[QUAD-L] Re: [Spinalcordinjury] Re: Nipple Pain
In a message dated 14/12/2004 20:52:08 GMT Standard Time, [EMAIL PROTECTED] writes: Hi Smurf,I think I know a way to make it feel all better. ;)Hugs,John I bet you do my dear! lol Take it easy, Love Smurf xxx
[QUAD-L] Re: (no subject)
In a message dated 13/12/2004 16:02:46 GMT Standard Time, LadyOnWheels725 writes: HI Smurf, Sorry it has taken me a few days to get back to you and the others that had some questions, but right after posting, I came down with a heck of kidney infection.Why is it with us that when we go in with one problem we can end up with a kidney problem in the end ?? After suffering through bactrum and cranberry juice is it finally getting better. Over the past 2 years I have had 7 rounds of botox injections in both legs. The first 2 were very painful and I wore dynasplints on both legs and the splints were nothing but torture. I changed doctors and he also changed my medications that was helping my pain so I agreed to attempt Botox again.I was wearing lidocaide patches on my legs for pain control andit did seem to help, so when he did the botox injection he added lidocaine . He was concerned about my legs because he couldn't get any reaction on the emg, so he was having trouble finding active nerve activity. The last session I went in he said he wanted to take a pen and make points whereI told him I hurt and he would shoot deep trigger points. He injected very deep areas. I was told I didn't want to see the needle. I had no relief at all from that session.I am very glad I tried , botoxbecause I did get some relieve at times, will I go through it again, I don't think so. When I was in the hospital they put pneumatic compression boots on me that felt like I was getting a gentle massage.For the first time, it made my legs feel soft and removed pain, but the bummer is they cost on the low end $800 neither Medicare or Medicaid pays for it. I have read where it says Medicare will, but 2 representatives says no. I have located where , it should have been approved 2001, so I am not through discussing it. If I decide to buy it I will go directly yo the company and not the area corner store to cut out the middle man. Kathy in Mississippi Hi Kathy, Your a star! If I had any doubts about weather or not to have the botox done or not - you've helped me make my decision, so thank you! Hows the kidney infection doing? take care, Love Smurf xxx
[QUAD-L] Re: [Spinalcordinjury] How do we help
In a message dated 14/12/2004 02:38:48 GMT Standard Time, [EMAIL PROTECTED] writes: Hello all, This summer my son's friend suffered a SCI. He is still in rehab. All I can do is pray and cry for a very young man I don't even know. His injury has impacted all of us and he doesn't even know. How do my son, his friends and mehim help? We want him to know there is hope and that we all care. I happen to be at the rehab every Tuesday and Thursday but I am afraid to go meet him because I don't know if he will appreciate a friend's mom looking in on him. How do we help his emotional state? Isn't fair to say that even a SCI injury doesn't stop life and love? He feels as if he will never have a girl fall in love with him and that he will go through life alone. It is my understanding that he doesn't have the use of his hands yet. Does this meanhe will never regain the use of his hands? Please anyone with any advice please write. Thanks Hi there, I'm Smurf and I'm 20 from the UK. I became a para about a month after my 18th birthday after a combination of a fall and car accident. The best advice I can give you for your sons friend is to be there for him. Your sons friend is going to need a lot of support right now, and as many true friends he can get hold of. If he gets moody or anything don't argue back at him, let himoffload his anger, and give him theemotional support.For the future heneeds to be alloud to make his own mistakes, but for now a good friend whol will stand by him through thick and thin is what's going to help him Hope that helps, Love Smurf xxx
Re: [QUAD-L] BODY CHANGING 6 YRS POST
Sounds very familiar! Yeah, about every 10 years or everytime a 0 is at the end of and age, things seem to head south and it takes longer to bounce back from things--like being in bed for a pressure sore, a surgery or just a stomach ache. I definitely cannot just hop in the chair and go full steam anymore. Tried that and could hardly move the next day! What used to work does not, what used to not work does now and gave up guessing why a long time ago! take care, Dana and ? [EMAIL PROTECTED] - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED]; [EMAIL PROTECTED] Cc: [EMAIL PROTECTED] Sent: Monday, December 13, 2004 10:14 AM Subject: Re: [QUAD-L] BODY CHANGING 6 YRS POST OKAY - A QUESTION FOR THE ONES HERE INJURED FOR AWHILE. DID YOUR BODY GO HAYWIRE QUITE SOME TIME (YEARS) AFTER YOUR INJURY? Yes. Gravity (especially after 50) is not kind. My waist has expanded, my formerly well-toned pecs are sagging and my chin grew a twin. I hate gravity. LOL Bill C-6 incomplete in FL
Re: [QUAD-L] UTI
When I was a new injury I tried it, but my current doctor will not allow this procedure. My urologists also thinks this is highly irregular. I use simple saline for irrigation.Billy[EMAIL PROTECTED] wrote: My doc said I can try to irrigate bladder with vinager and water ( acetic acid ) is proper namehas anyone here tried that ?? Do you Yahoo!? Jazz up your holiday email with celebrity designs. Learn more.
Re: [QUAD-L] air powered leg massage
Looks like the eds things they use in the hospital On 12/14/04 8:19 PM, Stuntman [EMAIL PROTECTED] wrote: Howdy Saw them on TV for $40-$60. http://www.inventionchannel.com/product/product.jsp?productID=2 stuntman HI Smurf, Sorry it has taken me a few days to get back to you and the others that had some questions, but right after posting, I came down with a heck of kidney infection.Why is it with us that when we go in with one problem we can end up with a kidney problem in the end ?? After suffering through bactrum and cranberry juice is it finally getting better. Over the past 2 years I have had 7 rounds of botox injections in both legs. The first 2 were very painful and I wore dynasplints on both legs and the splints were nothing but torture. I changed doctors and he also changed my medications that was helping my pain so I agreed to attempt Botox again. I was wearing lidocaide patches on my legs for pain control and it did seem to help, so when he did the botox injection he added lidocaine . He was concerned about my legs because he couldn't get any reaction on the emg, so he was having trouble finding active nerve activity. The last session I went in he said he wanted to take a pen and make points where I told him I hurt and he would shoot deep trigger points. He injected very deep areas. I was told I didn't want to see the needle. I had no relief at all from that session. I am very glad I tried , botox because I did get some relieve at times, will I go through it again, I don't think so. When I was in the hospital they put pneumatic compression boots on me that felt like I was getting a gentle massage.For the first time, it made my legs feel soft and removed pain, but the bummer is they cost on the low end $800 neither Medicare or Medicaid pays for it. I have read where it says Medicare will, but 2 representatives says no. I have located where , it should have been approved 2001, so I am not through discussing it. If I decide to buy it I will go directly yo the company and not the area corner store to cut out the middle man. Kathy in Mississippi
Re: [QUAD-L] air powered leg massage
Yep, And a lot cheaper than $800. Stuntman Looks like the eds things they use in the hospital On 12/14/04 8:19 PM, Stuntman [EMAIL PROTECTED] wrote: Howdy Saw them on TV for $40-$60. http://www.inventionchannel.com/product/product.jsp?productID=2 stuntman -- It's not the fall that hurts. Home page http://tnthompson0.tripod.com/homeincyberspace/ Graphics portfolio http://tnthompson1.tripod.com/index.htm Domain space http://nw-in.com/index.html
Re: [QUAD-L] BODY CHANGING 6 YRS POST
well.. not EVERY cell. darned neurons anyway. In a message dated 12/14/2004 6:30:04 P.M. US Mountain Standard Time, [EMAIL PROTECTED] writes: Could just be part of that normal 7 year cycle. Every 7 years or so life throws a wammy. 7 yr itch, 7 yrs of bad luck, every cell in the body replaced over a 7 yr period, etc.But look at the up side, your next 6+ yrs should be good. stuntmanHELLO ALL OKAY - A QUESTION FOR THE ONES HERE INJURED FOR AWHILE. DID YOUR BODY GO HAYWIRE QUITE SOME TIME (YEARS) AFTER YOUR INJURY? I WAS ROLLING RIGHT ALONG AND THEN IN JUNE AT 6 YEARS POST - WHAM! PROBLEMS WITH MY LEGS (NOW UNDER CONTROL FOR THE MOST PART), CATHETER STOPPING UP FOR THE PAST 5 MONTHS, 1ST BOWEL ACCIDENT THURSDAY NIGHT IN 5 YEARS, GAINED A NOTICEABLE AMOUNT OF WEIGHT IN 3 MONTHS WITH NO CHANGE IN EATING HABITS. PLEASE ENLIGHTEN ME. NICKI C5/6 -- It's not the fall that hurts.Home page http://tnthompson0.tripod.com/homeincyberspace/Graphics portfolio http://tnthompson1.tripod.com/index.htmDomain space http://nw-in.com/index.html
[QUAD-L] UTI
My son, Gabe has a C4-5 injury. He is nine years post. Heis straight cathed about every four hours. He had a lot of bladder problems, spasms,infections and pain.The doc was great however, she never mentionedseveral things to us because she didn't think it was necessary or that we didn't have access to the care.So we had to research and dig andI hope these things can be helpful to you. 1. If your generic ditropan-or what ever you take isn't working well, it might be that you need name brand. Helped Gabe. 2.If your bladder spasm meds aren't working maybe you have built up a tolerance and need to switch for a couple months then go back to the med. Gabe builds up a tolerance every 2-3 years. 3. If your oral antibiotic isn't working you can "instill" the antibiotic directly into the bladder. It's easy. We have done it several times. The doc said she didn't mention it because she didn't think we had a nurse that could do it. First time around a nurse helped after that the doc just worked with us. A pharmacy can mix up the antibiotic into sterile water or if you don't have a pharmacy that will do that the doc can just write up anRX for a vial of an antibiotic and you can mix it at home with sterile water. To do it you just need to have an empty bladder, a 30 mm syringe with out needle. a cath in the bladder, sterile gloves- draw out the prescribed amount of fluid and instill the antibiotic into the bladder through the cath. We have a protocol so we can keep every thing sterile. Gabe had a bacteria that I guess only infects the lungs. He was on antibiotic for three months. We did the instillation and it kicked the bugs a I hope these ideas help. Lana, mom
Re: [QUAD-L] UTI
d mannose powder which i take 3 times/day helps me to avoid uti's Brian Lana Baugh wrote: My son, Gabe has a C4-5 injury. He is nine years post. He is straight cathed about every four hours. He had a lot of bladder problems, spasms, infections and pain.The doc was great however, she never mentioned several things to us because she didn't think it was necessary or that we didn't have access to the care.So we had to research and dig and I hope these things can be helpful to you. 1. If your generic ditropan-or what ever you take isn't working well, it might be that you need name brand. Helped Gabe. 2.If your bladder spasm meds aren't working maybe you have built up a tolerance and need to switch for a couple months then go back to the med. Gabe builds up a tolerance every 2-3 years. 3. If your oral antibiotic isn't working you can instill the antibiotic directly into the bladder. It's easy. We have done it several times. The doc said she didn't mention it because she didn't think we had a nurse that could do it. First time around a nurse helped after that the doc just worked with us. A pharmacy can mix up the antibiotic into sterile water or if you don't have a pharmacy that will do that the doc can just write up an RX for a vial of an antibiotic and you can mix it at home with sterile water. To do it you just need to have an empty bladder, a 30 mm syringe with out needle. a cath in the bladder, sterile gloves- draw out the prescribed amount of fluid and instill the antibiotic into the bladder through the cath. We have a protocol so we can keep every thing sterile. Gabe had a bacteria that I guess only infects the lungs. He was on antibiotic for three months. We did the instillation and it kicked the bugs a I hope these ideas help. Lana, mom
[QUAD-L] Re: [Spinalcordinjury] Re: Nipple Pain
In a message dated 09/12/2004 18:37:44 GMT Standard Time, [EMAIL PROTECTED] writes: Ouch!!! Those hurt.--- In [EMAIL PROTECTED], shane jones [EMAIL PROTECTED] wrote: A purple nurple is like a umm titty twister where ya grab the nipple and twistI got that off of Austin Powers aguythatslonely [EMAIL PROTECTED] wrote: What's a purple nurple? John Especially if your female that'll hurt! lol Love Smurf xxx
: [QUAD-L] Re: I'm ok....
Title: Message Subject: [QUAD-L] Re: I'm okA I didn't realize your surgery was going to be the type that required tubes and liquid restrictions. Glad to read that you feel positive about the work done and it will only be a minimal amount of after effects. Please keep us "posted" ;) -Cameron In a message dated 12/12/2004 00:01:49 GMT Standard Time, [EMAIL PROTECTED] writes: hey gang...surgery the 7th was great and successful, the nose tubes are out, im holding my own... it will b tuesday before liquids...will keep u all postedi've been getting up in chair since 8th.. love amye Thanks for keeping us poster Amye, good to hear things was a success story!!! Looking forward to having you back chatting to us!! Love Smurf xxx
[QUAD-L] Re: [Spinalcordinjury] Also new to group--thoughts and questions
In a message dated 14/12/2004 08:27:00 GMT Standard Time, [EMAIL PROTECTED] writes: Shane, Since my accident I have taken on-line courses only. My accident was last year. However, sooner or later I will have to go to actual classes, which I am not looking foward to even thoughon-line courses seem to be more demanding. Before the accident I used to work full time and go to shcool part time. Now, I only go to school full time, but it seems I have less time to do anything. I guess it is because it takes me longer to do everything. Apart from that, my sleep schedule is way off. I tend to feel anxiety at night more than during the day soit is difficult for me to sleep, unless I am dead tired. Iwonder if anyone else feels that wayand what they do about it. Well, I guess that is all for now. Thanks for your message! Amelia Hi Amelia, Your email about being worried about started full time school sounds all too familiar. I was feeling the same a couple of years ago when I started back at college after my accident. This is when you need a good school that'll support you health wise, and if they do then you shouldn't have any problem. When I started my course I told them that I hardly slept during the night so daytime I was drowsy, and explained to them my worries and they were fantastic. I guess as long as you are straight up and open with them right from day one you will have no worries! Keep us posted! love Smurf xxx
Re: [QUAD-L] uti's
I've been on oxybut--otherwise known as Ditropan, since I was in rehab. I take a small amount-- 1 5mg, once a day. Used to take it twice a day, but was able to get down to one a day. I have no idea if it even helps anymore. Its a bladder relaxer. take care, Dana and ? [EMAIL PROTECTED] - Original Message - From: B. Kimberlin [EMAIL PROTECTED] To: [EMAIL PROTECTED] Sent: Monday, December 13, 2004 4:10 PM Subject: Re: [QUAD-L] uti's Dan, I have had similar experiences with urologists, but I found when I started taking a very small quantity of Oxybutynin that this relieve the majority of my pain. You may want to talk to your urologists about this. Additionally, you may want to, if you already haven't, check into getting a sonogram. The only other time I have had bladder pain which lasted for a long time I had bladder stones. Good luck with your problem and if this urologists doesn't give you any better answers than you will have to learn to live with it, then I would agree you definitely need a second opinion. Just my two cents. Billy [EMAIL PROTECTED] wrote: Hi all, I have been having bad bladder spasms and pain for three monthsmy urologist tells me I just have to live with itmy present urine culture showed 3 types of bacteria. He told me oh well your always going to have bacteria present with a supra pubic or any indwelling catheters. I can understand that to an extent, but in my 7 years post injury this is the third time I have suffered this much for long periods of time...Have any of you gone to a 2nd urologist for a 2nd opinion??? Dan - Do you Yahoo!? Yahoo! Mail - 250MB free storage. Do more. Manage less.
Re: [QUAD-L] BODY CHANGING 6 YRS POST
Could just be part of that normal 7 year cycle. Every 7 years or so life throws a wammy. 7 yr itch, 7 yrs of bad luck, every cell in the body replaced over a 7 yr period, etc. But look at the up side, your next 6+ yrs should be good. stuntman HELLO ALL OKAY - A QUESTION FOR THE ONES HERE INJURED FOR AWHILE. DID YOUR BODY GO HAYWIRE QUITE SOME TIME (YEARS) AFTER YOUR INJURY? I WAS ROLLING RIGHT ALONG AND THEN IN JUNE AT 6 YEARS POST - WHAM! PROBLEMS WITH MY LEGS (NOW UNDER CONTROL FOR THE MOST PART), CATHETER STOPPING UP FOR THE PAST 5 MONTHS, 1ST BOWEL ACCIDENT THURSDAY NIGHT IN 5 YEARS, GAINED A NOTICEABLE AMOUNT OF WEIGHT IN 3 MONTHS WITH NO CHANGE IN EATING HABITS. PLEASE ENLIGHTEN ME. NICKI C5/6 -- It's not the fall that hurts. Home page http://tnthompson0.tripod.com/homeincyberspace/ Graphics portfolio http://tnthompson1.tripod.com/index.htm Domain space http://nw-in.com/index.html
Re: [QUAD-L] Chat
Hangin in there. Been keeping busy designing a web site for a client (1st commercial client), doing all the custom graphics etc too. Do a little, changes his mind, do something dif etc etc. Yep, Quikie P-222-SE can hold a wheelie for about half a block. Opal Blue paint job Power Tilt Dang Qtronix joystick sucks though. They should NEVER design a chair w/o a quad on the team. Stuntman Heard that you got a new chair, Stuntman. How's it going? W In a message dated 12/14/04 7:35:52 PM, [EMAIL PROTECTED] writes: Good luck, I'm on my 2nd yr off after 4 full time (12 cr hr) and I don't know if I want to go back for another full time semester. My mind says yes but my shoulder and biceps say no way. stuntman -- It's not the fall that hurts. Home page http://tnthompson0.tripod.com/homeincyberspace/ Graphics portfolio http://tnthompson1.tripod.com/index.htm Domain space http://nw-in.com/index.html
