finger? Well so do i. But not my legs,
hands and most of my bones BUT my left elbow and my neck really hurt but
especially my left elbow but they have a right to. All of them except my
left little finger. Do you know why? Well the little finger has my friend
living inside of it. His name is Author Right-es   But the rest were
severely broken when i broke my neck in three places along with my left
elbow and had these metal plates, screws, nuts and matching bolt put inside
of me. Can you imagine that nuts and bolts? Oh at times i have a pain in my
butt but that doesn't really count.

So maybe we should consider that we are getting older or you on TKI's or
both of us having Arthritis?

Who knows, but the fact that we are still alive are all migrating
circumstances,
don't you think... We can see we can pee we can hear, well for the most
part for me anyway.

We can walk we can talk can do most everything that we can do. Oh yea I
almost forgot we can eat and drink. So let this be a lesson for us, right...

18's,

Marty












9

On Fri, Dec 22, 2017 at 3:18 PM, 'Jeanie' via CMLHope <
cmlhope@googlegroups.com> wrote:

> Hi all,
> Have you considered Moffitt cancer center. I go there and like it. You go
> to the blood center and get your blood checked and then in about an hour
> they are faxed over to doctor and you see him. I go every three months.
> I was wonder if any of you have your bones aching?  My right little finger
> and hand ache and legs hurt sometimes at night. I've been fighting cml for
> almost 14 years and never had this. Blood counts are all good. Thanks all.
>
> My Motto:
> Faith and Pills
> With Love
> 18's
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/2015
> Doctor Balducci Moffitt Cancer Center
>
> On Dec 21, 2017, at 6:56 PM, Marty Gartenberg  wrote:
>
> Listen Greenie,
>
> This is what i do because of a promise that i once made to GOD. Let me
> tell you about this.
> When i was about to receive my total body radiation almost 30 years ago,
>
>  just before they were about to close and lock that radiation chamber door
> i got down on my knees clasped my hands in front of me and prayed to GOD
> asking HIM if he would spare me i would help people that were in my
> situation that i would try to help them. So far i have helped 1,286 people
> in the past 30 years, and wrote my journal about each and every one of
> them. This will never be published because of confidentiality reasons, but
> on occasion i will send some of them parts of my book in order to try and
> help them.
>
> Listen i am no saint just a plain human being but someone that once made a
> promise to GOD and i am still here after many many death defying things
> that i have gone trough. And that is why i do what i promised to do. I hope
> that you understand why i do what i do...
>
> There is also why i write 18's when ever i end any posts that i make,
> because that is what i believe. 18's to me represents LIFE.
>
> If you care to send me your personal email address i would like to send
> you something. Mine is wa2yyx@gmail,com
>
> 18's,
>
> Marty
>
> On Thu, Dec 21, 2017 at 4:28 PM, Myvety2k via CMLHope <
> cmlhope@googlegroups.com> wrote:
>
>> Marty, I want to thank you for your fast reply, I hear you.  I do have a
>> Nephrologist and he had me get some blood work last month and he seems to
>> be O.K. with the results.  I do have the paper work and will scan it and
>> send it out so you can check it out.  I want to thank you so much, you have
>> made me feel so much better and I will listen to what you wrote me.  Again
>> I want to thank you.
>>
>> Greenie
>>
>> In a message dated 12/21/2017 11:31:29 A.M. Eastern Standard Time,
>> wa2...@gmail.com writes:
>>
>> Hi Greenie,
>>
>> First of all, you mention that you are worried. Why may i ask are you so
>> worried? When people worry about things that they have little or no control
>> over then it not only effects your mind but also your body. I know all
>> about this because that is exactly what i used to do and i learned to
>> direct my mind in more productive ways. Now just try to relax and get
>> yourself going in the right direction.
>>
>> Now you mention about CRI so read this..
>>
>> *CRI* (color rendering index) is a measure of how accurately a light
>> source illuminates objects' true colors. Our LED lights have *CRI* values
>> of up to 98, indicating that our LED lights are able to produce white light
>> that approximates halogen or incandescent lighting and natural daylight.
>>
>> It however has some effect on your kidneys because if they are having
>> problems than it is a very simple thing to just go to a Nephrologist and
>> see what is happening and why.
>>
>> As you mentioned the normal 

Re: [CMLHope] anemia

['Jeanie' via CMLHope]

Pcr
Hi Greenie
Doctors at Moffitt don't do BMA. They do PCR blood test. My doctor Dr Baldicci, 
Is my doctor and head of the senior oncology center of Moffitt and they are't 
doing BMA 
So instead of drawing 2 vials blood they draw three. 
Dr Balducci is retiring the first of the year but there are many specialist 
there. Good luck 

My Motto:
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 

> On Dec 22, 2017, at 3:47 PM, Marty Gartenberg  wrote:
> 
> Hi Ana,
> 
> It's not so much the question of changing one of her TKI's, from Bosutinib to 
> Bosutinib after being on Gleevec for fourteen years. Since there a lot of 
> things that you and your mother need to consider like her age, her general 
> health like the low Hemoglobin and Red Cell Blood counts which you didn't 
> include in your email, and one important thing how are her kidneys? What her 
> Creatinine level are right now? And has she had a CBC (Complete Blood Count 
> lately? Also if she did what were the results? You already know but what were 
> they actually? Can you specify what these counts were or are?? 
> 
> One other thing, is his or her doctor, i assume that he or she is a qualified 
> Oncologist? And are any of their specialties for-instance is CML?
> Also how many mg of Gleevec is she taking and for how long? I know that you 
> mentioned that it was for the past 14 years, but has she ever taken a 
> "vacation" from it, and if so did she have any effects of it reappearing ?  
> Has she been tested for ABL/PCR lately and what were her results? 
> 
> Finally, has your mother seen a Nephroloigst lately? All of these questions 
> are very important and before any doctor/s makes any decisions about changing 
> any of her TKI's you have to know exactly what these answers are before 
> anyone can give you any advise.
> 
> I will leave you with this advice:
> Please don't let any of this intimidate you or your mother because you
> have the right to ask questions and those that you have requested 
> them from have the oblation to answer them.  
> 
> If you get the chance would you kindly let me know about my answers 
> from me to you.
> 
> I don't recall if i ever have spoken to you before. So just so you know i 
> always
> end any of my posts with 18's which means LIFE.
> 
> 18's,
> 
> Marty
> 
>> On Fri, Dec 22, 2017 at 3:34 PM, Marty Gartenberg  wrote:
>> Hi Ana,
>> 
>> It's not so much the question of changing one of her TKI's, from Bosutinib 
>> to Bosutinib after being on Gleevec for fourteen years. Since there a lot of 
>> things that you and your mother need to consider like her age, her general 
>> health like the low Hemoglobin and Red Cell Blood counts which you didn't 
>> include in your email, and one important thing how are her kidneys? What her 
>> Creatinine level are right now? And has she had a CBC (Complete Blood Count 
>> lately? Also if she did what were the results? You already know but what 
>> were they actually? Can you specify what these counts were or are?? 
>> 
>> One other thing, is his or her doctor, i assume that he or she is a 
>> qualified Oncologist? And are any of their specialties for-instance is CML?
>> Also how many mg of Gleevec is she taking and for how long? Has she been 
>> tested you for ABL/PCR lately and what were her results were her results?
>> 
>> Finally, has your mother seen a Nephroloigst lately? All of these questions 
>> are very important and before any doctor/s makes any decisions about 
>> changing any of her TKI's you have to know exactly what these answers are 
>> before anyone can give you any advise.
>> 
>> I will leave you with this advice:
>> Please don't let any of this intimidate you or your mother because you
>> have the right to ask questions and those that you have requested 
>> them from have the oblation to answer them.  
>> 
>> If you get the chance would you kindly let me know about my answers 
>> from me to you.
>> 
>> I don't recall if i ever have spoken to you before. So just so you know i 
>> always
>> end any of my posts with 18's which means LIFE.
>> 
>> 18's,
>> 
>> Marty
>> 
>>   
>> 
>> 
>> 
>> 
>>> On Fri, Dec 22, 2017 at 2:10 PM, Ana Burgos  wrote:
>>> Hello, 
>>> my mum is suffering from very low hemoglobine and very low iron.
>>> any of you happen the same?
>>> another question is what do you think about bosutinib, after 14 years in 
>>> gleevec the doc. is thinking of changing to bosutinib
>>> what about side effects comparing it to gleevec?
>>> 
>>> thanks in advance
>>> 
>>> 
>>> 
>>>  .
>>> -- 
>>> -- 
>>> [CMLHope]
>>> A support group of http://cmlhope.com
>>> -
>>>  
>>> You received this message because you are subscribed to the Google Groups 
>>> "CMLHope" group.
>>> To post to this group, send email to 

Re: [CMLHope] anemia

[Marty Gartenberg]

Hi Ana,

It's not so much the question of changing one of her TKI's, from Bosutinib
to Bosutinib after being on Gleevec for fourteen years. Since there a lot
of things that you and your mother need to consider like her age, her
general health like the low Hemoglobin and Red Cell Blood counts which you
didn't include in your email, and one important thing how are her kidneys?
What her Creatinine level are right now? And has she had a CBC (Complete
Blood Count lately? Also if she did what were the results? You already know
but what were they actually? Can you specify what these counts were or
are??

One other thing, is his or her doctor, i assume that he or she is a
qualified Oncologist? And are any of their specialties for-instance is CML?
Also how many mg of Gleevec is she taking and for how long? I know that you
mentioned that it was for the past 14 years, but has she ever taken a
"vacation" from it, and if so did she have any effects of it reappearing ?
Has she been tested for ABL/PCR lately and what were her results?

Finally, has your mother seen a Nephroloigst lately? All of these questions
are very important and before any doctor/s makes any decisions about
changing any of her TKI's you have to know exactly what these answers are
before anyone can give you any advise.

I will leave you with this advice:
Please don't let any of this intimidate you or your mother because you
have the right to ask questions and those that you have requested
them from have the oblation to answer them.

If you get the chance would you kindly let me know about my answers
from me to you.

I don't recall if i ever have spoken to you before. So just so you know i
always
end any of my posts with 18's which means LIFE.

18's,

Marty

On Fri, Dec 22, 2017 at 3:34 PM, Marty Gartenberg  wrote:

> Hi Ana,
>
> It's not so much the question of changing one of her TKI's, from Bosutinib
> to Bosutinib after being on Gleevec for fourteen years. Since there a lot
> of things that you and your mother need to consider like her age, her
> general health like the low Hemoglobin and Red Cell Blood counts which you
> didn't include in your email, and one important thing how are her kidneys?
> What her Creatinine level are right now? And has she had a CBC (Complete
> Blood Count lately? Also if she did what were the results? You already know
> but what were they actually? Can you specify what these counts were or
> are??
>
> One other thing, is his or her doctor, i assume that he or she is a
> qualified Oncologist? And are any of their specialties for-instance is CML?
> Also how many mg of Gleevec is she taking and for how long? Has she been
> tested you for ABL/PCR lately and what were her results were her results?
>
> Finally, has your mother seen a Nephroloigst lately? All of these
> questions are very important and before any doctor/s makes any
> decisions about changing any of her TKI's you have to know exactly what
> these answers are before anyone can give you any advise.
>
> I will leave you with this advice:
> Please don't let any of this intimidate you or your mother because you
> have the right to ask questions and those that you have requested
> them from have the oblation to answer them.
>
> If you get the chance would you kindly let me know about my answers
> from me to you.
>
> I don't recall if i ever have spoken to you before. So just so you know i
> always
> end any of my posts with 18's which means LIFE.
>
> 18's,
>
> Marty
>
>
>
>
>
>
> On Fri, Dec 22, 2017 at 2:10 PM, Ana Burgos  wrote:
>
>> Hello,
>>
>> my mum is suffering from very low hemoglobine and very low iron.
>>
>> any of you happen the same?
>>
>> another question is what do you think about bosutinib, after 14 years in
>> gleevec the doc. is thinking of changing to bosutinib
>>
>> what about side effects comparing it to gleevec?
>>
>>
>> thanks in advance
>>
>>
>>
>>
>> --
>> .
>>
>> --
>> --
>> [CMLHope]
>> A support group of http://cmlhope.com
>> -
>>
>> You received this message because you are subscribed to the Google Groups
>> "CMLHope" group.
>> To post to this group, send email to CMLHope@googlegroups.com
>> To unsubscribe from this group, send email to
>> cmlhope-unsubscr...@googlegroups.com
>> For more options, visit this group at http://groups.google.com/group
>> /CMLHope
>> ---
>> You received this message because you are subscribed to the Google Groups
>> "CMLHope" group.
>> To unsubscribe from this group and stop receiving emails from it, send an
>> email to cmlhope+unsubscr...@googlegroups.com.
>> For more options, visit https://groups.google.com/d/optout.
>>
>
>

-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
-

You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe 

Re: [CMLHope] anemia

[Marty Gartenberg]

Hi Ana,

It's not so much the question of changing one of her TKI's, from Bosutinib
to Bosutinib after being on Gleevec for fourteen years. Since there a lot
of things that you and your mother need to consider like her age, her
general health like the low Hemoglobin and Red Cell Blood counts which you
didn't include in your email, and one important thing how are her kidneys?
What her Creatinine level are right now? And has she had a CBC (Complete
Blood Count lately? Also if she did what were the results? You already know
but what were they actually? Can you specify what these counts were or
are??

One other thing, is his or her doctor, i assume that he or she is a
qualified Oncologist? And are any of their specialties for-instance is CML?
Also how many mg of Gleevec is she taking and for how long? Has she been
tested you for ABL/PCR lately and what were her results were her results?

Finally, has your mother seen a Nephroloigst lately? All of these questions
are very important and before any doctor/s makes any decisions about
changing any of her TKI's you have to know exactly what these answers are
before anyone can give you any advise.

I will leave you with this advice:
Please don't let any of this intimidate you or your mother because you
have the right to ask questions and those that you have requested
them from have the oblation to answer them.

If you get the chance would you kindly let me know about my answers
from me to you.

I don't recall if i ever have spoken to you before. So just so you know i
always
end any of my posts with 18's which means LIFE.

18's,

Marty






On Fri, Dec 22, 2017 at 2:10 PM, Ana Burgos  wrote:

> Hello,
>
> my mum is suffering from very low hemoglobine and very low iron.
>
> any of you happen the same?
>
> another question is what do you think about bosutinib, after 14 years in
> gleevec the doc. is thinking of changing to bosutinib
>
> what about side effects comparing it to gleevec?
>
>
> thanks in advance
>
>
>
>
> --
> .
>
> --
> --
> [CMLHope]
> A support group of http://cmlhope.com
> -
>
> You received this message because you are subscribed to the Google Groups
> "CMLHope" group.
> To post to this group, send email to CMLHope@googlegroups.com
> To unsubscribe from this group, send email to CMLHope-unsubscribe@
> googlegroups.com
> For more options, visit this group at http://groups.google.com/
> group/CMLHope
> ---
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> "CMLHope" group.
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Re: [CMLHope] Questions,

['Jeanie' via CMLHope]

Hi all,
Have you considered Moffitt cancer center. I go there and like it. You go to 
the blood center and get your blood checked and then in about an hour they are 
faxed over to doctor and you see him. I go every three months. 
I was wonder if any of you have your bones aching?  My right little finger and 
hand ache and legs hurt sometimes at night. I've been fighting cml for almost 
14 years and never had this. Blood counts are all good. Thanks all.  

My Motto:
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 

> On Dec 21, 2017, at 6:56 PM, Marty Gartenberg  wrote:
> 
> Listen Greenie,
> 
> This is what i do because of a promise that i once made to GOD. Let me tell 
> you about this.
> When i was about to receive my total body radiation almost 30 years ago,
> 
>  just before they were about to close and lock that radiation chamber door i 
> got down on my knees clasped my hands in front of me and prayed to GOD asking 
> HIM if he would spare me i would help people that were in my situation that i 
> would try to help them. So far i have helped 1,286 people in the past 30 
> years, and wrote my journal about each and every one of them. This will never 
> be published because of confidentiality reasons, but on occasion i will send 
> some of them parts of my book in order to try and help them.
> 
> Listen i am no saint just a plain human being but someone that once made a 
> promise to GOD and i am still here after many many death defying things that 
> i have gone trough. And that is why i do what i promised to do. I hope that 
> you understand why i do what i do...
> 
> There is also why i write 18's when ever i end any posts that i make, because 
> that is what i believe. 18's to me represents LIFE.
> 
> If you care to send me your personal email address i would like to send you 
> something. Mine is wa2yyx@gmail,com
> 
> 18's,
> 
> Marty 
> 
>> On Thu, Dec 21, 2017 at 4:28 PM, Myvety2k via CMLHope 
>>  wrote:
>> Marty, I want to thank you for your fast reply, I hear you.  I do have a 
>> Nephrologist and he had me get some blood work last month and he seems to be 
>> O.K. with the results.  I do have the paper work and will scan it and send 
>> it out so you can check it out.  I want to thank you so much, you have made 
>> me feel so much better and I will listen to what you wrote me.  Again I want 
>> to thank you.
>>  
>> Greenie
>>  
>> In a message dated 12/21/2017 11:31:29 A.M. Eastern Standard Time, 
>> wa2...@gmail.com writes:
>> Hi Greenie,
>> 
>> First of all, you mention that you are worried. Why may i ask are you so 
>> worried? When people worry about things that they have little or no control 
>> over then it not only effects your mind but also your body. I know all about 
>> this because that is exactly what i used to do and i learned to direct my 
>> mind in more productive ways. Now just try to relax and get yourself going 
>> in the right direction. 
>> 
>> Now you mention about CRI so read this..
>> 
>> CRI (color rendering index) is a measure of how accurately a light source 
>> illuminates objects' true colors. Our LED lights have CRI values of up to 
>> 98, indicating that our LED lights are able to produce white light that 
>> approximates halogen or incandescent lighting and natural daylight.
>> 
>> It however has some effect on your kidneys because if they are having 
>> problems than it is a very simple thing to just go to a Nephrologist and see 
>> what is happening and why.
>> 
>> As you mentioned the normal Hemoglobin count for women should be from around 
>> 13 to 17 however not necessarily for men because men don't have their time 
>> of the month as woman do, so men require a bit less of Hemoglobin.  
>> 
>> Now a count of 10.7 shows that you are enemic and that can from a verity of 
>> different things. One being the effects from your TKI being Gleevic which i 
>> think may be the cause, now mind you I am not a doctor but someone that does 
>> a lot of research into things that i have already been through.
>> 
>> Another thing would be kidney problems which i kind of doubt because your 
>> doctors haven't mentioned it. Do you know what your 
>> 
>> Levels of creatinine in the blood reflect both the amount of muscle a person 
>> has and their amount of kidney function. Most men with normal kidney 
>> function have approximately 0.6 to 1.2 milligrams/deciliters (mg/dL) of 
>> creatinine. Most women with normal kidney function have between 0.5 to 1.1 
>> mg/dL of creatinine..
>> 
>> My Creatinine level was 8.2 before i started on my dialysis and i had to go 
>> onto dialysis which lasted for four years. Then i was able to get a kidney 
>> transplant from a 20 year old deceased  man who was anonymous, and about two 
>> weeks later it dropped down to 4.1 and kept dropping to where it is now 

[CMLHope] anemia

[Ana Burgos]

Hello,

my mum is suffering from very low hemoglobine and very low iron.

any of you happen the same?

another question is what do you think about bosutinib, after 14 years in 
gleevec the doc. is thinking of changing to bosutinib

what about side effects comparing it to gleevec?


thanks in advance




.

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Re: [CMLHope] CCI12222017.pdf

[Marty Gartenberg]

Well, there you have it. MMR  MAJOR MOLECULAR RESPONSE those three magical
words. 

18's

Marty

On Fri, Dec 22, 2017 at 7:37 AM, Myvety2k via CMLHope <
cmlhope@googlegroups.com> wrote:

>
>
> --
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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 4 updates in 1 topic

[Myvety2k via CMLHope]

I think it came through upside down.   dg
 
 
In a message dated 12/22/2017 7:44:34 A.M. Eastern Standard Time,  
cmlhope@googlegroups.com writes:

 
Here is a copy of my BCR-ABL results.
 
In a message dated 12/22/2017 7:23:33 A.M. Eastern Standard Time,  
cmlhope@googlegroups.com writes:

What  is your bcr/abl?

Sent from my iPad

On Dec 22, 2017, at 5:11 AM, cmlhope@googlegroups.com  wrote:




 
_cmlhope@googlegroups.com_ 
(https://groups.google.com/forum/?utm_source=digest_medium=email#!forum/cmlhope/topics)
_Google Groups_ 
(https://groups.google.com/forum/?utm_source=digest_medium=email/#!overview)

(https://groups.google.com/forum/?utm_source=digest_medium=email/#!overvie
w)  
 
Topic digest 
_View  all topics_ 
(https://groups.google.com/forum/?utm_source=digest_medium=email#!forum/cmlhope/topics)
  
 
*   _Questions,_ (mip://14e890a8/default.html#group_thread_0)  - 4 
Updates 

_Questions, _ 
(http://groups.google.com/group/cmlhope/t/353a872ab609d842?utm_source=digest_medium=email)
 
myvet...@aol.com: Dec 21 07:10AM  -0500 

To all of my CML friends and care  givers.

I took a flight to Chicago Dec. 6th to see my cancer  Doctor get blood 
work. A week later she called me to tell me  that my Hemoglobin was down to 
10.7 and the norm is 13.0 - 17.5.  My Hematocrit was 32.1% and the norm is 
38.0 - 50 %.
She  wants me to get a Bone Marrow test here in Florida because the  
airfare 
to Chicago would be $601.00. That's not going to happen.  I'm also taking 
Folic acid for the last 6 months (1mg). Folate  is 16.7 >=5.9.

She sent my other cancer Doctor down here a  fax as to what she wants. I 
have and appointment set for Jan. 2  and talk to him about what to do. (I'm 
worried). She made a note  to him that I also have CRI which may be 
Contributory.

So  back in 2010 my counts on these two item were Hemoglobin 13.3 and  
Hematocrit was 39.0. 

So back in 2015 my counts on these  two items were Hemoglobin 12.0 and 
Hematocrit was 36.1. So the  counts are coming down and I think it's from 
the  
Gleevec.

My white count is find at 5.8). Iron was 88  (50-212), Iron binding 
capacity was 281 (250 - 450).

So  anyone that may have some answers that may make me feel better just  
hop 
right it and I will very happy to hear from  you.

ALSO, I don't know now to do it but AOL is no longer  going to be as of Jan 
15. My new email address is (myvet...@comcast.net) and it's  free for me 
and much better.

Any feedback would be deeply  appreciated. 

Thank you all and have a Very Happy and Safe  Holiday.

Greenie for South Fort Myers, FL.
Marty Gartenberg : Dec 21  11:31AM -0500 

Hi Greenie,

First of all,  you mention that you are worried. Why may i ask are you  so
worried? When people worry about things that they have little  or no control
over then it not only effects your mind but also  your body. I know all
about this because that is exactly what i  used to do and i learned to
direct my mind in more productive  ways. Now just try to relax and get
yourself going in the right  direction.

Now you mention about CRI so read  this..

*CRI* (color rendering index) is a measure of  how accurately a light source
illuminates objects' true colors.  Our LED lights have *CRI* values of up to
98, indicating that our  LED lights are able to produce white light that
approximates  halogen or incandescent lighting and natural  daylight.

It however has some effect on your kidneys  because if they are having
problems than it is a very simple  thing to just go to a Nephrologist and
see what is happening and  why.

As you mentioned the normal Hemoglobin count for  women should be from
around 13 to 17 however not necessarily for  men because men don't have
their time of the month as woman do,  so men require a bit less of
Hemoglobin.

Now a count  of 10.7 shows that you are enemic and that can from a verity  
of
different things. One being the effects from your TKI being  Gleevic which i
think may be the cause, now mind you I am not a  doctor but someone that
does a lot of research into things that i  have already been through.

Another thing would be  kidney problems which i kind of doubt because your
doctors  haven't mentioned it. Do you know what your

*Levels* of  *creatinine* in the blood reflect both the amount of muscle  a
person has and their amount of kidney function. Most men with  normal kidney
function have approximately 0.6 to 1.2  milligrams/deciliters (mg/dL) of
*creatinine*. Most women with  normal kidney function have between 0.5 to
1.1 mg/dL of  *creatinine*..

My Creatinine level was 8.2 before i  started on my dialysis and i had to go
onto dialysis which lasted  for four years. Then i was able to get a kidney
transplant from a  20 year old deceased man who was anonymous, and about
two weeks  later it dropped down to 4.1 and kept dropping to where it is  
now
at .8 and it now stays there. Remember, i have only one  kidney while most
other people have two kidneys so i know 

[CMLHope] CCI12222017.pdf

[Myvety2k via CMLHope]

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CCI1017.pdf
Description: Adobe PDF document

Re: [CMLHope] Questions,

[Myvety2k via CMLHope]

myvet...@comcast.net   Cell phone 219-973-8717
 
greenie
 
 
 
In a message dated 12/21/2017 6:56:37 P.M. Eastern Standard Time,  
wa2...@gmail.com writes:

Listen Greenie,  


This is what i do because of a promise that i once made to GOD. Let me  
tell you about this.
When i was about to receive my total body radiation almost 30 years  ago,


just before they were about to close and lock that radiation  chamber door 
i got down on my knees clasped my hands in front of me and prayed  to GOD 
asking HIM if he would spare me i would help people that were in my  situation 
that i would try to help them. So far i have helped 1,286 people in  the 
past 30 years, and wrote my journal about each and every one of them. This  
will never be published because of confidentiality reasons, but on occasion i  
will send some of them parts of my book in order to try and help them.


Listen i am no saint just a plain human being but someone that once made  a 
promise to GOD and i am still here after many many death defying things 
that  i have gone trough. And that is why i do what i promised to do. I hope 
that  you understand why i do what i do...


There is also why i write 18's when ever i end any posts that i make,  
because that is what i believe. 18's to me represents LIFE.


If you care to send me your personal email address i would like to send  
you something. Mine is wa2yyx@gmail,com


18's,


Marty 


On Thu, Dec 21, 2017 at 4:28 PM, Myvety2k via CMLHope  
 wrote:


Marty, I want to thank you for your fast reply, I hear  you.  I do have a 
Nephrologist and he had me get some blood work last  month and he seems to be 
O.K. with the results.  I do have the paper  work and will scan it and send 
it out so you can check it out.  I want  to thank you so much, you have 
made me feel so much better and I will listen  to what you wrote me.  Again I 
want to thank you.
 
Greenie
 
 

 
In a message dated 12/21/2017 11:31:29 A.M. Eastern Standard Time, 
wa2...@gmail.com  writes:

Hi Greenie,  


First of all, you mention that you are worried. Why may i ask are you  so 
worried? When people worry about things that they have little or no  control 
over then it not only effects your mind but also your body. I know  all 
about this because that is exactly what i used to do and i learned to  direct 
my 
mind in more productive ways. Now just try to relax and get  yourself going 
in the right direction. 


Now you mention about CRI so read this..


CRI (color  rendering index) is a measure of how accurately a light source 
illuminates  objects' true colors. Our LED lights have CRI values  of up to 
98, indicating that our LED lights are able to produce white  light that 
approximates halogen or incandescent lighting and natural  daylight.



It however has some effect on your kidneys because  if they are having 
problems than it is a very simple thing to just go to a  Nephrologist and  see 
what is happening and why.


As you mentioned the normal Hemoglobin count for  women should be from 
around 13 to 17 however not necessarily for men  because men don't have their 
time of the month as woman do, so men require  a bit less of Hemoglobin.  


Now a count of 10.7 shows that you are enemic and  that can from a verity 
of different things. One being the effects from  your TKI being Gleevic which 
i think may be the cause, now mind you I am  not a doctor but someone that 
does a lot of research into things that i  have already been through.


Another thing would be kidney problems which i  kind of doubt because your 
doctors haven't mentioned it. Do you know what  your 


Levels of creatinine in the  blood reflect both the amount of muscle a 
person has and their amount of  kidney function. Most men with normal kidney 
function have approximately  0.6 to 1.2 milligrams/deciliters (mg/dL) of 
creatinine. Most women  with normal kidney function have between 0.5 to 1.1 
mg/dL  
of creatinine..


My Creatinine level was 8.2 before i started on my  dialysis and i had to 
go onto dialysis which lasted for four years. Then i  was able to get a 
kidney transplant from a 20 year old  deceased  man who was anonymous, and 
about 
two weeks later  it dropped down to 4.1 and kept dropping to where it is now 
at .8 and it  now stays there. Remember, i have only one kidney while  most 
other  people have two kidneys so i know that having only one kidney is 
doing  very well for me, and no more dialysis for me anymore.


What you did mention is that your counts are now  at   "My white  count is 
find  at 5.8).  Iron was 88 (50-212), Iron binding capacity was 281 (250 -  
450)". Which are  quite acceptable and very good for you.


And speaking about your kidneys let me give you  some information. When my 
kidneys started to fail i noticed that my  Hemoglobin also was dropping 
especially after i began to receive dialysis.  They were at 14 then would 
gradually drop to being 9.9 and that was the  magic bullet that 

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 4 updates in 1 topic

['Dr. Francis Farrell' via CMLHope]

What is your bcr/abl?

Sent from my iPad

> On Dec 22, 2017, at 5:11 AM, cmlhope@googlegroups.com wrote:
> 
> 
> cmlhope@googlegroups.com  Google Groups  
> Topic digest 
> View all topics
> Questions, - 4 Updates
> Questions,
> myvet...@aol.com: Dec 21 07:10AM -0500 
> 
> To all of my CML friends and care givers.
> 
> I took a flight to Chicago Dec. 6th to see my cancer Doctor get blood 
> work. A week later she called me to tell me that my Hemoglobin was down to 
> 10.7 and the norm is 13.0 - 17.5. My Hematocrit was 32.1% and the norm is 
> 38.0 - 50 %.
> She wants me to get a Bone Marrow test here in Florida because the airfare 
> to Chicago would be $601.00. That's not going to happen. I'm also taking 
> Folic acid for the last 6 months (1mg). Folate is 16.7 >=5.9.
> 
> She sent my other cancer Doctor down here a fax as to what she wants. I 
> have and appointment set for Jan. 2 and talk to him about what to do. (I'm 
> worried). She made a note to him that I also have CRI which may be 
> Contributory.
> 
> So back in 2010 my counts on these two item were Hemoglobin 13.3 and 
> Hematocrit was 39.0. 
> 
> So back in 2015 my counts on these two items were Hemoglobin 12.0 and 
> Hematocrit was 36.1. So the counts are coming down and I think it's from the 
> Gleevec.
> 
> My white count is find at 5.8). Iron was 88 (50-212), Iron binding 
> capacity was 281 (250 - 450).
> 
> So anyone that may have some answers that may make me feel better just hop 
> right it and I will very happy to hear from you.
> 
> ALSO, I don't know now to do it but AOL is no longer going to be as of Jan 
> 15. My new email address is (myvet...@comcast.net) and it's free for me 
> and much better.
> 
> Any feedback would be deeply appreciated. 
> 
> Thank you all and have a Very Happy and Safe Holiday.
> 
> Greenie for South Fort Myers, FL.
> Marty Gartenberg : Dec 21 11:31AM -0500 
> 
> Hi Greenie,
>  
> First of all, you mention that you are worried. Why may i ask are you so
> worried? When people worry about things that they have little or no control
> over then it not only effects your mind but also your body. I know all
> about this because that is exactly what i used to do and i learned to
> direct my mind in more productive ways. Now just try to relax and get
> yourself going in the right direction.
>  
> Now you mention about CRI so read this..
>  
> *CRI* (color rendering index) is a measure of how accurately a light source
> illuminates objects' true colors. Our LED lights have *CRI* values of up to
> 98, indicating that our LED lights are able to produce white light that
> approximates halogen or incandescent lighting and natural daylight.
>  
> It however has some effect on your kidneys because if they are having
> problems than it is a very simple thing to just go to a Nephrologist and
> see what is happening and why.
>  
> As you mentioned the normal Hemoglobin count for women should be from
> around 13 to 17 however not necessarily for men because men don't have
> their time of the month as woman do, so men require a bit less of
> Hemoglobin.
>  
> Now a count of 10.7 shows that you are enemic and that can from a verity of
> different things. One being the effects from your TKI being Gleevic which i
> think may be the cause, now mind you I am not a doctor but someone that
> does a lot of research into things that i have already been through.
>  
> Another thing would be kidney problems which i kind of doubt because your
> doctors haven't mentioned it. Do you know what your
>  
> *Levels* of *creatinine* in the blood reflect both the amount of muscle a
> person has and their amount of kidney function. Most men with normal kidney
> function have approximately 0.6 to 1.2 milligrams/deciliters (mg/dL) of
> *creatinine*. Most women with normal kidney function have between 0.5 to
> 1.1 mg/dL of *creatinine*..
>  
> My Creatinine level was 8.2 before i started on my dialysis and i had to go
> onto dialysis which lasted for four years. Then i was able to get a kidney
> transplant from a 20 year old deceased man who was anonymous, and about
> two weeks later it dropped down to 4.1 and kept dropping to where it is now
> at .8 and it now stays there. Remember, i have only one kidney while most
> other people have two kidneys so i know that having only one kidney is
> doing very well for me, and no more dialysis for me anymore.
>  
> What you did mention is that your counts are now at "My white count is find
> at 5.8). Iron was 88 (50-212), Iron binding capacity was 281 (250 -
> 450)". Which
> are quite acceptable and very good for you.
>  
> And speaking about your kidneys let me give you some information. When my
> kidneys started to fail i noticed that my Hemoglobin also was dropping
> especially after i began to receive dialysis. They were at 14 then would
> gradually drop to being 9.9 and that was the magic bullet that triggered
> that i would be able to start receiving Procrit or Epogin