Re: [QUAD-L] wondering about people

[Edward Tessier]

Hey Jeff,

 I tested positive in September. I also have diminished lung capacity (half of 
my left lung is scar tissue from a pulmonary infection a year after my accident 
in 1985)

 thanks to the vaccine, my symptoms were very mild-- fatigue, shortness of 
breath, dizziness.  and I'm so thankful it wasn't worse.   for example, my 
wife's acute infection was much worse and she has some long covid symptoms.

 while I am sure I dodged a bullet, my primary attendant has pointed out that 
the shortness of breath and dizziness never went away completely. I still 
haven't been able to return to a regular exercise program because just a few 
minutes of weight work and the room starts spinning.

 I can hardly complain, all things considered. I really haven't told my wife 
and family. It would just make them worry and what good could it do?

ed

From: Jeffrey Gaede 
Sent: Sunday, February 20, 2022 9:13 PM
To: Q-List 
Subject: Re: [QUAD-L] wondering about people

I'm curious if any quads that got Covid had breathing issues before acquiring 
the virus? I lost all muscle tone in my diaphragm during my original injury 
and, naturally, could only build it back so much. I breathe on my own but 
probably have 50% or less lung capacity than the average able-bodied person, 
and Covid is a respiratory virus.
Jeff

On Sunday, February 20, 2022, 07:41:48 PM PST, Toby Ausbun 
 wrote:




Sent from my iPad

On Sep 7, 2021, at 3:22 PM, Nichole Rohling  wrote:



Thank you Don for replying.

I originally asked if any Quads had gotten Covid, etc.



Nicki

C5/6



From: Don Price [mailto:donpric...@yahoo.com]
Sent: Tuesday, September 7, 2021 2:28 PM
To: Quad-list@eskimo.com
Subject: Re: [QUAD-L] wondering about people



Hello all!



I haven't been on the quadlist for a while, but i'm checking in today.



I'm so sorry to hear about Lori. She was a nice woman who went through a lot. 
My condolences to her family and friends.



Somebody asked about quads and covid. I know three quads who caught it. All 
three got through it without being hospitalized, although one of them resided 
in a nursing home when he caught it.



I've been vaccinated and even went in for a booster third shot recently. I got 
the Moderna vax, and as discussed I had slight fever and yuckiness for about 24 
hours after the second shot. No such reaction after the third shot.



I wish you all happiness and good health!



Don.

c5-6, Tempe, AZ



On Tuesday, September 7, 2021, 08:02:29 AM MST, Shirley Bell  
wrote:





Thanks Nicki, so sad indeed about Lori. We never knew how Bobbie Humphies died 
either. Miss them  both. Also wonder how Joan and Larry are?? I am good here in 
RI trying to find a way to drive again, hard on many levels. Shirley

Re: [QUAD-L] wondering about people

[Jeffrey Gaede]

 I'm curious if any quads that got Covid had breathing issues before acquiring 
the virus? I lost all muscle tone in my diaphragm during my original injury 
and, naturally, could only build it back so much. I breathe on my own but 
probably have 50% or less lung capacity than the average able-bodied person, 
and Covid is a respiratory virus.    Jeff

On Sunday, February 20, 2022, 07:41:48 PM PST, Toby Ausbun 
 wrote:  
 
 

Sent from my iPad

On Sep 7, 2021, at 3:22 PM, Nichole Rohling  wrote:




Thank you Don for replying.

I originally asked if any Quads had gotten Covid, etc.

  

Nicki

C5/6

  

From: Don Price [mailto:donpric...@yahoo.com] 
Sent: Tuesday, September 7, 2021 2:28 PM
To: Quad-list@eskimo.com
Subject: Re: [QUAD-L] wondering about people

  

Hello all!

  

I haven't been on the quadlist for a while, but i'm checking in today.

  

I'm so sorry to hear about Lori. She was a nice woman who went through a lot. 
My condolences to her family and friends. 

  

Somebody asked about quads and covid. I know three quads who caught it. All 
three got through it without being hospitalized, although one of them resided 
in a nursing home when he caught it. 

  

I've been vaccinated and even went in for a booster third shot recently. I got 
the Moderna vax, and as discussed I had slight fever and yuckiness for about 24 
hours after the second shot. No such reaction after the third shot.

  

I wish you all happiness and good health!

  

Don.

c5-6, Tempe, AZ

  

On Tuesday, September 7, 2021, 08:02:29 AM MST, Shirley Bell  
wrote: 

  

  

Thanks Nicki, so sad indeed about Lori. We never knew how Bobbie Humphies died 
either. Miss them  both. Also wonder how Joan and Larry are?? I am good here in 
RI trying to find a way to drive again, hard on many levels. Shirley

  

Re: [QUAD-L] wondering about people

[Michelle Harkness]

Hey ya’ll!

I’ve been on the quad list forever - just am usually quiet. I had COVID for 
Christmas (along with my hubby and kiddo).  Mine was basically a sinus 
infection.  I felt a little tired, had a lot of nasal discharge and a lot of 
nose blowing. I also lost my sense of smell, which I haven’t fully recovered 
yet. No fever, no massive tiredness, no breathing problems. If I didn’t test 
positive for COVID, I would have just thought it was a sinus infection. 路‍♀️ I 
had the flu about 3 years ago and was wiped out solid for 2 weeks - it was way 
worse then the COVID was.  I am unvaccinated and will not be - plus I have 
shiny new antibodies floating around now. 

Michelle
C5 Complete, 28 years
Texas



> On Feb 20, 2022, at 9:41 PM, Toby Ausbun  wrote:
> 
> 
> 
> Sent from my iPad
> 
>>> On Sep 7, 2021, at 3:22 PM, Nichole Rohling  wrote:
>>> 
>> 
>> Thank you Don for replying.
>> I originally asked if any Quads had gotten Covid, etc.
>>  
>> Nicki
>> C5/6
>>  
>> From: Don Price [mailto:donpric...@yahoo.com] 
>> Sent: Tuesday, September 7, 2021 2:28 PM
>> To: Quad-list@eskimo.com
>> Subject: Re: [QUAD-L] wondering about people
>>  
>> Hello all!
>>  
>> I haven't been on the quadlist for a while, but i'm checking in today.
>>  
>> I'm so sorry to hear about Lori. She was a nice woman who went through a 
>> lot. My condolences to her family and friends. 
>>  
>> Somebody asked about quads and covid. I know three quads who caught it. All 
>> three got through it without being hospitalized, although one of them 
>> resided in a nursing home when he caught it. 
>>  
>> I've been vaccinated and even went in for a booster third shot recently. I 
>> got the Moderna vax, and as discussed I had slight fever and yuckiness for 
>> about 24 hours after the second shot. No such reaction after the third shot.
>>  
>> I wish you all happiness and good health!
>>  
>> Don.
>> c5-6, Tempe, AZ
>>  
>> On Tuesday, September 7, 2021, 08:02:29 AM MST, Shirley Bell 
>>  wrote:
>>  
>>  
>> Thanks Nicki, so sad indeed about Lori. We never knew how Bobbie Humphies 
>> died either. Miss them  both. Also wonder how Joan and Larry are?? I am good 
>> here in RI trying to find a way to drive again, hard on many levels. Shirley

Re: [QUAD-L] wondering about people

[Toby Ausbun]

Sent from my iPad

> On Sep 7, 2021, at 3:22 PM, Nichole Rohling  wrote:
> 
> 
> Thank you Don for replying.
> I originally asked if any Quads had gotten Covid, etc.
>  
> Nicki
> C5/6
>  
> From: Don Price [mailto:donpric...@yahoo.com] 
> Sent: Tuesday, September 7, 2021 2:28 PM
> To: Quad-list@eskimo.com
> Subject: Re: [QUAD-L] wondering about people
>  
> Hello all!
>  
> I haven't been on the quadlist for a while, but i'm checking in today.
>  
> I'm so sorry to hear about Lori. She was a nice woman who went through a lot. 
> My condolences to her family and friends. 
>  
> Somebody asked about quads and covid. I know three quads who caught it. All 
> three got through it without being hospitalized, although one of them resided 
> in a nursing home when he caught it. 
>  
> I've been vaccinated and even went in for a booster third shot recently. I 
> got the Moderna vax, and as discussed I had slight fever and yuckiness for 
> about 24 hours after the second shot. No such reaction after the third shot.
>  
> I wish you all happiness and good health!
>  
> Don.
> c5-6, Tempe, AZ
>  
> On Tuesday, September 7, 2021, 08:02:29 AM MST, Shirley Bell 
>  wrote:
>  
>  
> Thanks Nicki, so sad indeed about Lori. We never knew how Bobbie Humphies 
> died either. Miss them  both. Also wonder how Joan and Larry are?? I am good 
> here in RI trying to find a way to drive again, hard on many levels. Shirley

Re: [QUAD-L] wondering about people

[Dana Wray]

Miss them both.I hope you can drive again.My love and prayers.Dana

Sent from my iPad

> On Sep 7, 2021, at 10:02 AM, Shirley Bell  wrote:
> 
> 
> Thanks Nicki, so sad indeed about Lori. We never knew how Bobbie Humphies 
> died either. Miss them  both. Also wonder how Joan and Larry are?? I am good 
> here in RI trying to find a way to drive again, hard on many levels. Shirley

RE: [QUAD-L] wondering about people

[Nichole Rohling]

Thank you Don for replying.

I originally asked if any Quads had gotten Covid, etc.

 

Nicki

C5/6

 

From: Don Price [mailto:donpric...@yahoo.com] 
Sent: Tuesday, September 7, 2021 2:28 PM
To: Quad-list@eskimo.com
Subject: Re: [QUAD-L] wondering about people

 

Hello all!

 

I haven't been on the quadlist for a while, but i'm checking in today.

 

I'm so sorry to hear about Lori. She was a nice woman who went through a lot. 
My condolences to her family and friends. 

 

Somebody asked about quads and covid. I know three quads who caught it. All 
three got through it without being hospitalized, although one of them resided 
in a nursing home when he caught it. 

 

I've been vaccinated and even went in for a booster third shot recently. I got 
the Moderna vax, and as discussed I had slight fever and yuckiness for about 24 
hours after the second shot. No such reaction after the third shot.

 

I wish you all happiness and good health!

 

Don.

c5-6, Tempe, AZ

 

On Tuesday, September 7, 2021, 08:02:29 AM MST, Shirley Bell  
wrote: 

 

 

Thanks Nicki, so sad indeed about Lori. We never knew how Bobbie Humphies died 
either. Miss them  both. Also wonder how Joan and Larry are?? I am good here in 
RI trying to find a way to drive again, hard on many levels. Shirley

Re: [QUAD-L] wondering about people

[Don Price]

 Hello all!
I haven't been on the quadlist for a while, but i'm checking in today.
I'm so sorry to hear about Lori. She was a nice woman who went through a lot. 
My condolences to her family and friends. 
Somebody asked about quads and covid. I know three quads who caught it. All 
three got through it without being hospitalized, although one of them resided 
in a nursing home when he caught it. 
I've been vaccinated and even went in for a booster third shot recently. I got 
the Moderna vax, and as discussed I had slight fever and yuckiness for about 24 
hours after the second shot. No such reaction after the third shot.
I wish you all happiness and good health!
Don.c5-6, Tempe, AZ
On Tuesday, September 7, 2021, 08:02:29 AM MST, Shirley Bell 
 wrote:  
 
 Thanks Nicki, so sad indeed about Lori. We never knew how Bobbie Humphies died 
either. Miss them  both. Also wonder how Joan and Larry are?? I am good here in 
RI trying to find a way to drive again, hard on many levels. Shirley  

[QUAD-L] wondering about people

[Shirley Bell]

Thanks Nicki, so sad indeed about Lori. We never knew how Bobbie Humphies died 
either. Miss them  both. Also wonder how Joan and Larry are?? I am good here in 
RI trying to find a way to drive again, hard on many levels. Shirley

Re: [QUAD-L] Wondering

[Dana Wray]

Thank you Jim you are such a blessing to our group. I love this group even
though it seems like there are a few of us we tried to be there for each
other. It makes us not feel so different in a world that is not really set
up for Quadriplegics. Does anyone have any new information about EVV The
independent living center person I know says that Kansas is in compliance.,
but The congressman walking at the bill don’t seem to want to change itThe
congressman working
Please join Stop EVV On Facebook, so you can keep informed about what is
going on in each state and in Washington. Thank you Dana 45 years post ,
QuadriplegicC4-5 complete  but it was so technical. tracheostomy,
ileo-Conduit. 45 years post. I’ve had bladder and colon cancer, I just had
kidney stones in November and had to have tubes in both kidneys before the
surgery to allow my bladder to drain. The specialist said I will continue
getting and would need to be scanned every six months. I didn’t know this
was a consequence of having ileo-conduit. The stone doctor at KU Medical
Center explained,But it was so technical.

On Mon, Feb 10, 2020 at 11:03 AM Jim Lubin  wrote:

> I found this page with contact info depending on what issue you have
>
> https://hhs.texas.gov/services/health/medicaid-chip/about-medicaid-chip/medicaid-chip-contact-us
>
> some have online forms instead of email contacts.
>
> On Sun, Feb 9, 2020 at 6:41 PM  wrote:
>
>> Hello my friends I am from Texas do you guys know if there's some way
>> that I could get Medicaid email address any ideas will be appreciated thank
>> you and God bless you
>>
>

Re: [QUAD-L] Wondering

[Jim Lubin]

I found this page with contact info depending on what issue you have
https://hhs.texas.gov/services/health/medicaid-chip/about-medicaid-chip/medicaid-chip-contact-us

some have online forms instead of email contacts.

On Sun, Feb 9, 2020 at 6:41 PM  wrote:

> Hello my friends I am from Texas do you guys know if there's some way that
> I could get Medicaid email address any ideas will be appreciated thank you
> and God bless you
>

[QUAD-L] Wondering

[ismaelcavazos1]

Hello my friends I am from Texas do you guys know if there's some way that I
could get Medicaid email address any ideas will be appreciated thank you and
God bless you

Re: [QUAD-L] Wondering

[Lori Michaelson]

I have always ordered Magic Bullet suppositories them from Express Medical.
They are expensive and my only insurance is Medicare so I don't know if
Medicaid would cover them or not. They are, and have been, the only ones
that work. Enemeez is one that I tried to use back in 2004 or something but
it was not reliable. I would go many many many hours after using that so
back to the Magic Bullet. A long long time ago I used to purchase a box of
100 but now I purchased them In packs of 10 for $6.60. So I have to pay
shipping and handling. You'll only get free shipping and handling when
purchasing things from this site and having your order $95.

Unlike Greg, I would hate to have a colostomy or an ileostomy as it
requires much more maintenance and I don't have all the help that Greg has.
I would also lose my Home Healthcare Agency which comes to change my
suprapubic catheter and provides me with all the supplies. Home health care
agencies will not help you if you have a colostomy or ileostomy and they
accept Original Medicare only. That is why I can't be Medicare Advantage
Plan which is stupid but those Advantage Plans make a lot of money too. I
am not eligible for Medicaid and I know what needs to be done to be
eligible for it.

Oh no. I am looking at their website (and glad I ordered semi-recently when
I did) and it says This product is not eligible for rush shipping.
Currently on backorder from the manufacturer. Projected release: unknown.
This item is on long-term back order from the manufacturer and cannot be
purchased at this time. Please call (800)633-2139 for more information.

https://www.exmed.net/?gclid=EAIaIQobChMItfr19rPt5QIVgh-tBh1RYAFwEAAYASAAEgKCcPD_BwE

On Fri, Nov 15, 2019 at 4:35 PM Greg  wrote:

> I used these Bullets and these enemeez.
>
>
> https://www.allegromedical.com/otc-medications-c6752/enemeez-mini-enema-ducosate-sodium-283-mg-p564960.html
>
> But changing to a colostomy, best thig ever
>
> Greg
>
>
> On 11/15/2019 10:24 AM, Eric Olson wrote:
>
>
> https://www.allegromedical.com/bathroom-assists-c517/magic-bullet-suppository-p190938.html
>
> On Fri, Nov 15, 2019 at 12:14 AM  wrote:
>
>> Hello guys I wanted to ask you question to you know different brands they
>> are of suppositories that I could buy off the counter to have a bowel
>> movement take your God bless you
>>
>>
>>
>
>

-- 
“Petting, scratching, and cuddling a dog could be as soothing to the mind
and heart as deep meditation and almost as good for the soul as prayer.” ― Dean
Koontz

Re: [QUAD-L] Wondering

[Greg]

I used these Bullets and these enemeez.

https://www.allegromedical.com/otc-medications-c6752/enemeez-mini-enema-ducosate-sodium-283-mg-p564960.html

But changing to a colostomy, best thig ever

Greg


On 11/15/2019 10:24 AM, Eric Olson wrote:

https://www.allegromedical.com/bathroom-assists-c517/magic-bullet-suppository-p190938.html

On Fri, Nov 15, 2019 at 12:14 AM > wrote:


Hello guys I wanted to ask you question to you know different
brands they are of suppositories that I could buy off the counter
to have a bowel movement take your God bless you

RE: [QUAD-L] Wondering

[ismaelcavazos1]

I noticed the price was $56.67.  Do you know if Medicare/Medicaid cover this or 
is it possible to get them cheaper over the counter?

 

From: Eric Olson  
Sent: Friday, November 15, 2019 11:24 AM
To: Ismael Cavazos 
Cc: Blue 
Subject: Re: [QUAD-L] Wondering

 

https://www.allegromedical.com/bathroom-assists-c517/magic-bullet-suppository-p190938.html

 

On Fri, Nov 15, 2019 at 12:14 AM mailto:ismaelcavaz...@gmail.com> > wrote:

Hello guys I wanted to ask you question to you know different brands they are 
of suppositories that I could buy off the counter to have a bowel movement take 
your God bless you

 

Re: [QUAD-L] Wondering

[Eric Olson]

https://www.allegromedical.com/bathroom-assists-c517/magic-bullet-suppository-p190938.html

On Fri, Nov 15, 2019 at 12:14 AM  wrote:

> Hello guys I wanted to ask you question to you know different brands they
> are of suppositories that I could buy off the counter to have a bowel
> movement take your God bless you
>
>
>

[QUAD-L] Wondering

[ismaelcavazos1]

Hello guys I wanted to ask you question to you know different brands they
are of suppositories that I could buy off the counter to have a bowel
movement take your God bless you

 

Re: [QUAD-L] Wondering

[Jim Lubin]

I use an onscreen remote on my Windows 10 laptop. More information here
https://at-eadl.blogspot.com/2019/07/infrared-ir-remote-from-windows-laptop.html


My cable company DVR (Comcast Xfinity X1) doesn't work with infrared
remote, so for that I use a web app

https://at-eadl.blogspot.com/2019/07/comcast-xfinity-x1-control-for-people.html



On Mon, Sep 23, 2019 at 4:09 PM  wrote:

> Hello guys I was wondering if you are paralyzed from the neck down how do
> you control your television house phone and window unit from your bed thank
> you and God bless you
>
>
>

Re: [QUAD-L] Wondering

[Noel]

Television, controlled with Amazon echo in combination with a Broad link RM Pro.
Telephone, can place calls with Amazon echo. Receive calls with a cell
phone that has speech recognition to answer and place calls.
Window unit, I use Broadlink for that as well, but I have to press a
button on my cell phone. When I set it up, I didn't have the remote
anymore, so I couldn't program the RF. Not positive, but it may be
possible if you have a remote that works with your window unit, record
the RF for the air conditioner and label it as a fan. For some reason
Broadlink won't let you set up the app for voice access to control an
air-conditioner.  I control a fan with Amazon echo along with the
Broadlink.

On Mon, Sep 23, 2019 at 5:09 PM  wrote:
>
> Hello guys I was wondering if you are paralyzed from the neck down how do you 
> control your television house phone and window unit from your bed thank you 
> and God bless you
>
>

[QUAD-L] Wondering

[ismaelcavazos1]

Hello guys I was wondering if you are paralyzed from the neck down how do
you control your television house phone and window unit from your bed thank
you and God bless you

 

Re: [QUAD-L] Wondering quadriplegic that is paralyzed from the neck down

[Jim Lubin]

>From my bed I control most things from programs on my computer.
TV: I have a program called IRCommand2 and an IR sender/receiver that plugs
into a usb. This lets me operate anything that has IR. More details and
links here:
https://at-eadl.blogspot.com/2018/04/control-motorola-dvr-from-windows-pc.html

I have Comcast Xfinity X1 for my cable TV which does not work with IR, so I
have an Android virtual machine with the X1 Android app.

Lights: Smart wifi light bulbs I can control from a Windows app or by voice
with Amazon Echo
https://at-eadl.blogspot.com/2018/04/amazon-echo-tv-lights.html

Fan: table fan plugged into a smart plug that can be turned on/off from an
Android app or voice with Amazon Echo

Android phone: I use a program called Vysor that lets me control my Android
phone from my laptop (plugged into usb). So, if there is an Android app on
my phone I can use it from my Windows laptop.



On Sun, Jan 20, 2019 at 7:51 AM Ismael Cavazos 
wrote:

> Hello you guys that are paradise from the neck down I have a question for
> you guys from your bed how do you control your television and your window
> unit and the phone for your house and also what other things you are able
> to do from your bed thank you and God bless you
>
>
>

[QUAD-L] Wondering quadriplegic that is paralyzed from the neck down

[Ismael Cavazos]

Hello you guys that are paradise from the neck down I have a question for
you guys from your bed how do you control your television and your window
unit and the phone for your house and also what other things you are able to
do from your bed thank you and God bless you

 

Re: [QUAD-L] Wondering

[Jim Lubin]

The device I use, Adap2U, is no longer available. There are some other
options available but I am so use to the customizations I use with this
device that I have not changed, but the other one is a good backup system
for me.

Check my page here for more information.
https://www.makoa.org/jlubin/morsecode.htm

Yes, I use a sip for a dot and puff for dash. No, I am not a ham radio
operator. I learned morse code by pattern not by sound when I was in rehab
in 1989.

If you are interested in using morse code for computer access I recommend
either the TandemMaster  or the
Jouse3 <
http://www.compusult.net/web/guest/assistive-technology/our-at-products/jouse3
>



On Fri, Jan 4, 2019 at 9:20 AM Greg  wrote:

> Hi Jim.
>
> May I ask where you get the sip and puff switches you use to send Morse
> code? Also, do you sip for a dot and puff for a dash (or vice versa) or do
> you straight key it? Finally, are you a ham radio operator?
>
> Thanks, Greg
>
> On Thu, Jan 3, 2019 at 2:42 PM Jim Lubin  wrote:
>
>> Guess it depends on what method you are using to access the computer:
>> voice, switch, mouth joystick. I think most methods can be used with either
>> Apple Mac or Microsoft Windows.
>>
>> The Morse code device I use is hardware so it works with any computer
>> with an usb port, it doesn't matter what operating system it has (Windows,
>> Mac, Linux, Android). I can use it with no voice and no hand or head
>> movement. I sip and puff morse code into an air tube.
>>
>> Mouth joystick is another hardware option that connects to a usb port. It
>> requires some head movement but enables you to move a mouse around.
>>
>> On Thu, Jan 3, 2019 at 11:14 AM Ismael Cavazos 
>> wrote:
>>
>>> Besides the apple computer what other computer model do you all
>>> recommend for a person paralyzed from the neck down.? Thank you and God
>>> bless you
>>>
>>>
>>>
>>

Re: [QUAD-L] Wondering

[Greg]

Hi Jim.

May I ask where you get the sip and puff switches you use to send Morse
code? Also, do you sip for a dot and puff for a dash (or vice versa) or do
you straight key it? Finally, are you a ham radio operator?

Thanks, Greg

On Thu, Jan 3, 2019 at 2:42 PM Jim Lubin  wrote:

> Guess it depends on what method you are using to access the computer:
> voice, switch, mouth joystick. I think most methods can be used with either
> Apple Mac or Microsoft Windows.
>
> The Morse code device I use is hardware so it works with any computer with
> an usb port, it doesn't matter what operating system it has (Windows, Mac,
> Linux, Android). I can use it with no voice and no hand or head movement. I
> sip and puff morse code into an air tube.
>
> Mouth joystick is another hardware option that connects to a usb port. It
> requires some head movement but enables you to move a mouse around.
>
> On Thu, Jan 3, 2019 at 11:14 AM Ismael Cavazos 
> wrote:
>
>> Besides the apple computer what other computer model do you all recommend
>> for a person paralyzed from the neck down.? Thank you and God bless you
>>
>>
>>
>

Re: [QUAD-L] Wondering

[Jim Lubin]

Guess it depends on what method you are using to access the computer:
voice, switch, mouth joystick. I think most methods can be used with either
Apple Mac or Microsoft Windows.

The Morse code device I use is hardware so it works with any computer with
an usb port, it doesn't matter what operating system it has (Windows, Mac,
Linux, Android). I can use it with no voice and no hand or head movement. I
sip and puff morse code into an air tube.

Mouth joystick is another hardware option that connects to a usb port. It
requires some head movement but enables you to move a mouse around.

On Thu, Jan 3, 2019 at 11:14 AM Ismael Cavazos 
wrote:

> Besides the apple computer what other computer model do you all recommend
> for a person paralyzed from the neck down.? Thank you and God bless you
>
>
>

[QUAD-L] Wondering

[Ismael Cavazos]

Besides the apple computer what other computer model do you all recommend
for a person paralyzed from the neck down.? Thank you and God bless you

 

Re: [QUAD-L] Wondering

[Jim Lubin]

not affected
https://www.businessinsider.com/government-shutdown-2018-social-security-checks-still-paid-2018-1


On Wed, Dec 26, 2018 at 3:13 AM Ismael Cavazos 
wrote:

> Hey guys do you know if on the government shutdown if is going to affect
> our disability check any you guys heard anything thank you and God bless
> you have a nice day
>

[QUAD-L] Wondering

[Ismael Cavazos]

Hey guys do you know if on the government shutdown if is going to affect our
disability check any you guys heard anything thank you and God bless you
have a nice day

Re: [QUAD-L] Wondering down here in South Texas the weather is 80 how about where you are

[Greg]

about 71 and sunny, but supposed to cold up this week.
in the phx area.

Re: [QUAD-L] Wondering down here in South Texas the weather is 80 how about where you are

[Lori Michaelson]

70s and sunny but by Wednesday it will get down into the 50s and probably
cloudy according to one weather forecast but they never really know. I
looked for a two or three weather forecast and see what turns out. The
weather is nice but I can't really enjoy it.

But I had an arm injury almost 2 weeks ago now and I think it is a torn
tendon or bicep. I was rolling on my side and when my top half (torso)
began falling backward (which it almost always does but perhaps not such
severity... I can never remember) I usually use my left arm to compensate
and helping me roll back over on my right side. Right then and there I
could not move my left arm (which is my bad arm anyway) like I used to and
have still not been able to. I made an appointment to go see an orthopedic
specialist but they can't get me in until January 7. It bruised up really
bad and all away across my collarbone so it was probably a combination of
shoulder/upper arm injury on the inside. It is also swelling and now my
left hand that just hangs down anyway is swelling. I am using cold packs
and ibuprofen which helps.

I still have the pretty much monthly bladder infections that are
multi-drug-resistant so that causes me severe bladder pain when they take
hold and my urologist has to calling something because I can't stand that
type of pain. I might as well have a bunch of broken glass in my bladder.
He calls in antibiotics that always takes away the pain so they are doing
something but they keep coming back and they were 'Hospital Acquired' and I
remember when they started to began (each bacteria) and one of them began
when I was going to one local hospital/clinic to see a urologist and the
last bacteria that I do not recognize must have been gotten when I was at
the hospital at the end of June through the beginning of July in ICU.

I am a mess and the first time I have been alone for Christmas. Last year I
had my Golden Retriever Daughter with me but I lost her in April of this
year. I adopted a German Shepherd (who will be two years old on January 2)
and I thought she would be settled down by now but she still has a lot of
puppy in her. I am planning on working with a local canine training center.
She is extremely intelligent but needs to stop pulling so hard on my
wheelchair when we are walking and barking nonstop and lunging toward every
dog she sees because she wants to play with them. Needless to say, the
couple who brought her over one day lied to me about getting their
vaccinations to me (they never did) and keeping in touch to see how she was
doing and taking her back if she did not work out for me (which they never
did).  I was not going to get a puppy (under a year old) and this bundle of
energy was a little over 18 months old and she was walking calm when they
arrived because I wanted to meet them outside to see how she walked
alongside of them and then be inside. She acted laid back and relaxed but
she is FAR from that. She was kennel/crate trained and the previous owners
(of a whole six months) said they would get her crate to me which they
never did. Fortunately I found a lady nearby no longer needed hers so that
has helped a great deal. She is house trained but sometimes overnight she
wants to have accidents and we can't have that happen more often than not.

Needless to say also that I did not have my arm injury before adopting her
and usually I do a ton of research on everything (which I did my arm) but
not on German Shepherds. They require A LOT of physical and mental
exercise. This is not a problem for me because I loved walking/running my
previous two dogs since December of 2001 but they were couch potatoes when
we adopted them (my husband and I) and we did not know their histories
either but we were extremely fortunate with both of them by having them
both Golden Retrievers, laid back, and basically trained themselves to
become my US Certified Support/Companion dogs.

My caregiver has always eaten at a different time than me so I have been
eating alone for the last three years. Because of all that has been going
on me did not even get Christmas recreations out this year. It will be just
another day.

Merry Christmas to all of you who have family of some kind and are not
having one physical problem crop up one right after the other unexpectedly.
I think my arm might be healing but it is going to take a while. Don't even
know if it is something that can be seen on imaging especially if it is
soft tissue.
~Lori

On Sat, Dec 22, 2018 at 11:25 AM Ismael Cavazos 
wrote:

>
>


-- 
"Petting, scratching and cuddling a dog could be soothing to the mind and
heart and deep meditation and almost as good for the soul as prayer." ~Dean
Koontz

Re: [QUAD-L] Wondering down here in South Texas the weather is 80 how about where you are

[Bobbie Humphreys]

41°. Very windy. Tonight 22°. Still windy
Northrn New Jersey 
Bobbie 

> On Dec 22, 2018, at 1:58 PM, Eric Olson  wrote:
> 
> 27 for a high today in Milwaukee.  Was hoping for a white Christmas but looks 
> unlikely 
> 
>   Virus-free. www.avast.com
> 
>> On Sat, Dec 22, 2018 at 12:25 PM Ismael Cavazos  
>> wrote:
>>  

Re: [QUAD-L] Wondering down here in South Texas the weather is 80 how about where you are

[Eric Olson]

27 for a high today in Milwaukee.  Was hoping for a white Christmas but
looks unlikely


Virus-free.
www.avast.com

<#DAB4FAD8-2DD7-40BB-A1B8-4E2AA1F9FDF2>

On Sat, Dec 22, 2018 at 12:25 PM Ismael Cavazos 
wrote:

>
>

[QUAD-L] Wondering down here in South Texas the weather is 80 how about where you are

[Ismael Cavazos]

Re: [QUAD-L] Wondering

[Eric Olson]

Parents are coming over.  Nothing special.  Looking forward to overeating

On Fri, Dec 14, 2018 at 1:01 PM Ismael Cavazos 
wrote:

> Hello guys what are you guys planning for Christmas are you plenty to stay
> home are you going to travel if you do just be careful with have a nice
> Christmas you and your family nothing much on my side will be here at home
> thank you and God bless you
>

[QUAD-L] Wondering

[Ismael Cavazos]

Hello guys what are you guys planning for Christmas are you plenty to stay
home are you going to travel if you do just be careful with have a nice
Christmas you and your family nothing much on my side will be here at home
thank you and God bless you

Re: [QUAD-L] Wondering

[Amy Elizabeth Baldwin]

I have one on Facebook, and I made it all by myself!It doesn't cost anything to 
start one, but if you are looking for more than just a simple one, you might 
want to research it on the internet. I am going to post my link to offer you 
some advice. 
https://www.facebook.com/littlequadblog/

Hope it gives you some ideas on how to make one for yourself!
Sincerely, LittleQuad!


Sent from Yahoo Mail on Android 
 
  On Tue, Sep 25, 2018 at 11:15 PM, Ismael Cavazos 
wrote:   
Hello any you guys know how to create a blogs? Also do you know where they were 
not charge me most of him they charge to start one any ideas would appreciate 
it thank you and God bless you

  

  
  

RE: [QUAD-L] Wondering

[Berres, Susan J *HS]

There are plenty of wheelchair options for a child that size. They need to have 
him evaluated at a pediatric specialty hospital by the OTs and PTs there who 
can recommend something appropriate. Medicaid will typically pay for the chair, 
as well as other equipment he might need. The family should not let a vender 
sell them a chair without having an eval by an OT /andor PT with experience 
with pediatric equipment because it is critical to get it right.

Sue Berres, OTR/L

From: Ismael Cavazos [mailto:ismaelcavaz...@gmail.com]
Sent: Sunday, September 30, 2018 7:14 AM
To: Blue 
Subject: [QUAD-L] Wondering

Hello guys October 8 is going to be 37 years that I've been a quadriplegic 
paralyzed from the neck down and connected to a respirator I was 18 years old I 
was 18 days away that I was going to turn 19 when the doctors told my mother at 
that time that I was going only survive 72 hours beside before my accident I 
was already legally blind but when I was born I was completely blind after 6 
surgeries on my eyes I started seeing a little I started seeing when I was 11 
years old doctors consider me legally blind I could see a little better than 
nothing most of my life since I been a quadriplegic I was in the nursing home 
2001 I got out I was scared to get out because like I said most of my life I 
was in the nursing home I thought it wasn't possible for person in my condition 
to be out from the nursing home and connected to a respirator I knew it that I 
did not need to prove to no one that I was able to do it outside the nursing 
home that I needed to prove only to myself it was hard and scary in the 
beginning with God help I continued being outside the nursing home and I was 
the right choice I did for myself since I been a quadriplegic only one time bed 
sore and I was in the nursing home since then I haven't had one until now my 
body is 100% better than any quadriplegic that is in the nursing home no rashes 
no bed sores at all I used to get more sick when I was in the nursing home I 
used to go more often to the hospital when I was in the nursing home when I was 
there out of the ear I used to go to the hospital 5 times out of the year it 
wasn't one thing was another but I was getting more sick now that I'm out 
sometimes I go one time out of the year to the hospital or sometimes to years 
passed by and I don't go to the hospital at all I been blessed many times 
different ways several times and I've been lucky the only thing I'm not getting 
any younger like I said I'm blessed and I am continually being bless by Jesus 
let me tell you guys something else on Friday I met this couple they have a 
little boy that is 4 years old he is paralyzed from the neck down and also 
connected to a respirator's he is very alert the sad thing about it is not able 
to talk and also he has a tooling inside his nose so he can eat his mother and 
father was telling me they were trying to get him a wheelchair but according 
medicate they told his mother and father medicate doesn't cover his wheelchair 
because there's no wheelchair for his age because she's too small that I have 
to wait until he gets older so he can get a wheelchair I do not agree on that 
and mother and father doesn't know too much about programs out there they don't 
know anything about people with disability they got other kids but there are 
walking but the different from me and you guys yes we were young when our 
accident happened by we had a chance to walk to run to play we know how it 
feels to do that this little boy never had a chance to run to plate to enjoy to 
be a child that is sad every 1 of us we been blessed different ways sense are 
accidents happen some of us we had her mother and father like him we grew up 
and some of us we don't have our mother or father anymore by one way another we 
got bless by got put us somebody special and our life to be part of our life to 
help us and to understand this like I said we were young and we had a lot of 
dreams about those dreams went down the drain when we end up being a 
quadriplegic whenever going to have a chance to catch up what we miss we are 
able to defend ourselves to fight for our rights and say what hurts or doesn't 
hurt what we don't like and what we like some of us been a quadriplegic longer 
than others now going back about this little boy she is going to grow up like 
us his parents not going to be there when he gets old is not able to talk you 
not able to say what hurts or doesn't hurt cannot express herself his feelings 
that is very sad is not able to fight for his right if in the future is not 
able to talk like he cannot talk right now now in the future if he's able to 
talk that will help them a little we had a chance to go to school and we learn 
how to read and spell in the future for this little boy if you continue the way 
is wet out communicating is going to be very bad in the future brother and 
sisters probably not going to be there for him he probably

Re: [QUAD-L] Wondering--Power Chair for 4-year-old

[Robert Vogel]

Hi Ismael,

I read your email—an amazing life you are leading, and huge kudos to you for 
reaching out and helping this child and family!!!
I hope my input helps you help them.

For what it is worth, I have worked as a manufacturer’s rep for a wheelchair 
company (Everest & Jennings in the mid-1990’s) as well
as a representative for a local DME, wheelchair store in the early 2000’s. Even 
back in 1995 we had pediatric power wheelchairs and
controllers—chin control, or sip ’n puff—that could accommodate a 
four-year-old. In fact I have a vivid recollection of bringing a pediatric
power wheelchair for an evaluation of a child that had no movement below the 
neck and was around age 4.  The eval went well, and the
child was excited and happy to be in control of a power chair and moving around 
on their own.  As long as the 4-year-old has the cognitive 
ability to drive a chair—which should be no problem for an average 
4-year-old—major wheelchair manufacturers, Permobil, Sunrise,
and Quantum all make pediatric power chairs that can easily fit a 4-year-old.

In addition, in my  job a journalist for New Mobility magazine I get to attend 
the yearly International Seating Symposium, part of which includes
displays of the latest and greatest mobility devices by wheelchair 
manufacturers—I have seen the pediatric versions of the power wheelchair 
manufacturers
below and each company makes a power chair that can custom fit a 4-year-old and 
be outfitted with controls and seating to accommodate them.

Quantum Pediatric power chair(s):  
https://www.quantumrehab.com/quantum-power-bases/kozmo.asp
https://www.quantumrehab.com/quantum-power-bases/kozmo-portable.asp

Sunrise Pediatric power chairs:  
http://www.sunrisemedical.com/power-wheelchairs/zippie/mid-wheel-drive

Permobil Pediatric power chairs: 
https://permobilus.com/products/power-wheelchairs-by-permobil/pediatric/

Hope this helps.  The key is—as Eric Olson wisely explained—the family needs to 
talk with a DME provider (wheelchair dealer) in their
area.

Sincerely,
Bob V 

> On Sep 30, 2018, at 3:15 PM, Eric Olson  wrote:
> 
> There's got to be something out there for him.  They should speak to a DME 
> provider in their area.  
> 
> On Sun, Sep 30, 2018 at 6:13 AM Ismael Cavazos  > wrote:
> Hello guys October 8 is going to be 37 years that I've been a quadriplegic 
> paralyzed from the neck down and connected to a respirator I was 18 years old 
> I was 18 days away that I was going to turn 19 when the doctors told my 
> mother at that time that I was going only survive 72 hours beside before my 
> accident I was already legally blind but when I was born I was completely 
> blind after 6 surgeries on my eyes I started seeing a little I started seeing 
> when I was 11 years old doctors consider me legally blind I could see a 
> little better than nothing most of my life since I been a quadriplegic I was 
> in the nursing home 2001 I got out I was scared to get out because like I 
> said most of my life I was in the nursing home I thought it wasn't possible 
> for person in my condition to be out from the nursing home and connected to a 
> respirator I knew it that I did not need to prove to no one that I was able 
> to do it outside the nursing home that I needed to prove only to myself it 
> was hard and scary in the beginning with God help I continued being outside 
> the nursing home and I was the right choice I did for myself since I been a 
> quadriplegic only one time bed sore and I was in the nursing home since then 
> I haven't had one until now my body is 100% better than any quadriplegic that 
> is in the nursing home no rashes no bed sores at all I used to get more sick 
> when I was in the nursing home I used to go more often to the hospital when I 
> was in the nursing home when I was there out of the ear I used to go to the 
> hospital 5 times out of the year it wasn't one thing was another but I was 
> getting more sick now that I'm out sometimes I go one time out of the year to 
> the hospital or sometimes to years passed by and I don't go to the hospital 
> at all I been blessed many times different ways several times and I've been 
> lucky the only thing I'm not getting any younger like I said I'm blessed and 
> I am continually being bless by Jesus let me tell you guys something else on 
> Friday I met this couple they have a little boy that is 4 years old he is 
> paralyzed from the neck down and also connected to a respirator's he is very 
> alert the sad thing about it is not able to talk and also he has a tooling 
> inside his nose so he can eat his mother and father was telling me they were 
> trying to get him a wheelchair but according medicate they told his mother 
> and father medicate doesn't cover his wheelchair because there's no 
> wheelchair for his age because she's too small that I have to wait until he 
> gets older so he can get a wheelchair I do not agree on that and mother and 
> father 

Re: [QUAD-L] Wondering

[Eric Olson]

There's got to be something out there for him.  They should speak to a DME
provider in their area.

On Sun, Sep 30, 2018 at 6:13 AM Ismael Cavazos 
wrote:

> Hello guys October 8 is going to be 37 years that I've been a quadriplegic
> paralyzed from the neck down and connected to a respirator I was 18 years
> old I was 18 days away that I was going to turn 19 when the doctors told my
> mother at that time that I was going only survive 72 hours beside before my
> accident I was already legally blind but when I was born I was completely
> blind after 6 surgeries on my eyes I started seeing a little I started
> seeing when I was 11 years old doctors consider me legally blind I could
> see a little better than nothing most of my life since I been a
> quadriplegic I was in the nursing home 2001 I got out I was scared to get
> out because like I said most of my life I was in the nursing home I thought
> it wasn't possible for person in my condition to be out from the nursing
> home and connected to a respirator I knew it that I did not need to prove
> to no one that I was able to do it outside the nursing home that I needed
> to prove only to myself it was hard and scary in the beginning with God
> help I continued being outside the nursing home and I was the right choice
> I did for myself since I been a quadriplegic only one time bed sore and I
> was in the nursing home since then I haven't had one until now my body is
> 100% better than any quadriplegic that is in the nursing home no rashes no
> bed sores at all I used to get more sick when I was in the nursing home I
> used to go more often to the hospital when I was in the nursing home when I
> was there out of the ear I used to go to the hospital 5 times out of the
> year it wasn't one thing was another but I was getting more sick now that
> I'm out sometimes I go one time out of the year to the hospital or
> sometimes to years passed by and I don't go to the hospital at all I been
> blessed many times different ways several times and I've been lucky the
> only thing I'm not getting any younger like I said I'm blessed and I am
> continually being bless by Jesus let me tell you guys something else on
> Friday I met this couple they have a little boy that is 4 years old he is
> paralyzed from the neck down and also connected to a respirator's he is
> very alert the sad thing about it is not able to talk and also he has a
> tooling inside his nose so he can eat his mother and father was telling me
> they were trying to get him a wheelchair but according medicate they told
> his mother and father medicate doesn't cover his wheelchair because there's
> no wheelchair for his age because she's too small that I have to wait until
> he gets older so he can get a wheelchair I do not agree on that and mother
> and father doesn't know too much about programs out there they don't know
> anything about people with disability they got other kids but there are
> walking but the different from me and you guys yes we were young when our
> accident happened by we had a chance to walk to run to play we know how it
> feels to do that this little boy never had a chance to run to plate to
> enjoy to be a child that is sad every 1 of us we been blessed different
> ways sense are accidents happen some of us we had her mother and father
> like him we grew up and some of us we don't have our mother or father
> anymore by one way another we got bless by got put us somebody special and
> our life to be part of our life to help us and to understand this like I
> said we were young and we had a lot of dreams about those dreams went down
> the drain when we end up being a quadriplegic whenever going to have a
> chance to catch up what we miss we are able to defend ourselves to fight
> for our rights and say what hurts or doesn't hurt what we don't like and
> what we like some of us been a quadriplegic longer than others now going
> back about this little boy she is going to grow up like us his parents not
> going to be there when he gets old is not able to talk you not able to say
> what hurts or doesn't hurt cannot express herself his feelings that is very
> sad is not able to fight for his right if in the future is not able to talk
> like he cannot talk right now now in the future if he's able to talk that
> will help them a little we had a chance to go to school and we learn how to
> read and spell in the future for this little boy if you continue the way is
> wet out communicating is going to be very bad in the future brother and
> sisters probably not going to be there for him he probably going to end up
> in the nursing home like I did in the nursing home is terrible's that's why
> I say we been blessed compare to him yes we got problems in life this and
> that but this little boy 80% more problems what we have when his mother and
> father told me about his condition they put me to think right now his
> parents take care of him at home let me ask you this guys do you know if
> 

Re: [QUAD-L] Wondering

[Noel]

I don't know if they are small enough, but here are some pediatric
wheelchairs: https://www.1800wheelchair.com/category/pediatric-wheelchairs/
On Sun, Sep 30, 2018 at 5:14 AM Ismael Cavazos  wrote:
>
> Hello guys October 8 is going to be 37 years that I've been a quadriplegic 
> paralyzed from the neck down and connected to a respirator I was 18 years old 
> I was 18 days away that I was going to turn 19 when the doctors told my 
> mother at that time that I was going only survive 72 hours beside before my 
> accident I was already legally blind but when I was born I was completely 
> blind after 6 surgeries on my eyes I started seeing a little I started seeing 
> when I was 11 years old doctors consider me legally blind I could see a 
> little better than nothing most of my life since I been a quadriplegic I was 
> in the nursing home 2001 I got out I was scared to get out because like I 
> said most of my life I was in the nursing home I thought it wasn't possible 
> for person in my condition to be out from the nursing home and connected to a 
> respirator I knew it that I did not need to prove to no one that I was able 
> to do it outside the nursing home that I needed to prove only to myself it 
> was hard and scary in the beginning with God help I continued being outside 
> the nursing home and I was the right choice I did for myself since I been a 
> quadriplegic only one time bed sore and I was in the nursing home since then 
> I haven't had one until now my body is 100% better than any quadriplegic that 
> is in the nursing home no rashes no bed sores at all I used to get more sick 
> when I was in the nursing home I used to go more often to the hospital when I 
> was in the nursing home when I was there out of the ear I used to go to the 
> hospital 5 times out of the year it wasn't one thing was another but I was 
> getting more sick now that I'm out sometimes I go one time out of the year to 
> the hospital or sometimes to years passed by and I don't go to the hospital 
> at all I been blessed many times different ways several times and I've been 
> lucky the only thing I'm not getting any younger like I said I'm blessed and 
> I am continually being bless by Jesus let me tell you guys something else on 
> Friday I met this couple they have a little boy that is 4 years old he is 
> paralyzed from the neck down and also connected to a respirator's he is very 
> alert the sad thing about it is not able to talk and also he has a tooling 
> inside his nose so he can eat his mother and father was telling me they were 
> trying to get him a wheelchair but according medicate they told his mother 
> and father medicate doesn't cover his wheelchair because there's no 
> wheelchair for his age because she's too small that I have to wait until he 
> gets older so he can get a wheelchair I do not agree on that and mother and 
> father doesn't know too much about programs out there they don't know 
> anything about people with disability they got other kids but there are 
> walking but the different from me and you guys yes we were young when our 
> accident happened by we had a chance to walk to run to play we know how it 
> feels to do that this little boy never had a chance to run to plate to enjoy 
> to be a child that is sad every 1 of us we been blessed different ways sense 
> are accidents happen some of us we had her mother and father like him we grew 
> up and some of us we don't have our mother or father anymore by one way 
> another we got bless by got put us somebody special and our life to be part 
> of our life to help us and to understand this like I said we were young and 
> we had a lot of dreams about those dreams went down the drain when we end up 
> being a quadriplegic whenever going to have a chance to catch up what we miss 
> we are able to defend ourselves to fight for our rights and say what hurts or 
> doesn't hurt what we don't like and what we like some of us been a 
> quadriplegic longer than others now going back about this little boy she is 
> going to grow up like us his parents not going to be there when he gets old 
> is not able to talk you not able to say what hurts or doesn't hurt cannot 
> express herself his feelings that is very sad is not able to fight for his 
> right if in the future is not able to talk like he cannot talk right now now 
> in the future if he's able to talk that will help them a little we had a 
> chance to go to school and we learn how to read and spell in the future for 
> this little boy if you continue the way is wet out communicating is going to 
> be very bad in the future brother and sisters probably not going to be there 
> for him he probably going to end up in the nursing home like I did in the 
> nursing home is terrible's that's why I say we been blessed compare to him 
> yes we got problems in life this and that but this little boy 80% more 
> problems what we have when his mother and father told me about his condition 
> they put me 

[QUAD-L] Wondering

[Ismael Cavazos]

Hello guys October 8 is going to be 37 years that I've been a quadriplegic
paralyzed from the neck down and connected to a respirator I was 18 years
old I was 18 days away that I was going to turn 19 when the doctors told my
mother at that time that I was going only survive 72 hours beside before my
accident I was already legally blind but when I was born I was completely
blind after 6 surgeries on my eyes I started seeing a little I started
seeing when I was 11 years old doctors consider me legally blind I could see
a little better than nothing most of my life since I been a quadriplegic I
was in the nursing home 2001 I got out I was scared to get out because like
I said most of my life I was in the nursing home I thought it wasn't
possible for person in my condition to be out from the nursing home and
connected to a respirator I knew it that I did not need to prove to no one
that I was able to do it outside the nursing home that I needed to prove
only to myself it was hard and scary in the beginning with God help I
continued being outside the nursing home and I was the right choice I did
for myself since I been a quadriplegic only one time bed sore and I was in
the nursing home since then I haven't had one until now my body is 100%
better than any quadriplegic that is in the nursing home no rashes no bed
sores at all I used to get more sick when I was in the nursing home I used
to go more often to the hospital when I was in the nursing home when I was
there out of the ear I used to go to the hospital 5 times out of the year it
wasn't one thing was another but I was getting more sick now that I'm out
sometimes I go one time out of the year to the hospital or sometimes to
years passed by and I don't go to the hospital at all I been blessed many
times different ways several times and I've been lucky the only thing I'm
not getting any younger like I said I'm blessed and I am continually being
bless by Jesus let me tell you guys something else on Friday I met this
couple they have a little boy that is 4 years old he is paralyzed from the
neck down and also connected to a respirator's he is very alert the sad
thing about it is not able to talk and also he has a tooling inside his nose
so he can eat his mother and father was telling me they were trying to get
him a wheelchair but according medicate they told his mother and father
medicate doesn't cover his wheelchair because there's no wheelchair for his
age because she's too small that I have to wait until he gets older so he
can get a wheelchair I do not agree on that and mother and father doesn't
know too much about programs out there they don't know anything about people
with disability they got other kids but there are walking but the different
from me and you guys yes we were young when our accident happened by we had
a chance to walk to run to play we know how it feels to do that this little
boy never had a chance to run to plate to enjoy to be a child that is sad
every 1 of us we been blessed different ways sense are accidents happen some
of us we had her mother and father like him we grew up and some of us we
don't have our mother or father anymore by one way another we got bless by
got put us somebody special and our life to be part of our life to help us
and to understand this like I said we were young and we had a lot of dreams
about those dreams went down the drain when we end up being a quadriplegic
whenever going to have a chance to catch up what we miss we are able to
defend ourselves to fight for our rights and say what hurts or doesn't hurt
what we don't like and what we like some of us been a quadriplegic longer
than others now going back about this little boy she is going to grow up
like us his parents not going to be there when he gets old is not able to
talk you not able to say what hurts or doesn't hurt cannot express herself
his feelings that is very sad is not able to fight for his right if in the
future is not able to talk like he cannot talk right now now in the future
if he's able to talk that will help them a little we had a chance to go to
school and we learn how to read and spell in the future for this little boy
if you continue the way is wet out communicating is going to be very bad in
the future brother and sisters probably not going to be there for him he
probably going to end up in the nursing home like I did in the nursing home
is terrible's that's why I say we been blessed compare to him yes we got
problems in life this and that but this little boy 80% more problems what we
have when his mother and father told me about his condition they put me to
think right now his parents take care of him at home let me ask you this
guys do you know if it's true what medicate and Medicare told his mother and
father I don't agree on that and I don't believe in that there's got to be a
wheelchair for his size for somebody could push him around I've never seen a
wheelchair that small have you guys seen a wheelchair that small I would
like 

Re: [QUAD-L] Wondering

[Jim Lubin]

you can create one for free at https://www.blogger.com/about/
It's a google service so you just need to signin with a google account

On Tue, Sep 25, 2018 at 9:15 PM Ismael Cavazos 
wrote:

> Hello any you guys know how to create a blogs? Also do you know where they
> were not charge me most of him they charge to start one any ideas would
> appreciate it thank you and God bless you
>
>
>
>
>

[QUAD-L] Wondering

[Ismael Cavazos]

Hello any you guys know how to create a blogs? Also do you know where they
were not charge me most of him they charge to start one any ideas would
appreciate it thank you and God bless you

 

 

Re: [QUAD-L] Wondering and to verify

[Jim Lubin]

In Washington, the state pays Home Care Aide (without certification) $14 to
$16.50 per hour depending on cumulative career hours.

For licensed nurses the state pays:
RN: $46.76/hour
LPN: $38.44/hour

On Tue, Jul 10, 2018 at 10:04 AM, Ismael Cavazos 
wrote:

> Hello my friends I have a question for you guys I been interviewing some
> people so I could get my tell a provider since yesterday 2 people according
> to them they were working at Minnesota they were getting paid 1450 an hour
> but they moved down here in Texas and they tried to look for a job
> according to 1 of the person she was getting a getting paid that much from
> a home health agency to she used to take care a quadriplegic for 5 years
> but they moved down here in Texas my question to you guys it is true that
> that they get a that much up north thank you God bless you
>
>
>

[QUAD-L] Wondering and to verify

[Ismael Cavazos]

Hello my friends I have a question for you guys I been interviewing some
people so I could get my tell a provider since yesterday 2 people according
to them they were working at Minnesota they were getting paid 1450 an hour
but they moved down here in Texas and they tried to look for a job according
to 1 of the person she was getting a getting paid that much from a home
health agency to she used to take care a quadriplegic for 5 years but they
moved down here in Texas my question to you guys it is true that that they
get a that much up north thank you God bless you

 

Re: [QUAD-L] Wondering

[Amy Elizabeth Baldwin]

Ishmael, I have used some process, and it worked for a few years. Now, I just 
call her because I like to watch TV at all hours of the night!She said it gave 
too loud threads t the monitor!?Best wishes for you!
•~•♤•~• LittleQuad  •~•♡•~•

Sent from Yahoo Mail on Android 
 
  On Wed, Jul 4, 2018 at 10:25 AM, Eric Olson wrote:   I use 
a baby monitor too.  I also have an external alarm attached to my vent.

On Tue, Jul 3, 2018 at 12:51 PM, Ismael Cavazos  
wrote:


Hello guys I have a question for the quads that are paralyzed from the neck 
down if your caregiver or the person that take care you and you are in bed and 
that person is in the other room instead of calling them by their name do you 
use some type of device to call them at night's to call them to wake him up 
when you need something thank you and God bless you

 


  

Re: [QUAD-L] Wondering

[Amy Elizabeth Baldwin]

Hello!!In the evening, I just call my other half's name, we have separate 
rooms, but very close.But when it's in the middle of the night, I will call my 
mother on the phone,  She likes with us but in the other side of the house. She 
is my full time caregiver. He works 40+++ hours a week, so after he gets off 
work, he takes care of me until time for bed!
Hopefully I have helped you a little bit??
•~•♤•~• LittleQuad  •~•♡•~•


Sent from Yahoo Mail on Android 
 
  On Tue, Jul 3, 2018 at 12:51 PM, Ismael Cavazos 
wrote:   
Hello guys I have a question for the quads that are paralyzed from the neck 
down if your caregiver or the person that take care you and you are in bed and 
that person is in the other room instead of calling them by their name do you 
use some type of device to call them at night's to call them to wake him up 
when you need something thank you and God bless you

  
  

Re: [QUAD-L] Wondering

[Eric Olson]

I use a baby monitor too.  I also have an external alarm attached to my
vent.

On Tue, Jul 3, 2018 at 12:51 PM, Ismael Cavazos 
wrote:

> Hello guys I have a question for the quads that are paralyzed from the
> neck down if your caregiver or the person that take care you and you are in
> bed and that person is in the other room instead of calling them by their
> name do you use some type of device to call them at night's to call them to
> wake him up when you need something thank you and God bless you
>
>
>

Re: [QUAD-L] Wondering

[Jim Lubin]

I call them by name. We have 2 "baby monitors" setup, one near the
ventilator the other near my head

https://smile.amazon.com/gp/product/B00J7YRFJ4/
https://smile.amazon.com/gp/product/B007NG5UEU/



On Tue, Jul 3, 2018 at 10:51 AM, Ismael Cavazos 
wrote:

> Hello guys I have a question for the quads that are paralyzed from the
> neck down if your caregiver or the person that take care you and you are in
> bed and that person is in the other room instead of calling them by their
> name do you use some type of device to call them at night's to call them to
> wake him up when you need something thank you and God bless you
>
>
>

[QUAD-L] Wondering

[Ismael Cavazos]

Hello guys I have a question for the quads that are paralyzed from the neck
down if your caregiver or the person that take care you and you are in bed
and that person is in the other room instead of calling them by their name
do you use some type of device to call them at night's to call them to wake
him up when you need something thank you and God bless you

 

Re: [QUAD-L] Wondering

[Eric Olson]

I am.  I change my trach tube twice a month.  My tube doesn't have an inner
cannula so I try to change it more often

On Thu, May 17, 2018 at 2:06 PM, Ismael Cavazos 
wrote:

> Hello I was wondering if any you guys are connected to a respirator and
> also I was wondering how often do you change your trait thank you and God
> bless you
>

[QUAD-L] Wondering

[Ismael Cavazos]

Hello I was wondering if any you guys are connected to a respirator and also
I was wondering how often do you change your trait thank you and God bless
you

Re: [QUAD-L] Wondering

[Jim Lubin]

Paid or volunteer?

https://www.upwork.com

https://www.flexjobs.com

https://lifehacker.com/how-to-volunteer-without-leaving-home-1823626330



On Wed, Mar 28, 2018 at 1:23 PM, Ismael Cavazos 
wrote:

> Hello my friends do you guys know is there is such thing working from home
> that a person that is disabled could do that or a phone number for I could
> as some questions what type of job they are out there across the United
> States thank you God bless you
>
>
>

[QUAD-L] Wondering

[Ismael Cavazos]

Hello my friends do you guys know is there is such thing working from home
that a person that is disabled could do that or a phone number for I could
as some questions what type of job they are out there across the United
States thank you God bless you

 

Re: [QUAD-L] Wondering

[Noel]

Ismael, no it is not a scam, it is legit.

On Tue, Mar 6, 2018 at 5:10 PM, Ismael Cavazos  wrote:
> Hello my friends I have a question for you guys do you think this is a scan
> check it out http://ablenrc.org/

[QUAD-L] Wondering

[Ismael Cavazos]

Hello my friends I have a question for you guys do you think this is a scan
check it out http://ablenrc.org/

[QUAD-L] Wondering any ideas

[Ismael Cavazos]

Hello my friends I have a couple questions for you I know this person that
he is in the nursing home he is 76 years old all his life he been blind he
is not able to hear very well he is very alert and he doesn't trust nobody
and he doesn't have any family you never been married and he only trust his
niece that you know some type of programs that could help him I don't know
what you call those things what you put on their year so they could hear
better she had some but they're not working anymore he got them way before
he got inside the nursing home and I was only way he was able to hear a
little bit better.able to walk very well he is not a veteran all his life he
been blind and there are a lot of programs out there that he doesn't qualify
because he is in the nursing home not able to communicate when nobody
outside the world I was thinking maybe he could qualify to get a computer
almost like my just got to be something else there is out there with all
this technology there is that he could communicate with the outside world
what really doesn't help I think because he lives in the nursing home he is
not able to hear that even the radio or the television I strongly believe
they are things out there some type equipment it could help him but the guy
is very smart any ideas you have will appreciate thank you God bless you

 

 

 

RE: [QUAD-L] Wondering

[Dave Krehbiel]

What I think is: let's keep politics off this discussion group, as much as
possible.

 

Take care,

 

Dave Krehbiel

Olney, MD

 

From: Ismael Cavazos [mailto:ismaelcavaz...@gmail.com] 
Sent: Monday, September 25, 2017 6:54 AM
To: Blue
Subject: [QUAD-L] Wondering

 

Hello my friends I was wondering any you guys watch football the reason I'm
asking I was wondering what you guys think what the president said about the
NFL players thank you and God bless you



---
This email has been checked for viruses by Avast antivirus software.
https://www.avast.com/antivirus

[QUAD-L] Wondering

[Ismael Cavazos]

Hello my friends I was wondering any you guys watch football the reason I'm
asking I was wondering what you guys think what the president said about the
NFL players thank you and God bless you

Re: [QUAD-L] Wondering

[Jim Lubin]

Found these in a google search, $ 1.75
 Dynarex Urinary Drainage Bag, 2000 ml Bag
https://www.mountainside-medical.com/products/dynarex-urinary-drainage-bag-2000-ml-bag

Re: [QUAD-L] Wondering

[Jim Lubin]

https://www.blogger.com is one place I know of for free. It's owned by
google.

On Sun, Jul 9, 2017 at 7:17 PM, Ismael Cavazos 
wrote:

> Can someone let me know how to setup a blog on the web?  Is it difficult
> to do this?  Also, does it work OK with Dragon and J-Say?  Thank you in
> advance for any help.
>
>
>
> Ismael Cavazos
>
>
>

[QUAD-L] Wondering

[Ismael Cavazos]

Can someone let me know how to setup a blog on the web?  Is it difficult to
do this?  Also, does it work OK with Dragon and J-Say?  Thank you in advance
for any help.

 

Ismael Cavazos

 

[QUAD-L] Wondering

[Ismael Cavazos]

Hello guys I would like to ask you question I've been interviewing people to
get another CNA I've been all my life in Texas this person that I interview
a little while ago according to her she used to work in the nursing home in
Minnesota and she was getting paid $18 an hour in a nursing home I really
did not believe that but I might be wrong I was wondering where you live how
much I CNA or provider is getting pay in your hometown thank you God bless
you

[QUAD-L] Wondering

[Ismael Cavazos]

Hello my friends I would like to ask your question before I ask you let me
tell you what happened to be I am from Texas 2009 a hurricane was going to
hit and south Texas I am connected to a respirator I am also paralyze from
the neck down I was also

register for 2 1 1 after 2 hours they never came for me so I decided to play
it safe I went to the hospital they checked me out I did not have
temperature by blood pressure was okay
everything was okay so they said be back home they view that the hurricane
was on the way I made a comment about it they told me that the hospital
wasn't a shelter so the ambulance took me to a high school gym and they were
going to lay me down on the floor I did not like the idea of it so I told
him to take me back home so they did thank God it wasn't that bad so by
question to you where you live when the twister or hurricane evacuation what
way they are prepared for people disability here it's another year and we
are ready hurricane season already thank you and God bless you

 

Re: [QUAD-L] Wondering

[Bobbie Humphreys]

New England
Bobbie 

"You must fail in order to succeed"

> On Jan 20, 2017, at 3:56 PM, greg  wrote:
> 
> NE vs GB, hate both
> 
> > Any you guys are football fans if you are let me ask you a question
> > who do you think is going to go to the Super Bowl

Re: [QUAD-L] Wondering

[greg]

NE vs GB, hate both
> Any you guys are football fans if you are let me ask you a question
> who do you think is going to go to the Super Bowl

[QUAD-L] Wondering

[Ismael Cavazos]

Any you guys are football fans if you are let me ask you a question who do
you think is going to go to the Super Bowl

Re: [QUAD-L] wondering

[Jim Lubin]

Ismael, no the Echo would not be able to do that. It can do trivia games
and a few "text" adventure type games.

Have you seen the Quadstick? http://www.quadstick.com/

Here is a video showing a quad using it to play a basketball game
https://youtu.be/ktGfg_oM2yw


On Wed, Jul 20, 2016 at 3:38 AM, Ismael Cavazos 
wrote:

> Hello my friends I was wondering if you guys know with Echo if I buy it if
> I'm able to play games voice-activated on my desktop computer for a sample
> football basketball baseball and other games thank you and God bless you
>

Re: [QUAD-L] wondering

[Jim Lubin]

I am. We change the trach every 3 months. Back in 1992 my doctor said we
could continue to change it every 3 months if it was clean when we remove
it. It has been so we continue to.

On Fri, Nov 13, 2015 at 4:40 AM, Ismael Cavazos 
wrote:

> Hello my friends I have a question for you how many of you are connected
> to a respirator and the other question how often you change your trait to
> thank you and God bless you have a nice day
>

[QUAD-L] wondering

[Ismael Cavazos]

Hello my friends I have a question for you how many of you are connected to
a respirator and the other question how often you change your trait to thank
you and God bless you have a nice day

[QUAD-L] wondering

[Ismael Cavazos]

Do you guys use a special headphones for the computer

[QUAD-L] Wondering what ...

[Lori Michaelson]

When I REALLY have nothing better to do (which is rare as it's a zoo here most of the time) ... I
sometimes wonder what the next BIG EVENT or issue will be.

Examples:

OJ case
Princess Diana tragedy
Clinton fiasco
The big tsunami
Michal Jackson's endless trials
Baby Jessica
Iraq war (or any war for that matter)

NOT THAT IT HAS TO BE A TRAGEDY! But tragedies keep us talking more. Because misery DOES love company? 
Or our human nature side enjoystragedy intrigue?

You get the idea ... it's always something that keeps our attention. That's what makes life interesting.

Some things keep us busy talking years, others months, others weeks, other's sometimes only days.

If it isn't nature itself causing chaos, it's human nature.

I wonder what's next?

Lori