Re: [HCP-Users] question about making RSFC matrices available

[Curtiss, Sandy]

All,

Tim is correct that our IRB only covers use of the original imaging data, not 
derivative imaging data.  What to do with derivative imaging data is up to a 
person’s own IRB.

That said, if there is any restricted data associated with these data files 
(e.g. age, handedness, race, ethnicity, family structure (see 
https://www.humanconnectome.org/study/hcp-young-adult/document/wu-minn-hcp-consortium-restricted-data-use-terms
 for the full list)), then the data cannot be published using the HCP subject 
IDs.

Sandy


Sandra Curtiss, PhD, PMP
Senior Project Manager, Human Connectome Projects
Washington University in St. Louis
scurt...@wustl.edu




From: Thomas Yeo [mailto:yeoye...@gmail.com]
Sent: Tuesday, April 16, 2019 9:03 PM
To: NEUROSCIENCE tim 
Cc: Glasser, Matthew ; Burgess, Gregory 
; Curtiss, Sandy ; 李婧玮 
; hcp-users@humanconnectome.org
Subject: Re: [HCP-Users] question about making RSFC matrices available

I see. Thanks.

Regards,
Thomas

On Tue, Apr 16, 2019 at 6:28 PM Timothy Coalson 
mailto:tsc...@mst.edu>> wrote:
We have done so partly because we haven't needed to put many data files on 
github (it would not be simple for the pipelines to fetch 
data-use-terms-protected files from BALSA, for instance).  He first asked 
whether it was okay to put them on github, and the real answer seems to be "ask 
your own institution, not us".

Tim


On Tue, Apr 16, 2019 at 8:00 PM Glasser, Matthew 
mailto:glass...@wustl.edu>> wrote:
Hi Tim,

I guess we have treated such derivative results similarly and put them behind 
the HCP data use terms.  One easy solution would be to upload the results to 
the BALSA database and add the HCP data use terms.

Matt.

From: 
mailto:hcp-users-boun...@humanconnectome.org>>
 on behalf of Timothy Coalson mailto:tsc...@mst.edu>>
Date: Tuesday, April 16, 2019 at 5:11 PM
To: "Burgess, Gregory" mailto:gburg...@wustl.edu>>
Cc: "Curtiss, Sandy" mailto:scurt...@wustl.edu>>, 李婧玮 
mailto:allhappylife...@gmail.com>>, Thomas Yeo 
mailto:yeoye...@gmail.com>>, 
"hcp-users@humanconnectome.org<mailto:hcp-users@humanconnectome.org>" 
mailto:hcp-users@humanconnectome.org>>
Subject: Re: [HCP-Users] question about making RSFC matrices available

However, he is not sharing the HCP data files themselves, but only results 
obtained from using them.  The data use terms only state that the *original 
data* must be distributed under the same terms.  Derived data appears to only 
be covered by "all relevant rules and regulations imposed by my institution", 
and that paragraph looks like it mainly exists to remind users that the data is 
not considered de-identified.

Tim


On Tue, Apr 16, 2019 at 4:56 PM Burgess, Gregory 
mailto:gburg...@wustl.edu>> wrote:
I believe that the Open Access Data Use terms 
(https://www.humanconnectome.org/study/hcp-young-adult/document/wu-minn-hcp-consortium-open-access-data-use-terms)
 require that anyone receiving the data must have first agreed to the Open 
Access Data Use Terms. If my understanding is correct, that would mean that you 
would need to verify that the recipient has accepted the terms before sharing 
with them. I doubt that would be easy to manage on a public site.

--Greg


Greg Burgess, Ph.D.
Senior Scientist, Human Connectome Project
Washington University School of Medicine
Department of Psychiatry
Phone: 314-362-7864
Email: gburg...@wustl.edu<mailto:gburg...@wustl.edu>


On Apr 16, 2019, at 1:24 PM, Thomas Yeo 
mailto:yeoye...@gmail.com>> wrote:

Hi,

Maybe this question has already been answered before, but we have been working 
on the HCP data and have computed our own derivatives, e.g., FC matrices of 
individual subjects.

Is it ok to share these matrices with accompanying HCP subject IDs on our 
personal github/website? If not, how do you suggest we can share these 
derivatives?

Thanks,
Thomas

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Re: [HCP-Users] question about making RSFC matrices available

[Thomas Yeo]

I see. Thanks.

Regards,
Thomas

On Tue, Apr 16, 2019 at 6:28 PM Timothy Coalson  wrote:

> We have done so partly because we haven't needed to put many data files on
> github (it would not be simple for the pipelines to fetch
> data-use-terms-protected files from BALSA, for instance).  He first asked
> whether it was okay to put them on github, and the real answer seems to be
> "ask your own institution, not us".
>
> Tim
>
>
> On Tue, Apr 16, 2019 at 8:00 PM Glasser, Matthew 
> wrote:
>
>> Hi Tim,
>>
>> I guess we have treated such derivative results similarly and put them
>> behind the HCP data use terms.  One easy solution would be to upload the
>> results to the BALSA database and add the HCP data use terms.
>>
>> Matt.
>>
>> From:  on behalf of Timothy
>> Coalson 
>> Date: Tuesday, April 16, 2019 at 5:11 PM
>> To: "Burgess, Gregory" 
>> Cc: "Curtiss, Sandy" , 李婧玮 ,
>> Thomas Yeo , "hcp-users@humanconnectome.org" <
>> hcp-users@humanconnectome.org>
>> Subject: Re: [HCP-Users] question about making RSFC matrices available
>>
>> However, he is not sharing the HCP data files themselves, but only
>> results obtained from using them.  The data use terms only state that the
>> *original data* must be distributed under the same terms.  Derived data
>> appears to only be covered by "all relevant rules and regulations imposed
>> by my institution", and that paragraph looks like it mainly exists to
>> remind users that the data is not considered de-identified.
>>
>> Tim
>>
>>
>> On Tue, Apr 16, 2019 at 4:56 PM Burgess, Gregory 
>> wrote:
>>
>>> I believe that the Open Access Data Use terms (
>>> https://www.humanconnectome.org/study/hcp-young-adult/document/wu-minn-hcp-consortium-open-access-data-use-terms)
>>> require that anyone receiving the data must have first agreed to the Open
>>> Access Data Use Terms. If my understanding is correct, that would mean that
>>> you would need to verify that the recipient has accepted the terms before
>>> sharing with them. I doubt that would be easy to manage on a public site.
>>>
>>> --Greg
>>>
>>> 
>>> Greg Burgess, Ph.D.
>>> Senior Scientist, Human Connectome Project
>>> Washington University School of Medicine
>>> Department of Psychiatry
>>> Phone: 314-362-7864
>>> Email: gburg...@wustl.edu 
>>>
>>> On Apr 16, 2019, at 1:24 PM, Thomas Yeo  wrote:
>>>
>>> Hi,
>>>
>>> Maybe this question has already been answered before, but we have been
>>> working on the HCP data and have computed our own derivatives, e.g., FC
>>> matrices of individual subjects.
>>>
>>> Is it ok to share these matrices with accompanying HCP subject IDs on
>>> our personal github/website? If not, how do you suggest we can share these
>>> derivatives?
>>>
>>> Thanks,
>>> Thomas
>>>
>>> ___
>>> HCP-Users mailing list
>>> HCP-Users@humanconnectome.org
>>> http://lists.humanconnectome.org/mailman/listinfo/hcp-users
>>>
>>>
>>>
>>> --
>>>
>>> The materials in this message are private and may contain Protected
>>> Healthcare Information or other information of a sensitive nature. If you
>>> are not the intended recipient, be advised that any unauthorized use,
>>> disclosure, copying or the taking of any action in reliance on the contents
>>> of this information is strictly prohibited. If you have received this email
>>> in error, please immediately notify the sender via telephone or return mail.
>>>
>>> ___
>>> HCP-Users mailing list
>>> HCP-Users@humanconnectome.org
>>> http://lists.humanconnectome.org/mailman/listinfo/hcp-users
>>>
>> ___
>> HCP-Users mailing list
>> HCP-Users@humanconnectome.org
>> http://lists.humanconnectome.org/mailman/listinfo/hcp-users
>>
>>
>> --
>>
>> The materials in this message are private and may contain Protected
>> Healthcare Information or other information of a sensitive nature. If you
>> are not the intended recipient, be advised that any unauthorized use,
>> disclosure, copying or the taking of any action in reliance on the contents
>> of this information is strictly prohibited. If you have received this email
>> in error, please immediately notify the sender via telephone or return mail.
>>
>

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Re: [HCP-Users] question about making RSFC matrices available

[Timothy Coalson]

We have done so partly because we haven't needed to put many data files on
github (it would not be simple for the pipelines to fetch
data-use-terms-protected files from BALSA, for instance).  He first asked
whether it was okay to put them on github, and the real answer seems to be
"ask your own institution, not us".

Tim


On Tue, Apr 16, 2019 at 8:00 PM Glasser, Matthew  wrote:

> Hi Tim,
>
> I guess we have treated such derivative results similarly and put them
> behind the HCP data use terms.  One easy solution would be to upload the
> results to the BALSA database and add the HCP data use terms.
>
> Matt.
>
> From:  on behalf of Timothy
> Coalson 
> Date: Tuesday, April 16, 2019 at 5:11 PM
> To: "Burgess, Gregory" 
> Cc: "Curtiss, Sandy" , 李婧玮 ,
> Thomas Yeo , "hcp-users@humanconnectome.org" <
> hcp-users@humanconnectome.org>
> Subject: Re: [HCP-Users] question about making RSFC matrices available
>
> However, he is not sharing the HCP data files themselves, but only results
> obtained from using them.  The data use terms only state that the *original
> data* must be distributed under the same terms.  Derived data appears to
> only be covered by "all relevant rules and regulations imposed by my
> institution", and that paragraph looks like it mainly exists to remind
> users that the data is not considered de-identified.
>
> Tim
>
>
> On Tue, Apr 16, 2019 at 4:56 PM Burgess, Gregory 
> wrote:
>
>> I believe that the Open Access Data Use terms (
>> https://www.humanconnectome.org/study/hcp-young-adult/document/wu-minn-hcp-consortium-open-access-data-use-terms)
>> require that anyone receiving the data must have first agreed to the Open
>> Access Data Use Terms. If my understanding is correct, that would mean that
>> you would need to verify that the recipient has accepted the terms before
>> sharing with them. I doubt that would be easy to manage on a public site.
>>
>> --Greg
>>
>> 
>> Greg Burgess, Ph.D.
>> Senior Scientist, Human Connectome Project
>> Washington University School of Medicine
>> Department of Psychiatry
>> Phone: 314-362-7864
>> Email: gburg...@wustl.edu 
>>
>> On Apr 16, 2019, at 1:24 PM, Thomas Yeo  wrote:
>>
>> Hi,
>>
>> Maybe this question has already been answered before, but we have been
>> working on the HCP data and have computed our own derivatives, e.g., FC
>> matrices of individual subjects.
>>
>> Is it ok to share these matrices with accompanying HCP subject IDs on our
>> personal github/website? If not, how do you suggest we can share these
>> derivatives?
>>
>> Thanks,
>> Thomas
>>
>> ___
>> HCP-Users mailing list
>> HCP-Users@humanconnectome.org
>> http://lists.humanconnectome.org/mailman/listinfo/hcp-users
>>
>>
>>
>> --
>>
>> The materials in this message are private and may contain Protected
>> Healthcare Information or other information of a sensitive nature. If you
>> are not the intended recipient, be advised that any unauthorized use,
>> disclosure, copying or the taking of any action in reliance on the contents
>> of this information is strictly prohibited. If you have received this email
>> in error, please immediately notify the sender via telephone or return mail.
>>
>> ___
>> HCP-Users mailing list
>> HCP-Users@humanconnectome.org
>> http://lists.humanconnectome.org/mailman/listinfo/hcp-users
>>
> ___
> HCP-Users mailing list
> HCP-Users@humanconnectome.org
> http://lists.humanconnectome.org/mailman/listinfo/hcp-users
>
>
> --
>
> The materials in this message are private and may contain Protected
> Healthcare Information or other information of a sensitive nature. If you
> are not the intended recipient, be advised that any unauthorized use,
> disclosure, copying or the taking of any action in reliance on the contents
> of this information is strictly prohibited. If you have received this email
> in error, please immediately notify the sender via telephone or return mail.
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Re: [HCP-Users] question about making RSFC matrices available

[Glasser, Matthew]

Hi Tim,

I guess we have treated such derivative results similarly and put them behind 
the HCP data use terms.  One easy solution would be to upload the results to 
the BALSA database and add the HCP data use terms.

Matt.

From: 
mailto:hcp-users-boun...@humanconnectome.org>>
 on behalf of Timothy Coalson mailto:tsc...@mst.edu>>
Date: Tuesday, April 16, 2019 at 5:11 PM
To: "Burgess, Gregory" mailto:gburg...@wustl.edu>>
Cc: "Curtiss, Sandy" mailto:scurt...@wustl.edu>>, 李婧玮 
mailto:allhappylife...@gmail.com>>, Thomas Yeo 
mailto:yeoye...@gmail.com>>, 
"hcp-users@humanconnectome.org<mailto:hcp-users@humanconnectome.org>" 
mailto:hcp-users@humanconnectome.org>>
Subject: Re: [HCP-Users] question about making RSFC matrices available

However, he is not sharing the HCP data files themselves, but only results 
obtained from using them.  The data use terms only state that the *original 
data* must be distributed under the same terms.  Derived data appears to only 
be covered by "all relevant rules and regulations imposed by my institution", 
and that paragraph looks like it mainly exists to remind users that the data is 
not considered de-identified.

Tim


On Tue, Apr 16, 2019 at 4:56 PM Burgess, Gregory 
mailto:gburg...@wustl.edu>> wrote:
I believe that the Open Access Data Use terms 
(https://www.humanconnectome.org/study/hcp-young-adult/document/wu-minn-hcp-consortium-open-access-data-use-terms)
 require that anyone receiving the data must have first agreed to the Open 
Access Data Use Terms. If my understanding is correct, that would mean that you 
would need to verify that the recipient has accepted the terms before sharing 
with them. I doubt that would be easy to manage on a public site.

--Greg


Greg Burgess, Ph.D.
Senior Scientist, Human Connectome Project
Washington University School of Medicine
Department of Psychiatry
Phone: 314-362-7864
Email: gburg...@wustl.edu<mailto:gburg...@wustl.edu>

On Apr 16, 2019, at 1:24 PM, Thomas Yeo 
mailto:yeoye...@gmail.com>> wrote:

Hi,

Maybe this question has already been answered before, but we have been working 
on the HCP data and have computed our own derivatives, e.g., FC matrices of 
individual subjects.

Is it ok to share these matrices with accompanying HCP subject IDs on our 
personal github/website? If not, how do you suggest we can share these 
derivatives?

Thanks,
Thomas

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Re: [HCP-Users] question about making RSFC matrices available

[Timothy Coalson]

However, he is not sharing the HCP data files themselves, but only results
obtained from using them.  The data use terms only state that the *original
data* must be distributed under the same terms.  Derived data appears to
only be covered by "all relevant rules and regulations imposed by my
institution", and that paragraph looks like it mainly exists to remind
users that the data is not considered de-identified.

Tim


On Tue, Apr 16, 2019 at 4:56 PM Burgess, Gregory  wrote:

> I believe that the Open Access Data Use terms (
> https://www.humanconnectome.org/study/hcp-young-adult/document/wu-minn-hcp-consortium-open-access-data-use-terms)
> require that anyone receiving the data must have first agreed to the Open
> Access Data Use Terms. If my understanding is correct, that would mean that
> you would need to verify that the recipient has accepted the terms before
> sharing with them. I doubt that would be easy to manage on a public site.
>
> --Greg
>
> 
> Greg Burgess, Ph.D.
> Senior Scientist, Human Connectome Project
> Washington University School of Medicine
> Department of Psychiatry
> Phone: 314-362-7864
> Email: gburg...@wustl.edu 
>
> On Apr 16, 2019, at 1:24 PM, Thomas Yeo  wrote:
>
> Hi,
>
> Maybe this question has already been answered before, but we have been
> working on the HCP data and have computed our own derivatives, e.g., FC
> matrices of individual subjects.
>
> Is it ok to share these matrices with accompanying HCP subject IDs on our
> personal github/website? If not, how do you suggest we can share these
> derivatives?
>
> Thanks,
> Thomas
>
> ___
> HCP-Users mailing list
> HCP-Users@humanconnectome.org
> http://lists.humanconnectome.org/mailman/listinfo/hcp-users
>
>
>
> --
>
> The materials in this message are private and may contain Protected
> Healthcare Information or other information of a sensitive nature. If you
> are not the intended recipient, be advised that any unauthorized use,
> disclosure, copying or the taking of any action in reliance on the contents
> of this information is strictly prohibited. If you have received this email
> in error, please immediately notify the sender via telephone or return mail.
>
> ___
> HCP-Users mailing list
> HCP-Users@humanconnectome.org
> http://lists.humanconnectome.org/mailman/listinfo/hcp-users
>

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Re: [HCP-Users] question about making RSFC matrices available

[Burgess, Gregory]

I believe that the Open Access Data Use terms 
(https://www.humanconnectome.org/study/hcp-young-adult/document/wu-minn-hcp-consortium-open-access-data-use-terms)
 require that anyone receiving the data must have first agreed to the Open 
Access Data Use Terms. If my understanding is correct, that would mean that you 
would need to verify that the recipient has accepted the terms before sharing 
with them. I doubt that would be easy to manage on a public site.

--Greg


Greg Burgess, Ph.D.
Senior Scientist, Human Connectome Project
Washington University School of Medicine
Department of Psychiatry
Phone: 314-362-7864
Email: gburg...@wustl.edu

On Apr 16, 2019, at 1:24 PM, Thomas Yeo 
mailto:yeoye...@gmail.com>> wrote:

Hi,

Maybe this question has already been answered before, but we have been working 
on the HCP data and have computed our own derivatives, e.g., FC matrices of 
individual subjects.

Is it ok to share these matrices with accompanying HCP subject IDs on our 
personal github/website? If not, how do you suggest we can share these 
derivatives?

Thanks,
Thomas

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