Re: [QUAD-L] Another question for SP users
Are you in a different position during the day? When is your next catheter change? On Sat, May 1, 2021 at 12:54 PM Lori Michaelson wrote: > Definitely Eric and I hope my next catheter change will make a difference. > Why it does not happen during the day is beyond us including me. > > On Sat, May 1, 2021 at 10:51 AM Eric Olson wrote: > >> Nothing worse than waking up in a puddle of your own piss. I think that >> sometimes the catheter gets up against the bladder wall in a funky way and >> just doesn't drain well. I always start simple by changing the catheter. >> >> On Fri, Apr 30, 2021 at 3:22 PM Danny Hearn wrote: >> >>> Wow, Lori that does sound strangedo you think the catheter is in >>> place correctly and the little balloon that holds it in bladder is inflated >>> right? I'm a male so not sure if there is a difference with the SP or not. >>> We change my catheter about once a month or at 5-6 weeks at longest. You >>> have probably already tried a fresh catheter change but if not perhaps that >>> could help? Hope you can get it figured out...Us Quads have enough to worry >>> about as it is. Dan H.*** >>> >>> On Friday, April 30, 2021, 03:06:41 PM CDT, Lori Michaelson < >>> lorilivin...@gmail.com> wrote: >>> >>> >>> When I went to my urologist's office for my January 22nd of this year >>> (as expected for my every 6 month appointment with him) and he said that >>> everything looked great and instead of seeing him every 6 months I should >>> not need to see him for another year. I was going to him every 6 months to >>> see him and have him do a cystoscopy to make sure there were no more >>> 'growths' or 'polyps' that was found several years ago and was superficial >>> bladder cancer. I did not feel bad or expect the following: >>> >>> Less than 2 months later and me not having any problems... on April 16 >>> in the morning I was laying in a bunch of pee. Just out of the blue and >>> absolutely no reason for it. And it kept coming and mostly in the evening >>> after laying down and we never knew what to expect the following morning. >>> For one example, as I was doing my care this morning, I felt the pressure >>> of me not urinating through the catheter and, sure enough, it was like a >>> fountain in the air. >>> >>> I made an appointment on April 21st to see my urologist and he was as >>> surprised as I was. I have always taken oxybutynin 5mg extended release 3 >>> times a day. On Wednesday before my appointment at the end of January of >>> this year I was doing great (physically for the most part) and had no >>> problems with my bladder, spasms or anything else. I have really enjoyed >>> this urologist and he is great. Another member of the Quad list has him and >>> he likes him too. >>> >>> He gave me several boxes of Toviaz to try (which I did for a good week) >>> but it did not help. >>> >>> I was the symptomatic of a UTI but they wanted me to take a couple of >>> antibiotics for what was in my urine and had been off and on for years. >>> This week they said they were going to: antibiotic but never did. Then >>> wrote out a script for Myrbetrig (another script for bladder spasms) and >>> the co-pay for that was over $300!!! >>> >>> I asked my insurance what was the most inexpensive bladder spasm >>> medications and they said it would be Tolterodine 4 mg extended release >>> once a day. My co-pay was around $31 for 30 days. I started it yesterday at >>> dinner time. >>> >>> Last evening there was some leaking but not like this morning which was >>> having it spurt up in the air like a fountain of urine. >>> >>> I have never experienced this before. I need 2 chux on my bed, a large >>> heavy duty paper and one ABD pad that I was going to stop ordering because >>> I had always been having large amounts of vaginal discharge but that >>> discontinued quite a while ago. Now I need them. >>> >>> Have any of you with SP catheters experienced this? I am actually >>> stunned with this coming on so quickly and continuing. >>> >>> Thanks! >>> >>> -- >>> “Petting, scratching, and cuddling a dog could be as soothing to the >>> mind and heart as deep meditation and almost as good for the soul as >>> prayer.” ― Dean Koontz >>> >> > > -- > “Petting, scratching, and cuddling a dog could be as soothing to the mind > and heart as deep meditation and almost as good for the soul as prayer.” > ― Dean Koontz >
Re: [QUAD-L] Another question for SP users
Definitely Eric and I hope my next catheter change will make a difference. Why it does not happen during the day is beyond us including me. On Sat, May 1, 2021 at 10:51 AM Eric Olson wrote: > Nothing worse than waking up in a puddle of your own piss. I think that > sometimes the catheter gets up against the bladder wall in a funky way and > just doesn't drain well. I always start simple by changing the catheter. > > On Fri, Apr 30, 2021 at 3:22 PM Danny Hearn wrote: > >> Wow, Lori that does sound strangedo you think the catheter is in >> place correctly and the little balloon that holds it in bladder is inflated >> right? I'm a male so not sure if there is a difference with the SP or not. >> We change my catheter about once a month or at 5-6 weeks at longest. You >> have probably already tried a fresh catheter change but if not perhaps that >> could help? Hope you can get it figured out...Us Quads have enough to worry >> about as it is. Dan H.*** >> >> On Friday, April 30, 2021, 03:06:41 PM CDT, Lori Michaelson < >> lorilivin...@gmail.com> wrote: >> >> >> When I went to my urologist's office for my January 22nd of this year (as >> expected for my every 6 month appointment with him) and he said that >> everything looked great and instead of seeing him every 6 months I should >> not need to see him for another year. I was going to him every 6 months to >> see him and have him do a cystoscopy to make sure there were no more >> 'growths' or 'polyps' that was found several years ago and was superficial >> bladder cancer. I did not feel bad or expect the following: >> >> Less than 2 months later and me not having any problems... on April 16 in >> the morning I was laying in a bunch of pee. Just out of the blue and >> absolutely no reason for it. And it kept coming and mostly in the evening >> after laying down and we never knew what to expect the following morning. >> For one example, as I was doing my care this morning, I felt the pressure >> of me not urinating through the catheter and, sure enough, it was like a >> fountain in the air. >> >> I made an appointment on April 21st to see my urologist and he was as >> surprised as I was. I have always taken oxybutynin 5mg extended release 3 >> times a day. On Wednesday before my appointment at the end of January of >> this year I was doing great (physically for the most part) and had no >> problems with my bladder, spasms or anything else. I have really enjoyed >> this urologist and he is great. Another member of the Quad list has him and >> he likes him too. >> >> He gave me several boxes of Toviaz to try (which I did for a good week) >> but it did not help. >> >> I was the symptomatic of a UTI but they wanted me to take a couple of >> antibiotics for what was in my urine and had been off and on for years. >> This week they said they were going to: antibiotic but never did. Then >> wrote out a script for Myrbetrig (another script for bladder spasms) and >> the co-pay for that was over $300!!! >> >> I asked my insurance what was the most inexpensive bladder spasm >> medications and they said it would be Tolterodine 4 mg extended release >> once a day. My co-pay was around $31 for 30 days. I started it yesterday at >> dinner time. >> >> Last evening there was some leaking but not like this morning which was >> having it spurt up in the air like a fountain of urine. >> >> I have never experienced this before. I need 2 chux on my bed, a large >> heavy duty paper and one ABD pad that I was going to stop ordering because >> I had always been having large amounts of vaginal discharge but that >> discontinued quite a while ago. Now I need them. >> >> Have any of you with SP catheters experienced this? I am actually stunned >> with this coming on so quickly and continuing. >> >> Thanks! >> >> -- >> “Petting, scratching, and cuddling a dog could be as soothing to the mind >> and heart as deep meditation and almost as good for the soul as prayer.” >> ― Dean Koontz >> > -- “Petting, scratching, and cuddling a dog could be as soothing to the mind and heart as deep meditation and almost as good for the soul as prayer.” ― Dean Koontz
Re: [QUAD-L] Another question for SP users
Nothing worse than waking up in a puddle of your own piss. I think that sometimes the catheter gets up against the bladder wall in a funky way and just doesn't drain well. I always start simple by changing the catheter. On Fri, Apr 30, 2021 at 3:22 PM Danny Hearn wrote: > Wow, Lori that does sound strangedo you think the catheter is in place > correctly and the little balloon that holds it in bladder is inflated > right? I'm a male so not sure if there is a difference with the SP or not. > We change my catheter about once a month or at 5-6 weeks at longest. You > have probably already tried a fresh catheter change but if not perhaps that > could help? Hope you can get it figured out...Us Quads have enough to worry > about as it is. Dan H.*** > > On Friday, April 30, 2021, 03:06:41 PM CDT, Lori Michaelson < > lorilivin...@gmail.com> wrote: > > > When I went to my urologist's office for my January 22nd of this year (as > expected for my every 6 month appointment with him) and he said that > everything looked great and instead of seeing him every 6 months I should > not need to see him for another year. I was going to him every 6 months to > see him and have him do a cystoscopy to make sure there were no more > 'growths' or 'polyps' that was found several years ago and was superficial > bladder cancer. I did not feel bad or expect the following: > > Less than 2 months later and me not having any problems... on April 16 in > the morning I was laying in a bunch of pee. Just out of the blue and > absolutely no reason for it. And it kept coming and mostly in the evening > after laying down and we never knew what to expect the following morning. > For one example, as I was doing my care this morning, I felt the pressure > of me not urinating through the catheter and, sure enough, it was like a > fountain in the air. > > I made an appointment on April 21st to see my urologist and he was as > surprised as I was. I have always taken oxybutynin 5mg extended release 3 > times a day. On Wednesday before my appointment at the end of January of > this year I was doing great (physically for the most part) and had no > problems with my bladder, spasms or anything else. I have really enjoyed > this urologist and he is great. Another member of the Quad list has him and > he likes him too. > > He gave me several boxes of Toviaz to try (which I did for a good week) > but it did not help. > > I was the symptomatic of a UTI but they wanted me to take a couple of > antibiotics for what was in my urine and had been off and on for years. > This week they said they were going to: antibiotic but never did. Then > wrote out a script for Myrbetrig (another script for bladder spasms) and > the co-pay for that was over $300!!! > > I asked my insurance what was the most inexpensive bladder spasm > medications and they said it would be Tolterodine 4 mg extended release > once a day. My co-pay was around $31 for 30 days. I started it yesterday at > dinner time. > > Last evening there was some leaking but not like this morning which was > having it spurt up in the air like a fountain of urine. > > I have never experienced this before. I need 2 chux on my bed, a large > heavy duty paper and one ABD pad that I was going to stop ordering because > I had always been having large amounts of vaginal discharge but that > discontinued quite a while ago. Now I need them. > > Have any of you with SP catheters experienced this? I am actually stunned > with this coming on so quickly and continuing. > > Thanks! > > -- > “Petting, scratching, and cuddling a dog could be as soothing to the mind > and heart as deep meditation and almost as good for the soul as prayer.” > ― Dean Koontz >
Re: [QUAD-L] Another question for SP users
Wow, Lori that does sound strangedo you think the catheter is in place correctly and the little balloon that holds it in bladder is inflated right? I'm a male so not sure if there is a difference with the SP or not. We change my catheter about once a month or at 5-6 weeks at longest. You have probably already tried a fresh catheter change but if not perhaps that could help? Hope you can get it figured out...Us Quads have enough to worry about as it is. Dan H.*** On Friday, April 30, 2021, 03:06:41 PM CDT, Lori Michaelson wrote: When I went to my urologist's office for my January 22nd of this year (as expected for my every 6 month appointment with him) and he said that everything looked great and instead of seeing him every 6 months I should not need to see him for another year. I was going to him every 6 months to see him and have him do a cystoscopy to make sure there were no more 'growths' or 'polyps' that was found several years ago and was superficial bladder cancer. I did not feel bad or expect the following: Less than 2 months later and me not having any problems... on April 16 in the morning I was laying in a bunch of pee. Just out of the blue and absolutely no reason for it. And it kept coming and mostly in the evening after laying down and we never knew what to expect the following morning. For one example, as I was doing my care this morning, I felt the pressure of me not urinating through the catheter and, sure enough, it was like a fountain in the air. I made an appointment on April 21st to see my urologist and he was as surprised as I was. I have always taken oxybutynin 5mg extended release 3 times a day. On Wednesday before my appointment at the end of January of this year I was doing great (physically for the most part) and had no problems with my bladder, spasms or anything else. I have really enjoyed this urologist and he is great. Another member of the Quad list has him and he likes him too. He gave me several boxes of Toviaz to try (which I did for a good week) but it did not help. I was the symptomatic of a UTI but they wanted me to take a couple of antibiotics for what was in my urine and had been off and on for years. This week they said they were going to: antibiotic but never did. Then wrote out a script for Myrbetrig (another script for bladder spasms) and the co-pay for that was over $300!!! I asked my insurance what was the most inexpensive bladder spasm medications and they said it would be Tolterodine 4 mg extended release once a day. My co-pay was around $31 for 30 days. I started it yesterday at dinner time. Last evening there was some leaking but not like this morning which was having it spurt up in the air like a fountain of urine. I have never experienced this before. I need 2 chux on my bed, a large heavy duty paper and one ABD pad that I was going to stop ordering because I had always been having large amounts of vaginal discharge but that discontinued quite a while ago. Now I need them. Have any of you with SP catheters experienced this? I am actually stunned with this coming on so quickly and continuing. Thanks! -- “Petting, scratching, and cuddling a dog could be as soothing to the mind and heart as deep meditation and almost as good for the soul as prayer.” ― Dean Koontz
[QUAD-L] Another question for SP users
When I went to my urologist's office for my January 22nd of this year (as expected for my every 6 month appointment with him) and he said that everything looked great and instead of seeing him every 6 months I should not need to see him for another year. I was going to him every 6 months to see him and have him do a cystoscopy to make sure there were no more 'growths' or 'polyps' that was found several years ago and was superficial bladder cancer. I did not feel bad or expect the following: Less than 2 months later and me not having any problems... on April 16 in the morning I was laying in a bunch of pee. Just out of the blue and absolutely no reason for it. And it kept coming and mostly in the evening after laying down and we never knew what to expect the following morning. For one example, as I was doing my care this morning, I felt the pressure of me not urinating through the catheter and, sure enough, it was like a fountain in the air. I made an appointment on April 21st to see my urologist and he was as surprised as I was. I have always taken oxybutynin 5mg extended release 3 times a day. On Wednesday before my appointment at the end of January of this year I was doing great (physically for the most part) and had no problems with my bladder, spasms or anything else. I have really enjoyed this urologist and he is great. Another member of the Quad list has him and he likes him too. He gave me several boxes of Toviaz to try (which I did for a good week) but it did not help. I was the symptomatic of a UTI but they wanted me to take a couple of antibiotics for what was in my urine and had been off and on for years. This week they said they were going to: antibiotic but never did. Then wrote out a script for Myrbetrig (another script for bladder spasms) and the co-pay for that was over $300!!! I asked my insurance what was the most inexpensive bladder spasm medications and they said it would be Tolterodine 4 mg extended release once a day. My co-pay was around $31 for 30 days. I started it yesterday at dinner time. Last evening there was some leaking but not like this morning which was having it spurt up in the air like a fountain of urine. I have never experienced this before. I need 2 chux on my bed, a large heavy duty paper and one ABD pad that I was going to stop ordering because I had always been having large amounts of vaginal discharge but that discontinued quite a while ago. Now I need them. Have any of you with SP catheters experienced this? I am actually stunned with this coming on so quickly and continuing. Thanks! -- “Petting, scratching, and cuddling a dog could be as soothing to the mind and heart as deep meditation and almost as good for the soul as prayer.” ― Dean Koontz
