Re: [QUAD-L] Shoes
I wear a pair of Addidas soft running shoes or a pair of timberland loafers. fancy shoes on occasion. try wearing LL Bean slippers. They look like moccasins w/ sheepskin for awhile, maybe get a 1/2 size larger. Your foot wasn't spasming in the shoe?? - Original Message - From: Jeremy Dickinson To: quadlist Sent: Thursday, November 03, 2005 5:27 PM Subject: [QUAD-L] Shoes Hey all, What kind of shoes do you guys wear? I spent 3 hours in the ER last night because (I'm assuming) whenmy nurseput my shoe on, my big toe nail must have got bent back and nearly ripped off (now is off and bandaged) and made the whole side of my foot purple. Anyway, mom doesn't want me wearing tennis shoes. What do you guys wear? Thx. -- Jeremy - 23 - FloridaC-3 Quad since 4/12/01OI Type IV since 7/29/82
Re: [QUAD-L] Dan
Thanks, Ron.My daughters boyfriend is going to try to get the old bearings out this weekend, If we can get them out i'm sure most bearings the same size will work, I think quickie sells them for $10.50 each, but many people said hardware stores like ACE or many bearing shops carry bearings that will fit. I'll let you know if we can get them out..cause like you said..some rust is involved. Dan
[QUAD-L] Shoes vs Footwear
Footwear and shoes will vary among the sexes. You won't see me wearing high heels, thank you. (lol) For a few, footwear is not a major issue, but for many others, it has to be just right. Often, as the day wears on, so may the footwear due to foot swelling or sweating. Hence, it really becomes an individual thang as to what to wear. The tennis shoes become the easiest, but not necessarily the best. Footwear that breathes is important and not too tight. W In a message dated 11/3/05 4:28:29 PM, [EMAIL PROTECTED] writes: Hey all, What kind of shoes do you guys wear? I spent 3 hours in the ER last night because (I'm assuming) when my nurse put my shoe on, my big toe nail must have got bent back and nearly ripped off (now is off and bandaged) and made the whole side of my foot purple. Anyway, mom doesn't want me wearing tennis shoes. What do you guys wear? Thx. -- Jeremy - 23 - Florida C-3 Quad since 4/12/01 OI Type IV since 7/29/82
Re: [QUAD-L] SUPRAPUBIC HELP
Hi , Paul... I have had a supra-pubic a bit over 5 years now. The hole does not close and the Doctors told me the slight bleeding around it is normal.. if the meaty tissue is excessive the Doctors have some product to dry it up a bit, but told me that a bit of bleeding there is healthy and good so they don't want it to all dry up. Each time I take a shower and at once a month cath changes we put some triple antibiotic around the hole and take a square piece of guaze and cut a slit in it so the cath tube can fit into the center, then just tape it on there---this helps me to keep it clean and will catch any blood or leakage from ever getting on your clothing. good luck, Dan
Re: [QUAD-L] Shoes
I've had the same thing happen while in a nursing home. I wear a pair of these tennis shoes now and with the velcro straps it opens up the whole shoe so you know if your toe is bent. http://www.zappos.com/n/p/dp/5028643/c/14.html Free delivery from Zappos also. Always buy extra wide and a size or 2 larger. Mark ---Original Message--- From: Jeremy Dickinson Date: 11/03/05 16:27:06 To: quadlist Subject: [QUAD-L] Shoes Hey all, What kind of shoes do you guys wear? I spent 3 hours in the ER last night because (I'm assuming) whenmy nurseput my shoe on, my big toe nail must have got bent back and nearly ripped off (now is off and bandaged) and made the whole side of my foot purple. Anyway, mom doesn't want me wearing tennis shoes. What do you guys wear? Thx. -- Jeremy - 23 - FloridaC-3 Quad since 4/12/01OI Type IV since 7/29/82
[QUAD-L] Fw: Fw: To You and Hopefully Back to Me]]
- Original Message - From: To: Undisclosed-Recipient:; Sent: Friday, November 04, 2005 7:08 AM Subject: Fw: Fw: To You and Hopefully Back to Me]] - Subject: [Fwd: Fw: To You and Hopefully Back to Me]] I wish for you... Comfort on difficult days, Smiles when sadness intrudes, Rainbows to follow the clouds, Laughter to kiss your lips, Sunsets to warm your heart Gentle hugs when spirits sag, Friendships to brighten your being, Beauty for your eyes to see, Confidence for when you doubt, Faith so that you can believe, Courage to know yourself, Patience to accept the truth, And love to complete your life. God Bless you! ! I asked the Lord to bless you As I prayed for you today To guide you and protect you As you go along your way His love is always with you His promises are true No matter what the tribulation You know He will see us through So, when the road you're traveling on Seems difficult at best Give your problems to the Lord And God will do the rest. Pass this to 7 people you want God to bless, and don't forget to send it back to me. -- -- Internal Virus Database is out-of-date. Checked by AVG Free Edition. Version: 7.1.361 / Virus Database: 267.12.4/146 - Release Date: 10/21/05 -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.362 / Virus Database: 267.12.6/152 - Release Date: 10/31/05
Re: [QUAD-L] Shoes
Jeremy Dickinson wrote: Hey all, What kind of shoes do you guys wear? I spent 3 hours in the ER last night because (I'm assuming) when my nurse put my shoe on, my big toe nail must have got bent back and nearly ripped off (now is off and bandaged) and made the whole side of my foot purple. Anyway, mom doesn't want me wearing tennis shoes. What do you guys wear? Thx. -- Jeremy - 23 - Florida C-3 Quad since 4/12/01 OI Type IV since 7/29/82 I wear various running and x training shoes a few sizes too big to get the width and the room for the usual expansion from swelling. My podiatrist is recommending some http://drcomfortshoes.com/ they look OK for the fashion and style in my blood and they are so comfortable and well made. If you have the pleasure of diabetes and paralysis, medicare will pay for 1 pair/year. In my 4 years as a quad I have had 3 ingrown toenails removed all the way from the root. They are now trouble free and look more healthy haveanicewekend Brien
[QUAD-L] Ray in PN Magazine
Ok Ray ... I read my PN last night. They always have hunting/outdoorsmen articles near the back. The one article had a photo with abt 20 rifleman practicing out in the open and a pic showed them all from a distance. Without names ... I thought you might be one of the 20 or so. THEN I came across an article SPECIFICALLY abt a Ray D (forget your last name but I assumed it was you) who was an avid hunter prior to injury and then described how you enjoy it as best you can now. With a big GREAT photo of you! But I'm a bit confused .. you said you were unaware of you being in the issue someone told you. My confusion lies with the fact that no magazine or book or whatever can legally write abt someone, include a photo, etc without the person's written consent. Or they're opening themselves up to a huge lawsuit. Either way ... it's just not done without the person's permission. Don't you recall a PN editor, photographer, etc asking you to sign a release? The whole article was abt you and, again, GREAT PHOTO! Cool beans for your passion of being an outdoorsman! Lori Michaelson Age - 41 C4/5 complete quad, 26 years post Tucson, AZ
Re: [QUAD-L] Re: Help Me- Can you help?
Hi Stunt, I'll match your 52 and raise it to 53 in 2006! ;-) With Love, CtrlAltDel aka DaveC4/5 Complete - 29 Years PostTexas, USA Stuntman [EMAIL PROTECTED] wrote: Don't tell me I'm the "old man" on here at 52.Stunt Hello Dave, Im already 46, getting old fast. Lol. Silas - Original Message - To Sent: Tuesday, November 01, 2005 12:03 PM Subject: Re: [QUAD-L] Re: Help Me- Can you help? http://thor.prohosting.com/stunttnt/http://tnthompson0.tripod.com/
[QUAD-L] Shoes
I've went to the best store for shoes, Wal-Mart and they are very reasonable on there prices too. I bought me a set of Hiking Boots one half size bigger than I wear and also "wide width" which is very important because of the swelling of the feet during the day when your sitting in the what I call "The PresidentsQuad Chair". I feel important but I am wise enough not to make any decisions for thepeople of the U.S.A. . "Smiling" I got some Nike Tennis Shoes that give me a red mark on my heal after two days of wearing them. That ain't good, I got some of the other brand of tennis shoes that made my heal do the same. So I done figured it out that, I can't wear tennis shoes longer than two days. "LOL" So I hike around in my Quickie 646 wheelie chair. So, this could have been a shorter e-mail but I had to drag it out and the only thing I can suggest for shoes to wear is try some out after your foot heals and when you find some that doesn't make your foot get sore, keepem. Those that give give you aeven just a red markwithin 3 to 4days, return them and try another pair. I would also have anyone putting on a lace type shoe, un-lace the shoe atleast half way down before trying to put it on. Keep your toe nails trimmed off which would be the very best of care also. It was Neglect on your Nurse not to un-tie the laces down half way or check your toe nails for trimming that you had to spend time in the Hospital. If she could offelt what she did to you, I guarantee she or any other person would not dothat everagain. Good Luck with the Healing and hope it all turns out back to normal for you. Chet ( Cquad7 ) home page: http://www.geocities.com/TimesSquare/Arena/5815 Post 16 yrs. C-6/7 ---Original Message--- From: Jeremy Dickinson Date: 11/03/05 16:27:06 To: quadlist Subject: [QUAD-L] Shoes Hey all, What kind of shoes do you guys wear? I spent 3 hours in the ER last night because (I'm assuming) whenmy nurseput my shoe on, my big toe nail must have got bent back and nearly ripped off (now is off and bandaged) and made the whole side of my foot purple. Anyway, mom doesn't want me wearing tennis shoes. What do you guys wear? Thx. -- Jeremy - 23 - FloridaC-3 Quad since 4/12/01OI Type IV since 7/29/82 Yahoo! FareChase - Search multiple travel sites in one click.
Re: [QUAD-L] Re: Help Me- Can you help?
LOL, So much for growing old... and getting longer. Where's Mr Boyd in New Orleans He's got you both beat together! W In a message dated 11/4/05 1:34:42 PM, [EMAIL PROTECTED] writes: I'll match your 52 and raise it to 53 in 2006! ;-)
Re: [QUAD-L] Shoes
All I ever where is tennis shoes mostly every day--when i was in rehab they told us all to buy one size larger-i was a 10 but now buy 11. That way it is easy for care givers to get on and off , plus don't sqeeze feet. on occassion i'll wear dressy soft seude shoes or sandles . Dan
[QUAD-L] night time wear?
Butt is Naked with a T-Shirt and a Cowboys Blanket thats in Dallas Cowboys LOL Heater Temp on 68 degrees. I guess I'm Hot Blooded to some of You.. Yahoo! FareChase - Search multiple travel sites in one click.
Re: [QUAD-L] Re: Help Me- Can you help?
I am just Forty Seven and going on."David K. Kelmer" [EMAIL PROTECTED] wrote: Hi Stunt, I'll match your 52 and raise it to 53 in 2006! ;-) With Love, CtrlAltDel aka DaveC4/5 Complete - 29 Years PostTexas, USA Stuntman [EMAIL PROTECTED] wrote: Don't tell me I'm the "old man" on here at 52.Stunt Hello Dave, Im already 46, getting old fast. Lol. Silas - Original Message - To Sent: Tuesday, November 01, 2005 12:03 PM Subject: Re: [QUAD-L] Re: Help Me- Can you help? http://thor.prohosting.com/stunttnt/http://tnthompson0.tripod.com/ Yahoo! FareChase - Search multiple travel sites in one click. Yahoo! FareChase - Search multiple travel sites in one click.
Re: [QUAD-L] Shoes
Hi Jeremy, I wear Converse All*Star High-Tops. I have a black for dress and a white for play! With Love, CtrlAltDel aka DaveC4/5 Complete - 29 Years PostTexas, USA Jeremy Dickinson [EMAIL PROTECTED] wrote: Hey all, What kind of shoes do you guys wear? I spent 3 hours in the ER last night because (I'm assuming) whenmy nurseput my shoe on, my big toe nail must have got bent back and nearly ripped off (now is off and bandaged) and made the whole side of my foot purple. Anyway, mom doesn't want me wearing tennis shoes. What do you guys wear? Thx. -- Jeremy - 23 - FloridaC-3 Quad since 4/12/01OI Type IV since 7/29/82
Re: [QUAD-L] Recommended reading at Tolerance.org
Hi River, Thank you for the kind words. Rosa Parks was the Co-Chair for the National Campaign for Tolerance, so I felt especially honored to have had the chance to work with such a fine lady. She has passed on, but the commitment to honor her memorylives on, and we must all share in that commitmentin ourlives each day! With Love, CtrlAltDel aka DaveC4/5 Complete - 29 Years PostTexas, USARiver Wolfe [EMAIL PROTECTED] wrote: Dave,I'm honored to call you a friend and to have your wise "tolerant and loving" voice on this list. Congratulations on your accomplishment and outspoken commitment to make this a better world.Peace,RiverOn Nov 2, 2005, at 7:54 PM, David K. Kelmer wrote: The Quad-List: See: I thought you might like this information. Tolerance.org is a Web site that seeks to create a national community committed to human rights. Its goal is to awaken people of all ages to the problem of hate and intolerance, to equip them with the best tolerance ideas and to prompt them to act in their homes, schools, businesses and communities. In addition, David K. Kelmer left! this message: As a Founding Member of the National Campaign for Tolerance since June 28, 2002 I was invited to attend the Oct. 23, 2005 dedication of the Civil Rights Memorial Center and Wall of Tolerance. I was unable to attend but was honored by having my name placed on the Wall of Tolerance along with the names of people who have pledged to take a stand against hate, injustice and intolerance. Those who place their names on the wall make a commitment to work in their daily lives for justice, equality and human rights the ideals for which the martyrs of the Civil Rights Movement died. The above article is from Oct. 24, 2005, the first day the Memorial was open to the general public. With Love, CtrlAltDel aka Dave C4/5 Complete - 29 Years Post Texas, USA Join us in! the forums. Sign up for our newsletter. Visit http:// www.tolerance.org
Re: [QUAD-L] Ray in PN Magazine
I was thinking the same thing @ the legality of not knowing you are in a magazine. Perhaps Ray signed one awhile ago? Some releases are very broad. - Original Message - From: Lori Michaelson To: Quad Sent: Friday, November 04, 2005 1:46 PM Subject: [QUAD-L] Ray in PN Magazine Ok Ray ... I read my PN last night. They always have hunting/outdoorsmen articles near the back. The one article had a photo with abt 20 rifleman practicing out in the open and a pic showed them all from a distance. Without names ... I thought you might be one of the 20 or so. THEN I came across an article SPECIFICALLY abt a Ray D (forget your last name but I assumed it was you) who was an avid hunter prior to injury and then described how you enjoy it as best you can now. With a big GREAT photo of you! But I'm a bit confused .. you said you were unaware of you being in the issue someone told you. My confusion lies with the fact that no magazine or book or whatever can legally write abt someone, include a photo, etc without the person's written consent. Or they're opening themselves up to a huge lawsuit. Either way ... it's just not done without the person's permission. Don't you recall a PN editor, photographer, etc asking you to sign a release? The whole article was abt you and, again, GREAT PHOTO! Cool beans for your passion of being an outdoorsman! Lori Michaelson Age - 41 C4/5 complete quad, 26 years post Tucson, AZ
Re: [QUAD-L] Re: Help Me- Can you help?
In a message dated 11/4/2005 2:34:42 PM Eastern Standard Time, [EMAIL PROTECTED] writes: I'll match your 52 and raise it to 53 in 2006! ;-) I'll call your 53 and raise it to 56 in 2006. LOL BillLeesburg, FLC-6 Incomplete since 7/20/68AOL/AIM ID: MikeyBird3Stupidity is NOT a handicap! Park elsewhere!
FW: Re: [QUAD-L] Re: Help Me- Can you help?
Gotcha. I'm 53. And a half. From: Chet Smith [EMAIL PROTECTED] To: David K. Kelmer [EMAIL PROTECTED] CC: [EMAIL PROTECTED], Silas [EMAIL PROTECTED], [EMAIL PROTECTED], Quad-List@eskimo.com Subject: Re: [QUAD-L] Re: Help Me- Can you help? Date: Fri, 4 Nov 2005 11:54:04 -0800 (PST) I am just Forty Seven and going on. David K. Kelmer [EMAIL PROTECTED] wrote:Hi Stunt, I'll match your 52 and raise it to 53 in 2006! ;-) With Love, CtrlAltDel aka Dave C4/5 Complete - 29 Years Post Texas, USA Stuntman [EMAIL PROTECTED] wrote: Don't tell me I'm the old man on here at 52. Stunt Hello Dave, Im already 46, getting old fast. Lol. Silas - Original Message - To Sent: Tuesday, November 01, 2005 12:03 PM Subject: Re: [QUAD-L] Re: Help Me- Can you help? http://thor.prohosting.com/stunttnt/ http://tnthompson0.tripod.com/ - Yahoo! FareChase - Search multiple travel sites in one click. - Yahoo! FareChase - Search multiple travel sites in one click.
Re: [QUAD-L] Re: Help Me- Can you help?
Hi Wheels, So much for growing old, indeed! It would be a joy to see Mr. Boyd do afly-byfor the Quad-ListHis is amissed voice here With Love, CtrlAltDel aka DaveC4/5 Complete - 29 Years PostTexas, USA[EMAIL PROTECTED] wrote: LOL, So much for growing old... and getting longer. Where's Mr Boyd in New OrleansHe's got you both beat together!WIn a message dated 11/4/05 1:34:42 PM, [EMAIL PROTECTED] writes: I'll match your 52 and raise it to 53 in 2006! ;-)
[QUAD-L] Denver Friends
I just wanted to take this time tosay "HIGH" toall ofmy friends in Denver! :-) With Love, CtrlAltDel aka DaveC4/5 Complete - 29 Years PostTexas, USA
Re: [QUAD-L] Re: Help Me- Can you help?
Hi Bill, In that case I'll justplay 'Texas Hold 'Em' for awhile! ;-) With Love, CtrlAltDel aka DaveC4/5 Complete - 29 Years PostTexas, USA[EMAIL PROTECTED] wrote: In a message dated 11/4/2005 2:34:42 PM Eastern Standard Time, [EMAIL PROTECTED] writes: I'll match your 52 and raise it to 53 in 2006! ;-) I'll call your 53 and raise it to 56 in 2006. LOL BillLeesburg, FLC-6 Incomplete since 7/20/68AOL/AIM ID: MikeyBird3Stupidity is NOT a handicap! Park elsewhere!
RE: [QUAD-L] Denver Friends
Yes, keep on munchin you lucky guys. Tried some "brownies" a few years ago. (Requires high THC to be effective) Spasms were greatly reduced and required no other meds for the week I ate them. From: David K. Kelmer [mailto:[EMAIL PROTECTED] Sent: Friday, November 04, 2005 3:57 PMTo: Quad-ListCc: DisabledOfAmerica; scilistSubject: [QUAD-L] Denver Friends I just wanted to take this time tosay "HIGH" toall ofmy friends in Denver! :-) With Love, CtrlAltDel aka DaveC4/5 Complete - 29 Years PostTexas, USA
Re: [QUAD-L] Re: Help Me- Can you help?
In a message dated 11/4/2005 4:54:37 PM Eastern Standard Time, [EMAIL PROTECTED] writes: So much for growing old, indeed! It would be a joy to see Mr. Boyd do afly-byfor the Quad-ListHis is amissed voice here I am friends with a quad named Jim McEnrue. He owns a business dealing in wheelchairs, lifts, beds, etc. He retired last spring at age 74 and has been a quad for 52 years. He was injured in a car accident in 1953. I think he's the longest survivor I know. BillLeesburg, FLC-6 Incomplete since 7/20/68AOL/AIM ID: MikeyBird3Stupidity is NOT a handicap! Park elsewhere!
[QUAD-L] SCI family on Extreme Home Makeover Sunday 11/6
I saw an advertisement for extreme Home Makeover and the family their helping out are in wheelchairs. One or more are SCI I think.
[QUAD-L] Chair Tipping?
I just got my new chair back from the shop. I have hardly used it. There are 2 worries I have. One is when I start fast, it lifts the front wheels off the ground. Fun when expecting it. I know that can be adjusted with the computer. But the other is when I stop fast, it seems to want to tip forward. I can't tell what happens, it it feels like the back wheels lift up. It might be just the motor area, but not sure. It's a Invacare TDX3. Anyone else have this trouble? Greg
Re: [QUAD-L] Shoes
I mostly wear sneakers, 1-1/2 sizes to big. Though if my feet swell, it must cause me pain because it can make me sweat. So then I put on my trusty sheepshin slippers, 2 sizes too big. Greg - Original Message - Hey all, What kind of shoes do you guys wear? I spent 3 hours in the ER last night because (I'm assuming) whenmy nurseput my shoe on, my big toe nail must have got bent back and nearly ripped off (now is off and bandaged) and made the whole side of my foot purple. Anyway, mom doesn't want me wearing tennis shoes. What do you guys wear? Thx. -- Jeremy - 23 - FloridaC-3 Quad since 4/12/01OI Type IV since 7/29/82
Re: [QUAD-L] Chair Tipping?
In a message dated 11/4/2005 6:28:55 PM Eastern Standard Time, [EMAIL PROTECTED] writes: But the other is when I stop fast, it seems to want to tip forward. I can't tell what happens, it it feels like the back wheels lift up. It might be just the motor area, but not sure. It's a Invacare TDX3. Anyone else have this trouble? There should be a turnable knob adjustment to lower the power slightly. I have an Invacare Ranger X (not made anymore), and it has 4 toggle switch positions and a knob. BillLeesburg, FLC-6 Incomplete since 7/20/68AOL/AIM ID: MikeyBird3Stupidity is NOT a handicap! Park elsewhere!
Re: [QUAD-L] Chair Tipping?
Sounds like my invacare, you'll get use to it and the bugs. You have to havea programer to adjust speed and torque, sounds like it mite need adjusted. It took me a few times to get mine set right. Still stops real fast when in high gear. Silas - Original Message - From: Greg To: quad-list@eskimo.com Sent: Friday, November 04, 2005 3:26 PM Subject: [QUAD-L] Chair Tipping? I just got my new chair back from the shop. I have hardly used it. There are 2 worries I have. One is when I start fast, it lifts the front wheels off the ground. Fun when expecting it. I know that can be adjusted with the computer. But the other is when I stop fast, it seems to want to tip forward. I can't tell what happens, it it feels like the back wheels lift up. It might be just the motor area, but not sure. It's a Invacare TDX3. Anyone else have this trouble? Greg
Re: [QUAD-L] Santa Clara Valley Medical Center
Brien Stocker [EMAIL PROTECTED] Joan, I was in valleymed from january through may (3.5 months in halo). Even as a c-7 with c-8 function, I highly endorse the halo's stabilizing benefits and regret that I was not haloed immediately after my 2 surgeries. To err on the side of caution for haloing people with cervical sci is well worth it. Wow, c-4 function is pretty diminished. I commend you on your apparent quality of life. I bet you have a tremendous realm of people around you. That is what I attribute to my happiness and continued ascension through life. A visit with Dr Shem at outpatient services: 408-885-4839, would REALLY help you. She is one of the finest P M R doctors under whose care I have been!What kinda puppy are you getting Stockton is big on pet bulls, rotties and other gangster empowering dogs, lol. How often do! you folks on the list with SCI see a pmr doctor? I go twice a year, but my doc is awesome so I feel that I always benefit.haveaniceday,BrienHi BrienI have an appointment with Dr. Shem on the 29th of November. I had not been to see a physiatrist since leaving Valley MED February of 1971. As I did not have enough Social Security quarters to qualify for being disabled, I went for 10 years without any insurance. I only got on Social Security when I turned 65 -- boy was that a happy day for me! Luckily I have an excellent family medical doctor here who has tried to keep up with spinal cordinfo et cetera. Luckily I do not have problems with spasms (just minor ones if I am uncomfortable or something is bothering me), UTI's -- I've only had four serious UTI's in 15 years --, andthe only medication I need is Fosamax for osteomyelitis and Levbid for intermittant cathing. Unfortunately for me, when I got my last new wheelchair in 1995, I got a serious decubitus ulcer from the chairs lack of padding on the lower part of the back of the chair. I went once or twice to the wound care specialists here but couldn't afford to keep on going at $350 a pop. So it took us for years to clear them out. I recently got another new chair, and the wounds came back but I was able to get into the wound clinic right away and we were able to clear them up quite quickly. Needless to say, I am not looking forward to another new chair L. O. L.. I have a great group of friends and family around me. However, my marriage of 24 years dissipated after I was in a wheelchair. I am very lucky to get personal care assistants through an agency that is affiliated with St. Mary's hospital here. We pay on a sliding scale, and I am eligible for five hours a day. Since I have nothing but shoulder shrugs it takes awhile to get me up in the morning, as they don't help me at all (the shoulder shrugs I mean). Once I'm in my chair, I do have things set up quite well. I use a mouthstick for the computer and the telephone, a mouthstick to read a book, and I just recently was given an environmental control system that is voice-activated from the state of Nevada. It was a used one, and so far we are ironing out its quirks, but I am hopeful that eventually it will help me so that I can open the door to go outside and come back inside, turn on and off the television and change channels, play music, and answer this awesome telephone tha! t they gave me. However it does not work now. But I am very hopeful that we will eventually get this all so I will be more independent. My attendant usually leaves about 11 a.m., and I am by myself until three or so. I have another attendant who I pay privately that comes in and puts me to bed at about nine o'clock. I try not to use my family for my caregivers anymore than I absolutely have to. My youngest daughter lives very close, and I help her homeschool her two boys, which keeps me very busy staying ahead of the old one. So I am very busy, enjoy doing community service activities, travel when ever I get a chance, and I am very grateful for each day God has granted me. We picked up the puppy -- a friend had brought it from Iowa for us -- it is a miniature pinscher, Shetland sheepdog cross. Looks like a miniature pinscher, but is a blue merle as the Sheltie was a blue. It is for my oldest daughter, and it is quite a character. Gives my Jack Russell a run for the money. Sorry to go on so long, but I really feel that we as quads have a lot to offer the world, and the statement to make that a wheelchair is only a means of getting there quicker than our able-bodied friends. I am looking forward to meeting your Dr. Shem. I have no idea what to anticipate and what they will actually do, but I guess I will find out on the 29th. Joan C4/5 complete 1990
[QUAD-L] Fwd: Fw: ACTION ALERT - Money Follows the Person
FYI Dana ---BeginMessage--- Even though the House has marked up their version of Medicaid budget bill without Money Follows the Person, the game is not over. The Senate HAS included Money Follows the Person (thanks to your previous calls). Now there will be a House and Senate Conference Committee which writes the FINAL FINAL budget. The folks below are the ones most likely to be representing the House on the Conference Committee. We need to get the House members to support Money Follows the Person so it will get in the FINAL budget. MONEY FOLLOWS THE PERSON ACTION NEEDED Below are the States where members of the Health SubCommittee of the Energy and Commerce Committee are from. If you are from one of the States below please get as many folks to contact the Health SubCommittee member as possible. MESSAGE - Put MFP at 100% match in the House Budget Reconciliation Bill starting FY 2006 See flyer below. *** ARIZONA - Rep John Shadegg CALIFORNIA - Rep(s) Mary Bono Henry Waxman Anna Eshoo Lois Capps COLORADO - Rep Diana DeGette FLORIDA - Rep(s) Michael Bilirakis Jim Davis GEORGIA - Rep(s) Nathan Deal, Chairperson of SubCommittee Charles Norwood ILLINOIS - Rep(s) John Shimkus Bobby Rush INDIANA - Rep Steve Buyer MAINE - Rep Thomas Allen MICHIGAN - Rep(s) Fred Upton Michael Rogers MISSISSIPPI - Rep Charles Pickering Jr. NEW JERSEY - Rep(s) Michael Ferguson Frank Pallone Jr NEW YORK - Rep Edolphus Towns NORTH CAROLINA - Sue Myrick OHIO - Rep(s) Paul Gilmor Sherrod Brown, Ranking Member of SubCommittee Ted Strickland PENNSYLVANIA - Rep Joseph Pitts TENNESSEE - Rep Bart Gordon TEXAS - Rep(s) Ralph Hall Michael Burgess Gene Green WISCONSIN - Rep Tammy Baldwin WYOMING - Rep Barbara Cubin If you need more info please contact at: 512/442-0252 THE ADAPT Community www.adapt.org ** MONEY FOLLOWS THE PERSON (Rebalancing the Long Term Care System) Money Follows the Person (MFP) is a simple concept, that when enacted by Congress, will allow older Americans and people with disabilities who are currently living in nursing homes and other institutions, to choose to live and receive support services in the community. MFP is a demonstration program that will give States a financial incentive to provide long term care services and supports in the community by providing a 100% Federal match for home and community Medicaid waiver services. BILL NUMBER: Senate Bill - S 528 House Bill - H 3063 CURRENT LEGISLATIVE STATUS: MFP is currently included in the Senate Budget Reconciliation bill but has not been included in the House Budget Reconciliation bill. We want to see it at 100% federal match and starting in 2006. BENEFITS OF MFP: a.. Allows people with disabilities and older Americans to choose to live in the community with dignity; a.. Assists States to pay for home and community services; b.. Assists States to comply with Supr. Court's Olmstead decision; c.. Rebalances the institutionally biased long term care system. ACTION NEEDED: Support of MFP at 100% and starting 2006 in the Conference Committee; Inclusion of MFP in the final Budget Reconciliation Bill - FY 2006; Passage of Budget Reconciliation Bill with MFP included - FY2006. For information: ADAPT 1339 Lamar Sq Dr #101 Austin, Tx 78704 512/442-0252 www.adapt.org NATIONAL ADAPT MAILING LIST - Adapt MiCASA List http://www.adapt.org ---End Message---
