Re: [QUAD-L] suprapubic and sling
I have a supra pubic and in the past when I have had urine leaking from my stomach, it was because my balloon didn't have enough fluid in it. My urologist told me to put about 10 cc in the balloon, but you might want to check with your doctor before doing so. I used to use about 8 cc and that worked out pretty well. I'm lucky in that I can almost always tell when my bladder isn't draining properly. I don't know much about the sling procedure, but it would definitely help to get some advice from some of the women who have had the procedure. Quadius On Sun, Jan 31, 2010 at 11:26 PM, Stacy Harim wrote: > Hey all, > > I've been away for a while but need some advice. Not that I don't trust my > doctor's advice but also would like to get the facts from people that live > with it day to day. > > I've been having issues with leaking around my cath and instead of > continuing to go up sizes, I've decided to go with the supra pubic until I > drop some weight in my belly and get the stoma redone so I can cath through > my abdomen. > > Anyhow here is the deal. My bladder doesn't hold urine at all and the > doctor suggested a sling but I am really worried it won't work and then I'm > back in surgery to get my urethra tied off. What if any advice do you all > have that have a supra pubic and how did you handle what to do about your > urethra so it wouldn't leak urine? > > Thanks in advance, > Stacy > >
Re: [QUAD-L] suprapubic and sling
AttaBoy, Dave! AttaGirl Girl, for your wife who came to your aid. again!!! Best Wishes In a message dated 2/2/2010 10:55:25 P.M. Central Standard Time, hellodav...@aol.com writes: I just had a plugged Foley today - what a "come-to-Jesus" event THAT is. Had wife help replace it and I'm 95% better, still a little dull ache BUT no more NDEs , whew. (I forgot my cranberry and vitamin Cs for 2 days - yellow post-it now on my PC monitor.) “Mere longevity is a good thing for those who watch Life from the side lines. For those who play the game, an hour may be a year, a single day's work an achievement for eternity.” _Dave O'Connell_ (http://www.users.qwest.net/~daveoc/) In a message dated 2/2/2010 5:54:51 P.M. US Mountain Standard Time, wheelch...@aol.com writes: Some foods when processed contain gas and when the bladder expands with some urine and gas it can also cause leakage. The gases can also produce mild spasms too. Best Wishes In a message dated 2/2/2010 2:05:14 P.M. Central Standard Time, w...@videotron.ca writes: I have leaking at times, very rarely tho. When I do, it's usually (99% of the time) because I hadn't been drinking enough water in the days previously. So, whenever it leaks, i just force myself to drink more, and so far, it's always solved the problem. Win, 35 yrs post - Original Message - From: Stacy Harim Date: Monday, February 1, 2010 17:08 Subject: Re: [QUAD-L] suprapubic and sling To: wheelch...@aol.com, Quad-list@eskimo.com > We increased the size but can't only do that so many times. I just would like to be informed with info from people that live with it day to day than just from a doctor. I trust him but would like to know if anyone with a sling and a flaccid bladder have any troubles with leaking or whatever may be a problem. I feel it's important to be informed. > Stacy > From: "wheelch...@aol.com" > To: imwheelin1...@yahoo.com; Quad-list@eskimo.com > Sent: Mon, February 1, 2010 7:28:28 AM > Subject: Re: [QUAD-L] suprapubic and sling > Increasing the size of the cath might be the answer. Of course, there could be a half dozen other tangible reasons too. You and your doctor have access to your medical records, we don't. Offering suggestions without this valuable information is too risky at best. > It can be even more critical when you don't trust your medical doctor. > Best Wishes > In a message dated 1/31/2010 10:27:04 P.M. Central Standard Time, imwheelin1...@yahoo.com writes: > Hey all, > I've been away for a while but need some advice. Not that I don't trust my doctor's advice but also would like to get the facts from people that live with it day to day. > I've been having issues with leaking around my cath and instead of continuing to go up sizes, I've decided to go with the supra pubic until I drop some weight in my belly and get the stoma redone so I can cath through my abdomen. > Anyhow here is the deal. My bladder doesn't hold urine at all and the doctor suggested a sling but I am really worried it won't work and then I'm back in surgery to get my urethra tied off. What if any advice do you all have that have a supra pubic and how did you handle what to do about your urethra so it wouldn't leak urine? > Thanks in advance, > Stacy --- Why worry and get wrinkles, when you can smile and get dimples.
Re: [QUAD-L] suprapubic and sling
I just had a plugged Foley today - what a "come-to-Jesus" event THAT is. Had wife help replace it and I'm 95% better, still a little dull ache BUT no more NDEs , whew. (I forgot my cranberry and vitamin Cs for 2 days - yellow post-it now on my PC monitor.) “Mere longevity is a good thing for those who watch Life from the side lines. For those who play the game, an hour may be a year, a single day's work an achievement for eternity.” _Dave O'Connell_ (http://www.users.qwest.net/~daveoc/) In a message dated 2/2/2010 5:54:51 P.M. US Mountain Standard Time, wheelch...@aol.com writes: Some foods when processed contain gas and when the bladder expands with some urine and gas it can also cause leakage. The gases can also produce mild spasms too. Best Wishes In a message dated 2/2/2010 2:05:14 P.M. Central Standard Time, w...@videotron.ca writes: I have leaking at times, very rarely tho. When I do, it's usually (99% of the time) because I hadn't been drinking enough water in the days pre viously. So, whenever it leaks, i just force myself to drink more, and so far, it's always solved the problem. Win, 35 yrs post - Original Message - From: Stacy Harim Date: Monday, February 1, 2010 17:08 Subject: Re: [QUAD-L] suprapubic and sling To: wheelch...@aol.com, Quad-list@eskimo.com > We increased the size but can't only do that so many times. I just would like to be informed with info from people that live with it day to day than just from a doctor. I trust him but would like to know if anyone with a sling and a flaccid bladder have any troubles with leaking or whatever may be a problem. I feel it's important to be informed. > Stacy > From: "wheelch...@aol.com" > To: imwheelin1...@yahoo.com; Quad-list@eskimo.com > Sent: Mon, February 1, 2010 7:28:28 AM > Subject: Re: [QUAD-L] suprapubic and sling > Increasing the size of the cath might be the answer. Of course, there could be a half dozen other tangible reasons too. You and your doctor have access to your medical records, we don't. Offering suggestions without this valuable information is too risky at best. > It can be even more critical when you don't trust your medical doctor. > Best Wishes > In a message dated 1/31/2010 10:27:04 P.M. Central Standard Time, imwheelin1...@yahoo.com writes: > Hey all, > I've been away for a while but need some advice. Not that I don't trust my doctor's advice but also would like to get the facts from people that live with it day to day. > I've been having issues with leaking around my cath and instead of continuing to go up sizes, I've decided to go with the supra pubic until I drop some weight in my belly and get the stoma redone so I can cath through my abdomen. > Anyhow here is the deal. My bladder doesn't hold urine at all and the doctor suggested a sling but I am really worried it won't work and then I'm back in surgery to get my urethra tied off. What if any advice do you all have that have a supra pubic and how did you handle what to do about your urethra so it wouldn't leak urine? > Thanks in advance, > Stacy --- Why worry and get wrinkles, when you can smile and get dimples.
Re: [QUAD-L] suprapubic and sling
Some foods when processed contain gas and when the bladder expands with some urine and gas it can also cause leakage. The gases can also produce mild spasms too. Best Wishes In a message dated 2/2/2010 2:05:14 P.M. Central Standard Time, w...@videotron.ca writes: I have leaking at times, very rarely tho. When I do, it's usually (99% of the time) because I hadn't been drinking enough water in the days previously. So, whenever it leaks, i just force myself to drink more, and so far, it's always solved the problem. Win, 35 yrs post - Original Message - From: Stacy Harim Date: Monday, February 1, 2010 17:08 Subject: Re: [QUAD-L] suprapubic and sling To: wheelch...@aol.com, Quad-list@eskimo.com > We increased the size but can't only do that so many times. I just would like to be informed with info from people that live with it day to day than just from a doctor. I trust him but would like to know if anyone with a sling and a flaccid bladder have any troubles with leaking or whatever may be a problem. I feel it's important to be informed. > Stacy > From: "wheelch...@aol.com" > To: imwheelin1...@yahoo.com; Quad-list@eskimo.com > Sent: Mon, February 1, 2010 7:28:28 AM > Subject: Re: [QUAD-L] suprapubic and sling > Increasing the size of the cath might be the answer. Of course, there could be a half dozen other tangible reasons too. You and your doctor have access to your medical records, we don't. Offering suggestions without this valuable information is too risky at best. > It can be even more critical when you don't trust your medical doctor. > Best Wishes > In a message dated 1/31/2010 10:27:04 P.M. Central Standard Time, imwheelin1...@yahoo.com writes: > Hey all, > I've been away for a while but need some advice. Not that I don't trust my doctor's advice but also would like to get the facts from people that live with it day to day. > I've been having issues with leaking around my cath and instead of continuing to go up sizes, I've decided to go with the supra pubic until I drop some weight in my belly and get the stoma redone so I can cath through my abdomen. > Anyhow here is the deal. My bladder doesn't hold urine at all and the doctor suggested a sling but I am really worried it won't work and then I'm back in surgery to get my urethra tied off. What if any advice do you all have that have a supra pubic and how did you handle what to do about your urethra so it wouldn't leak urine? > Thanks in advance, > Stacy --- Why worry and get wrinkles, when you can smile and get dimples.
Re: [QUAD-L] suprapubic and sling
I have an indwelling cath and my doctor told when I was having leaking around my cath that I could increase the amount of water in the balloon a little. It seemed to help, but check with your doc before doing so. Just a thought. Beth c4-5 On Sun, Jan 31, 2010 at 9:26 PM, Stacy Harim wrote: > Hey all, > > I've been away for a while but need some advice. Not that I don't trust my > doctor's advice but also would like to get the facts from people that live > with it day to day. > > I've been having issues with leaking around my cath and instead of > continuing to go up sizes, I've decided to go with the supra pubic until I > drop some weight in my belly and get the stoma redone so I can cath through > my abdomen. > > Anyhow here is the deal. My bladder doesn't hold urine at all and the > doctor suggested a sling but I am really worried it won't work and then I'm > back in surgery to get my urethra tied off. What if any advice do you all > have that have a supra pubic and how did you handle what to do about your > urethra so it wouldn't leak urine? > > Thanks in advance, > Stacy > >
Re: [QUAD-L] suprapubic and sling
I have leaking at times, very rarely tho. When I do, it's usually (99% of the time) because I hadn't been drinking enough water in the days previously. So, whenever it leaks, i just force myself to drink more, and so far, it's always solved the problem. Win, 35 yrs post- Original Message -From: Stacy Harim Date: Monday, February 1, 2010 17:08Subject: Re: [QUAD-L] suprapubic and slingTo: wheelch...@aol.com, Quad-list@eskimo.com > We increased the size but can't only do that so many times. I just would like to be informed with info from people that live with it day to day than just from a doctor. I trust him but would like to know if anyone with a sling and a flaccid bladder have any troubles with leaking or whatever may be a problem. I feel it's important to be informed.> Stacy > From: "wheelch...@aol.com" > To: imwheelin1...@yahoo.com; Quad-list@eskimo.com> Sent: Mon, February 1, 2010 7:28:28 AM> Subject: Re: [QUAD-L] suprapubic and sling> Increasing the size of the cath might be the answer. Of course, there could be a half dozen other tangible reasons too. You and your doctor have access to your medical records, we don't. Offering suggestions without this valuable information is too risky at best.> It can be even more critical when you don't trust your medical doctor.> Best Wishes > In a message dated 1/31/2010 10:27:04 P.M. Central Standard Time, imwheelin1...@yahoo.com writes: > Hey all,> I've been away for a while but need some advice. Not that I don't trust my doctor's advice but also would like to get the facts from people that live with it day to day.> I've been having issues with leaking around my cath and instead of continuing to go up sizes, I've decided to go with the supra pubic until I drop some weight in my belly and get the stoma redone so I can cath through my abdomen. > Anyhow here is the deal. My bladder doesn't hold urine at all and the doctor suggested a sling but I am really worried it won't work and then I'm back in surgery to get my urethra tied off. What if any advice do you all have that have a supra pubic and how did you handle what to do about your urethra so it wouldn't leak urine?> Thanks in advance,> Stacy--- Why worry and get wrinkles, when you can smile and get dimples.
Re: [QUAD-L] suprapubic and sling
I was up to oxybutin 3 times a day and no good. I was intermit cathing when I was first paralyzed but because my bladder wasn't holding any fluid and the drugs weren't working, I went to an indwelling. The sling can be artificial or they use your own tissue and put a sling under your bladder somehow. I did read on it but not good at explaining it. What I didn't find was information on how it does with people paralyzed. All the info I found was on stress incontinence so why I am turning to you all. I have a choice of a sling or them closing off my urethra and not quite sure which way to go. I'm just really paranoid about leaking and also paranoid about them closing off my urethra although i would rather that than be wet. Stacy From: LJT To: Quad-list@eskimo.com; Stacy Harim Sent: Mon, February 1, 2010 9:26:53 PM Subject: Re: [QUAD-L] suprapubic and sling Stacy, I want to be sure I understand your situation correctly. Do you currently use an indwelling catheter and want to switch to a super pubic catheter? And what is this sling that you speak of? I have a super pubic catheter, and while I'm pretty new to the game (to being a quad) I'd like to help shed some light if I can. I've been very happy with mine. Also when they talk about your urethra are they talking about closing it off completely to eliminate its leaking entirely? Personally, and this is my own deal, I think I'd be a little scared to have them close it off entirely. I take detrol LA to control bladder spasms and therefore leaking. Please contact me if you have any questions. But again like I say I'm pretty new to this, so I don't know how much help I can be. Lucinda C-4,5 complete July 31, '05 Mpls., MN --- On Mon, 2/1/10, Stacy Harim wrote: >From: Stacy Harim >Subject: Re: [QUAD-L] suprapubic and sling >To: wheelch...@aol.com, Quad-list@eskimo.com >Date: Monday, February 1, 2010, 4:07 PM > > >We increased the size but > can't only do that so many times. I just would like to be informed with info > from people that live with it day to day than just from a doctor. I trust > him but would like to know if anyone with a sling and a flaccid bladder have > any troubles with leaking or whatever may be a problem. I feel it's > important to be informed. > >Stacy > > > > From: "wheelch...@aol.com" >To: imwheelin1...@yahoo.com; > Quad-list@eskimo.com >Sent: Mon, February 1, 2010 7:28:28 AM >Subject: Re: [QUAD-L] suprapubic and sling > >Increasing the size of the cath might be the answer. Of course, there >could be a half dozen other tangible reasons too. You and your doctor have >access to your medical records, we don't. Offering suggestions without >this valuable information is too risky at best. >It can be even more critical when you don't trust your medical >doctor. >Best Wishes > >In a message dated 1/31/2010 10:27:04 P.M. Central Standard Time, >imwheelin1...@yahoo.com writes: >Hey all, >> >>I've been away for a while but need some advice. >> Not that I don't trust my doctor's advice but also would like to get the >> facts >> from people that live with it day to day. >> >>I've been having issues with >> leaking around my cath and instead of continuing to go up sizes, I've >> decided >> to go with the supra pubic until I drop some weight in my belly and get the >> stoma redone so I can cath through my abdomen. >> >>Anyhow here is >> the deal. My bladder doesn't hold urine at all and the doctor suggested >> a sling but I am really worried it won't work and then I'm back in surgery >> to >> get my urethra tied off. What if any advice do you all have that have a >> supra pubic and how did you handle what to do about your urethra so it >> wouldn't leak urine? >> >>Thanks in advance, >>Stacy >> >> >
Re: [QUAD-L] suprapubic and sling
Stacy, I want to be sure I understand your situation correctly. Do you currently use an indwelling catheter and want to switch to a super pubic catheter? And what is this sling that you speak of? I have a super pubic catheter, and while I'm pretty new to the game (to being a quad) I'd like to help shed some light if I can. I've been very happy with mine. Also when they talk about your urethra are they talking about closing it off completely to eliminate its leaking entirely? Personally, and this is my own deal, I think I'd be a little scared to have them close it off entirely. I take detrol LA to control bladder spasms and therefore leaking. Please contact me if you have any questions. But again like I say I'm pretty new to this, so I don't know how much help I can be. Lucinda C-4,5 complete July 31, '05 Mpls., MN --- On Mon, 2/1/10, Stacy Harim wrote: >From: Stacy Harim >Subject: Re: [QUAD-L] suprapubic and sling >To: wheelch...@aol.com, Quad-list@eskimo.com >Date: Monday, February 1, 2010, 4:07 PM > > >We increased the size but > can't only do that so many times. I just would like to be informed with info > from people that live with it day to day than just from a doctor. I trust > him but would like to know if anyone with a sling and a flaccid bladder have > any troubles with leaking or whatever may be a problem. I feel it's > important to be informed. > >Stacy > > > > From: "wheelch...@aol.com" >To: imwheelin1...@yahoo.com; > Quad-list@eskimo.com >Sent: Mon, February 1, 2010 7:28:28 AM >Subject: Re: [QUAD-L] suprapubic and sling > >Increasing the size of the cath might be the answer. Of course, there >could be a half dozen other tangible reasons too. You and your doctor have >access to your medical records, we don't. Offering suggestions without >this valuable information is too risky at best. >It can be even more critical when you don't trust your medical >doctor. >Best Wishes > >In a message dated 1/31/2010 10:27:04 P.M. Central Standard Time, >imwheelin1...@yahoo.com writes: >Hey all, >> >>I've been away for a while but need some advice. >> Not that I don't trust my doctor's advice but also would like to get the >> facts >> from people that live with it day to day. >> >>I've been having issues with >> leaking around my cath and instead of continuing to go up sizes, I've >> decided >> to go with the supra pubic until I drop some weight in my belly and get the >> stoma redone so I can cath through my abdomen. >> >>Anyhow here is >> the deal. My bladder doesn't hold urine at all and the doctor suggested >> a sling but I am really worried it won't work and then I'm back in surgery >> to >> get my urethra tied off. What if any advice do you all have that have a >> supra pubic and how did you handle what to do about your urethra so it >> wouldn't leak urine? >> >>Thanks in advance, >>Stacy >> >> >
Re: [QUAD-L] suprapubic and sling
We increased the size but can't only do that so many times. I just would like to be informed with info from people that live with it day to day than just from a doctor. I trust him but would like to know if anyone with a sling and a flaccid bladder have any troubles with leaking or whatever may be a problem. I feel it's important to be informed. Stacy From: "wheelch...@aol.com" To: imwheelin1...@yahoo.com; Quad-list@eskimo.com Sent: Mon, February 1, 2010 7:28:28 AM Subject: Re: [QUAD-L] suprapubic and sling Increasing the size of the cath might be the answer. Of course, there could be a half dozen other tangible reasons too. You and your doctor have access to your medical records, we don't. Offering suggestions without this valuable information is too risky at best. It can be even more critical when you don't trust your medical doctor. Best Wishes In a message dated 1/31/2010 10:27:04 P.M. Central Standard Time, imwheelin1...@yahoo.com writes: Hey all, > >I've been away for a while but need some advice. > Not that I don't trust my doctor's advice but also would like to get the > facts > from people that live with it day to day. > >I've been having issues with > leaking around my cath and instead of continuing to go up sizes, I've > decided > to go with the supra pubic until I drop some weight in my belly and get the > stoma redone so I can cath through my abdomen. > >Anyhow here is > the deal. My bladder doesn't hold urine at all and the doctor suggested > a sling but I am really worried it won't work and then I'm back in surgery > to > get my urethra tied off. What if any advice do you all have that have a > supra pubic and how did you handle what to do about your urethra so it > wouldn't leak urine? > >Thanks in advance, >Stacy > >
Re: [QUAD-L] suprapubic and sling
Increasing the size of the cath might be the answer. Of course, there could be a half dozen other tangible reasons too. You and your doctor have access to your medical records, we don't. Offering suggestions without this valuable information is too risky at best. It can be even more critical when you don't trust your medical doctor. Best Wishes In a message dated 1/31/2010 10:27:04 P.M. Central Standard Time, imwheelin1...@yahoo.com writes: Hey all, I've been away for a while but need some advice. Not that I don't trust my doctor's advice but also would like to get the facts from people that live with it day to day. I've been having issues with leaking around my cath and instead of continuing to go up sizes, I've decided to go with the supra pubic until I drop some weight in my belly and get the stoma redone so I can cath through my abdomen. Anyhow here is the deal. My bladder doesn't hold urine at all and the doctor suggested a sling but I am really worried it won't work and then I'm back in surgery to get my urethra tied off. What if any advice do you all have that have a supra pubic and how did you handle what to do about your urethra so it wouldn't leak urine? Thanks in advance, Stacy
[QUAD-L] suprapubic and sling
Hey all, I've been away for a while but need some advice. Not that I don't trust my doctor's advice but also would like to get the facts from people that live with it day to day. I've been having issues with leaking around my cath and instead of continuing to go up sizes, I've decided to go with the supra pubic until I drop some weight in my belly and get the stoma redone so I can cath through my abdomen. Anyhow here is the deal. My bladder doesn't hold urine at all and the doctor suggested a sling but I am really worried it won't work and then I'm back in surgery to get my urethra tied off. What if any advice do you all have that have a supra pubic and how did you handle what to do about your urethra so it wouldn't leak urine? Thanks in advance, Stacy
