[QUAD-L] Re: Fw: Good Dog
We all need a dog like this! Click on the word _DOG_ (http://www.youtube.com/watch_popup?v=P9Fyey4D5hg)
Re: [QUAD-L] Unidentified subject!
Greg--how often do you have bowel routine?? in my early stages as a quad, myself and some others had those problems when they had us trying every day or every other day--the nurses in st. louis told us that many quads have better resullts going every 3 days or so--the doctors here agreed,...so we started doing bowel routine twice a week--worked out great for us !!! been on this schedule over 13 years now-- spinal docs told us that going every 3 days or so will not cause any problems ( some think that a person must go every day ) but this is not true,,, a quads body function slows down for many people---some may need to go more often but many do not. I'm not sure if this is related to your problem but just a suggestion. good luck- Danny H. here in snow covered st. louis, missouri area. From: wheelch...@aol.com wheelch...@aol.com To: g...@eskimo.com; quad-list@eskimo.com Sent: Mon, January 10, 2011 6:55:46 PM Subject: Re: [QUAD-L] Unidentified subject! It is all about diet and if you keep changing your diet, you might continue to experience issues. Have you considered performing a good clean, using Easy Go to clean out the upper bowel. This way you can begin to train your bowel to go each day or night at the same time... usually after a meal. Make sure that your Primary Doctor is aware of your issue as something like this is so important and a lazy bowel could happen. Best Wishes In a message dated 1/10/2011 6:51:29 P.M. Central Standard Time, g...@eskimo.com writes: I'm having such problems with my “bowel routine” It use to take 45 minutes using the Enemeez, but they started to not work as well. Now I'm using the Magic Bullets, but they too are now not working as well. Not only is it taking 2 plus hours, I'm sweating buckets. Not to be too graphic, but I start to go ok then things slow down. I can't do this myself, but my helper says she can feel stuff there, it just will not drop down. Then after numerous tries it might come down or it might go back up. I've tried using a second one and it works sometimes. The biggest problem is… hours after I get in my chair it sometimes then comes down and out. I've tried changing my diet, taking different softener type things. It's not that it gets too firm it just is slow. Anyone have this issue that found something that can help things move along? Thanks
Re: [QUAD-L] Unidentified subject!
Greg, If you are *sweating buckets* because of being *backed up* I would suggest going to see a knowledgeable Physical Medicine and Rehab doc for advice and a check-up and options. Just my opinion. On Jan 11, 2011, at 10:54 AM, Danny Hearn wrote: Greg--how often do you have bowel routine?? in my early stages as a quad, myself and some others had those problems when they had us trying every day or every other day--the nurses in st. louis told us that many quads have better resullts going every 3 days or so--the doctors here agreed,...so we started doing bowel routine twice a week--worked out great for us !!! been on this schedule over 13 years now-- spinal docs told us that going every 3 days or so will not cause any problems ( some think that a person must go every day ) but this is not true,,, a quads body function slows down for many people---some may need to go more often but many do not. I'm not sure if this is related to your problem but just a suggestion. good luck- Danny H. here in snow covered st. louis, missouri area. From: wheelch...@aol.com wheelch...@aol.com To: g...@eskimo.com; quad-list@eskimo.com Sent: Mon, January 10, 2011 6:55:46 PM Subject: Re: [QUAD-L] Unidentified subject! It is all about diet and if you keep changing your diet, you might continue to experience issues. Have you considered performing a good clean, using Easy Go to clean out the upper bowel. This way you can begin to train your bowel to go each day or night at the same time... usually after a meal. Make sure that your Primary Doctor is aware of your issue as something like this is so important and a lazy bowel could happen. Best Wishes In a message dated 1/10/2011 6:51:29 P.M. Central Standard Time, g...@eskimo.com writes: I'm having such problems with my “bowel routine” It use to take 45 minutes using the Enemeez, but they started to not work as well. Now I'm using the Magic Bullets, but they too are now not working as well. Not only is it taking 2 plus hours, I'm sweating buckets. Not to be too graphic, but I start to go ok then things slow down. I can't do this myself, but my helper says she can feel stuff there, it just will not drop down. Then after numerous tries it might come down or it might go back up. I've tried using a second one and it works sometimes. The biggest problem is… hours after I get in my chair it sometimes then comes down and out. I've tried changing my diet, taking different softener type things. It's not that it gets too firm it just is slow. Anyone have this issue that found something that can help things move along? Thanks
Re: [QUAD-L] Unidentified subject!
Greg [and all,] If you're sitting on your commode chair for two hours your sweating my have something to do with pressure--those seats aren't padded very well. It seems we all have our own systems for bowel programs, but sometimes things change. I'll describe how I do mine, in case it might be of help to others. As a c5-6 quad I am able to tell when I need to have a bowel movement because of a certain chill I get, plus some sweating that accompanies that (mild A.D. symptoms.) Generally I need to 'go' every other day, but it depends on how much, and what, I've had to eat or drink. Once I feel the need to use the toilet I inform my caregiver and he transfers me to my shower/commode chair, pulls my pants down, rolls me over the toilet and I do my business. Generally this takes less than 15 minutes and requires no suppository or digital stimulation. I do, however, use a stimulus that works well for me: Years ago I figured out that when in the shower if I sprayed a blast of hot water underneath me [onto my rectum] it would stimulate my bowels every time. The water has to be hot, but not hot enough to scald or burn, obviously. Anyhow, the hot water sprayed underneath, briefly, causes irritation and promotes the parastalsis to begin. My shower is right next to my toilet, so when I'm sitting on my commode chair over the toilet I can still use the [hand-held] showerhead to spray underneath me and get things started. This is also a good way to clean myself underneath, after the BM. Yes, the water does sometimes get all over the bathroom floor, but that's an easy cleanup with a towel. As such, I have found that a set bowel time for me every other day does not work. Because I let my body tell me when it's time my BMs are fairly natural, quick and easy. However, there are drawbacks to this system as well. First, it requires access to your caregiver at short notice [my caregiver lives with me, so it works out.] And, second, it's more difficult to schedule around. [Another thing that has always been a laxative/stimulant for me is coffee. A cup of coffee about 20 minutes before wanting to do a bowel program starts this moving for me.] I hope this info helps someone. Don. From: Danny Hearn ddh...@sbcglobal.net To: wheelch...@aol.com; g...@eskimo.com; quad-list@eskimo.com Sent: Tue, January 11, 2011 11:54:43 AM Subject: Re: [QUAD-L] Unidentified subject! Greg--how often do you have bowel routine?? in my early stages as a quad, myself and some others had those problems when they had us trying every day or every other day--the nurses in st. louis told us that many quads have better resullts going every 3 days or so--the doctors here agreed,...so we started doing bowel routine twice a week--worked out great for us !!! been on this schedule over 13 years now-- spinal docs told us that going every 3 days or so will not cause any problems ( some think that a person must go every day ) but this is not true,,, a quads body function slows down for many people---some may need to go more often but many do not. I'm not sure if this is related to your problem but just a suggestion. good luck- Danny H. here in snow covered st. louis, missouri area. From: wheelch...@aol.com wheelch...@aol.com To: g...@eskimo.com; quad-list@eskimo.com Sent: Mon, January 10, 2011 6:55:46 PM Subject: Re: [QUAD-L] Unidentified subject! It is all about diet and if you keep changing your diet, you might continue to experience issues. Have you considered performing a good clean, using Easy Go to clean out the upper bowel. This way you can begin to train your bowel to go each day or night at the same time... usually after a meal. Make sure that your Primary Doctor is aware of your issue as something like this is so important and a lazy bowel could happen. Best Wishes In a message dated 1/10/2011 6:51:29 P.M. Central Standard Time, g...@eskimo.com writes: I'm having such problems with my “bowel routine” It use to take 45 minutes using the Enemeez, but they started to not work as well. Now I'm using the Magic Bullets, but they too are now not working as well. Not only is it taking 2 plus hours, I'm sweating buckets. Not to be too graphic, but I start to go ok then things slow down. I can't do this myself, but my helper says she can feel stuff there, it just will not drop down. Then after numerous tries it might come down or it might go back up. I've tried using a second one and it works sometimes. The biggest problem is… hours after I get in my chair it sometimes then comes down and out. I've tried changing my diet, taking different softener type things. It's not that it gets too firm it just is slow. Anyone have this issue that found something that can help things move along? Thanks
[QUAD-L] Turning beds
Hi Everybody, I'm having a VERY hard time keeping my isium (sp) wound to stay healed. I'm seriously considering buying a turning bed. Anybody use one? Please help. Bobbie Sent from my iPad
Re: [QUAD-L] Turning beds
Bobbie, your issue is almost impossible. Keeping the area clean and the pressure off requires proper cleaning each 24 hours and being turned every two hours, no excuses to shift your weight and the pressure. Did you have the flap procedure? Best Wishes In a message dated 1/11/2011 2:24:08 P.M. Central Standard Time, bobbie...@aol.com writes: Hi Everybody, I'm having a VERY hard time keeping my isium (sp) wound to stay healed. I'm seriously considering buying a turning bed. Anybody use one? Please help. Bobbie Sent from my iPad
[QUAD-L] turning bed
I tried one and it really disrupts but it might be good if you had a sore and maybe you can set the time on them. Will work for you some beds will do turning and floation. I almost got but I have an extra wide bed and they said it would not work with my weight as they're made for obese persons
Re: [QUAD-L] Unidentified subject!
Greg, I had this problem too. Sometimes the poop just goes backup, especially using a 2nd magic bullet or enemeez. So, I only use 1 , if it does not come out, I wait 24 hrs and take milk/magnesia. this usually makes it come out. Like what others say, I changed my diet and started taking mirlax. I go now every other morning, 1 hour instead of 2, and no more digi-stem. It took awhile to get cleaned out (a few months) after starting tweaking my diet. I take 4 senokote the night before. This helps push it down. good luckI was very depressed with my bp. I dread it.but, thank god it is much better now. Derrick W in PA - Original Message - From: greg To: quad-list@eskimo.com Sent: Monday, January 10, 2011 7:51 PM Subject: [QUAD-L] Unidentified subject! I'm having such problems with my bowel routine It use to take 45 minutes using the Enemeez, but they started to not work as well. Now I'm using the Magic Bullets, but they too are now not working as well. Not only is it taking 2 plus hours, I'm sweating buckets. Not to be too graphic, but I start to go ok then things slow down. I can't do this myself, but my helper says she can feel stuff there, it just will not drop down. Then after numerous tries it might come down or it might go back up. I've tried using a second one and it works sometimes. The biggest problem is. hours after I get in my chair it sometimes then comes down and out. I've tried changing my diet, taking different softener type things. It's not that it gets too firm it just is slow. Anyone have this issue that found something that can help things move along? Thanks
Re: [QUAD-L] Unidentified subject!
I was brought to the hospital for pneumonia. A few days after entering, my bowels became blocked (my bowels were not moving at all) after coming I was given Miralax along with several large glass of prune juice with no of magnesia 1 tablespoon. A few days later it finally started working. I've been taking bran cereal and now I'm taking 10 baby prrunes will along with senna and stool softener's. If I ever don't go I use Miralax prune juice with milk of magnesia. I also use enemas, which they say not to use in rehab. It's important to eat a lot of green leafy vegetables, whole-grain breads and fruits. I also think it helps to not gain weight Prunes are easier for me to eat than drink prune juice. The hospital is amazed at the number of senna I use, but it works for me. I started out with a small amount and I've had to increase. I rarely have accidents. Dana In a message dated 1/11/2011 4:32:49 P.M. Central Standard Time, whe...@cvn.net writes: Greg, I had this problem too. Sometimes the poop just goes backup, especially using a 2nd magic bullet or enemeez. So, I only use 1 , if it does not come out, I wait 24 hrs and take milk/magnesia. this usually makes it come out. Like what others say, I changed my diet and started taking mirlax. I go now every other morning, 1 hour instead of 2, and no more digi-stem. It took awhile to get cleaned out (a few months) after starting tweaking my diet. I take 4 senokote the night before. This helps push it down. good luckI was very depressed with my bp. I dread it.but, thank god it is much better now. Derrick W in PA - Original Message - From: _greg_ (mailto:g...@eskimo.com) To: _quad-l...@eskimo.com_ (mailto:quad-list@eskimo.com) Sent: Monday, January 10, 2011 7:51 PM Subject: [QUAD-L] Unidentified subject! I'm having such problems with my “bowel routine” It use to take 45 minutes using the Enemeez, but they started to not work as well. Now I'm using the Magic Bullets, but they too are now not working as well. Not only is it taking 2 plus hours, I'm sweating buckets. Not to be too graphic, but I start to go ok then things slow down. I can't do this myself, but my helper says she can feel stuff there, it just will not drop down. Then after numerous tries it might come down or it might go back up. I've tried using a second one and it works sometimes. The biggest problem is… hours after I get in my chair it sometimes then comes down and out. I've tried changing my diet, taking different softener type things. It's not that it gets too firm it just is slow. Anyone have this issue that found something that can help things move along? Thanks
Re: [QUAD-L] Unidentified subject!
my regular schedule is once every 4 days - I use a 2 qt water enema and it takes about 45 minutes for everything to evacuate. I seldom have accidents since starting this routine 10 years ago. I never like 'rushing' to the Jon in emergency mode. azdave c3-4 incomplete 1967 In a message dated 1/11/2011 3:55:32 P.M. US Mountain Standard Time, daa...@aol.com writes: I was brought to the hospital for pneumonia. A few days after entering, my bowels became blocked (my bowels were not moving at all) after coming I was given Miralax along with several large glass of prune juice with no of magnesia 1 tablespoon. A few days later it finally started working. I've been taking bran cereal and now I'm taking 10 baby prrunes will along with senna and stool softener's. If I ever don't go I use Miralax prune juice with milk of magnesia. I also use enemas, which they say not to use in rehab. It's important to eat a lot of green leafy vegetables, whole-grain breads and fruits. I also think it helps to not gain weight Prunes are easier for me to eat than drink prune juice. The hospital is amazed at the number of senna I use, but it works for me. I started out with a small amount and I've had to increase. I rarely have accidents. Dana In a message dated 1/11/2011 4:32:49 P.M. Central Standard Time, whe...@cvn.net writes: Greg, I had this problem too. Sometimes the poop just goes backup, especially using a 2nd magic bullet or enemeez. So, I only use 1 , if it does not come out, I wait 24 hrs and take milk/magnesia. this usually makes it come out. Like what others say, I changed my diet and started taking mirlax. I go now every other morning, 1 hour instead of 2, and no more digi-stem. It took awhile to get cleaned out (a few months) after starting tweaking my diet. I take 4 senokote the night before. This helps push it down. good luckI was very depressed with my bp. I dread it.but, thank god it is much better now. Derrick W in PA - Original Message - From: _greg_ (mailto:g...@eskimo.com) To: _quad-l...@eskimo.com_ (mailto:quad-list@eskimo.com) Sent: Monday, January 10, 2011 7:51 PM Subject: [QUAD-L] Unidentified subject! I'm having such problems with my “bowel routine” It use to take 45 minutes using the Enemeez, but they started to not work as well. Now I'm using the Magic Bullets, but they too are now not working as well. Not only is it taking 2 plus hours, I'm sweating buckets. Not to be too graphic, but I start to go ok then things slow down. I can't do this myself, but my helper says she can feel stuff there, it just will not drop down. Then after numerous tries it might come down or it might go back up. I've tried using a second one and it works sometimes. The biggest problem is… hours after I get in my chair it sometimes then comes down and out. I've tried changing my diet, taking different softener type things. It's not that it gets too firm it just is slow. Anyone have this issue that found something that can help things move along? Thanks
Re: [QUAD-L] Microphone for speech recognition software?
Todd, I would suggest some of the higher end Labtech mics would be an option. They are what Dragon used to sell with voice recog. programs. Another is almost ANY Plantronics mic. I use a bluetooth enabled Plantronics mic in conjunction with a very cheap Belkin bluetooth dongle purchased at OfficeMax (they have a good selection of wired and bluetooth mics, including Plantronics). I don't work for Plantronics or own stock...LOL. It's just that my very first cordless phone back in '84-'85 was a Plantronics Liteset built such that the numbered keypad had a belt clip and it was wired to a headset comparable in size and sound to today's better bluetooth earpieces. I've used several headsets and earpieces since then but none has had better quality than the different Plantronics I've owned. The one I have now is used to switch between Dragon and my home phone or between my home and cell phones. Good luck to your friend. Everyone has their own tastes and needs. Hope this was helpful. Best regards, Tod Santee On Sat, Jan 8, 2011 at 8:36 PM, t...@toddc5quad.com wrote: Hi everyone, I have a friend who is using a Mac Computer and he is having trouble finding a good microphone to work with the speech recognition software. His voice does tend to change some while he's talking so the cheaper microphones don't work very good. He can't use a regular headset but something like a Bluetooth for a cell phone might work or something on the desk. Any ideas or suggestions would be greatly appreciated. Todd Canaday
RE: [QUAD-L] Microphone for speech recognition software?
I concur with Todd. Plantronics products are general good if not great for microphone needs of any variety. Steve - C4, 22 years From: Tod Santee [mailto:mr.san...@gmail.com] Sent: Tuesday, January 11, 2011 6:58 PM To: t...@toddc5quad.com Cc: quad-list Subject: Re: [QUAD-L] Microphone for speech recognition software? Todd, I would suggest some of the higher end Labtech mics would be an option. They are what Dragon used to sell with voice recog. programs. Another is almost ANY Plantronics mic. I use a bluetooth enabled Plantronics mic in conjunction with a very cheap Belkin bluetooth dongle purchased at OfficeMax (they have a good selection of wired and bluetooth mics, including Plantronics). I don't work for Plantronics or own stock...LOL. It's just that my very first cordless phone back in '84-'85 was a Plantronics Liteset built such that the numbered keypad had a belt clip and it was wired to a headset comparable in size and sound to today's better bluetooth earpieces. I've used several headsets and earpieces since then but none has had better quality than the different Plantronics I've owned. The one I have now is used to switch between Dragon and my home phone or between my home and cell phones. Good luck to your friend. Everyone has their own tastes and needs. Hope this was helpful. Best regards, Tod Santee On Sat, Jan 8, 2011 at 8:36 PM, t...@toddc5quad.com wrote: Hi everyone, I have a friend who is using a Mac Computer and he is having trouble finding a good microphone to work with the speech recognition software. His voice does tend to change some while he's talking so the cheaper microphones don't work very good. He can't use a regular headset but something like a Bluetooth for a cell phone might work or something on the desk. Any ideas or suggestions would be greatly appreciated. Todd Canaday
[QUAD-L] legbag vs nightbag (my terminology)
wat do u use during the day? my legbag if not put on just right, does not drain. i've thought about using my 'nightbag' (2000L) full time but am very concerned w/ appearence...i'm not the best lookin guy, but honestly, me and a bag of piss makes me ashamed to be around you. Eric W Rudd c5sc...@gmail.com
Re: [QUAD-L] legbag vs nightbag (my terminology)
I also use a nighttime bag during the day. I hang it under my chair. The tube runs down the inside of my pants leg. I tell myself that nobody can really see the bag or the tubing. And I think that's mostly true. I know some people cover up their bag and tubing with some sort of material, but I'd rather have mine somewhat visible so that I can see if it's draining properly and if there is any sediment in the tubing. I'm pretty creepy to look at anyway so I figure people's attention will be on me rather than my tubing. Dan At 07:39 PM 1/11/2011, Eric W Rudd said something that elicited my response: wat do u use during the day? my legbag if not put on just right, does not drain. i've thought about using my 'nightbag' (2000L) full time but am very concerned w/ appearence...i'm not the best lookin guy, but honestly, me and a bag of piss makes me ashamed to be around you. Eric W Rudd mailto:c5sc...@gmail.comc5sc...@gmail.com
Re: [QUAD-L] legbag vs nightbag (my terminology)
i use a leg bag and have for almost 20 years. my brand is alpine. the only problem sometimes is when the bag is new the slit in the rubber in the top plastic piece isnt always cut all the way through. if you close the bottom valve, and blow in the top valve when the bag hasnt been used yet the bag should fill with air. if not the slit in the rubber is closed. i can fix this with a knife. i cant imagine going out in public with a bag of piss just hanging out in view. at least put it in another bag you cant see through. best of luck donald c5-c6 complete 19 years From: Eric W Rudd c5sc...@gmail.com To: quad-list quad-list@eskimo.com Sent: Tue, January 11, 2011 4:39:31 PM Subject: [QUAD-L] legbag vs nightbag (my terminology) wat do u use during the day? my legbag if not put on just right, does not drain. i've thought about using my 'nightbag' (2000L) full time but am very concerned w/ appearence...i'm not the best lookin guy, but honestly, me and a bag of piss makes me ashamed to be around you. Eric W Rudd c5sc...@gmail.com
RE: [QUAD-L] legbag vs nightbag (my terminology)
Eric My daughter designed a legbag holder/leg rest that I have been using for 14 years, it could be designed to hold a 1500 to 2000 CC bag. We just cut a small hole in my jeans, then run the tube under my leg to the holder. Nothing to see! Joan
Re: [QUAD-L] legbag vs nightbag (my terminology)
tnx man, i've done the 'legbag cpr' i've flushed the legbag...the problem is definitely how it's put on, i know this because i can pull it out and i'm fine (pix again at ur request)...the legbag is fine IF its not obstructed. Eric W Rudd c5sc...@gmail.com - Original Message - From: donald scott To: Eric W Rudd ; quad-list@eskimo.com Sent: Tuesday, January 11, 2011 7:08 PM Subject: Re: [QUAD-L] legbag vs nightbag (my terminology) i use a leg bag and have for almost 20 years. my brand is alpine. the only problem sometimes is when the bag is new the slit in the rubber in the top plastic piece isnt always cut all the way through. if you close the bottom valve, and blow in the top valve when the bag hasnt been used yet the bag should fill with air. if not the slit in the rubber is closed. i can fix this with a knife. i cant imagine going out in public with a bag of piss just hanging out in view. at least put it in another bag you cant see through. best of luck donald c5-c6 complete 19 years -- From: Eric W Rudd c5sc...@gmail.com To: quad-list quad-list@eskimo.com Sent: Tue, January 11, 2011 4:39:31 PM Subject: [QUAD-L] legbag vs nightbag (my terminology) wat do u use during the day? my legbag if not put on just right, does not drain. i've thought about using my 'nightbag' (2000L) full time but am very concerned w/ appearence...i'm not the best lookin guy, but honestly, me and a bag of piss makes me ashamed to be around you. Eric W Rudd c5sc...@gmail.com
Re: [QUAD-L] legbag vs nightbag (my terminology)
thnx joan, not to sound intrusive, but do have any pix, this sounds good thank u joan. Eric W Rudd c5sc...@gmail.com - Original Message - From: Joan Anglin To: 'Eric W Rudd' ; 'quad-list' Sent: Tuesday, January 11, 2011 7:28 PM Subject: RE: [QUAD-L] legbag vs nightbag (my terminology) Eric My daughter designed a legbag holder/leg rest that I have been using for 14 years, it could be designed to hold a 1500 to 2000 CC bag. We just cut a small hole in my jeans, then run the tube under my leg to the holder. Nothing to see! Joan
FW: [QUAD-L] Microphone for speech recognition software?
I had been using a headset for speech recognition software and to make telephone calls via Skype. This worked pretty well, except that since I was wearing a wired headset, I was tethered to my computer. I did not have an easy way to make a short trip to say hello to someone in another room, etc. another problem that I had: if I visited a website which any audio, the microphone in my headset would take up the audio and Dragon naturally speaking would try to interpret all this as text or commands. Often this would lock up my computer. After a bit of research, I decided to try a directional microphone. The idea was that I might be able to get a microphone which would focus on my voice, but would ignore other sound sources such as the television, other conversations, or my computer speakers. According to my research, the most highly directional microphone is a shotgun . I decided to try an ATR6550 shotgun microphone from audio-technica. This microphone sells for about 70 dollars, and you need to buy a microphone stand. So far I have been extremely happy with the microphone. Dragon runs much more quickly and accurately with this microphone (rather than creating a new profile, tell Dragon that you would like to set up a new source, and retrain Dragon...). I am still testing this of course... but I am able to play YouTube videos without the need to put Dragon to sleep, and I am very much enjoying the freedom I have two move about, no longer tethered to my computer. Good luck, and take care, Dave Krehbiel -Original Message- From: t...@toddc5quad.com [mailto:t...@toddc5quad.com] Sent: Saturday, January 08, 2011 10:36 PM To: quad-list Subject: [QUAD-L] Microphone for speech recognition software? Hi everyone, I have a friend who is using a Mac Computer and he is having trouble finding a good microphone to work with the speech recognition software. His voice does tend to change some while he's talking so the cheaper microphones don't work very good. He can't use a regular headset but something like a Bluetooth for a cell phone might work or something on the desk. Any ideas or suggestions would be greatly appreciated. Todd Canaday
Re: [QUAD-L] Unidentified subject or bowel program
i have been a part of the list since all most the beginning. this topic comes up all the time. there is no set in concrete best way to take care of your bowels. eat well, drink lots of water, and find what works for you. if you want to know what has worked from day one till now 20 years later for me its this. first off im a c5-c6 complete so what works for me might not for you. i do my bowel care every other morning. my caregiver comes in at 7am. im laying in bed on my right side with a peach pad under me. a pillow supports my back and another between my knees and ankles. caregiver clears the entrance with finger. puts in one magic bullet and one glycerine suppository. then rubs my tummy in circles a couple times. i put a folded one time hand towel on my chest for sweating. i try and fall back asleep for a while during the time i go. my caregiver also rests and comes back 1 1/2 hours later and cleans me up. results are usually good but sometimes not. i always after im cleaned up no matter the result, have the caregiver restimulate me and rub my stomach again. we wait a 1/2 hour more then clean me again if needed. thats it as for doing the deed. no sitting on a hard shower chair. i rest right through it most mornings. as far as diet goes i do have some rules for myself. on the days i did bowel care i dont eat any spicey foods or drink any alcohol. (good thing there is weed.) on the other day i eat anything i want and can drink alcohol if i want. thats it. i do eat fairly healthy but not anything special at all. as far as pills go i do take senna 1 pill twice a day and docusate 1 pill in evening on bowel care day and 2 pills in evening the other day. this program has always worked well. i average about 15 accidents a year and sometimes thats due to me breaking my rule of no spicy food or booze. also some accidents happen from illness or stress. i hope my way of taking care of the dirty deed works for someone. good luck, donald c5-c6 complete almost 20 years. From: Don Price donpric...@yahoo.com To: Danny Hearn ddh...@sbcglobal.net; wheelch...@aol.com; g...@eskimo.com; quad-list@eskimo.com Sent: Tue, January 11, 2011 11:49:20 AM Subject: Re: [QUAD-L] Unidentified subject! Greg [and all,] If you're sitting on your commode chair for two hours your sweating my have something to do with pressure--those seats aren't padded very well. It seems we all have our own systems for bowel programs, but sometimes things change. I'll describe how I do mine, in case it might be of help to others. As a c5-6 quad I am able to tell when I need to have a bowel movement because of a certain chill I get, plus some sweating that accompanies that (mild A.D. symptoms.) Generally I need to 'go' every other day, but it depends on how much, and what, I've had to eat or drink. Once I feel the need to use the toilet I inform my caregiver and he transfers me to my shower/commode chair, pulls my pants down, rolls me over the toilet and I do my business. Generally this takes less than 15 minutes and requires no suppository or digital stimulation. I do, however, use a stimulus that works well for me: Years ago I figured out that when in the shower if I sprayed a blast of hot water underneath me [onto my rectum] it would stimulate my bowels every time. The water has to be hot, but not hot enough to scald or burn, obviously. Anyhow, the hot water sprayed underneath, briefly, causes irritation and promotes the parastalsis to begin. My shower is right next to my toilet, so when I'm sitting on my commode chair over the toilet I can still use the [hand-held] showerhead to spray underneath me and get things started. This is also a good way to clean myself underneath, after the BM. Yes, the water does sometimes get all over the bathroom floor, but that's an easy cleanup with a towel. As such, I have found that a set bowel time for me every other day does not work. Because I let my body tell me when it's time my BMs are fairly natural, quick and easy. However, there are drawbacks to this system as well. First, it requires access to your caregiver at short notice [my caregiver lives with me, so it works out.] And, second, it's more difficult to schedule around. [Another thing that has always been a laxative/stimulant for me is coffee. A cup of coffee about 20 minutes before wanting to do a bowel program starts this moving for me.] I hope this info helps someone. Don. From: Danny Hearn ddh...@sbcglobal.net To: wheelch...@aol.com; g...@eskimo.com; quad-list@eskimo.com Sent: Tue, January 11, 2011 11:54:43 AM Subject: Re: [QUAD-L] Unidentified subject! Greg--how often do you have bowel routine?? in my early stages as a quad, myself and some others had those problems when they had us trying every day or every other day--the nurses in st. louis told us that many quads have better
RE: [QUAD-L] legbag vs nightbag (my terminology)
Yes I do-just need to go through bunches of pictures. Better idea, I'll have my daughter take a picture tomorrow! Joan
Re: [QUAD-L] legbag vs nightbag (my terminology)
joan i appreciate the response, i think there might be a block on sendin pix, my addy follows Eric W Rudd c5sc...@gmail.com - Original Message - From: Joan Anglin To: 'Eric W Rudd' ; 'quad-list' Sent: Tuesday, January 11, 2011 9:01 PM Subject: RE: [QUAD-L] legbag vs nightbag (my terminology) Yes I do-just need to go through bunches of pictures. Better idea, I'll have my daughter take a picture tomorrow! Joan
Re: [QUAD-L] legbag vs nightbag (my terminology)
Pictures don't load at this website. Try sending them directly to the person. Best Wishes In a message dated 1/11/2011 9:02:11 P.M. Central Standard Time, poaj...@sbcglobal.net writes: Yes I do-just need to go through bunches of pictures. Better idea, I’ll have my daughter take a picture tomorrow! Joan
Re: [QUAD-L] legbag vs nightbag (my terminology)
I would like to see the pictures also. Thank you Dana In a message dated 1/11/2011 9:31:33 P.M. Central Standard Time, wheelch...@aol.com writes: Pictures don't load at this website. Try sending them directly to the person. Best Wishes In a message dated 1/11/2011 9:02:11 P.M. Central Standard Time, poaj...@sbcglobal.net writes: Yes I do-just need to go through bunches of pictures. Better idea, I’ll have my daughter take a picture tomorrow! Joan
RE: [QUAD-L] legbag vs nightbag (my terminology)
As long as I'm not going to therapy I use a night bag all the time.I keep it in a black cloth bag and just hang it underneath my legs.Can't see anything and I don't need to empty the bag during theday. Lissette Whitehead www.lissettesgoaltowalk.synthasite.com www.lwgripgloves.com From: c5sc...@gmail.com To: quad-list@eskimo.com Subject: Re: [QUAD-L] legbag vs nightbag (my terminology) Date: Tue, 11 Jan 2011 19:33:59 -0600 tnx man, i've done the 'legbag cpr' i've flushed the legbag...the problem is definitely how it's put on, i know this because i can pull it out and i'm fine (pix again at ur request)...the legbag is fine IF its not obstructed. Eric W Rudd c5sc...@gmail.com - Original Message - From: donald scott To: Eric W Rudd ; quad-list@eskimo.com Sent: Tuesday, January 11, 2011 7:08 PM Subject: Re: [QUAD-L] legbag vs nightbag (my terminology) i use a leg bag and have for almost 20 years. my brand is alpine. the only problem sometimes is when the bag is new the slit in the rubber in the top plastic piece isnt always cut all the way through. if you close the bottom valve, and blow in the top valve when the bag hasnt been used yet the bag should fill with air. if not the slit in the rubber is closed. i can fix this with a knife. i cant imagine going out in public with a bag of piss just hanging out in view. at least put it in another bag you cant see through. best of luck donald c5-c6 complete 19 years From: Eric W Rudd c5sc...@gmail.com To: quad-list quad-list@eskimo.com Sent: Tue, January 11, 2011 4:39:31 PM Subject: [QUAD-L] legbag vs nightbag (my terminology) wat do u use during the day? my legbag if not put on just right, does not drain. i've thought about using my 'nightbag' (2000L) full time but am very concerned w/ appearence...i'm not the best lookin guy, but honestly, me and a bag of piss makes me ashamed to be around you. Eric W Rudd c5sc...@gmail.com
