[QUAD-L] ? merill
MaturalySpeaking?
[QUAD-L] Boost = Gain
I believe that boost means Gain. Its a quality of volume. W In a message dated 5/7/2007 7:19:13 A.M. Central Daylight Time, [EMAIL PROTECTED] writes: Merrill, what is a boost? Merrill Burghardt [EMAIL PROTECTED] wrote: ** See what's free at http://www.aol.com.
[QUAD-L] hypothyroid
hi all -- i just received a call from the doc after having some blood work done last week. apparently i have hypothyroidism -- or an underactive thyroid. they told me my levels are abnormally low. there's a small chance it is a lab error but most likely not. i was just reading about hypothyroid online and found that i have many of the symptoms which i had always thought were due to my SCI. for example: fatigue, weakness, increased difficulty losing weight, hair loss, COLD INTOLERANCE, depression, irritability, memory loss, abnormal menstrual cycle, and decreased libido. so my question is -- has anyone else been diagnosed w/ hypothyroidism? and could it be related to SCI? i've been told in most cases it is easily treatable w/ medication so i hope i fall into that category. i'll find out more tomorrow morning when i go to the doctor. =jessica
Re: [QUAD-L] hypothyroid
no i don't have it but my chiropractor doeshe had weight-loss and was straining his marriage..but meds worked it out... it doew seem typical symptoms of SCI, especially new injuries best wishes! Jessica Ann Gordon [EMAIL PROTECTED] wrote: hi all -- i just received a call from the doc after having some blood work done last week. apparently i have hypothyroidism -- or an underactive thyroid. they told me my levels are abnormally low. there's a small chance it is a lab error but most likely not. i was just reading about hypothyroid online and found that i have many of the symptoms which i had always thought were due to my SCI. for example: fatigue, weakness, increased difficulty losing weight, hair loss, COLD INTOLERANCE, depression, irritability, memory loss, abnormal menstrual cycle, and decreased libido. so my question is -- has anyone else been diagnosed w/ hypothyroidism? and could it be related to SCI? i've been told in most cases it is easily treatable w/ medication so i hope i fall into that category. i'll find out more tomorrow morning when i go to the doctor. =jessica
Re: [QUAD-L] hypothyroid
Here is a good informative site. http://thyroid.about.com/index.htm?terms=thyroid It runs in my family. Been on drugs for it since I was a teenager. Wouldn't think sci would have anything to do with it.
[QUAD-L] Morphine withdrawal
Curious if any of you with pumps ever requested the morphine be taken out? I did that this last Thursday and it was an unbelievably overwhelming and rough weekend. They didn't 'actually' warm me of the withdrawal symptoms but having been a patient this long common sense told me there would be some. I was on 1mg for 24 hours, not a lot for most, but 88 pound body it apparently was! Anyway the morphine wasn't doing anything but causing major tummy troubles so I wanted to decease it. Friday was fine. Friday night turned into hell. My legs were twitching uncontrollably, not caring who or what they hit. There was excruciating leg pain, as if my muscles were literally contracting more each second. Around 6 am after being up almost 18 hours, I had my first sneeze attack, weird I know! 11 TIMES! I got out of bed and the legs quit twitching because of the pressure. I was extremely weak, nauseated and sleepy. Nothing seemed to keep my mind busy enough. So I went outside and the sneezing took over, 12, 15, sometimes 8 in a row. Heart rate and blood pressure were elevated and no appetite at all. Now I know why coke addicts are so thin! Every other sip was coming up. If I hadn't had left over oral baclofen i may not have made it. Moods were up and down and weird too! Saturday night wasn't any better. My legs were even worse on jumping. I was hot then cold, my nose was stopping up. Everyone thought I might end up in the hospital as no one was getting sleep. I was up every 20 minutes until I finally just let my legs jump until they stopped. Sometimes an hour would pass and I would settle down and sleep. Sunday morning didn't come fast enough! Those of you who know me KNOW i don't get out of bed early and I was in my chair by 7:30am. So I laid in my chair around the house, yard and anywhere there was someone awake! Around 11am I laid down on the bed and my legs hardly moved! WOHOO! But after a fast 45 minute nap, I woke up with the worst headache Ive had since they put my halo on in 98! Right back up, and it settled with Tylenol. So I repeated Saturday on Sunday with a stopped up nose. Then bed time at 7, hopping from beds, hard one to soft one...my legs laid there and cramped but no twitching. So it was peaceful. This morning I was awake at 6am again but in chair by 830am. I'm really weak today, very alert and doing better. Plan on giving my doctor's office three shades of hell on Wednesday! So word to the wise, be well prepared if you go off morphine without slowly decreasing it. Sorry to babble just want to warn anyone heading that way!
[QUAD-L] Drug curbs bone loss after spinal cord injury
Drug curbs bone loss after spinal cord injury Mon May 7, 2007 11:36AM EDT NEW YORK (Reuters Health) - The bone drug Fosamax (also called alendronate) given soon after spinal cord injury prevents bone loss associated with the injury, a study suggests. People who've suffered spinal cord injury are at risk for rapid bone loss occurring below the level of the injury due to an increase in the harmful process of bone resorption as well as impaired bone formation, thereby predisposing them to osteoporosis and bone fractures. In their study, Dr. Nigel L. Gilchrist, of The Princess Margaret Hospital, Christchurch, New Zealand, and colleagues randomly assigned 31 spinal cord injury patients to Fosamax (70 milligrams per week) or placebo, within 10 days of injury, for 12 months. The team measured bone mineral density (BMD) at various sites including the lumbar spine, hip, femoral neck (the area where thigh bone meets the hip) and total body at the start of treatment and at 3, 6, 12, and 18 months. The researchers observed significant changes favoring the Fosamax group for five of six total body BMD measurements across 18 months. In this study, write the authors, preservation of BMD with alendronate was clearly demonstrated. Whether such treatment prevents lower limb fractures in the longer term remains to be investigated, they note. SOURCE: Journal of Clinical Endocrinology and Metabolism, April 2007.
RE: [QUAD-L] hey!
Hey LQ, Glad to see you’re still kickin, I read you had the pump removed and I’m sorry it didn’t work for you. I was going to get a pump myself but they told me Medicaid won’t pay for it so I’m S.O.L. Good to hear from you, Mark Jackson RollinOn _ From: ~LittleQuad~ [mailto:[EMAIL PROTECTED] Sent: Sunday, May 06, 2007 5:04 PM To: Mark Jackson; Quad-list post Subject: [QUAD-L] hey! been awhile..how is everyone.what did i miss? No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.467 / Virus Database: 269.6.5/791 - Release Date: 5/6/2007 9:07 AM No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.5.467 / Virus Database: 269.6.5/792 - Release Date: 5/6/2007 9:01 PM
[QUAD-L] hey!
Did I read right. She had the pump removed or just operating on Baclofen W In a message dated 5/7/2007 2:05:14 P.M. Central Daylight Time, [EMAIL PROTECTED] writes: Hey LQ, Glad to see you’re still kickin, I read you had the pump removed and I’m sorry it didn’t work for you. I was going to get a pump myself but they told me Medicaid won’t pay for it so I’m S.O.L. Good to hear from you, Mark Jackson RollinOn ** See what's free at http://www.aol.com.
Re: [QUAD-L] hey!
I still have pump, just had morphine out. I'm done with pain meds... Mark, they covered me. Could be the doctor office not writing pre-approval right? [EMAIL PROTECTED] wrote: Did I read right. She had the pump removed or just operating on Baclofen W In a message dated 5/7/2007 2:05:14 P.M. Central Daylight Time, [EMAIL PROTECTED] writes: Hey LQ, Glad to see youâre still kickin, I read you had the pump removed and Iâm sorry it didnât work for you. I was going to get a pump myself but they told me Medicaid wonât pay for it so Iâm S.O.L. Good to hear from you, Mark Jackson RollinOn - See what's free at AOL.com.
Re: [QUAD-L] hey!- SNX111 by NervX
I've been following a product introduced almost 5 years ago but is waiting FDA approval called SNX111 by NervX. Suppose to be 5 times more powerful than the Big Morph and without the side effects. W In a message dated 5/7/2007 2:17:05 P.M. Central Daylight Time, [EMAIL PROTECTED] writes: I still have pump, just had morphine out. I'm done with pain meds... Mark, they covered me. Could be the doctor office not writing pre-approval right? [EMAIL PROTECTED] wrote: ** See what's free at http://www.aol.com.
Re: [QUAD-L] hypothyroid
Yea Jessica, If you do a test on most of your glands they will have abnormal numbers. A severe spinal injury up high usually messes up hypothalmus, pituitarym, thyroid, adrenal glands as well as a few others. Some of us can cruise along ok most of the time. The idea of using drugs to correct these hormonal malfunctions is mixed in a complex arguement. If you check at other times you may find your Thyroid gland functioning or even overfunctioning. this is where it gets real complicated because some doctors think your better off without complicating your situation without the tons of pills you may need to keep your numbers in normal ranges. The SCI wrecked your pituitary and thalmus glands. In a domino effect your thyroid and other glands no longer function properly. Hormones have a lot to do with our nerves and brain cells that effect everything from digestion to mood and some doctors feel that imbalances can explain bipolar like behavior. I'd sure like to hear if theres any new ideas in this topic. If treating your hypothyroidism works, what are the dangers of hyperthyroidism? Your pituitary and thalmus glands can have very similar effects to your thyroid. If those work at all, I would be surprized. john - Original Message From: Jessica Ann Gordon [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Monday, May 7, 2007 9:40:16 AM Subject: [QUAD-L] hypothyroid hi all -- i just received a call from the doc after having some blood work done last week. apparently i have hypothyroidism -- or an underactive thyroid. they told me my levels are abnormally low. there's a small chance it is a lab error but most likely not. i was just reading about hypothyroid online and found that i have many of the symptoms which i had always thought were due to my SCI. for example: fatigue, weakness, increased difficulty losing weight, hair loss, COLD INTOLERANCE, depression, irritability, memory loss, abnormal menstrual cycle, and decreased libido. so my question is -- has anyone else been diagnosed w/ hypothyroidism? and could it be related to SCI? i've been told in most cases it is easily treatable w/ medication so i hope i fall into that category. i'll find out more tomorrow morning when i go to the doctor. =jessica __ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com
RE: [QUAD-L] hey!- SNX111 by NervX
Yeah Wheel I’ve been waiting on this too, it’s from a sea snail I believe and a whole lot more potent than morphine so it takes very little for relief. Let me know if you hear some news on it. Mark Jackson RollinOn _ From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Monday, May 07, 2007 2:20 PM To: quad-list@eskimo.com Subject: Re: [QUAD-L] hey!- SNX111 by NervX I've been following a product introduced almost 5 years ago but is waiting FDA approval called SNX111 by NervX. Suppose to be 5 times more powerful than the Big Morph and without the side effects. W In a message dated 5/7/2007 2:17:05 P.M. Central Daylight Time, [EMAIL PROTECTED] writes: I still have pump, just had morphine out. I'm done with pain meds... Mark, they covered me. Could be the doctor office not writing pre-approval right? [EMAIL PROTECTED] wrote: _ See what's free at HYPERLINK http://www.aol.com?ncid=AOLAOF0002000503; \nAOL.com. No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.467 / Virus Database: 269.6.5/792 - Release Date: 5/6/2007 9:01 PM No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.5.467 / Virus Database: 269.6.5/792 - Release Date: 5/6/2007 9:01 PM
[QUAD-L] drugs
People fror crying out loud... don't do drugs!
Re: [QUAD-L] Morphine withdrawal
I've been taking hydrocodone for a few years and uhm, no! I wouldn't go cold turkey for nothing. If you had a pump inside the doctor should have helped you taper off. It will be a few weeks of hell the way your doing it. I wish you the best but I wish you would have gotten something to help you taper off. This could easily cause you to go into autonomic dysreflexia. You are just beginning. Call your doctor and ask about some methadone to help you quit. One mg. isn't a lot but if your addicted to it, You are addicted to it. Doesn't your Doctor like you? (Btw, miralax works for the tummy trouble.) I wish you the best of luck. I wish you a few hydrocodone to taper off with, too. john -Original Message- From: [EMAIL PROTECTED] To: quad-list@eskimo.com; [EMAIL PROTECTED] Sent: Mon, 7 May 2007 11:00 AM Subject: [QUAD-L] Morphine withdrawal Curious if any of you with pumps ever requested the morphine be taken out? I did that this last Thursday and it was an unbelievably overwhelming and rough weekend. They didn't 'actually' warm me of the withdrawal symptoms but having been a patient this long common sense told me there would be some. I was on 1mg for 24 hours, not a lot for most, but 88 pound body it apparently was! Anyway the morphine wasn't doing anything but causing major tummy troubles so I wanted to decease it. Friday was fine. Friday night turned into hell. My legs were twitching uncontrollably, not caring who or what they hit. There was excruciating leg pain, as if my muscles were literally contracting more each second. Around 6 am after being up almost 18 hours, I had my first sneeze attack, weird I know! 11 TIMES! I got out of bed and the legs quit twitching because of the pressure. I was extremely weak, nauseated and sleepy. Nothing seemed to keep my mind busy enough. So I went outside and the sneezing took over, 12, 15, sometimes 8 in a row. Heart rate and blood pressure were elevated and no appetite at all. Now I know why coke addicts are so thin! Every other sip was coming up. If I hadn't had left over oral baclofen i may not have made it. Moods were up and down and weird too! Saturday night wasn't any better. My legs were even worse on jumping. I was hot then cold, my nose was stopping up. Everyone thought I might end up in the hospital as no one was getting sleep. I was up every 20 minutes until I finally just let my legs jump until they stopped. Sometimes an hour would pass and I would settle down and sleep. Sunday morning didn't come fast enough! Those of you who know me KNOW i don't get out of bed early and I was in my chair by 7:30am. So I laid in my chair around the house, yard and anywhere there was someone awake! Around 11am I laid down on the bed and my legs hardly moved! WOHOO! But after a fast 45 minute nap, I woke up with the worst headache Ive had since they put my halo on in 98! Right back up, and it settled with Tylenol. So I repeated Saturday on Sunday with a stopped up nose. Then bed time at 7, hopping from beds, hard one to soft one...my legs laid there and cramped but no twitching. So it was peaceful. This morning I was awake at 6am again but in chair by 830am. I'm really weak today, very alert and doing better. Plan on giving my doctor's office three shades of hell on Wednesday! So word to the wise, be well prepared if you go off morphine without slowly decreasing it. Sorry to babble just want to warn anyone heading that way! AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com.
Re: [QUAD-L] Drug curbs bone loss after spinal cord injury
I wonder what it does after 31 years post injury. john -Original Message- From: [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Mon, 7 May 2007 12:51 PM Subject: [QUAD-L] Drug curbs bone loss after spinal cord injury Drug curbs bone loss after spinal cord injury Mon May 7, 2007 11:36AM EDT NEW YORK (Reuters Health) - The bone drug Fosamax (also called alendronate) given soon after spinal cord injury prevents bone loss associated with the injury, a study suggests. People who've suffered spinal cord injury are at risk for rapid bone loss occurring below the level of the injury due to an increase in the harmful process of bone resorption as well as impaired bone formation, thereby predisposing them to osteoporosis and bone fractures. In their study, Dr. Nigel L. Gilchrist, of The Princess Margaret Hospital, Christchurch, New Zealand, and colleagues randomly assigned 31 spinal cord injury patients to Fosamax (70 milligrams per week) or placebo, within 10 days of injury, for 12 months. The team measured bone mineral density (BMD) at various sites including the lumbar spine, hip, femoral neck (the area where thigh bone meets the hip) and total body at the start of treatment and at 3, 6, 12, and 18 months. The researchers observed significant changes favoring the Fosamax group for five of six total body BMD measurements across 18 months. In this study, write the authors, preservation of BMD with alendronate was clearly demonstrated. Whether such treatment prevents lower limb fractures in the longer term remains to be investigated, they note. SOURCE: Journal of Clinical Endocrinology and Metabolism, April 2007. AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com.
Re: [QUAD-L] Morphine withdrawal
thanks for the wishes... i was surprised they didn't taper either but i guess
when i said i didn't want the morphine anymore they thought immediately. so far
today my brain is in control, body weak...i wouldn't say i was addicted to it,
maybe subconsciously my body was...
they mentioned putting dilotid in next time...but i've had oral pills of it and
didn't do anythng, so i'm just going stick with my baclofen..
[EMAIL PROTECTED] wrote:
I've been taking hydrocodone for a few years and uhm, no! I wouldn't go
cold turkey for nothing. If you had a pump inside the doctor should have helped
you taper off. It will be a few weeks of hell the way your doing it. I wish you
the best but I wish you would have gotten something to help you taper off. This
could easily cause you to go into autonomic dysreflexia. You are just
beginning. Call your doctor and ask about some methadone to help you quit. One
mg. isn't a lot but if your addicted to it, You are addicted to it. Doesn't
your Doctor like you? (Btw, miralax works for the tummy trouble.)
I wish you the best of luck. I wish you a few hydrocodone to taper off with,
too.
john
-Original Message-
From: [EMAIL PROTECTED]
To: quad-list@eskimo.com; [EMAIL PROTECTED]
Sent: Mon, 7 May 2007 11:00 AM
Subject: [QUAD-L] Morphine withdrawal
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} Curious if any of you with pumps ever requested the morphine be
taken out? I did that this last Thursday and it was an unbelievably
overwhelming and rough weekend. They didn't 'actually' warm me of the
withdrawal symptoms but having been a patient this long common sense told me
there would be some. I was on 1mg for 24 hours, not a lot for most, but 88
pound body it apparently was! Anyway the morphine wasn't doing anything but
causing major tummy
troubles so I wanted to decease it.
Friday was fine. Friday night turned into hell. My legs were twitching
uncontrollably, not caring who or what they hit. There was excruciating leg
pain, as if my muscles were literally contracting more each second. Around 6 am
after being up almost 18 hours, I had my first sneeze attack, weird I know! 11
TIMES! I got out of bed and the legs quit twitching because of the pressure. I
was extremely weak, nauseated and sleepy. Nothing seemed to keep my mind busy
enough. So I went outside and the sneezing took over, 12, 15, sometimes 8 in a
row. Heart rate and blood pressure were elevated and no appetite at all. Now I
know why coke addicts are so thin! Every other sip was coming up. If I hadn't
had left over oral baclofen i may not have made it. Moods were up and down and
weird too!
Saturday night wasn't any better. My legs were even worse on jumping. I
was hot then cold, my nose was stopping up. Everyone thought I might end up in
the hospital as no one was getting sleep. I was up every 20 minutes until I
finally just let my legs jump until they stopped. Sometimes an hour would pass
and I would settle down and sleep.
Sunday morning didn't come fast enough! Those of you who know me KNOW i
don't get out of bed early and I was in my chair by 7:30am. So I laid in my
chair around the house, yard and anywhere there was someone awake! Around 11am
I laid down on the bed and my legs hardly moved! WOHOO! But after a fast 45
minute nap, I woke up with the worst headache Ive had since they put my halo on
in 98! Right back up, and it settled with Tylenol.
So I repeated Saturday on
RE: [QUAD-L] hey!- SNX111 by NervX
heard same too...but costing over billion dollars to make 1 med available...i'm
not holding breath
RollinOn [EMAIL PROTECTED] wrote:v\:* {behavior:url(#default#VML);}
o\:* {behavior:url(#default#VML);} w\:* {behavior:url(#default#VML);} .shape
{behavior:url(#default#VML);}Yeah Wheel Ive been waiting on
this too, its from a sea snail I believe and a whole lot more potent than
morphine so it takes very little for relief.
Let me know if you hear some news on it.
Mark Jackson
RollinOn
-
From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED]
Sent: Monday, May 07, 2007 2:20 PM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] hey!- SNX111 by NervX
I've been following a product introduced almost 5 years ago but is
waiting FDA approval called SNX111 by NervX. Suppose to be 5 times more
powerful than the Big Morph and without the side effects.
W
In a message dated 5/7/2007 2:17:05 P.M. Central Daylight Time, [EMAIL
PROTECTED] writes:
I still have pump, just had morphine out. I'm done with pain meds...
Mark, they covered me. Could be the doctor office not writing pre-approval
right?
[EMAIL PROTECTED] wrote:
-
See what's free at AOL.com.
No virus found in this incoming message.
Checked by AVG Free Edition.
Version: 7.5.467 / Virus Database: 269.6.5/792 - Release Date: 5/6/2007 9:01 PM
No virus found in this outgoing message.
Checked by AVG Free Edition.
Version: 7.5.467 / Virus Database: 269.6.5/792 - Release Date: 5/6/2007 9:01 PM
Re: [QUAD-L] drugs
Excuse me, but I'll do drugs till I die. Manby of us are surviving because baclofen reduces our muscle spasms to a degree that helps us to live with some comfort. Many quads are living with profound pain caused by the long term irregular flow of spinal fluid post injury. Many of us have pain caused by near constant UTI's from internal catheters. There is no reason why quads should live in misery because someone else can't feel the pain that has become a constant companion in life. I agree it is wrong to abuse drugs, but no doctor would ask a patient to just grin and bear it. pain will kill you if you don't treat it. Your blood preasure shoots up, you stroke and your heart goes down and you die. Most quadriplegics can actually prove the medical value of marijuana as a short term nerve pain medicine. I doubt any of us are taking drugs we don't need. People, take your drugs wisely! john 31 years post, C-5 -Original Message- From: [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Mon, 7 May 2007 3:48 PM Subject: [QUAD-L] drugs People fror crying out loud... don't do drugs! AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com.
Re: [QUAD-L] Morphine withdrawal
Very typical withdrawal symptoms. Throwing duragesic down only masks the withdrawal and could intensify the symptoms. Sometimes you need professional help. I'd advise seeing a doctor. Bill age 56 C6 Incomplete since 7/20/68 Leesburg, FL Welcome To Shit Creek ~ Sorry, We're Out of Paddles! - Original Message - From: ~LittleQuad~ To: Quad-list post ; Amy Elizabeth Thomas Sent: Monday, May 07, 2007 11:00 AM Subject: [QUAD-L] Morphine withdrawal Curious if any of you with pumps ever requested the morphine be taken out? I did that this last Thursday and it was an unbelievably overwhelming and rough weekend. They didn't 'actually' warm me of the withdrawal symptoms but having been a patient this long common sense told me there would be some. I was on 1mg for 24 hours, not a lot for most, but 88 pound body it apparently was! Anyway the morphine wasn't doing anything but causing major tummy troubles so I wanted to decease it. Friday was fine. Friday night turned into hell. My legs were twitching uncontrollably, not caring who or what they hit. There was excruciating leg pain, as if my muscles were literally contracting more each second. Around 6 am after being up almost 18 hours, I had my first sneeze attack, weird I know! 11 TIMES! I got out of bed and the legs quit twitching because of the pressure. I was extremely weak, nauseated and sleepy. Nothing seemed to keep my mind busy enough. So I went outside and the sneezing took over, 12, 15, sometimes 8 in a row. Heart rate and blood pressure were elevated and no appetite at all. Now I know why coke addicts are so thin! Every other sip was coming up. If I hadn't had left over oral baclofen i may not have made it. Moods were up and down and weird too! Saturday night wasn't any better. My legs were even worse on jumping. I was hot then cold, my nose was stopping up. Everyone thought I might end up in the hospital as no one was getting sleep. I was up every 20 minutes until I finally just let my legs jump until they stopped. Sometimes an hour would pass and I would settle down and sleep. Sunday morning didn't come fast enough! Those of you who know me KNOW i don't get out of bed early and I was in my chair by 7:30am. So I laid in my chair around the house, yard and anywhere there was someone awake! Around 11am I laid down on the bed and my legs hardly moved! WOHOO! But after a fast 45 minute nap, I woke up with the worst headache Ive had since they put my halo on in 98! Right back up, and it settled with Tylenol. So I repeated Saturday on Sunday with a stopped up nose. Then bed time at 7, hopping from beds, hard one to soft one...my legs laid there and cramped but no twitching. So it was peaceful. This morning I was awake at 6am again but in chair by 830am. I'm really weak today, very alert and doing better. Plan on giving my doctor's office three shades of hell on Wednesday! So word to the wise, be well prepared if you go off morphine without slowly decreasing it. Sorry to babble just want to warn anyone heading that way!
Re: [QUAD-L] Morphine withdrawal
i know that...been on baclofen years. and the withdrawal is done ...i was
saying i'm only going have baclofen in my pump now on...
[EMAIL PROTECTED] wrote: Morphine is an opiate and baclofen isn't. It can't
help you get off the morphine hun. You can back off in about a month using
hydrocodone in small doses and as needed. This isn't a psychologic addiction,
it is physical. I'm glad your not quiting a higher dose, but you still don't
want to 911 because your nerves are freaking out. It isn't fair to those you
live with because they have to worry so.
Good luck with whatever you decide.
john
-Original Message-
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; quad-list@eskimo.com
Sent: Mon, 7 May 2007 4:14 PM
Subject: Re: [QUAD-L] Morphine withdrawal
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} thanks for the wishes... i was surprised they didn't taper either
but i guess when i said i didn't want the morphine anymore they thought
immediately. so far today my brain is in control, body weak...i wouldn't say i
was addicted to it, maybe subconsciously my body was...
they mentioned putting dilotid in next time...but i've had oral pills of it and
didn't do anythng, so i'm just going stick with my baclofen..
[EMAIL PROTECTED] wrote:
I've been taking hydrocodone for a few years and uhm, no! I wouldn't go
cold turkey for nothing. If you had a pump inside the doctor should have helped
you taper off. It will be a few weeks of hell the way your doing it. I wish you
the best but I wish you would have gotten something to help you taper off. This
could easily cause you to go into autonomic dysreflexia. You are just
beginning. Call your doctor and ask about some methadone to help you quit. One
mg. isn't a lot but if your addicted to it, You are addicted to it. Doesn't
your Doctor like you? (Btw, miralax works for the tummy trouble.)
I wish you the best of luck. I wish you a few hydrocodone to taper off with,
too.
john
-Original Message-
From: [EMAIL PROTECTED]
To: quad-list@eskimo.com; [EMAIL PROTECTED]
Sent: Mon, 7 May 2007 11:00 AM
Subject: [QUAD-L] Morphine withdrawal
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[QUAD-L] Morphine withdrawal vs Baclofen
The same can happen with sudden stoppage of Baclofen too. Ask anyone who tried. W In a message dated 5/7/2007 4:24:57 P.M. Central Daylight Time, [EMAIL PROTECTED] writes: i know that...been on baclofen years. and the withdrawal is done ...i was saying i'm only going have baclofen in my pump now on... ** See what's free at http://www.aol.com.
Re: [QUAD-L] hey!
Hi LQ, Welcome to Summer! I hope you are doing well, and can enjoy the break! Not a lot happening here. Just letting my surgical would healing so I can get back up and play! Nice to see you! With Love, CtrlAltDel aka Dave C4/5 Complete - 31 Years Post Texas, USA ~LittleQuad~ [EMAIL PROTECTED] wrote: been awhile..how is everyone.what did i miss?
Re: [QUAD-L] Morphine withdrawal
No, never had a pump. That is why I only use orally delivered pain meds. I can cut back a little anytime. You're lucky it wasn't worse, because it can get very bad going cold turkey. I'm happy you made it through. With Love, CtrlAltDel aka Dave C4/5 Complete - 31 Years Post Texas, USA ~LittleQuad~ [EMAIL PROTECTED] wrote: Curious if any of you with pumps ever requested the morphine be taken out? I did that this last Thursday and it was an unbelievably overwhelming and rough weekend. They didn't 'actually' warm me of the withdrawal symptoms but having been a patient this long common sense told me there would be some. I was on 1mg for 24 hours, not a lot for most, but 88 pound body it apparently was! Anyway the morphine wasn't doing anything but causing major tummy troubles so I wanted to decease it. Friday was fine. Friday night turned into hell. My legs were twitching uncontrollably, not caring who or what they hit. There was excruciating leg pain, as if my muscles were literally contracting more each second. Around 6 am after being up almost 18 hours, I had my first sneeze attack, weird I know! 11 TIMES! I got out of bed and the legs quit twitching because of the pressure. I was extremely weak, nauseated and sleepy. Nothing seemed to keep my mind busy enough. So I went outside and the sneezing took over, 12, 15, sometimes 8 in a row. Heart rate and blood pressure were elevated and no appetite at all. Now I know why coke addicts are so thin! Every other sip was coming up. If I hadn't had left over oral baclofen i may not have made it. Moods were up and down and weird too! Saturday night wasn't any better. My legs were even worse on jumping. I was hot then cold, my nose was stopping up. Everyone thought I might end up in the hospital as no one was getting sleep. I was up every 20 minutes until I finally just let my legs jump until they stopped. Sometimes an hour would pass and I would settle down and sleep. Sunday morning didn't come fast enough! Those of you who know me KNOW i don't get out of bed early and I was in my chair by 7:30am. So I laid in my chair around the house, yard and anywhere there was someone awake! Around 11am I laid down on the bed and my legs hardly moved! WOHOO! But after a fast 45 minute nap, I woke up with the worst headache Ive had since they put my halo on in 98! Right back up, and it settled with Tylenol. So I repeated Saturday on Sunday with a stopped up nose. Then bed time at 7, hopping from beds, hard one to soft one...my legs laid there and cramped but no twitching. So it was peaceful. This morning I was awake at 6am again but in chair by 830am. I'm really weak today, very alert and doing better. Plan on giving my doctor's office three shades of hell on Wednesday! So word to the wise, be well prepared if you go off morphine without slowly decreasing it. Sorry to babble just want to warn anyone heading that way!
Re: [QUAD-L] Behind the Head Microphone
I'm not able to put anything on by myself, but my PCA puts it on and I wear it through the entire day. It is very comfortable. Quadius On 5/4/07, Merrill Burghardt [EMAIL PROTECTED] wrote: Can you put the ear piece on by yourself? Merrill -- *From:* Quadius [mailto:[EMAIL PROTECTED] *Sent:* Wednesday, May 02, 2007 2:50 PM *To:* Merrill Burghardt *Subject:* Re: [QUAD-L] Behind the Head Microphone The microphone does have an ear loop which sits securely on my ear and stays in the position you saw on the picture. As for the Peachtree, it is not really visible in that picture. I will try to paste a picture of me in my wheelchair that has a better view of the Peachtree, but keep in mind this is an older model. The new ones to look very similar, but they are not nearly as good. However, if you have never used one it may be okay for you. I am plain spoiled by the older model. Quadius this picture was taken about five or six years ago. http://www.billy-paul.blinkz.com/albums/thumbnails/68538.htm#photo_675014 On 5/1/07, *Merrill Burghardt* [EMAIL PROTECTED] wrote: Quadius, what you are wearing looks like there is an ear loop? Is this your final pic, and if so, it is simply a Peachtree? Merrill -- *From:* Quadius [mailto:[EMAIL PROTECTED] *Sent:* Monday, April 30, 2007 5:40 PM *To:* Dan T *Cc:* quad-list@eskimo.com *Subject:* Re: [QUAD-L] Behind the Head Microphone I purchased one and had difficulty with it, but it may be something that wouldn't bother you. Since I use a Peachtree headrest and it is rather firm in back, every time I leaned my head back the back of the microphone move the boom and it became uncomfortable, not to mention out of position. I received a less expensive headset with a bendable boom the other day and I was wearing it around my neck with the boom turned up toward my mouth. I wore it for about four hours and it felt much more comfortable than the behind the head microphones. The most comfortable one I have worn so far is the Plantronics CS 50 USB, but it has a battery life of eight hours. If you have the ability to take it off, it is definitely worth the money. I read something about the RadioShack behind the head microphone being pretty decent and a lot less expensive than the high-end models offered on some of the voice technology websites. Hope this helps, but I wouldn't go by my opinion alone. Quadius This is a picture of the Plantronics mike on my face. Please excuse the fat face and scraggly gray hair. Quadius On 4/29/07, *Dan T* [EMAIL PROTECTED] wrote: Has anyone had good/bad experiences with some microphones that Mount behind the head? are they comfortable, uncomfortable. Dan T.
Re: [QUAD-L] Drug curbs bone loss after spinal cord injury
My bone density test showed that I had actually improved over the last one three years ago. Of course, that was only the lumbar region. At least that's what I think they x-rayed. Quadius On 5/7/07, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote: I wonder what it does after 31 years post injury. john -Original Message- From: [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Mon, 7 May 2007 12:51 PM Subject: [QUAD-L] Drug curbs bone loss after spinal cord injury Drug curbs bone loss after spinal cord injury Mon May 7, 2007 11:36AM EDT NEW YORK (Reuters Health) - The bone drug Fosamax (also called alendronate) given soon after spinal cord injury prevents bone loss associated with the injury, a study suggests. People who've suffered spinal cord injury are at risk for rapid bone loss occurring below the level of the injury due to an increase in the harmful process of bone resorption as well as impaired bone formation, thereby predisposing them to osteoporosis and bone fractures. In their study, Dr. Nigel L. Gilchrist, of The Princess Margaret Hospital, Christchurch, New Zealand, and colleagues randomly assigned 31 spinal cord injury patients to Fosamax (70 milligrams per week) or placebo, within 10 days of injury, for 12 months. The team measured bone mineral density (BMD) at various sites including the lumbar spine, hip, femoral neck (the area where thigh bone meets the hip) and total body at the start of treatment and at 3, 6, 12, and 18 months. The researchers observed significant changes favoring the Fosamax group for five of six total body BMD measurements across 18 months. In this study, write the authors, preservation of BMD with alendronate was clearly demonstrated. Whether such treatment prevents lower limb fractures in the longer term remains to be investigated, they note. SOURCE: Journal of Clinical Endocrinology and Metabolism, April 2007. -- AOL now offers free email to everyone. Find out more about what's free from AOL at *AOL.com* http://www.aol.com/?ncid=AOLAOF0002000437.
Re: [QUAD-L] drugs
Amen On 5/7/07, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote: Excuse me, but I'll do drugs till I die. Manby of us are surviving because baclofen reduces our muscle spasms to a degree that helps us to live with some comfort. Many quads are living with profound pain caused by the long term irregular flow of spinal fluid post injury. Many of us have pain caused by near constant UTI's from internal catheters. There is no reason why quads should live in misery because someone else can't feel the pain that has become a constant companion in life. I agree it is wrong to abuse drugs, but no doctor would ask a patient to just grin and bear it. pain will kill you if you don't treat it. Your blood preasure shoots up, you stroke and your heart goes down and you die. Most quadriplegics can actually prove the medical value of marijuana as a short term nerve pain medicine. I doubt any of us are taking drugs we don't need. People, take your drugs wisely! john 31 years post, C-5 -Original Message- From: [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Mon, 7 May 2007 3:48 PM Subject: [QUAD-L] drugs People fror crying out loud... don't do drugs! -- AOL now offers free email to everyone. Find out more about what's free from AOL at *AOL.com* http://www.aol.com/?ncid=AOLAOF0002000437.
[QUAD-L] Fish oil
I forgot to ask my doctor whether it was okay to take the fish oil I purchased a couple of weeks ago. My understanding is it is good for the heart and people have recommended taking it. However, I take an 81 mg aspirin every other day to keep my blood on the thin side, so I'm wondering what if it would be wise to start such a product without asking first. Quadius
[QUAD-L] Fish oil
Smart thinking and a very wise thing to do. Ask your Grandpa about the beneficial use of a product called Cod Liver Oil. A teaspoon every other day. Kids used to pinch their noses, so they couldn't taste the stuff, lol. But there are no historical records that say anyone died from using it. Just make sure your doctor knows. Best Wishes W In a message dated 5/7/2007 8:15:24 P.M. Central Daylight Time, [EMAIL PROTECTED] writes: I forgot to ask my doctor whether it was okay to take the fish oil I purchased a couple of weeks ago. My understanding is it is good for the heart and people have recommended taking it. However, I take an 81 mg aspirin every other day to keep my blood on the thin side, so I'm wondering what if it would be wise to start such a product without asking first. Quadius ** See what's free at http://www.aol.com.
RE: [QUAD-L] drugs
You know it’s impossible to explain to someone that doesn’t have this pain how it hurts without sounding ridiculous, I mean when I tell someone I feel like a thousand people are putting out their cigarettes on me even I don’t believe it but it’s true. Just be glad you’re not trying to explain it. Mark Jackson RollinOn _ From: Quadius [mailto:[EMAIL PROTECTED] Sent: Monday, May 07, 2007 8:00 PM To: [EMAIL PROTECTED] Cc: [EMAIL PROTECTED]; quad-list@eskimo.com Subject: Re: [QUAD-L] drugs Amen On 5/7/07, HYPERLINK mailto:[EMAIL PROTECTED][EMAIL PROTECTED] HYPERLINK mailto:[EMAIL PROTECTED][EMAIL PROTECTED] wrote: Excuse me, but I'll do drugs till I die. Manby of us are surviving because baclofen reduces our muscle spasms to a degree that helps us to live with some comfort. Many quads are living with profound pain caused by the long term irregular flow of spinal fluid post injury. Many of us have pain caused by near constant UTI's from internal catheters. There is no reason why quads should live in misery because someone else can't feel the pain that has become a constant companion in life. I agree it is wrong to abuse drugs, but no doctor would ask a patient to just grin and bear it. pain will kill you if you don't treat it. Your blood preasure shoots up, you stroke and your heart goes down and you die. Most quadriplegics can actually prove the medical value of marijuana as a short term nerve pain medicine. I doubt any of us are taking drugs we don't need. People, take your drugs wisely! john 31 years post, C-5 -Original Message- From: HYPERLINK mailto:[EMAIL PROTECTED] [EMAIL PROTECTED] To: HYPERLINK mailto:quad-list@eskimo.com; [EMAIL PROTECTED] Sent: Mon, 7 May 2007 3:48 PM Subject: [QUAD-L] drugs People fror crying out loud... don't do drugs! _ AOL now offers free email to everyone. Find out more about what's free from AOL at HYPERLINK http://www.aol.com/?ncid=AOLAOF0002000437; \nAOL.com . No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.467 / Virus Database: 269.6.5/792 - Release Date: 5/6/2007 9:01 PM No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.5.467 / Virus Database: 269.6.5/792 - Release Date: 5/6/2007 9:01 PM
[QUAD-L] Pain one of the most personal battles
Hey, I read the arrogant comment to stay off drugs. Wellobviously this person has no real pain because let me tell you this much, if you are in serious pain that puts you in bed moaning and crying...you will try drugs. People that have little or no pain think that those that use drugs are weak addicts. This is flawed thinking. If you are in bed 5 days a week with pain, and with drugs you are able to function just lets say two more days it is worth it. None of us are going to live forever, so making the time we have more productive and happy is the name of the game. Life is about doing what you gotta do, moreso with spinal injury. Ron c7
Re: [QUAD-L] Behind the Head Microphone
Do you alternate which ear you put the microphone in? Are you saying it never falls out? Quadius [EMAIL PROTECTED] wrote: I'm not able to put anything on by myself, but my PCA puts it on and I wear it through the entire day. It is very comfortable. Quadius On 5/4/07, Merrill Burghardt [EMAIL PROTECTED] wrote: Can you put the ear piece on by yourself? Merrill - From: Quadius [mailto:[EMAIL PROTECTED] Sent: Wednesday, May 02, 2007 2:50 PM To: Merrill Burghardt Subject: Re: [QUAD-L] Behind the Head Microphone The microphone does have an ear loop which sits securely on my ear and stays in the position you saw on the picture. As for the Peachtree, it is not really visible in that picture. I will try to paste a picture of me in my wheelchair that has a better view of the Peachtree, but keep in mind this is an older model. The new ones to look very similar, but they are not nearly as good. However, if you have never used one it may be okay for you. I am plain spoiled by the older model. Quadius this picture was taken about five or six years ago. On 5/1/07, Merrill Burghardt [EMAIL PROTECTED] wrote: Quadius, what you are wearing looks like there is an ear loop? Is this your final pic, and if so, it is simply a Peachtree? Merrill - From: Quadius [mailto:[EMAIL PROTECTED] Sent: Monday, April 30, 2007 5:40 PM To: Dan T Cc: quad-list@eskimo.com Subject: Re: [QUAD-L] Behind the Head Microphone I purchased one and had difficulty with it, but it may be something that wouldn't bother you. Since I use a Peachtree headrest and it is rather firm in back, every time I leaned my head back the back of the microphone move the boom and it became uncomfortable, not to mention out of position. I received a less expensive headset with a bendable boom the other day and I was wearing it around my neck with the boom turned up toward my mouth. I wore it for about four hours and it felt much more comfortable than the behind the head microphones. The most comfortable one I have worn so far is the Plantronics CS 50 USB, but it has a battery life of eight hours. If you have the ability to take it off, it is definitely worth the money. I read something about the RadioShack behind the head microphone being pretty decent and a lot less expensive than the high-end models offered on some of the voice technology websites. Hope this helps, but I wouldn't go by my opinion alone. Quadius This is a picture of the Plantronics mike on my face. Please excuse the fat face and scraggly gray hair. Quadius On 4/29/07, Dan T [EMAIL PROTECTED] wrote: Has anyone had good/bad experiences with some microphones that Mount behind the head? are they comfortable, uncomfortable. Dan T.
