Re: [QUAD-L] Cell phone links
I really like my Motorola razer. easy to grip, easy to open/close, speakerphone, voice activated dialing! Brien On Jan 21, 2006, at 7:29 AM, Shahidul Alam wrote: Hi, friends :-) I am looking for most convenient cell phones for quadriplegic, level C5-C6. I shall appreciate, if anyone furnish me with any link. Thanks in advance :-) Please take care :-) Shahidul Alam
Re: [QUAD-L] Lyrica
I recently began using it but, because there seems to be so many variables connected ted to what causes pain and what makes me feel pain, I am unable to be certain if the Lyrica, at this time, is the reason for perceiving less pain. Complicated answer, but the simple answer is: it is providing pain relief far better than gabapentin or gabatril, over this current trial. I encourage those with neuropain to try it free. The mfr. is offering free trials and my pharmacy appeared to have been able to push through 3, 7 day free trials! Given this, please check whether it will be covered when billed, over the long term, to your present drug insurance! Substantial relief from nerve pain may be out there for us! Happee Friday, Brien On Jan 19, 2006, at 2:47 PM, [EMAIL PROTECTED] wrote: In <[EMAIL PROTECTED]>, on 01/19/06 at 07:47 AM, ~LittleQuad~ <[EMAIL PROTECTED]> said: Has anyone tried this new medicine? I've been on it for 2-3 weeks and I think it is doing some good. It is an alternative to Neurontin. It caused pain in my teeth and gums. Alan -- -- - Posted by alanh77[at]comcast.net using MR/2 ICE Newsreader #564 Proudly using eComstation 1.21 (OEM OS/2) BBS - The Nerve Center Telnet FidoNet 261/1000 tncbbs.no-ip.com -- -
Re: [QUAD-L] cruising control
Or, to vehicles with traction control?BrienOn Jan 12, 2006, at 6:31 PM, H & S Jones wrote:I wonder whether this applies to all wheel drive vehicles?http://www.snopes.com/autos/techno/wetroad.asp#icbc
Re: [QUAD-L] Driving
OK, I'll move over and you drive!BrienOn Jan 12, 2006, at 4:56 PM, [EMAIL PROTECTED] wrote: Have any of you that drive had someone say to you that they would never ride with you? I have a friend of 25 yrs whom our kids grew up together and is one of those who actually stayed a friend after an sci injury. She said this to me 10 yrs ago when I began driving. A situation came up & I said, well you can ride with me. She replied I told you I'd never ride with you. This really ticked me off. To me it's offending my injury and how I overcome it. I wouldn't tell a blind person I won't eat your cooking, how can you cook if you can't see?!!! Sorry, but I have to vent...What would some of you say to this remark? Diane
Re: [QUAD-L] vitamins
William Willis wrote: Did someone post a vitamin regimen for presure sores a while back, or did I just dream it? If so, would you post it again? Thanks. Here is a long but possible answer to your vitamin question: I have been on Dr Perricones diet "The Perricone Weight loss Diet" for about 2 months. The number of supplements is pretty significant but the way he teaches you to eat is so healthy, will help keep you or help you attain a healthy weight and is such a good diet that your skin is more durable and less susceptible to problems. His first books were actually anti aging and improved skin and complexion books. This weight loss book embraces all the previous diet aspects. I have a 2 year old pressure sore on my outer ankle bone that is finally healing. It may be due to this diet but, the great thing about this diet is that I FEEL better mentally and physically and I am never hungry between meals. I am 44 and it is the best lifestyle I have ever encountered. I used to do Ironman Qualifiers. If I had known about this lifestyle and way of eating then, my performance WOULD definitely have been better. I know many people with SCI are looking for good, healthy and satisfying ways to eat. This book may help you: http://www.nvperriconemd.com/perricone-weight-loss-diet.htm. my best, Brien
Re: [QUAD-L] Engagement/waiver
There are s many people sucking off the tits of the welfare system that don't deserve it and are just as capable as the people that decide and disperse the money. The bureaucrats have got to look for any possible way of cutting disbursements! Look around you and you see 1000's +++ who are perfectly capable of working. I know of families, for example, Hmong refugees that have been here since the 70''s who are still getting section 8 housing, medicaid, food stamps, AFDC, WIC coupons, etc., and, here is an interesting one, find something that is medically wrong with your kid and they will give you, for example, $400.00 more. No, they won't figure out a system to reimburse you for direct expenses the kid costs you, they will just GIVE you some outrageous amount of money. Want more, unlike most of us who have been catastrophically injured and, in many cases, were earning $ and paying taxes the day we were injured, the aforementioned people never added and may never add milk into those dried up tits Now, the big thing is anchor babies, mainly from Mexico but also from other countries. Again, sucking off those same dry, shriveled up tits. But, they are nothing new, they are just newsy. If anything, they are a temporary distraction from some other tit suckers. There are no advocates out there working hard to ensure that there are special resource programs for people who were one time major taxpayers like me, but can no longer work. The entitlement system does not discriminate whether you were a college educated, well intentioned, useful part of the american way of life, or a constantly pregnant Hmong refugee or a useless, law breaking, illegal mexican spitting out anchor babies. The case worker who comes to your home has the same guidelines and, if you live in a beautiful home full of beautiful things, better hope you don't get an affirmative action hiree, who sees that "life looks pretty nice in this home already". The beautiful home thing will come crashing down some day soon. If you live in a $ million home but are a c-5 who can barely talk any longer, just wait until they decide that you ought to spend down about $800,000 of your home's value before you get any money. My social worker was very gracious, she said "don't get married or say that your girlfriend even lives here, because if you do, I will not be able to give you as many benefits." If it sounds like this writer is bitter, he's not. He's just enlightened and is sick and tired of the government taking from the haves or, in my case, once had, and giving it to the have nots, and often never will haves! The middle class and the working poor, as usual, suffer the most here in USA, but, we have one thing they can never take; our dignity and our pride. Happynewyear, Brien
Re: [QUAD-L] About torn roter cuff and shoulder pain
Mare Albano wrote:
LOL
- Original Message -
From: S. Dial <mailto:[EMAIL PROTECTED]>
To: Brien Stocker <mailto:[EMAIL PROTECTED]> ;
quad-list@eskimo.com <mailto:quad-list@eskimo.com>
Sent: Wednesday, December 21, 2005 5:43 PM
Subject: Re: [QUAD-L] About torn roter cuff and shoulder pain
Brien,
Dude, go to the doctor! ;-)
Steph
Go to the doctor for what? As a lifetime athlete, I am used a little
pain from sore muscles due to hard training. Sore joints are another
story. Never had that.
Brien
Re: [QUAD-L] About torn roter cuff and shoulder pain
[EMAIL PROTECTED] wrote: A few weeks back, there was some talk of injured shoulders and pain. My left arm has never had near as good of control as my right since my injury., and lately it has been getting awful pain and even makes some noise as I try to work out and exercise my arms. I am pretty sure it must be a torn roter cuff in my shoulder. Last night I had severe pain in it while just trying to sleep.I try to exercise my arms about every other day...either just by moving them about or by very small one pound hand weights. My question is Have any of you had to give up arm exercise due to pain ? I think I will stop for a while since this nagging pain in shoulder seems real bad now. Also i'm not sure if a doctor can help this issue or not ? Thanks for any input or suggestions. Dan c-6 MerryChristmas everybody, my prayers go out to you folks who are having serious medical issues. I am only 4 years post but, 2 years ago, I made up my mind after coming to know many 10, 20+ years post injury peers that I should try to do something proactive for my shoulders. 1 choice was to not use a manual chair ever, the other was to workout 3-5 times/week. I was beginning to have problems like Dan so I went to a P T. I learned from him how to use my shoulders correctly. Essentially, I lock my shoulder into place before I use it. It is a simple action, but did take some training. If you have some P T access, consider doing what I did. I no longer have any clunky, noisy sounds and only occasional pain after a hard workout. Best health and GOOD STUFF to all, Brien
Re: [QUAD-L] college
[EMAIL PROTECTED] wrote: Quads are often discouraged to get higher education because we are such high suicide risks and why put a lot of money into someone is this physically limited. You got to stay on them. Don't let them make verbal promises to you. Get them to put it in writing. Don't be afraid to call your state representative. john Do we have a high suicide rate -- how sad! In any case folks if you have not already done so, determine and acquire a means of keeping a log to keep track of all types of transactions with ALL entities and people with whom you deal. To further on John's excellent point, if things go sour or confusion presents, you will have all the names, dates, events, and who said what!!! Merrychristmas, Brien
Re: [QUAD-L] What are ya'll doin Thanksgiving?
[EMAIL PROTECTED] wrote: We are trying something new this year. A chicken stuffed into a duck, which is then stuffed into a turkey, that is deep fried in peanut oil. I hope to be knee-deep in tripto before the day is over and sleeping like a baby, lol. W In a message dated 11/22/05 4:13:20 PM, [EMAIL PROTECTED] writes: << So what are all you guys doing Thanksgiving anyway? How far are you traveling, and how many people? I'm going to Aunt Mimi's who lives in a 100 year old house with my hubby Pete. Maybe about 8 of us all together, only driving about 5 miles. Nice calm and quite. Bobbie >> I wish everybody a very happy thanksgiving. Does anybody have families that are so unpleasant to be with that they they choose not to get with them on holidays? Mine is that way so my girlfriend/life partner of nearly 20 years and me share it together! Brien
Re: [QUAD-L] Brien and his dandruff
Fragile wrote: diazepam(generic Valium), eight dollars for 30 10mg pills at drugstore.com Talked to my case manager this morning, he didn't think there would be any changes with Medicaid covering it here in New Mexico, but it wouldn't be the first time they were wrong. On 11/22/05, [EMAIL PROTECTED] <[EMAIL PROTECTED] > wrote: At web sites like drugstore.com valium cost like $51 bucks for 30 5mg and like $86 for 30 10mg. where can you get them for $ 7 Dan I love seeing my name in the subject line of all these drug discussions. Better living through drugs. One major downside of drugs for me is massive dandruff, regardless of how often I use dandruff shampoo. Does anybody else have really bad dandruff and if so, do you know from which drug it comes? Happithanxgivin' Brien
Re: [QUAD-L] Pain
Have or do any of you folks take methadone? It seems to have an effect on cutting nerve pain that many of the other hydro or oxy narcotics. The stigma attached to methadone does not apply to somebody in chronic pain. The benefit to methadone is that it is not as spacey as the other narcotics. happeethanxgiving Brien
Re: [QUAD-L] About valium
RONALD L PRACHT wrote: I take lorezapam twice a day, 1mg tablet. This helps me somewhat, I have always been kinda scared of valium, never tried it. Are most quads taking valium for spasms, pain or both? ron c7.about 8 yrs post I take valium for my spasticity and as needed when I get really spun out and can't relax. Conservative doctors do not seem to like it, but I seek quality of life as often as possible. What does lorazepam do for you? Brien
Re: [QUAD-L] Men and Women Quaids
A.B.C. wrote: don't be silly liz, why would anybody knowingly go out and buy damaged goods. all psychological things being equal, why buy a dead horse. everyone has garbage both physical AND mental. why look for a broken body, just to prove something? if it happens, it happens bu one doesn't go out purposly LOOKING for a broken mate. i think i'll go find me a gimp to live with the rest of my life... not. Liz <[EMAIL PROTECTED]> wrote: AB's come with garbage just as much as a quad does. Disability comes in many forms. just because a guy can crap on his own doesn't make him better than anyone else. point is; Never settle. You are worthy of being loved by someone and loving someone in return. - Original Message - From: A.B.C. To: Liz ; andrea murray Cc: quad-list@eskimo.com Sent: Saturday, November 05, 2005 7:38 PM Subject: Re: [QUAD-L] Men and Women Quaids what a silly question. a quaid person is someone who will need some 'taking care of' physically, and an AB isn't. why buy a bag of troubles when there are other choices? i can't even imagine a quaid prefering another quaid over an AB all other things being equal. Liz <[EMAIL PROTECTED]> wrote: I'm opening a can of worms here. Disabled individuals fall in love with AB or other disabled folks. Love is love. I know of people in chairs (definitely not a PC term) that have fallen in love and have married.) Personally I have been attracted to athletic, financially stable guys (quads and paras) I met playing wheelchair tennis. We swapped some spit but due to distance never pursued anything. I happened to find a guy by chance who's AB and it works out for me. he is not my caregiver, as it is my belief , I think it would add a stressful situation. Some quads make it work with their lover as their caregiver. I am not one of those. I did get my NM magazine today. If you would like I can mail it to you. You may want to enable spellchecker on your emails as it may clarify some wording. Liz - Original Message - From: andrea murray To: Liz Cc: quad-list@eskimo.com Sent: Saturday, November 05, 2005 3:53 PM Subject: Re: [QUAD-L] Men and Women Quaids Thank you Lis, Yes you gave me the womens point of view with the stories from the new newmobility magazine,Yes, I am a paras. Can I ask you one more quistion. Is it more easyer to have a AB man? Wheelchair Warrior Liz <[EMAIL PROTECTED]> wrote: I'm sorry I'm not quite sure what you are asking? Body image? Why there are more AB women with quad guys? (statistically as there are more male SCI than women?) Why a quad man would not date a quad women? Are you including paras? Many of the quad women I know are involved with AB men (including myself). There's an article in the new newmobility magazine @ women with disabilities and body image. I haven't received my copy yet but the cover pic is on their website www.newmobility.com - Original Message - From: andrea murray To: quad-list@eskimo.com Sent: Saturday, November 05, 2005 2:47 PM Subject: [QUAD-L] Men and Women Quaids I have been wondering why Quid men do not see Quid woman the same way as they see a non disabled woman. In a sexual way or as a mate. I"m doing a research and don't hold back. I also want the women view too. How do you abaut yourselfs? Wheelchair Warrior Yahoo! FareChase - Search multiple travel sites in one click. Yahoo! FareChase - Search multiple travel sites in one click. Yahoo! FareChase - Search multiple travel sites in one click. Yahoo! FareChase - Search multiple travel sites in one click. I would venture a guess that as many as not look for things, rather than people or love. What do you guess the divorce rate is for post injury disabled marriages? probably close to 0%, maybe! haveagreatday, Brien
Re: [QUAD-L] Men and Women Quads
And it seems as if most quads have a control issue. So it would probably add 4 in compatibility. :) This is very interesting: I do not perceive that I have a control issue. I do not socialize with many people with sci, but I know many able bodied people with control issues. Can you explain this a bit more please. Thank you, Brien
Re: [QUAD-L] how to report VERY bad DME dealer/repairer
Silas wrote: Hey Brien, How do I get intouch with my states dept- of consumer affairs, will they send a complaint form? Im having a hell of a time out of Inovation, their service sucks. Silas - Original Message - From: " Cc: < Sent: Thursday, November 03, 2005 12:24 PM Subject: Re: [QUAD-L] how to report VERY bad DME dealer/repairer Folks, thanx for all the encouragement. I filed a report with my state's dept of consumer affairs, called a really nice contact at Invacare (she even remembered my parrots in the background, called the national headquarters, etc. I have always found that the best thing to do is to dl a complaint form from consumer affairs, fill it out and either take it to the problem business or fax it with a follow up phone call. I have always received a very prompt response from businesses when they see that form ready to send in to an agency that NOBODY likes to have poking around their business. All the response was REALLY nice, my best, Brien Go to your state's website and find the area for consumer affairs or the dept of health. I suggest that you try to deal directly with the dept of health. In CA I realized that consumer affairs is the wrong portal and does not handle medical issues. my best, Brien
Re: [QUAD-L] Chair Tipping?
[EMAIL PROTECTED] wrote: sounds like you're going too damn fast, to me. mine does the same thing when I set my speed to 5. Be careful FLIPPING ISN"T GOOD! I once tried pushing, with my wheelchair, one of those really large rubber balls you can buy at walmart and instead of pushing it my wheels actually gripped it and flipped my chair over sideways. Have fun with your new chair! Luke In a message dated 11/4/2005 5:28:55 PM Central Standard Time, [EMAIL PROTECTED] writes: I just got my new chair back from the shop. I have hardly used it. There are 2 worries I have. One is when I start fast, it lifts the front wheels off the ground. Fun when expecting it. I know that can be adjusted with the computer. But the other is when I stop fast, it seems to want to tip forward. I can't tell what happens, it it feels like the back wheels lift up. It might be just the motor area, but not sure. It's a Invacare TDX3. Anyone else have this trouble? Greg You definitely need to get a hold of the programmer and either, like I did, borrow it for the weekend when the shop was closed, or have a tech program it. I have a tdx 5 and there are sooo many controllable options. in your case modulating the acceleration and braking will help. The tdx is very stable and will neither wheelie nor endo. have fun, Brien
Re: [QUAD-L] Shoes
Jeremy Dickinson wrote: Hey all, What kind of shoes do you guys wear? I spent 3 hours in the ER last night because (I'm assuming) when my nurse put my shoe on, my big toe nail must have got bent back and nearly ripped off (now is off and bandaged) and made the whole side of my foot purple. Anyway, mom doesn't want me wearing tennis shoes. What do you guys wear? Thx. -- Jeremy - 23 - Florida C-3 Quad since 4/12/01 OI Type IV since 7/29/82 I wear various running and x training shoes a few sizes too big to get the width and the room for the usual expansion from swelling. My podiatrist is recommending some http://drcomfortshoes.com/ they look OK for the fashion and style in my blood and they are so comfortable and well made. If you have the pleasure of diabetes and paralysis, medicare will pay for 1 pair/year. In my <4 years as a quad I have had 3 ingrown toenails removed all the way from the root. They are now trouble free and look more healthy haveanicewekend Brien
Re: [QUAD-L] how to report VERY bad DME dealer/repairer
Folks, thanx for all the encouragement. I filed a report with my state's dept of consumer affairs, called a really nice contact at Invacare (she even remembered my parrots in the background, called the national headquarters, etc. I have always found that the best thing to do is to dl a complaint form from consumer affairs, fill it out and either take it to the problem business or fax it with a follow up phone call. I have always received a very prompt response from businesses when they see that form ready to send in to an agency that NOBODY likes to have poking around their business. All the response was REALLY nice, my best, Brien
[QUAD-L] Cell Phone Numbers]
Folks, this is the last thing we need to do in our bizzee lives haveaniceday, Brien Here is some important information regarding cell phone numbers. It takes less than a minute to do. JUST A REMINDER in just a few days, cell phone numbers are being released to telemarketing companies and you will start to receive sale calls. YOU WILL BE CHARGED FOR THESE CALLS. These Telemarketers will eat up your free minutes and end up costing you money in the long run. To prevent this, call the following number from your cell phone: 888/382-1222. It is the National DO NOT CALL list. It will only take a minute of your time. It blocks your number for five (5) years. Or www.donotcall.gov If you call to block your cell phone you must do it from your cell phone.
Re: [QUAD-L] how to report VERY bad DME dealer/repairer
Folks, In July, I initiated the repair of my chair armrests, bald tires, wrong size chair, etc. My insurance co. called them yesterday and found out that the parts were just ordered a few weeks ago: probably because I faxed them to advise status. These losers do not get it. Any suggestions on how to drop the hammer so that they do not continue to provide terrible service to our peers? Thank you, Brien
Re: [QUAD-L] The clicking of your chair is driving me crazy & those tires
[EMAIL PROTECTED] wrote: My husband, of 22 years, told me today that "the clicking of your power chair is driving me crazy, can you sit still for a little while"? I understood that he was VERY tired and wanted to take a nap BUT I was so insulted. I HATE THE CLICKING TOO! Then just a few minutes ago I knocked on a neighbor's apartment door and asked if I could come in for a minute and she said "I don't want the tires on my carpet, your not insulted are you"? I wasn't coming in from outside, it was an indoor hallway. YES I was insulted. Boy, what a day. Question: Would you guys get insulted if someone told you to stop moving your chair because the clicking was driving them crazy? or If someone didn't want you in their home because of your tires? Bobbie Would be saddened, not insulted, but, I would say "I can't help it."
Re: [QUAD-L] Santa Clara Valley Medical Center
Joan Anglin wrote: Hey Brien I live in Reno, Nevada. When were you at Valley med? I was there from November 1990 2 Feb 1991. They couldn't keep me any longer because my insurance said I was not making "significant improvement" as a C4/5 as most of my damages is at C4 level. I am hoping to go back for reevaluation as I have not been in for a total physical in the 15 years. I'm going to be in Stockton on Saturday to pick up a puppy, hope your weather is warmer than ours. Joan Brien Stocker <[EMAIL PROTECTED]> wrote: Hey Joan, me from valley med too. Where do you live? Me Stockton! My best, Brien Joan, I was in valleymed from january through may (3.5 months in halo). Even as a c-7 with c-8 function, I highly endorse the halo's stabilizing benefits and regret that I was not haloed immediately after my 2 surgeries. To err on the side of caution for haloing people with cervical sci is well worth it. Wow, c-4 function is pretty diminished. I commend you on your apparent quality of life. I bet you have a tremendous realm of people around you. That is what I attribute to my happiness and continued ascension through life. A visit with Dr Shem at outpatient services: 408-885-4839, would REALLY help you. She is one of the finest P M & R doctors under whose care I have been! What kinda puppy are you getting Stockton is big on pet bulls, rotties and other gangster empowering dogs, lol. How often do you folks on the list with SCI see a pm&r doctor? I go twice a year, but my doc is awesome so I feel that I always benefit. haveaniceday, Brien
Re: [QUAD-L] Santa Clara Valley Medical Center
Hey Joan, me from valley med too. Where do you live? Me Stockton! My best, Brien
Re: [QUAD-L] Tall people issues
[EMAIL PROTECTED] wrote: Hiya Britri! Just make 4 4 X 4 blocks made from 2 X 4's. When you get to the restaurant, just place them under the legs. Don't try it on tables with single pedestals, lol W Thanx, I will bring an old tire for round tables Bri
Re: [QUAD-L] Tall people issues
Marjorie Fergerson wrote:
Message
Byron is 6"3 and has an Invacare TDX5
also. He drives with his head. I've always wondered if his chair
could be lower, but they've said he needs it that high for his leg
length. I've considered getting a manual chair he'd be comfortable in
to go to restaurants so he'd fit under the table, but the only ones
I've seen that look like he'd feel ok in are around $2000. So we're
still waiting and deciding.
Marji Mom to Byron
Injured 4/27/03 @ age 24
C4/5 complete
Never give upHope!
-Original Message-
From: Brien Stocker [mailto:[EMAIL PROTECTED]]
Sent: Friday, October 21, 2005 12:50 PM
To: quad-list@eskimo.com
Cc: Quad
Subject: Re: [QUAD-L] Caregivers
Paul Jacobson wrote:
I am 6 ft tall and with my powerchair and 4"
cushion, I can not get under any table in a restaurant.
Has anyone solved this issue?
Thanks,
Paul c5/6
Hey paul, I am 6'3" and I know how frustrating this is. Do you have a
swing away controller? When my knees approach the table, I remove
my feet from the footrest, thus dropping my knees lower. I have an
invacare TDX5 which has 3 height options which can easily be changed
out for a size that may lower one a bit, but the tradeoff for reaching
into cupboards, etc. makes one think twice. I actually have the
tallest brackets so I can reach really high into standard cupboards.
Good luck,
Brien
There are different length tubes that connect to each foot plate.
Check out the length of the tubes on his chair and the distance from
footrest to floor and determine if a longer tube is available and that
the footplate wont go too low. Also be sure that his thighs are
bearing as much weight as possible while his feet are firmly placed
on the footrests
You got a great chair for him. What an awesome mom to care so well for
Byron. I hope this helps you a great deal. You know where to find my
help if you need it!
Brien
Re: [QUAD-L] falling asleep
Ray wrote: Hi Dave, I was wondering since you get up early, you go to bed early too? If so do you get turned at night? The reason I ask is because my devoted wife does my turn at night and she is starting to burn out after 10 1/2 yrs. I thought about not getting turned, but I don't want to risk getting bed sores. I can't get help for night turns. How many people here don't get turned at night and don't have bed sores? Thanks, Ray C3/6-10 1/2 yrs Post AB, Canada - Original Message - From: David K. Kelmer To: Tim Syfert ; quad-list@eskimo.com Sent: Thursday, October 20, 2005 7:46 PM Subject: Re: [QUAD-L] falling asleep Hi Tim, I could drop off to sleep in a matter of minutes pre-SCI, and am still the same way post. I also wake up at 5:55 AM at the latest each morning. I have a stop-watch with a beep alarm hanging by my bed set to go off at 6 AM but am always awake when it goes off. I sleep straight through the night unless there is something wrong with me, or outside and inside. I feel I am blessed! With Love, CtrlAltDel aka Dave C4/5 Complete - 29 Years Post Texas, USA Tim Syfert <[EMAIL PROTECTED]> wrote: Before my SCI I could fall right to sleep when I hit the sack, but post SCI it takes me 1-2 hour to finally fall asleep. Has anyone else experienced this? Tim Yahoo! Music Unlimited - Access over 1 million songs. Try it free. Hey folks, I am just shy of 4 years post and sleep flat on my back. I was told by several types of people in my 5 months of rehab that one could sleep on ones back for 6 hours without turning. I have done that with no problem since my injury. Brien
Re: [QUAD-L] Caregivers
Paul Jacobson wrote: I am 6 ft tall and with my powerchair and 4" cushion, I can not get under any table in a restaurant. Has anyone solved this issue? Thanks, Paul c5/6 Hey paul, I am 6'3" and I know how frustrating this is. Do you have a swing away controller? When my knees approach the table, I remove my feet from the footrest, thus dropping my knees lower. I have an invacare TDX5 which has 3 height options which can easily be changed out for a size that may lower one a bit, but the tradeoff for reaching into cupboards, etc. makes one think twice. I actually have the tallest brackets so I can reach really high into standard cupboards. Good luck, Brien
Re: [QUAD-L] New Therapy for Paraplegia and Quadriplegia
Houston809 wrote: New Therapy for Paraplegia and Quadriplegia Anybody familiar with this? Wally what have you heard? This looks like FES, functional electrical stimulation, which is what C. Reeve used and empowered him to move his foot in h2o!! GIGER MD® Therapy is a unique therapy method Dear Sir or Madam The damaged or functionally impaired CNS (central nervous system) is functionally reorganised in its activated network parts or in its basic structure through the relearning of lost frequency and phase coordination in the performance of coordinated rhythmical movement. In the case of severe CNS damage, the restoration of physiological functions is only possible when instructed learning takes place in an integrative, co-ordinated and efficient way. The relearning of relative frequency and phase coordination and of old movement patterns of the diseased CNS can best be achieved with the use of GIGER MD® medical device which controls the frequency and phase coordination with a precision of milliseconds. This relearning of motor functions of the lesioned CNS is considered as a transformation of the coordination dynamics of the central nervous system. The increase in the relearning rate of specific spatial-temporal pattern of activity among the many billion neurons of the CNS networks through movement and other functions of the CNS is essentially determined by various factors. Please ask for more information about the GIGER MD® Therapy or go to www.gigermd.com or www.paraplegic-online.com Intensive training on the GIGER MDâ medical device enhances in the best way vegetative functions and motor recovery or even restore these functions in people who have been paralyzed due to a spinal cord injury. The movement pattern of all limbs is on milliseconds accurate, as the user would walk. Coordinated locomotor training on milliseconds accurate increases the amplitude of appropriate muscle activation and decreases the amplitude of inappropriate or spastic muscle activation. As the patient is lying on his back, the therapy can be started very early after injury to prevent “learned non-use” and to facilitate locomotor recovery. We look forward to hearing from you in due course. Combo Ltd. 4503 Solothurn Switzerland Phone +41 32 621 97 41 Fax +41 32 621 97 45 www.gigermd.com www.gigermd.org -- End of Forwarded Message
[QUAD-L] Re: falling asleep
[EMAIL PROTECTED] wrote: Tim, Eric and Mark, I have the same symptoms. I wake up so many times and it takes hours to fall asleep along with the freezing and suffocatingly hot flashes. I think you are right about it being neurological like so many other things we experience. I wish they would come up with a solution for us. It is quite miserable not been able to sleep or being extremely cold or hot at night. Dana (C4-5, 31 years post , 52, KC) Subject: Re: [QUAD-L] falling asleep From: Eric Olson <[EMAIL PROTECTED]> Date: Wed, 19 Oct 2005 16:36:47 -0500 To: Tim Syfert <[EMAIL PROTECTED]> To: Tim Syfert <[EMAIL PROTECTED]> CC: quad-list@eskimo.com I too sleep very poorly. My nasty-ass sensations of intense cold often keep me from sleeping at all. It has to be a neurogenic thing because I'll feel like I'm soaking in ice water regardless of my temperature. Anyone else have cold sensations? Anyway, even if I'm not having trouble with the cold sensations, I either can't fall asleep or can't stay asleep. I guess not being able to toss and turn easily makes sleep more difficult. Eric Tim Syfert wrote: Before my SCI I could fall right to sleep when I hit the sack, but post SCI it takes me 1-2 hour to finally fall asleep. Has anyone else experienced this? Tim Yahoo! Music Unlimited - Access over 1 million songs. Try it free. Folks, I have not heard anybody mention trazadone/ambien combo. I take 150 mg trazadone and 25 mg ambien. As I understand from my doctor ambien will get you to sleep, trazadone will keep you asleep and continue to put you back to sleep. Trazadone may also be like amytrp. in that I understand it to help enhance and tie in various pain relief meds. There is nuthin worse than lack of sleep and I wonder if y'all can see a sleep specialist. Sweet dreams comrades. Brien
Re: [QUAD-L] Bugs 'n' Drugs
Title: Re: October 22 A.B.C. wrote: After seeing some people here tracking their bugs and drugs, it is becoming more evident to me that the best thing any of us can do is track our bugs 'n' drugs and track what works and what doesn't. We can all Google our bugs n drugs and keep track of what we are taking. <> Dave, what do you mean by this last sentence? Thank you, Brien I have a friend who has a form of Muscular Distrophy and he is a total fanatic about tracking his vitamins, drugs and results. He has had the hair study where they do a complete analysis of your hair as to what levels you have of all chemicals and proteins in your system. He tracks very carefully everything that does and doesn't work and to what extent. His doctor is now calling him to see what he thinks will work well in his current situation. This guy is very serious as to determining what his system is deficient in and what works best for him - he has already far outlived his doctor's expectations. I firmly believe that any of us who have ongoing problems with uti's should be tracking our drugs n bugs as closely as we can to help the doc decide what's best for us. He already has a lot of ppl to keep track of - and we are much more instered in OUR own situation than he is. I'm starting now since this has been my buggiest and druggiest year ever. Dave Yahoo! Music Unlimited - Access over 1 million songs. Try it free.
Re: [QUAD-L] About Psuedamonas and other critters
Title: Re: October 22 [EMAIL PROTECTED] wrote: Brien , also I forgot to add on the uti issues, My urologist made me take Cipro 250 ml. for a whole year and now i'm immune to Cipro-- it no longer can help at this time ;-( What way do you have to be cathed-- straight or indwelling type ? thanks, Dan I do intermittent cath when I feel an urge about 5 times/day. I have NEVER heard of taking Cipro for a year. Too bad your body is immune, for me it has always worked great. Sounds like e-coli may come from feces. What are the sources of the pseudonoma and etc. UTI's?
