Re: [QUAD-L] frustrations with Medi-Cal and Medicare
They more or less have people like Danny and myself being forced to MAKE us *square* people into the *round* holes to qualify for Medicaid or the Medicaid waivers. In other words, we can only have so much money or have to spend it down and then they are always needing to know h1ow much money we have to keep being eligible, etc. In other words, flashlights up our butts and so on and so forth. Some of us just fall between the cracks. To much money/assets to qualify but not enough money to be able to hire the extra care we need as far as home health aides and other things. Lori Michaelson Age - 45 C4/5 complete quad, 29 years post Tucson, AZ On Sun, Aug 30, 2009 at 3:41 PM, Steve Oldaker steve.olda...@comcast.netwrote: Danny, If you have not already done so, I strongly suggest checking out the information at the site below. http://www.dds.ca.gov/waiver/home.cfm If you have already applied and have been turned down for some reason, there may be steps you can take that will make you eligible. Steve - C4, 21 years *From:* Daniel Espinoza [mailto:da...@thespinalcordinjured.net] *Sent:* Sunday, August 30, 2009 6:06 AM *To:* quad-list@eskimo.com *Subject:* [QUAD-L] frustrations with Medi-Cal and Medicare I seriously don't understand how you guys live off this, I get 1400 a month and then I have to pay about 1100 for my share of cost. Luckily I'm not going to get kicked out for not paying rent but I am supposed to and that's beside the point. It gives me $300 for rent, food, utilities, and any medical supplies not covered. I think it's really screwed up, I'm going to call them on Monday and try to figure this stuff out but before I do that I would really like to know what you guys think? It's almost like I have no choice but to live in a nursing home, which I would imagine would cost more than what they give me a month. I live in Southern California so maybe that has something to do with my frustrations because everything seems to be a lot more expensive here than elsewhere. I really don't want to move because all of my family lives here, and they take care of me when my caregivers don't. Thanks in advance for any advice you guys have for me. I've been a quad for a little over three years now so I really don't understand the ins and outs of all of this just quite yet…. Daniel Espinoza 26/m/California Occupation before accident - Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 and had to get donor bone at c2, which left me as a Quadriplegic http://en.wikipedia.org/wiki/Quadriplegia. I had a Traumatic_brain_injuryhttp://en.wikipedia.org/wiki/Traumatic_brain_injuryfrom blood going to my brain from my spinal cord, but its getting better with time. I am off a ventilator http://en.wikipedia.org/wiki/Ventilator woohoo however only half of my diaphragmhttp://en.wikipedia.org/wiki/Thoracic_diaphragmworks right now due to an asymmetric spinal cord injury http://en.wikipedia.org/wiki/Spinal_cord_injury. http://www.thespinalcordinjured.net http://spinalcordinjured.net/ http://www.myspace.com/dannylnx -- Lori Age - 45 C4/5 complete quad, nearly 30 years post Tucson, AZ
[QUAD-L] frustrations with Medi-Cal and Medicare
I seriously don't understand how you guys live off this, I get 1400 a month and then I have to pay about 1100 for my share of cost. Luckily I'm not going to get kicked out for not paying rent but I am supposed to and that's beside the point. It gives me $300 for rent, food, utilities, and any medical supplies not covered. I think it's really screwed up, I'm going to call them on Monday and try to figure this stuff out but before I do that I would really like to know what you guys think? It's almost like I have no choice but to live in a nursing home, which I would imagine would cost more than what they give me a month. I live in Southern California so maybe that has something to do with my frustrations because everything seems to be a lot more expensive here than elsewhere. I really don't want to move because all of my family lives here, and they take care of me when my caregivers don't. Thanks in advance for any advice you guys have for me. I've been a quad for a little over three years now so I really don't understand the ins and outs of all of this just quite yet.. Daniel Espinoza 26/m/California Occupation before accident - Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 and had to get donor bone at c2, which left me as a Quadriplegic http://en.wikipedia.org/wiki/Quadriplegia . I had a Traumatic_brain_injury http://en.wikipedia.org/wiki/Traumatic_brain_injury from blood going to my brain from my spinal cord, but its getting better with time. I am off a ventilator http://en.wikipedia.org/wiki/Ventilator woohoo however only half of my diaphragm http://en.wikipedia.org/wiki/Thoracic_diaphragm works right now due to an asymmetric spinal cord injury http://en.wikipedia.org/wiki/Spinal_cord_injury . http://www.thespinalcordinjured.net http://spinalcordinjured.net/ http://www.myspace.com/dannylnx
RE: [QUAD-L] frustrations with Medi-Cal and Medicare
Danny, If you have not already done so, I strongly suggest checking out the information at the site below. http://www.dds.ca.gov/waiver/home.cfm If you have already applied and have been turned down for some reason, there may be steps you can take that will make you eligible. Steve - C4, 21 years From: Daniel Espinoza [mailto:da...@thespinalcordinjured.net] Sent: Sunday, August 30, 2009 6:06 AM To: quad-list@eskimo.com Subject: [QUAD-L] frustrations with Medi-Cal and Medicare I seriously don't understand how you guys live off this, I get 1400 a month and then I have to pay about 1100 for my share of cost. Luckily I'm not going to get kicked out for not paying rent but I am supposed to and that's beside the point. It gives me $300 for rent, food, utilities, and any medical supplies not covered. I think it's really screwed up, I'm going to call them on Monday and try to figure this stuff out but before I do that I would really like to know what you guys think? It's almost like I have no choice but to live in a nursing home, which I would imagine would cost more than what they give me a month. I live in Southern California so maybe that has something to do with my frustrations because everything seems to be a lot more expensive here than elsewhere. I really don't want to move because all of my family lives here, and they take care of me when my caregivers don't. Thanks in advance for any advice you guys have for me. I've been a quad for a little over three years now so I really don't understand the ins and outs of all of this just quite yet.. Daniel Espinoza 26/m/California Occupation before accident - Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 and had to get donor bone at c2, which left me as a Quadriplegic http://en.wikipedia.org/wiki/Quadriplegia . I had a Traumatic_brain_injury http://en.wikipedia.org/wiki/Traumatic_brain_injury from blood going to my brain from my spinal cord, but its getting better with time. I am off a ventilator http://en.wikipedia.org/wiki/Ventilator woohoo however only half of my diaphragm http://en.wikipedia.org/wiki/Thoracic_diaphragm works right now due to an asymmetric spinal cord injury http://en.wikipedia.org/wiki/Spinal_cord_injury . http://www.thespinalcordinjured.net http://spinalcordinjured.net/ http://www.myspace.com/dannylnx
Re: [QUAD-L] frustrations with Medi-Cal and Medicare
Dan, it is how they keep us and our issues out of the way. I don't know about the others. Here in Ohio the ILC is almost down to an answering machine. Without money our influence in politics is file 13 letters. I dont mind doing stuff I can get under the table pay for. If I lost my waiver I'd be in a nursing home in a heart beat. I do taxes for tips at a couple local churches and family members. i try to keep costs down. I track what I spend on everything. 1100 is your share? I pay 35% for rent waiver picks up almost all other medical expenses. I put the money from undertable income on debit cards. $50 a month for transportation. I just budget it so I have a few hundred for gifts and cards. That $1100 share is a budget buster. I got to admit I have made money by begging. Maybe your family would back you if you learned to trade options. I know there are a few members of the group that dont just play in the fantasy contests for stocks. i wish you luck. john. From: Daniel Espinoza da...@thespinalcordinjured.net To: quad-list@eskimo.com Sent: Sunday, August 30, 2009 6:05:53 AM Subject: [QUAD-L] frustrations with Medi-Cal and Medicare I seriously don't understand how you guys live off this, I get 1400 a month and then I have to pay about 1100 for my share of cost. Luckily I'm not going to get kicked out for not paying rent but I am supposed to and that's beside the point. It gives me $300 for rent, food, utilities, and any medical supplies not covered. I think it's really screwed up, I'm going to call them on Monday and try to figure this stuff out but before I do that I would really like to know what you guys think? It's almost like I have no choice but to live in a nursing home, which I would imagine would cost more than what they give me a month. I live in Southern California so maybe that has something to do with my frustrations because everything seems to be a lot more expensive here than elsewhere. I really don't want to move because all of my family lives here, and they take care of me when my caregivers don't. Thanks in advance for any advice you guys have for me. I've been a quad for a little over three years now so I really don't understand the ins and outs of all of this just quite yet…. Daniel Espinoza 26/m/California Occupation before accident - Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 and had to get donor bone at c2, which left me as a Quadriplegic. I had a Traumatic_brain_injury from blood going to my brain from my spinal cord, but its getting better with time. I am off a ventilator woohoo however only half of my diaphragm works right now due to an asymmetric spinal cord injury. http://spinalcordinjured.net/ http://www.myspace.com/dannylnx
