Re: [QUAD-L] Intro/Hi Again and P.I.E. Bowel Care

[Eddie]

I don't use it, but have you heard of Peristeen?
https://products.coloplast.us/coloplast/continence-care/peristeen/peristeen-tai/peristeen-balloon-catheter/peristeen-anal-irrigation-system/

On Fri, Nov 6, 2020 at 4:31 PM Tod Santee  wrote:
>
> Hi Everybody!
>  Some of you might remember me.  I'm a moldy, oldie at the Q-List since 
> the mid-90s maybe, but since I haven't checked in for a long time I guess I'm 
> a bit of a newbie to many here, too.  I'm a male C5-6 Quad, 37 yrs post 
> injury from a fall from a tree.
>  So first off... "Hi!" to all my old friends & acquaintances here.  And, 
> looking forward to meeting those who are "new" since I stopped posting and 
> following closely.
>  My MAIN reason for writing, tho, is this:  For many years... almost 
> since the beginning of this "new normal" life... my bowel routine would take 
> 3-4 hrs from suppository (or whatever other kind of bowel stimulant) to 
> finish with a whole lot of digital stimulation along the way.  It's always 
> been (pardon the pun) a pain in the ass!  I'm sure I'm alone on that last 
> bit!! LOL!
>  Problem is, lately I've been waiting just as long but now sweating like 
> crazy throughout the majority of that time.  A colonoscopy shows no 
> irregularities other than some minor exterior hemorrhoids that I've had for 
> at least 30yrs... i.e. no change there.
>  So I'm looking for a change in process and I've been encouraged to look 
> into the P.I.E. system (P.I.E. = something like "Pulsed Irrigated 
> Evacuation.") that uses a catheter to fill the bowel with water and let it 
> empty into a container (lather, rinse, repeat until done). I looked it up 
> online & it has a pretty decent animated video of how it works.  BUT, it's 
> big & I'd guess expensive if insurance doesn't cover it.
>  I figured I'd turn to the experts here to see if anybody has tried this, 
> how well it worked --our not-- and how you'd deal with things if/when 
> traveling.  My wife and I enjoy world travel to not-so-accessible locations 
> for scuba diving trips... at least up until a year ago.
>  Any ideas or opinions on this P.I.E. system from anybody familiar with 
> it would be SUPER appreciated!!!
>
> Thanks All,
> --Tod
>

Re: [QUAD-L] *IMPORTANT* - Smartphones & Bluetooths

[Eddie Castle]

Lori, have you tried any of the Bluetooth headsets from BlueAnt?  It
worked very well for a few years, but I don't use it anymore, I'm now
using a Samsung galaxy 5 which I'm able to operate with S Voice. Also,
I can use a Samsung tablet to operate the cell phone using sidesync.
I've been leaving the tablet on my lap, and the galaxy s5 stays
mounted on the wall while plugged into the charger. The only downside,
it only works while I'm in my home, can't travel too far away from the
galaxy s5.

I switched from Verizon to TracFone, so I pay about $90 per year for
1200 minutes of time. I don't use the minutes very often, I can place
and receive calls using the tablet with Google voice, which is free.
Of course, I can only use Google voice if I'm in range of the Wi-Fi in
my home. When I have to leave my home is the only time I remove the
galaxy s5 from the wall and place it on a Ram X-Grip cell phone
holder.

On Mon, May 21, 2018 at 2:59 PM, Lori Michaelson  wrote:
> Hi all,
>
> Please bear with me as I am going to try to describe my problem as best as I
> can.
>
> I have been using the same Bluetooth (Motorola H720) since my husband & I
> started using a cell phone and this, of course, was was before his passing
> In June of 2012 and which were the flip phones.
>
> Then after he died and I moved in with my sister and brother-in-law I
> switched over to my first Smart Phone (Samsung Galaxy 4) that I only use for
> calling people & asking people to take photos with but primarily I need a
> bluetooth and, without question, a Bluetooth and a cell phone that are
> compatible for not only when I am alone on walks or if I decide to spend a
> day or two in bed and my caregiver leaves to grocery shopping Or pick up my
> prescription or any number of things and I need to call out help. ButI also
> use it to call friends or family when she is gone.
>
> My Samsung Galaxy 4 [that I got that in 2013 or 2014] began acting up [would
> not hold a charge] so I went and bought the next least expensive  phone
> since I only use it for calling people and I got the same cell phone that my
> niece uses (Samsung Galaxy 7) Because I am on her cell phone plan through
> Verizon since I can't afford any more than $30/month. I got that phone
> through Verizon  and so I went to Verizon to get a new phone (the Samsung
> Galaxy 7] but we can't get my Motorola H720 to pair with the new phone. I
> got the phone at Verizon but they can't get it to work so they suggested
> calling Verizon tech support. So with my niece here visiting  she has been
> trying her best to get it to work (the Bluetooth and my new phone that was
> $480 and that they will not take back)
>
> My niece has now been to Verizon (store where I got my new phone) she went
> to them twice again to get the manager or whoever to try to get it to work
> together! THERE IS NO REASON WHY THE TWO SHOULD NOT BE COMPATIBLE PART OF
> THE TIME BUT NOT ALL THE TIME and it took us a while to even do that after
> changing things a bit because all of my contacts were transferred over
> originally by Verizon when I got a new phone and they doubled every contact.
> We tried to remove all those "doubles" and trying a variety of things but it
> is ABSOLUTELY MADDENING since I need a phone and a Bluetooth to be
> compatible for emergency reasons and yet we are getting nowhere.
>
> Finally my niece went to Verizon again today to see if they would take the
> phone back (which they won't) to go back to using my older phone (Samsung
> Galaxy 4) and getting a new battery for my old phone which we are currently
> doing but she had to go to numerous places to try to get a battery for my
> old phone. She finally went to a place here called "Batteries Plus" which
> did carry batteries for my old cell/smartphone which we are trying to charge
> now.
>
> Thankfully, my niece was coming out from PA for a visit because of all I
> have gone through (losing my best friend and companion "Leia" and having my
> main caregiver in California for 9 days which is the first time I have been
> completely alone) and we thought she would be able to figure it out simply
> because she has the same model of cell phone BUT does not use a Bluetooth
> whereby I NEED one.
>
> When my husband was alive we tried all kinds of Bluetooths and with the
> limited movement I have with my right hand and using my knuckle - the
> Motorola H720 is the only one we could find to work with our flip phones and
> that it transferred over to my Samsung 4 in 2013 or 2014 and working fine.
>
> We need to get this figured out for emergencies and going for walks and
> needing to reach someone as well as to use it and hear it through my ear as
> well as privacy. I do not need it or want it to go to my power chair armrest
> or anything else since I do not need that especially when outside or even
> inside when trying to get under a table and my caregiver keeps the baby
> monitor on in case I need something so she doesn't want to 

Re: [QUAD-L] suprapubic

[Eddie Castle]

I've had one for 6 years

On Thu, Mar 22, 2018 at 7:48 AM, john owens  wrote:
> who has a suprapubic here?

Re: [QUAD-L] Politics_Kick Me in the Head!

[Eddie]

Lori...

You are not as funny nor as smart as you think you are! stop trying to  
insult ppl's Intelligence   with your analytical BS! I''m getting kind  
of sick of reading your vague useless comments.


E.

Fwd: [QUAD-L] Politics_Kick Me in the Head!

[Eddie]

I came here to this list to identify, learn, relate and help and be  
helped not to be taunted and mocked by certain people who think they  
are better of then the rest of us, I am someone you guys don't know  
(the majority of you) Dana I adore you!
Anyway... I don't come here telling everyone how great my sex life  
is or how great I have it financially or how everyone should think  
and feel the way I do.. This is a place to be humble and touch each  
other with positiveness and kindness,I'm all about discussing topics  
specially related to SCI but if we are to discuss other topics  
please don't impose it on everyone, do a  friends list an email  
them if interested. Lets keep this the  Quad list not the   
Anything goes list


Eddie

Re: [QUAD-L] Ibot

[Eddie]

I have an IBOT it's great but u need good arm and hand movement to  
operate.


Eddie

Sent from Eddie's iPhone

On Oct 16, 2008, at 1:06 PM, John S. [EMAIL PROTECTED] wrote:

Medicare is only buying Ibots for people who are close relatives of  
high placed bureaucrats. I only know one person who has an Ibot and  
he is a para that is the brother of a woman that is on the steering  
committee for Ohio's waiver program. They even built him a house.  
Depending on thew economy, they show him off or try to hide him.  
Since 2002 his house has privacy bushes.


You need a chair that you can steer. Some chairs have a steering  
system that lets an aid drive it. You may want sip n puff. I don't  
know what you are capable of. It should have a tilt feature to shift  
pressure points and prevent sores. It should recline and have a  
padded headrest and probably a seat designed for you. Trough  
armrests. Footplates large enough that your toes do not hang off. A  
power outlet in case of need for oxygen or ventilator. (God forbid)  
Better to get it than to wish it was there while you turn blue.  
Largest batteries possible. If you do not fly, you do not need gell  
cell batteries. Get SLA batteries, tons more power at half the price  
of gells.


Decide where you want to get your chair then they will walk you  
through the process. Be insistant about the batteries. SLA's outlast  
gells and provide a lot more power for longer. A Roho Quadra main  
seating cushion is what I recommend.
I'm in the process of having an invacare tdx3 or 4 built for me. If  
you get the Invacare, the TDX has center wheel drive and manuvers in  
tight places well. The Invacare Storm is rear wheel drive and  
supports more weight with larger battery options, although I've only  
seen one size battery go in them Be sure they put in padded hip  
guides so your butt doesn't shift and comfortable restraint belts  
and foot straps, maybe arm straps. And get a MyDesc lap table.


Thats all I can think of. Someone else will pick up something I  
missed.


I find that by having my DME (wheelchair supplier) close by I  
usually get my chair repairs that day, but ask your local CIL,  
(Independant living center) which DME is best in your area and  
accepts Medicare/Medicaid assignments. Ask other quads or rehab  
places. If you get a rare and exotic chair, you will wait longer for  
parts.




Best Wishes

john



- Original Message 
From: Danny Espinoza [EMAIL PROTECTED]
To: quad-list@eskimo.com
Sent: Thursday, October 16, 2008 2:55:44 PM
Subject: [QUAD-L] Ibot

I need a power chair… Ive read good things about the ibot….  
However all I have for insurance is medical, and recently medicare.  
I have doubts they would cover it just because Ive had a difficult t 
ime with them covering other basic things…. Those of you who have go 
t one in which medical/medicare covered, could you share some pointe 
rs with along with what hoops you had to jump through? Id greatly ap 
preciate it! Thanks in advance!






I am paralyzed from the neck down for now..

Occupation before car accident - Network engineer / SR. Network  
security engineer


Certs A+, N+, LPI, CCNA, CCNP, CCSP

Broke c2,c6,c7 and doner bone at c2

TBI from blood going to central cortex from spinal cord off a vent  
woohoo


however only one half of my diaphragm works right now due to  
asymmetric SCI


My unfinished webpage http://spinalcordinjured.net

Re: [QUAD-L] anger management

[Eddie]

?? what a stupid comment really!
Lori get a grip and think b4 u write


On Aug 23, 2008, at 4:08 PM, Lori Michaelson wrote:

OMIGOSH -- THAT IS NOT THE CHRISTIAN THING TO DO!  How dare you or  
anyone and they'll anger management in such a way when you should  
forgive and forget, turn the other cheek, ask the Lord for patience  
and he will help you, and read your Bible more!  LOL


I don't fit the above category so not only do we have to often deal  
with BAD  RABID Customer Service like this to get anything done  
in THE REAL WORLD -- we don't let people walk all over us and often  
take out DUE frustration on certain morons.


Since we have to deal with so much ignorance and stupidity and rude  
customer service so often... we are too tired to try out the  
following but thanks for passing along the cheery e-mail W!  You  
as*hole!  LOL


Lori
On Fri, Aug 22, 2008 at 7:04 AM, [EMAIL PROTECTED] wrote:








 When you occasionally have a really bad day, and you just need to  
take
 it out on someone , don't take it out on someone you know, take it  
out

 on someone you DON't know!

 I was sitting at my desk when I remembered a phone call I'd  
forgotten to

 make.

 I found the number and dialed it.
 A man answered, saying 'Hello.'

 I politely said, 'This is Chris.
 Could I please speak with Robyn Carter?'

 Suddenly a manic voice yelled out in my ear 'Get the right f*** ing
 number!' and the phone was slammed down on me.

 I couldn 't believe that anyone could be so rude. When I tracked  
down

 Robyn's correct number to call her, I found that I had accidentally
 transposed the
 last two digits.

 After hanging up with her, I decided to call the 'wrong' number  
again.


 When the same guy answered the phone, I yelled 'You're an  
asshole !' and


 hung up. I wrote his number down with the word 'asshole' next to  
it, and
 put it in my desk drawer. Every couple of weeks, when I was paying  
bills
 or had a really bad day, I'd call him up and yell, 'You're an  
asshole !'


 It always cheered me up.

 When Caller ID was introduced, I thought my therapeutic asshole  
calling

 would have to stop.

 So, I called his number and said, 'Hi, this is John Smith from the
 telephone company. I'm calling to see if you're familiar with our  
Caller

 ID Program?'

 He yelled 'NO!' and slammed down the phone.
 I quickly called him back and said, 'That's because you're an  
asshole!'

 and hung up.

 One day I was at the store, getting ready to pull into a parking  
spot.

 Some guy in a black BMW cut me off and pulled into the spot I had
 patiently waited for.
 I hit the horn and yelled that I'd been waiting for that spot, but  
the

 idiot ignored me.
 I noticed a 'For Sale' sign in his back window, so I wrote down his
 number.

 A couple of days later, right after calling the first asshole (I  
had his


 number on speed dial), I thought that I'd better call the BMW  
asshole,

 too.

 I said, 'Is this the man with the black BMW for sale?'
 He said, 'Yes, it is.'
 I asked, 'Can you tell me where I can see it?'
 He said, 'Yes, I live at 34 Oaktree Blvd , in Fairfax .
 It's a yellow ranch house, and the car's parked right out in front.'

 I asked, 'What's your name?' He said, 'My name is Don Hansen.'

 I asked, 'When's a good time to catch you, Don?'
 He said, 'I'm home every evening afte r five.'

 I said, 'Listen, Don, can I tell you something?'
 He said, 'Yes?'
 I said, 'Don, you're an asshole!'

 Then I hung up, and added his number to my speed dial, too. Now,
 when I had a problem, I had two assholes to call.

 Then I came up with an idea.
 I called Asshole #1.
 He said, 'Hello.'
 I said, 'You're an asshole!'
 (But I didn't hang up.)

 He asked, 'Are you still there?'
 I said, 'Yeah.'
 He screamed, 'Stop calling me!'
 I said, 'Make me.'
 He asked, 'Who are you?'

 I said, 'My name is Don Hansen.'
 He said, 'Yeah? Where do you live?'
 I said, 'Asshole, I live at 34 Oaktree Blvd , in Fairfax , a yellow
 ranch house,
 I have a black Beamer parked in front.'

 He said, 'I'm coming over right now, Don.
 And you had better start saying your prayers.'
 I said, 'Yeah, like I'm really scared, asshole,' and hung up.

 Then I called Asshole No. 2.
 He said, 'Hello?'
 I said, 'Hello, asshole .'
 He yelled, 'If I ever find out who you are...'
 I said, 'You'll what?'
 He exclaimed, 'I'll kick your ass,'
 I answered, 'Well , asshole, here's your chance.
 I'm coming over right now.'

 Then I hung up and immediately called the police, saying that I  
lived at

 34
 Oaktree Blvd , in Fairfax , and that my gay lover was on his way  
over to

 kill me.

 Then I called Channel 9 News about the gang war going down in  
Oaktree

 Blvd.
 in Fairfax .

 I quickly got into my car and headed over to Fairfax . I got there  
just

 in time to watch two assholes beating the crap out of each other in
 front of six cop cars, an overhead news helicopter and surrounded  
by a

 news crew.

 NOW I feel much better.

 Anger 

Re: [QUAD-L] To wheelchair

[Eddie]

Hi guys,

I'm in a wheelchair, I hope there is no discrimination for that here.

E.

Re: [QUAD-L] myspace

[Eddie]

Hi Guys!

myspace link...

myspace.com/eddietheman

Eddie

Re: [QUAD-L] 40 Year Anniversary

[Eddie]

Eddie incomplete 08/23/42 bear attack


On Jun 8, 2008, at 7:23 PM, Eric W Rudd wrote:


c5 inc 05/09/97 church collapse

Eric W Rudd
[EMAIL PROTECTED]
- Original Message -
From: Paul Jacobson
To: LTeasley ; quad-list@eskimo.com
Sent: Sunday, June 08, 2008 9:07 PM
Subject: Re: [QUAD-L] 40 Year Anniversary

c5/6 complete 11/05/03
- Original Message -
From: LTeasley
To: quad-list@eskimo.com
Sent: Sunday, June 08, 2008 1:17 PM
Subject: Re: [QUAD-L] 40 Year Anniversary

july 31, '05 c-4/5 complete

lucinda teasley

--- On Sun, 6/8/08, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote:

From: [EMAIL PROTECTED] [EMAIL PROTECTED]
Subject: Re: [QUAD-L] 40 Year Anniversary
To: [EMAIL PROTECTED], quad-list@eskimo.com
Date: Sunday, June 8, 2008, 1:57 PM

You will be 40 July 20 also if I'm adding right.
Dana July 27, 74

we need a list of everybody's anniversary dates.  Who is the longest?
.



Get trade secrets for amazing burgers. Watch Cooking with Tyler  
Florence on AOL Food.

Re: [QUAD-L] stool softeners

[Eddie]

how can you laugh at that? john is not funny at all... stick with  
being a sarcastic quad dude...

Re: [QUAD-L] Wheelchair Monologue

[Eddie]

I don't know about being a sad puppy like that portraits... I'M NOT!  
and by the way I get all kinds of attention, sometimes unwanted ...  
could it be my ibot?


Hec

[QUAD-L] mri results

[Eddie]

after about 16 months of terrible pain I had an mri
taken last december. whoever read the mri said there
were no spinal cord abnormalities. I got the images
from the hospital today, tried to scan them, didn't
work. Took some digital pics, would you all tell me
what you see? C5 quad for 12 years.

http://www.geocities.com/ecastle76/pics/mri.html

Thanks

__
Do You Yahoo!?
Tired of spam?  Yahoo! Mail has the best spam protection around 
http://mail.yahoo.com 

Re: [QUAD-L] Quad Exercise Cuffs?

[Eddie]

you might try Don Krebs' access to recreation:

http://www.accesstr.com/


On Tue, 21 Sep 2004 06:35:40 -0700 (PDT), Wermbo [EMAIL PROTECTED] wrote:
 Hey Peeps,
 
 Anyone know where to find a good selection of Quad Exercise Cuffs/Mitts/Etc.
 I've got a good pair I've used for years but they're finally wearing out. I got
 them from a rehab that's closed otherwise I'd get more from there. I've looked
 on the internet but haven't found a good looking pair yet. Any help would be
 appreciated.
 
 Matt-Wermbo
 Puryear,TN
 
 
 ___
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