Fw: [QUAD-L] Pain need input

[Candle]

I had been referred to a pain specialist. He wanted to do the injections 
instead of prescribing meds. I couldn't do the injections because we had tried 
before and I reacted badly, trouble breathing and almost passing out. That 
doctor stopped the procedure so there was no way I was going through that again 
with a new doctor. Then the new guy said that his options were the shots or 
surgery. ??? What the ... I told him my pain was managed fine on meds so I 
didn't see a reason for anything invasive. He wouldn't prescribe the meds. I 
even had another doctor say the pain management specialist shouldn't have tried 
to bully me into anything. 
 
So I went back to my doctor of physical medicine. He wasn't in the network that 
I was in at the time and I had to pay out of pocket. Now he is in the network 
and it is easier on me financially. I go to him twice a year for my pills. I 
don't take them every day and I worry about the meds losing their effectiveness 
so I use a lot of motrin and safe the pain meds for the stabbing pain. So the 
dull aches often keep me stuck in bed, but that is the trade off for me and I'm 
willing to deal with it at this time. So far I am lucky that I don't need a lot 
of pain meds.
 
Candle 
"Scars remind of us where we’ve been, they don’t have to dictate where we are 
going." 
~David Rossi of Criminal Minds
***
 
- Forwarded Message -
From: RONALD L PRACHT 
To: quad-list@eskimo.com 
Sent: Thursday, August 16, 2012 1:06 PM
Subject: Re: [QUAD-L] Pain need input
  

Hi guys, 

 Im a c7 quad completec for 15 years since Jan 16 98. Ive been pretty 
active swimming biking and such but started having considerable pain that 
altered my life in 2004. I was diagnosed with a syrinx at c7 which is where my 
initial injury was. I started on lorezapam 1 mg 3 times a day and 50 mg 
amytriptyline at night. This is barely helping me Imalso taking an oxy a day 
from when my appendix burst last year but my supply is going to run out. My 
primary physician wont give me any pain pills. My original rehab doc or 
physiatrist is in another network. What should I do to get the proper help with 
my pain? Should I seek outanother physiatrist?or should I get referred to pain 
management? Who will listen to a quad in pain that needs help?  




   
 
 Ron c7 




 From: "diannal...@aol.com" 
To: ddh...@sbcglobal.net; quad-list@eskimo.com
Sent: Wed, August 15, 2012 7:17:46 PM
Subject: Re: [QUAD-L] Pain

I take Tramadol that would put House to shame! I also take Percocet & Valium. 
I've been on these meds for the last 15 yrs, (21 yrs post). They take the edge 
off then I take more then I fight severe constipation, Vicious circle. 
Dianna
 
I have been disabled for 31 yrs. I have only been in pain for about a year. It 
is in my neck, upper back and shooting into my left arm. I have tried 
chiropractic adjustments but he doesn't want to make me worse so he actually 
told me that I should stop.  I had a cortisone shot in my neck but it did not 
help. So I have tried naproxin, tramadol and vicodin. The vicodin is the only 
medication that helps. I don't want to take it for the rest of my life because 
I know it isn't safe.  My question is what do all  of you do for pain?  Thanks.
>
>



-Original Message-
From: Danny Hearn 
To: John S. ; jume ; quad-list 

Sent: Wed, Aug 15, 2012 2:28 pm
Subject: Re: [QUAD-L] Pain


John, my doc said it was best for me to keep the pain med in my system--so 
I take oxy every day--Do you too?? If I don't take any my spasms and pain gets 
bad.  Thanks, Dan H.
 




 From: John S. 
To: "jume9...@comcast.net" ; "quad-list@eskimo.com" 

Sent: Wed, August 15, 2012 1:20:58 PM
Subject: Re: [QUAD-L] Pain


I take the damn vicodin. I also take time release oxy's and valium. I dont get 
a buzz from it but I dont feel so much joint pain. 
BW, 
john 
 


From: "jume9...@comcast.net" 
To: quad-list@eskimo.com 
Sent: Wednesday, August 15, 2012 11:55 AM
Subject: [QUAD-L] Pain


 
Hi all.

I haven't been on this list that long, I was on it a long time ago but I 
haven't been up to date until about a month ago. So I have missed any 
discussions about dealing with chronic pain.

I have been disabled for 31 yrs. I have only been in pain for about a year. It 
is in my neck, upper back and shooting into my left arm. I have tried 
chiropractic adjustments but he doesn't want to make me worse so he actually 
told me that I should stop.  I had a cortisone shot in my neck but it did not 
help. So I have tried naproxin, tramadol and vicodin. The vicodin is the only 
medication that helps.

FW: [QUAD-L] pain

[Merrill]

Correction on my intake is 75 mg morphine time release every 12 or so hours
and 2 Percasets every 8 or so hours to cut through pan

 

Merrill

C5

 

  _  

From: Merrill [mailto:merril...@cox.net] 
Sent: Tuesday, February 10, 2009 11:17 AM
To: quad-list@eskimo.com
Subject: FW: [QUAD-L] pain

 

Unfortonatly cutting off the limb will not cut the pain off.  My attempt is
with 75g time released morphine for long term.  Two percasetes to cut though
pain when needed.

 

Merrill

C5

 

  _  

From: william Ray [mailto:ray1...@msn.com] 
Sent: Sunday, February 08, 2009 1:47 PM
To: quad-list
Subject: [QUAD-L] pain

 

I am a C 4 quadriplegic, nine years post.

 

I am experiencing severe pain in each of my hands which are at the extremity
of my sensitivity to touch.
I have had this problem for many years however, it is getting more severe.

 

I expect many of you have experienced the same condition.  Have any of you
gotten any relief from medication?

 

I think I would be better off if both hands were amputated.  I understand
this is extreme but I am desperate.

 

William Ray

FW: [QUAD-L] pain

[Merrill]

Unfortonatly cutting off the limb will not cut the pain off.  My attempt is
with 75g time released morphine for long term.  Two percasetes to cut though
pain when needed.

 

Merrill

C5

 

  _  

From: william Ray [mailto:ray1...@msn.com] 
Sent: Sunday, February 08, 2009 1:47 PM
To: quad-list
Subject: [QUAD-L] pain

 

I am a C 4 quadriplegic, nine years post.

 

I am experiencing severe pain in each of my hands which are at the extremity
of my sensitivity to touch.
I have had this problem for many years however, it is getting more severe.

 

I expect many of you have experienced the same condition.  Have any of you
gotten any relief from medication?

 

I think I would be better off if both hands were amputated.  I understand
this is extreme but I am desperate.

 

William Ray

Re: Fw: [QUAD-L] Pain

[Quadius]

I have ran into this problem a few times.  One time I ended up in the
hospital because I drank too much water when I was overheated at a buccaneer
football game.

That's one of the main reasons why I limit my fluid intake during my day to
2 1/2 liters.  I have low sodium and potassium so I take supplements and try
to add as much salt to my diet as I can stand.

For those of you about to ask, I have been checked for diabetes with
negative results.  I just have an insatiable appetite for fluids, especially
when it's warm.
My daily intake is usually around 4 1/2 liters to 5 L, but 5 L is my
maximum.
Quadius


On 5/20/08, Lori Michaelson <[EMAIL PROTECTED]> wrote:
>
>
> I have ALWAYS had a big drink jug full of water set on a table I roll under
> with the straw bent right at mouth level.  Right now I am using a 64 ounce
> drink jug but I have smaller ones and bigger ones.  64 ounces is a great
> deal (or amount) of water and it lasts me all day.
>
> At one time I thought that no one could drink too much water without any
> problems.  I was wrong.  One year when I was having some blood tests done...
> my sodium level was down showing that I was washing out too many of the
> electrolytes in my body.  My doctor just suggested that I cut down a little
> bit on my water intake.  I was flushing out too many electrolytes that one's
> body needs.  If someone has problems with electrolyte balance... that can be
> big-time trouble.
>
> Lori Michaelson
> Age - 43
> C4/5 complete quad, 28 years post
> Tucson, AZ
>
>
> On Sun, May 18, 2008 at 3:08 PM, andrea murray <[EMAIL PROTECTED]>
> wrote:
>
>>
>> I have a big problem!! For some Godly thing my in home care won't give me
>> a noon visit. So I go all day with one 20 ouncz glass of water. So my
>> bladder does not get a good cleaning out. What can I do?
>>
>> Wheelchair  Warrior
>> --- On *Sun, 5/18/08, Merrill <[EMAIL PROTECTED]>* wrote:
>>
>> From: Merrill <[EMAIL PROTECTED]>
>> Subject: [QUAD-L] Pain
>> To: quad-list@eskimo.com
>> Date: Sunday, May 18, 2008, 2:36 PM
>>
>>  I've recently had a revelation Re: PAIN.  The cleaner my bladder, the
>> less systemic pain.  Not an advertisement but daily UTI Clear with plenty of
>> water has huge benefits to me.  Granted the bladder always has some
>> bacteria.
>>
>>
>>
>> Merrill
>>
>> C 5, 18 Years
>>
>>
>>
>
>
> --
> Lori
> C4/5 complete quad, 27 years post
> Tucson, AZ

FW: [QUAD-L] pain pump

[Merrill]

My pain is regulated by my water intake.  I also use "UTI CLEAR" daily.
Much reduced pain & no UTIs.

Merrill

 

  _  

From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Wednesday, May 21, 2008 10:31 AM
To: [EMAIL PROTECTED]; quad-list@eskimo.com
Subject: Re: [QUAD-L] pain pump

 

Corie,

 

It sounds as though we've been down the same path.  I've tried all the meds
that you've mentioned, with all the same results.  I haven't had any pain
medication put into my pump since I've had it.  I will inquire about the
Prialt.  I've read up on it, and it sounds pretty scary, but so did some of
the other medicines that I've taken.

 

My Baclofen pump works very well for controlling the spasticity, but it will
be an bonus, if I can get pain medication put into my pump that actually
helps the pain.  Thanks for this information.  I will talk to my doctor
about it. 

 

Naomi
C4-incomplete, quadriplegic since July 2005
due to Transverse Myelitis





  _  

Get trade secrets for amazing burgers. Watch

"Cooking with Tyler Florence" on AOL Food.

Re: Fw: [QUAD-L] Pain

[Lori Michaelson]

I have ALWAYS had a big drink jug full of water set on a table I roll under
with the straw bent right at mouth level.  Right now I am using a 64 ounce
drink jug but I have smaller ones and bigger ones.  64 ounces is a great
deal (or amount) of water and it lasts me all day.

At one time I thought that no one could drink too much water without any
problems.  I was wrong.  One year when I was having some blood tests done...
my sodium level was down showing that I was washing out too many of the
electrolytes in my body.  My doctor just suggested that I cut down a little
bit on my water intake.  I was flushing out too many electrolytes that one's
body needs.  If someone has problems with electrolyte balance... that can be
big-time trouble.

Lori Michaelson
Age - 43
C4/5 complete quad, 28 years post
Tucson, AZ


On Sun, May 18, 2008 at 3:08 PM, andrea murray <[EMAIL PROTECTED]>
wrote:

>
> I have a big problem!! For some Godly thing my in home care won't give me a
> noon visit. So I go all day with one 20 ouncz glass of water. So my bladder
> does not get a good cleaning out. What can I do?
>
> Wheelchair  Warrior
> --- On *Sun, 5/18/08, Merrill <[EMAIL PROTECTED]>* wrote:
>
> From: Merrill <[EMAIL PROTECTED]>
> Subject: [QUAD-L] Pain
> To: quad-list@eskimo.com
> Date: Sunday, May 18, 2008, 2:36 PM
>
>  I've recently had a revelation Re: PAIN.  The cleaner my bladder, the
> less systemic pain.  Not an advertisement but daily UTI Clear with plenty of
> water has huge benefits to me.  Granted the bladder always has some
> bacteria.
>
>
>
> Merrill
>
> C 5, 18 Years
>
>
>


-- 
Lori
C4/5 complete quad, 27 years post
Tucson, AZ

RE: Fw: [QUAD-L] Pain

[Merrill]

Look into auto leg bag openers.  The VA purchased mine for $300. but I
bought the first myself.  I am a C5 but I think you could have an OT fit one
for sip & puff.  Just find a private place on grass and empty.

 

Merrill

 

  _  

From: Stacy Harim [mailto:[EMAIL PROTECTED] 
Sent: Tuesday, May 20, 2008 10:42 AM
To: [EMAIL PROTECTED]; Quadius
Cc: quad-list@eskimo.com
Subject: Re: Fw: [QUAD-L] Pain

 

If I dont go anywhere, I wear my overnight bag all day.  I just feed it
through my clothes so it comes out at the bottom and hook it to the handle
on my wheelchair cushion.

 

Stacy

- Original Message 
From: andrea murray <[EMAIL PROTECTED]>
To: Quadius <[EMAIL PROTECTED]>
Cc: quad-list@eskimo.com
Sent: Tuesday, May 20, 2008 12:09:25 PM
Subject: Re: Fw: [QUAD-L] Pain



I do not have a problem drinking but, I don't have anyone to empty my cath
bag. I'm afraid to drink because my cath bag will fell up before someone
comes in the evening.

Wheelchair Warrior
--- On Mon, 5/19/08, Quadius <[EMAIL PROTECTED]> wrote:

From: Quadius <[EMAIL PROTECTED]>
Subject: Re: Fw: [QUAD-L] Pain
To: [EMAIL PROTECTED]
Cc: quad-list@eskimo.com
Date: Monday, May 19, 2008, 8:54 PM

Do you have a problem drinking or is it getting your urine emptied?



On 5/18/08, andrea murray <[EMAIL PROTECTED]> wrote: 



I have a big problem!! For some Godly thing my in home care won't give me a
noon visit. So I go all day with one 20 ouncz glass of water. So my bladder
does not get a good cleaning out. What can I do?

Wheelchair  Warrior
--- On Sun, 5/18/08, Merrill <[EMAIL PROTECTED]> wrote:

From: Merrill <[EMAIL PROTECTED]>
Subject: [QUAD-L] Pain
To: quad-list@eskimo.com
Date: Sunday, May 18, 2008, 2:36 PM

I've recently had a revelation Re: PAIN.  The cleaner my bladder, the less
systemic pain.  Not an advertisement but daily UTI Clear with plenty of
water has huge benefits to me.  Granted the bladder always has some
bacteria.

 

Merrill

C 5, 18 Years

 

 

 

 

Re: Fw: [QUAD-L] Pain

[Stacy Harim]

If I dont go anywhere, I wear my overnight bag all day.  I just feed it through 
my clothes so it comes out at the bottom and hook it to the handle on my 
wheelchair cushion.
Stacy


- Original Message 
From: andrea murray <[EMAIL PROTECTED]>
To: Quadius <[EMAIL PROTECTED]>
Cc: quad-list@eskimo.com
Sent: Tuesday, May 20, 2008 12:09:25 PM
Subject: Re: Fw: [QUAD-L] Pain



I do not have a problem drinking but, I don't have anyone to empty my cath bag. 
I'm afraid to drink because my cath bag will fell up before someone comes in 
the evening.
Wheelchair Warrior
--- On Mon, 5/19/08, Quadius <[EMAIL PROTECTED]> wrote:

From: Quadius <[EMAIL PROTECTED]>
Subject: Re: Fw: [QUAD-L] Pain
To: [EMAIL PROTECTED]
Cc: quad-list@eskimo.com
Date: Monday, May 19, 2008, 8:54 PM


Do you have a problem drinking or is it getting your urine emptied?



On 5/18/08, andrea murray <[EMAIL PROTECTED]> wrote: 

I have a big problem!! For some Godly thing my in home care won't give me a 
noon visit. So I go all day with one 20 ouncz glass of water. So my bladder 
does not get a good cleaning out. What can I do?
Wheelchair  Warrior
--- On Sun, 5/18/08, Merrill <[EMAIL PROTECTED]> wrote:

From: Merrill <[EMAIL PROTECTED]>
Subject: [QUAD-L] Pain
To: quad-list@eskimo.com
Date: Sunday, May 18, 2008, 2:36 PM


I've recently had a revelation Re: PAIN.  The cleaner my bladder, the less 
systemic pain.  Not an advertisement but daily UTI Clear with plenty of water 
has huge benefits to me.  Granted the bladder always has some bacteria.
 
Merrill
C 5, 18 Years 


  

RE: Fw: [QUAD-L] Pain

[Roy Abell]

I found a solution to this problem.  I use a much larger bed bag with an
additional strap over my knee.  It works great. Roy Abell

 

From: andrea murray [mailto:[EMAIL PROTECTED] 
Sent: Tuesday, May 20, 2008 12:09 PM
To: Quadius
Cc: quad-list@eskimo.com
Subject: Re: Fw: [QUAD-L] Pain

 



I do not have a problem drinking but, I don't have anyone to empty my cath
bag. I'm afraid to drink because my cath bag will fell up before someone
comes in the evening.

Wheelchair Warrior
--- On Mon, 5/19/08, Quadius <[EMAIL PROTECTED]> wrote:

From: Quadius <[EMAIL PROTECTED]>
Subject: Re: Fw: [QUAD-L] Pain
To: [EMAIL PROTECTED]
Cc: quad-list@eskimo.com
Date: Monday, May 19, 2008, 8:54 PM

Do you have a problem drinking or is it getting your urine emptied?



On 5/18/08, andrea murray <[EMAIL PROTECTED]> wrote: 



I have a big problem!! For some Godly thing my in home care won't give me a
noon visit. So I go all day with one 20 ouncz glass of water. So my bladder
does not get a good cleaning out. What can I do?

Wheelchair  Warrior
--- On Sun, 5/18/08, Merrill <[EMAIL PROTECTED]> wrote:

From: Merrill <[EMAIL PROTECTED]>
Subject: [QUAD-L] Pain
To: quad-list@eskimo.com
Date: Sunday, May 18, 2008, 2:36 PM

I've recently had a revelation Re: PAIN.  The cleaner my bladder, the less
systemic pain.  Not an advertisement but daily UTI Clear with plenty of
water has huge benefits to me.  Granted the bladder always has some
bacteria.

 

Merrill

C 5, 18 Years

 

 

Re: Fw: [QUAD-L] Pain

[andrea murray]

I do not have a problem drinking but, I don't have anyone to empty my cath bag. I'm afraid to drink because my cath bag will fell up before someone comes in the evening.
Wheelchair Warrior--- On Mon, 5/19/08, Quadius <[EMAIL PROTECTED]> wrote:
From: Quadius <[EMAIL PROTECTED]>Subject: Re: Fw: [QUAD-L] PainTo: [EMAIL PROTECTED]Cc: quad-list@eskimo.comDate: Monday, May 19, 2008, 8:54 PM
Do you have a problem drinking or is it getting your urine emptied?
On 5/18/08, andrea murray <[EMAIL PROTECTED]> wrote: 





I have a big problem!! For some Godly thing my in home care won't give me a noon visit. So I go all day with one 20 ouncz glass of water. So my bladder does not get a good cleaning out. What can I do?
Wheelchair  Warrior--- On Sun, 5/18/08, Merrill <[EMAIL PROTECTED]> wrote:
From: Merrill <[EMAIL PROTECTED]>Subject: [QUAD-L] PainTo: quad-list@eskimo.comDate: Sunday, May 18, 2008, 2:36 PM


I've recently had a revelation Re: PAIN.  The cleaner my bladder, the less systemic pain.  Not an advertisement but daily UTI Clear with plenty of water has huge benefits to me.  Granted the bladder always has some bacteria.
 
Merrill
C 5, 18 Years

  

Re: Fw: [QUAD-L] Pain

[Quadius]

Do you have a problem drinking or is it getting your urine emptied?


On 5/18/08, andrea murray <[EMAIL PROTECTED]> wrote:
>
>
> I have a big problem!! For some Godly thing my in home care won't give me a
> noon visit. So I go all day with one 20 ouncz glass of water. So my bladder
> does not get a good cleaning out. What can I do?
>
> Wheelchair  Warrior
> --- On *Sun, 5/18/08, Merrill <[EMAIL PROTECTED]>* wrote:
>
> From: Merrill <[EMAIL PROTECTED]>
> Subject: [QUAD-L] Pain
> To: quad-list@eskimo.com
> Date: Sunday, May 18, 2008, 2:36 PM
>
>  I've recently had a revelation Re: PAIN.  The cleaner my bladder, the
> less systemic pain.  Not an advertisement but daily UTI Clear with plenty of
> water has huge benefits to me.  Granted the bladder always has some
> bacteria.
>
>
>
> Merrill
>
> C 5, 18 Years
>
>
>

Re: Fw: [QUAD-L] Pain

[MikeyBird3]

Get a piece of aquarium air tubing and put it in a thermos picnic jug of  
water.  Fasten the other end near your mouth.  You can drink all you  want.
 
 
In a message dated 5/18/2008 6:08:24 P.M. Eastern Daylight Time,  
[EMAIL PROTECTED] writes:

I go all day with one 20 ouncz  glass of water. So my bladder does not get a 
good cleaning out. What can I do?   

Bill
C6 Incomplete since 7/20/68
Age 57
Leesburg,  FL
Very funny, Scotty. Now beam up my  clothes.





**Wondering what's for Dinner Tonight? Get new twists on family 
favorites at AOL Food.  
(http://food.aol.com/dinner-tonight?NCID=aolfod000301)

Re: Fw: [QUAD-L] Pain

[Eric W Rudd]

were u talking about this or needing to wiz if u drink more?  4 the latter i 
use this http://www.wheelchairs.com/legbag2.htm

Eric W Rudd
[EMAIL PROTECTED]

  - Original Message - 
  From: [EMAIL PROTECTED] 
  To: [EMAIL PROTECTED] ; quad-list@eskimo.com 
  Sent: Sunday, May 18, 2008 5:31 PM
  Subject: Re: Fw: [QUAD-L] Pain


  Good afternoon

  I use one of those Camelback water hydration systems.  I clip the hose to my 
sheet if I'm in bed and to my chest strap when I'm in my chair and it works 
great, whenever I need water I just work the hose to my mouth. You can buy them 
in any bicycle store or online.
  Camelbak Hydration Packs 

  Take care and play nice Tammie Lou
  C6 complete quadriplegic
  13 years post
  chippertue.com
  Chippertue's World 
  MySpace
  www.myspace.com/chippertue 

  There is a difference between sympathy and empathy, sympathy is feeling for 
an empathy is feeling with.

Re: Fw: [QUAD-L] Pain

[ChippyHeart]

Good afternoon
 
I use one of those Camelback water hydration systems.  I clip the hose  to my 
sheet if I'm in bed and to my chest strap when I'm in my chair and it  works 
great, whenever I need water I just work the hose to my mouth. You can buy  
them in any bicycle store or online.
_Camelbak  Hydration Packs_ (http://www.travelcountry.com/shop/camelbak)  
 
Take care and play nice Tammie Lou
C6 complete quadriplegic
13  years post
chippertue.com
_Chippertue's World_ (http://www.chippertue.com/)   
MySpace
_www.myspace.com/chippertue_ 
(http://profile.myspace.com/index.cfm?fuseaction=user.viewprofile&friendid=21932223)
  

There is a difference between sympathy and  empathy, sympathy is feeling for 
an empathy is feeling with.
 

 
In a message dated 5/18/2008 3:08:24 P.M. Pacific Daylight Time,  
[EMAIL PROTECTED] writes:

   

I have a big  problem!! For some Godly thing my in home care won't give me a 
noon  visit. So I go all day with one 20 ouncz glass of water. So my bladder  
does not get a good cleaning out. What can I do? 
Wheelchair  Warrior
--- On  Sun, 5/18/08, Merrill <[EMAIL PROTECTED]>  wrote:

From:  Merrill <[EMAIL PROTECTED]>
Subject: [QUAD-L] Pain
To:  quad-list@eskimo.com
Date: Sunday, May 18, 2008, 2:36 PM

  
 
I’ve  recently had a revelation Re: PAIN.  The cleaner my bladder, the  less 
systemic pain.  Not an advertisement but daily UTI Clear  with plenty of water 
has huge benefits to me.  Granted the  bladder always has some bacteria. 
Merrill 
C 5, 18  Years









**Wondering what's for Dinner Tonight? Get new twists on family 
favorites at AOL Food.  
(http://food.aol.com/dinner-tonight?NCID=aolfod000301)

Fw: [QUAD-L] Pain

[andrea murray]

I have a big problem!! For some Godly thing my in home care won't give me a noon visit. So I go all day with one 20 ouncz glass of water. So my bladder does not get a good cleaning out. What can I do?
Wheelchair  Warrior--- On Sun, 5/18/08, Merrill <[EMAIL PROTECTED]> wrote:
From: Merrill <[EMAIL PROTECTED]>Subject: [QUAD-L] PainTo: quad-list@eskimo.comDate: Sunday, May 18, 2008, 2:36 PM




I’ve recently had a revelation Re: PAIN.  The cleaner my bladder, the less systemic pain.  Not an advertisement but daily UTI Clear with plenty of water has huge benefits to me.  Granted the bladder always has some bacteria.
 
Merrill
C 5, 18 Years

Re: FW: [QUAD-L] PAIN

[LTeasley]

Merrill,
  Redness usually indicates an infection of the area. Do get it checked out 
ASAP.
  Lucinda
  

William Willis <[EMAIL PROTECTED]> wrote:
  .hmmessage P  {  margin:0px;  padding:0px  }  body.hmmessage  {  
FONT-SIZE: 10pt;  FONT-FAMILY:Tahoma  }Merrill, you should have that 
checked immediately if not sooner.


-
  From: [EMAIL PROTECTED]
To: quad-list@eskimo.com
Subject: FW: [QUAD-L] PAIN
Date: Thu, 17 Apr 2008 10:10:33 -0700

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@page Section1  {size:8.5in 11.0in;}  .ExternalClass div.EC_Section1  
{page:Section1;}  If I do not hold my arm up, a finger becomes red with 
a narrowing at the hand which then is a thin red line as if a vane.  Does that 
sound suspicious?  I have a doc appointment in a month but maybe I should go to 
Urgent Care.
   
  Merrill
   

-
  
  From: NICHOLE ROHLING [mailto:[EMAIL PROTECTED] 
Sent: Thursday, April 17, 2008 9:50 AM
To: Lori Michaelson; QUADLIST
Subject: Re: [QUAD-L] PAIN

   
SOMETHING I LEARNED IS THERE IS A BLOOD TEST CALLED D-DIMER AND IF THE 
LEVEL IS ABOVE 445 (I THINK) IT INDICATES THEY NEED TO LOOK FOR  CLOT. MY LEVEL 
WAS 2226!

 

NICKI

 



Lori Michaelson <[EMAIL PROTECTED]> wrote:

  I had a DVT (deep vein clot/thrombosis) in 1995 that was encouraged by 
surgeries.  I was also very, very, very lucky to have survived it because I was 
telling doctors (my neurosurgeon and his staff hours away) my symptoms and they 
were ignoring them even though they were classic symptoms of a DVT!  Hitherto 
... I was not familiar with clots of any type so I was in the dark.  It was the 
Internet that saved my life essentially.

 

With what I described... they should have wanted to at the very least 
eliminate the possibility of a clot since I just had two surgeries with that 
doctor and that is a primary thing to worry about after surgery.  But 
noo... I thought it was probably just swelling and I should wear some of 
those tight hose.  QUACK, QUACK

 

I went around for about a month with my left lower leg very swollen and 
very hard.  I finally read an article on the net (I was very new to the 
Internet back then and only knew how to look things up) and one doctor in 
Washington state had an article about spinal cord injuries and folks with MS.  
A sentence said "If one leg is significantly larger than the other... it could 
indicate a clot."  All I knew was that "a clot" was not good but I had no idea 
that I had a DVT whereby all I had to do was move a certain way to have it move 
directly to my lungs to kill me.


The very next morning I called my primary care physician and I went to see him. 
 He looked at it and said "I don't know... I don't think it could be a clot but 
I will send you over to the hospital to have an ultrasound done."  Needless to 
say... I never left the hospital because it was a lengthy clot and I was in 
immediate danger.

 

DOCTORS!  QUACK, QUACK!

 

I think I'm on my 95th life because of so many negligent doctors.

 

Lori Michaelson

Age - 43

C4/5 complete quad, 28 years post

Tucson, AZ


 

On Sat, Apr 12, 2008 at 4:55 PM, NICHOLE ROHLING <[EMAIL PROTECTED]> wrote:
YES, CLOTS TAKE 4-6 WEEKS TO DISSOLVE SO I'M ON COUMADIN (?) TO THIN MY 
BLOOD. MY INR LEVEL NEEDS TO STAY BETWEEN 2.0 AND 3.0

 

MR DR SAID THEY DO HAVE MEDS TO BUST CLOTS BUT THE RISKS FOR ME OUTWEIGHED 
THE BENEFITS.

 

I'M JUST THANKFUL TO BE ALIVE.

NICKI

Quadius <[EMAIL PROTECTED]> wrote:

Thank goodness you made it through it.  They send you home with blood clots?
Quadius
On 4/12/08, NICHOLE ROHLING <[EMAIL PROTECTED]> wrote: 
I HAVEN'T READ ALL THE RESPONSES BUT IT WAS I HAD A DR AISEVERAL BLOOD 
CLOTS IN MY RIGHT LUNG.

 

I HAD DR APPT TUES AT 1PM BUT CALLED THE AMBULANCE AT 5AM.

 

THE ER DOC IMMEDIATELY ORDERED A CAT SCAN WHICH SHOWED SEVERAL CLOTS IN MY 
RIGHT LUNG AND A FEW IN MY LEFT. I WAS ADMITTED TO THE HOSPITAL AND MY DR HAD 
ULTRASOUND DONE ON MY LEGS AND SURE ENOUGH I HAD A CLOT IN MY LFT LEFT BEHIND 
MY KNEE - NO SWELLING REDNESS OR HEAT.

 

HE SAID THE SMALL CLOTS IN MY LUNGS WERE MOST 

FW: [QUAD-L] PAIN

[William Willis]

Merrill, you should have that checked immediately if not sooner.


From: [EMAIL PROTECTED]: [EMAIL PROTECTED]: FW: [QUAD-L] PAINDate: Thu, 17 Apr 
2008 10:10:33 -0700








If I do not hold my arm up, a finger becomes red with a narrowing at the hand 
which then is a thin red line as if a vane.  Does that sound suspicious?  I 
have a doc appointment in a month but maybe I should go to Urgent Care.
 
Merrill
 





From: NICHOLE ROHLING [mailto:[EMAIL PROTECTED] Sent: Thursday, April 17, 2008 
9:50 AMTo: Lori Michaelson; QUADLISTSubject: Re: [QUAD-L] PAIN
 

SOMETHING I LEARNED IS THERE IS A BLOOD TEST CALLED D-DIMER AND IF THE LEVEL IS 
ABOVE 445 (I THINK) IT INDICATES THEY NEED TO LOOK FOR  CLOT. MY LEVEL WAS 2226!

 

NICKI

 

 Lori Michaelson <[EMAIL PROTECTED]> wrote:


I had a DVT (deep vein clot/thrombosis) in 1995 that was encouraged by 
surgeries.  I was also very, very, very lucky to have survived it because I was 
telling doctors (my neurosurgeon and his staff hours away) my symptoms and they 
were ignoring them even though they were classic symptoms of a DVT!  Hitherto 
... I was not familiar with clots of any type so I was in the dark.  It was the 
Internet that saved my life essentially.

 

With what I described... they should have wanted to at the very least eliminate 
the possibility of a clot since I just had two surgeries with that doctor and 
that is a primary thing to worry about after surgery.  But noo... I thought 
it was probably just swelling and I should wear some of those tight hose.  
QUACK, QUACK

 

I went around for about a month with my left lower leg very swollen and very 
hard.  I finally read an article on the net (I was very new to the Internet 
back then and only knew how to look things up) and one doctor in Washington 
state had an article about spinal cord injuries and folks with MS.  A sentence 
said "If one leg is significantly larger than the other... it could indicate a 
clot."  All I knew was that "a clot" was not good but I had no idea that I had 
a DVT whereby all I had to do was move a certain way to have it move directly 
to my lungs to kill me.

The very next morning I called my primary care physician and I went to see him. 
 He looked at it and said "I don't know... I don't think it could be a clot but 
I will send you over to the hospital to have an ultrasound done."  Needless to 
say... I never left the hospital because it was a lengthy clot and I was in 
immediate danger.

 

DOCTORS!  QUACK, QUACK!

 

I think I'm on my 95th life because of so many negligent doctors.

 

Lori Michaelson

Age - 43

C4/5 complete quad, 28 years post

Tucson, AZ

 

On Sat, Apr 12, 2008 at 4:55 PM, NICHOLE ROHLING <[EMAIL PROTECTED]> wrote:

YES, CLOTS TAKE 4-6 WEEKS TO DISSOLVE SO I'M ON COUMADIN (?) TO THIN MY BLOOD. 
MY INR LEVEL NEEDS TO STAY BETWEEN 2.0 AND 3.0

 

MR DR SAID THEY DO HAVE MEDS TO BUST CLOTS BUT THE RISKS FOR ME OUTWEIGHED THE 
BENEFITS.

 

I'M JUST THANKFUL TO BE ALIVE.

NICKIQuadius <[EMAIL PROTECTED]> wrote:

Thank goodness you made it through it.  They send you home with blood 
clots?Quadius

On 4/12/08, NICHOLE ROHLING <[EMAIL PROTECTED]> wrote: 

I HAVEN'T READ ALL THE RESPONSES BUT IT WAS I HAD A DR AISEVERAL BLOOD CLOTS IN 
MY RIGHT LUNG.

 

I HAD DR APPT TUES AT 1PM BUT CALLED THE AMBULANCE AT 5AM.

 

THE ER DOC IMMEDIATELY ORDERED A CAT SCAN WHICH SHOWED SEVERAL CLOTS IN MY 
RIGHT LUNG AND A FEW IN MY LEFT. I WAS ADMITTED TO THE HOSPITAL AND MY DR HAD 
ULTRASOUND DONE ON MY LEGS AND SURE ENOUGH I HAD A CLOT IN MY LFT LEFT BEHIND 
MY KNEE - NO SWELLING REDNESS OR HEAT.

 

HE SAID THE SMALL CLOTS IN MY LUNGS WERE MOST LIKELY FLOATERS WHICH BROKE OFF 
OF THE MAIN CLOT.

 

I JUST GOT HOME AND AM FEELING REAL LUCKY TO BE ALIVE

 

NICKI

 


__Do You Yahoo!?Tired of spam? 
Yahoo! Mail has the best spam protection around http://mail.yahoo.com 

 

 

__Do You Yahoo!?Tired of spam? 
Yahoo! Mail has the best spam protection around http://mail.yahoo.com 
-- Lori C4/5 complete quad, 27 years postTucson, AZ 
 
  



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Re: FW: [QUAD-L] PAIN

[NICHOLE ROHLING]

IT SOUNDS ODD. I'D TRY TO GET INTO THE DR SOONER.
   
  NICKI

Merrill Burghardt <[EMAIL PROTECTED]> wrote:
v\:* {behavior:url(#default#VML);}  o\:* {behavior:url(#default#VML);}  
w\:* {behavior:url(#default#VML);}  .shape {behavior:url(#default#VML);}
st1\:*{behavior:url(#default#ieooui) }If I do not hold my arm 
up, a finger becomes red with a narrowing at the hand which then is a thin red 
line as if a vane.  Does that sound suspicious?  I have a doc appointment in a 
month but maybe I should go to Urgent Care.
   
  Merrill
   

-
  
  From: NICHOLE ROHLING [mailto:[EMAIL PROTECTED] 
Sent: Thursday, April 17, 2008 9:50 AM
To: Lori Michaelson; QUADLIST
Subject: Re: [QUAD-L] PAIN

   
SOMETHING I LEARNED IS THERE IS A BLOOD TEST CALLED D-DIMER AND IF THE 
LEVEL IS ABOVE 445 (I THINK) IT INDICATES THEY NEED TO LOOK FOR  CLOT. MY LEVEL 
WAS 2226!

 

NICKI

 



Lori Michaelson <[EMAIL PROTECTED]> wrote:

  I had a DVT (deep vein clot/thrombosis) in 1995 that was encouraged by 
surgeries.  I was also very, very, very lucky to have survived it because I was 
telling doctors (my neurosurgeon and his staff hours away) my symptoms and they 
were ignoring them even though they were classic symptoms of a DVT!  Hitherto 
... I was not familiar with clots of any type so I was in the dark.  It was the 
Internet that saved my life essentially.

 

With what I described... they should have wanted to at the very least 
eliminate the possibility of a clot since I just had two surgeries with that 
doctor and that is a primary thing to worry about after surgery.  But 
noo... I thought it was probably just swelling and I should wear some of 
those tight hose.  QUACK, QUACK

 

I went around for about a month with my left lower leg very swollen and 
very hard.  I finally read an article on the net (I was very new to the 
Internet back then and only knew how to look things up) and one doctor in 
Washington state had an article about spinal cord injuries and folks with MS.  
A sentence said "If one leg is significantly larger than the other... it could 
indicate a clot."  All I knew was that "a clot" was not good but I had no idea 
that I had a DVT whereby all I had to do was move a certain way to have it move 
directly to my lungs to kill me.


The very next morning I called my primary care physician and I went to see him. 
 He looked at it and said "I don't know... I don't think it could be a clot but 
I will send you over to the hospital to have an ultrasound done."  Needless to 
say... I never left the hospital because it was a lengthy clot and I was in 
immediate danger.

 

DOCTORS!  QUACK, QUACK!

 

I think I'm on my 95th life because of so many negligent doctors.

 

Lori Michaelson

Age - 43

C4/5 complete quad, 28 years post

Tucson, AZ


 

On Sat, Apr 12, 2008 at 4:55 PM, NICHOLE ROHLING <[EMAIL PROTECTED]> wrote:
YES, CLOTS TAKE 4-6 WEEKS TO DISSOLVE SO I'M ON COUMADIN (?) TO THIN MY 
BLOOD. MY INR LEVEL NEEDS TO STAY BETWEEN 2.0 AND 3.0

 

MR DR SAID THEY DO HAVE MEDS TO BUST CLOTS BUT THE RISKS FOR ME OUTWEIGHED 
THE BENEFITS.

 

I'M JUST THANKFUL TO BE ALIVE.

NICKI

Quadius <[EMAIL PROTECTED]> wrote:

Thank goodness you made it through it.  They send you home with blood clots?
Quadius
On 4/12/08, NICHOLE ROHLING <[EMAIL PROTECTED]> wrote: 
I HAVEN'T READ ALL THE RESPONSES BUT IT WAS I HAD A DR AISEVERAL BLOOD 
CLOTS IN MY RIGHT LUNG.

 

I HAD DR APPT TUES AT 1PM BUT CALLED THE AMBULANCE AT 5AM.

 

THE ER DOC IMMEDIATELY ORDERED A CAT SCAN WHICH SHOWED SEVERAL CLOTS IN MY 
RIGHT LUNG AND A FEW IN MY LEFT. I WAS ADMITTED TO THE HOSPITAL AND MY DR HAD 
ULTRASOUND DONE ON MY LEGS AND SURE ENOUGH I HAD A CLOT IN MY LFT LEFT BEHIND 
MY KNEE - NO SWELLING REDNESS OR HEAT.

 

HE SAID THE SMALL CLOTS IN MY LUNGS WERE MOST LIKELY FLOATERS WHICH BROKE 
OFF OF THE MAIN CLOT.

 

I JUST GOT HOME AND AM FEELING REAL LUCKY TO BE ALIVE

 

NICKI

 

  __
Do You Yahoo!?
Tired of spam? Yahoo! Mail has the best spam protection around 
http://mail.yahoo.com 



 

 
__
Do You Yahoo!?
Tired of spam? Yahoo! Mail has the best spam protection around 
http://mail.yahoo.com 



  


-- 
Lori 
C4/5 complete quad, 27 years post
Tucson, AZ 
   


-
  
  Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.




   
-
Be a better friend, newshound, and know-it-all with Yahoo! Mobile.  Try it now.

FW: [QUAD-L] PAIN

[Merrill Burghardt]

If I do not hold my arm up, a finger becomes red with a narrowing at the
hand which then is a thin red line as if a vane.  Does that sound
suspicious?  I have a doc appointment in a month but maybe I should go to
Urgent Care.

 

Merrill

 

  _  

From: NICHOLE ROHLING [mailto:[EMAIL PROTECTED] 
Sent: Thursday, April 17, 2008 9:50 AM
To: Lori Michaelson; QUADLIST
Subject: Re: [QUAD-L] PAIN

 

SOMETHING I LEARNED IS THERE IS A BLOOD TEST CALLED D-DIMER AND IF THE LEVEL
IS ABOVE 445 (I THINK) IT INDICATES THEY NEED TO LOOK FOR  CLOT. MY LEVEL
WAS 2226!

 

NICKI

 

 

Lori Michaelson <[EMAIL PROTECTED]> wrote:

I had a DVT (deep vein clot/thrombosis) in 1995 that was encouraged by
surgeries.  I was also very, very, very lucky to have survived it because I
was telling doctors (my neurosurgeon and his staff hours away) my symptoms
and they were ignoring them even though they were classic symptoms of a DVT!
Hitherto ... I was not familiar with clots of any type so I was in the dark.
It was the Internet that saved my life essentially.

 

With what I described... they should have wanted to at the very least
eliminate the possibility of a clot since I just had two surgeries with that
doctor and that is a primary thing to worry about after surgery.  But
noo... I thought it was probably just swelling and I should wear some of
those tight hose.  QUACK, QUACK

 

I went around for about a month with my left lower leg very swollen and very
hard.  I finally read an article on the net (I was very new to the Internet
back then and only knew how to look things up) and one doctor in Washington
state had an article about spinal cord injuries and folks with MS.  A
sentence said "If one leg is significantly larger than the other... it could
indicate a clot."  All I knew was that "a clot" was not good but I had no
idea that I had a DVT whereby all I had to do was move a certain way to have
it move directly to my lungs to kill me.


The very next morning I called my primary care physician and I went to see
him.  He looked at it and said "I don't know... I don't think it could be a
clot but I will send you over to the hospital to have an ultrasound done."
Needless to say... I never left the hospital because it was a lengthy clot
and I was in immediate danger.

 

DOCTORS!  QUACK, QUACK!

 

I think I'm on my 95th life because of so many negligent doctors.

 

Lori Michaelson

Age - 43

C4/5 complete quad, 28 years post

Tucson, AZ


 

On Sat, Apr 12, 2008 at 4:55 PM, NICHOLE ROHLING <[EMAIL PROTECTED]>
wrote:

YES, CLOTS TAKE 4-6 WEEKS TO DISSOLVE SO I'M ON COUMADIN (?) TO THIN MY
BLOOD. MY INR LEVEL NEEDS TO STAY BETWEEN 2.0 AND 3.0

 

MR DR SAID THEY DO HAVE MEDS TO BUST CLOTS BUT THE RISKS FOR ME OUTWEIGHED
THE BENEFITS.

 

I'M JUST THANKFUL TO BE ALIVE.

NICKI

Quadius <[EMAIL PROTECTED]> wrote:

Thank goodness you made it through it.  They send you home with blood clots?
Quadius

On 4/12/08, NICHOLE ROHLING <[EMAIL PROTECTED]> wrote: 

I HAVEN'T READ ALL THE RESPONSES BUT IT WAS I HAD A DR AISEVERAL BLOOD CLOTS
IN MY RIGHT LUNG.

 

I HAD DR APPT TUES AT 1PM BUT CALLED THE AMBULANCE AT 5AM.

 

THE ER DOC IMMEDIATELY ORDERED A CAT SCAN WHICH SHOWED SEVERAL CLOTS IN MY
RIGHT LUNG AND A FEW IN MY LEFT. I WAS ADMITTED TO THE HOSPITAL AND MY DR
HAD ULTRASOUND DONE ON MY LEGS AND SURE ENOUGH I HAD A CLOT IN MY LFT LEFT
BEHIND MY KNEE - NO SWELLING REDNESS OR HEAT.

 

HE SAID THE SMALL CLOTS IN MY LUNGS WERE MOST LIKELY FLOATERS WHICH BROKE
OFF OF THE MAIN CLOT.

 

I JUST GOT HOME AND AM FEELING REAL LUCKY TO BE ALIVE

 

NICKI

 

__
Do You Yahoo!?
Tired of spam? Yahoo! Mail has the best spam protection around 
http://mail.yahoo.com   

 

 

__
Do You Yahoo!?
Tired of spam? Yahoo! Mail has the best spam protection around 
http://mail.yahoo.com   




-- 
Lori 
C4/5 complete quad, 27 years post
Tucson, AZ 

 

  

  _  

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try
  it now.

FW: [QUAD-L] PAIN

[Merrill Burghardt]

>..and what was your original issue?

 

Merrill

 

  _  

From: Danny Hearn [mailto:[EMAIL PROTECTED] 
Sent: Saturday, April 12, 2008 5:36 PM
To: NICHOLE ROHLING; [EMAIL PROTECTED]; QUADLIST
Subject: Re: [QUAD-L] PAIN

 

Glad your back home, how did you know to go to the hospital? pain?  also be
careful if driving, while on blood thinner coumadin because my inlaw passed
out and had a bad car wreck while he was taking that about a year ago.
Dan H.

NICHOLE ROHLING <[EMAIL PROTECTED]> wrote: 

I HAVEN'T READ ALL THE RESPONSES BUT IT WAS I HAD A DR AISEVERAL BLOOD CLOTS
IN MY RIGHT LUNG.

 

I HAD DR APPT TUES AT 1PM BUT CALLED THE AMBULANCE AT 5AM.

 

THE ER DOC IMMEDIATELY ORDERED A CAT SCAN WHICH SHOWED SEVERAL CLOTS IN MY
RIGHT LUNG AND A FEW IN MY LEFT. I WAS ADMITTED TO THE HOSPITAL AND MY DR
HAD ULTRASOUND DONE ON MY LEGS AND SURE ENOUGH I HAD A CLOT IN MY LFT LEFT
BEHIND MY KNEE - NO SWELLING REDNESS OR HEAT.

 

HE SAID THE SMALL CLOTS IN MY LUNGS WERE MOST LIKELY FLOATERS WHICH BROKE
OFF OF THE MAIN CLOT.

 

I JUST GOT HOME AND AM FEELING REAL LUCKY TO BE ALIVE

 

NICKI

 

__
Do You Yahoo!?
Tired of spam? Yahoo! Mail has the best spam protection around 
http://mail.yahoo.com 

 

FW: [QUAD-L] PAIN

[William Willis]

Close call Nicki! Hang in there! Larry


Date: Sat, 12 Apr 2008 17:22:08 -0400From: [EMAIL PROTECTED]: [EMAIL 
PROTECTED]: Re: [QUAD-L] PAINCC: [EMAIL PROTECTED]; [EMAIL PROTECTED] goodness 
you made it through it.  They send you home with blood clots?Quadius
On 4/12/08, NICHOLE ROHLING <[EMAIL PROTECTED]> wrote: 

I HAVEN'T READ ALL THE RESPONSES BUT IT WAS I HAD A DR AISEVERAL BLOOD CLOTS IN 
MY RIGHT LUNG.
 
I HAD DR APPT TUES AT 1PM BUT CALLED THE AMBULANCE AT 5AM.
 
THE ER DOC IMMEDIATELY ORDERED A CAT SCAN WHICH SHOWED SEVERAL CLOTS IN MY 
RIGHT LUNG AND A FEW IN MY LEFT. I WAS ADMITTED TO THE HOSPITAL AND MY DR HAD 
ULTRASOUND DONE ON MY LEGS AND SURE ENOUGH I HAD A CLOT IN MY LFT LEFT BEHIND 
MY KNEE - NO SWELLING REDNESS OR HEAT.
 
HE SAID THE SMALL CLOTS IN MY LUNGS WERE MOST LIKELY FLOATERS WHICH BROKE OFF 
OF THE MAIN CLOT.
 
I JUST GOT HOME AND AM FEELING REAL LUCKY TO BE ALIVE
 
NICKI
 
__Do You Yahoo!?Tired of spam? 
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FW: [QUAD-L] PAIN

[Merrill Burghardt]

My off thing is after 20 minutes do I get cold, shiver, for five hours, then
I fall asleep.

 

  _  

From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Friday, April 11, 2008 4:23 AM
To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; quad-list@eskimo.com
Subject: Re: [QUAD-L] PAIN

 

I guess it is the quad thing to be freezing when you go to bed, as I am also
.
Dana





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FW: [QUAD-L] PAIN

[Merrill Burghardt]

My problems begin about 20 minutes after going to bed.  An hour of reclining
in the chair, or even just putting feet up before going to bed might lessen
the impact.

 

Merrill

 

  _  

From: John S. [mailto:[EMAIL PROTECTED] 
Sent: Tuesday, April 08, 2008 1:14 PM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] PAIN

 

Sure sounds like AD. Have you tried elevating your head and chest? Take
something for pain and blood pressure? wrap a towel around your head? Maybe,
sit on your commode a few minutes before getting in bed to release gas build
up?
Just a suggestion. Try pain meds before getting back into bed. Give it time
to work. The move into and out of the chair causes me a lot of pain I don't
actually feel. My body does, though.

john

- Original Message 
From: Merrill Burghardt <[EMAIL PROTECTED]>
To: quad-list@eskimo.com
Sent: Tuesday, April 8, 2008 2:42:10 PM
Subject: FW: [QUAD-L] PAIN

Forgot to mention.  Every night when I lie down my body seems fine for about
30 minutes.  Regardless how warm it is, I will be shivering while under a
mountain of blankets.  I will continue to shiver for several hours until
falling asleep around 4:00am.

 

I feel this might have something to do with urinating but no idea what as I
have a supra-pubic.  A similar period was experienced years ago but included
AD.  A deposit in my penis removed resolved this for years.

 

Merrill

 

  _  

From: Merrill Burghardt [mailto:[EMAIL PROTECTED] 
Sent: Tuesday, April 08, 2008 11:11 AM
To: quad-list@eskimo.com
Subject: FW: [QUAD-L] PAIN

 

Remember most quadriplegics urinate shortly after lying down.  The pressure
is also more intense, so a small blockage will be amplified.

 

Merrill

 

  _  

From: William Willis [mailto:[EMAIL PROTECTED] 
Sent: Monday, April 07, 2008 5:32 PM
To: quad-list@eskimo.com
Subject: FW: [QUAD-L] PAIN

 

That sounds like what I'm having only mine is across my abdomen. It keeps me
awake and eventually triggers AD. Can't find the cause and it is wearing me
down. It's not a uti.

  _  

Date: Mon, 7 Apr 2008 15:33:38 -0700
From: [EMAIL PROTECTED]
To: quad-list@eskimo.com
Subject: [QUAD-L] PAIN

hey gang

 

i started having spasms in right side sat night. each time i tried to take a
breath in i spasmed which caused a horrible sharp pain under right shoulder
blade. the pain became continuous and literally took my breath away.

 

i went to er yesterday am and they did nothing. imagine that! no lift,
couldn't or wouldn't transfer me - bunch of crap. sent me home w/ lortab and
flexeril. i have appt w/ dr tomorrow.

 

i wasn't dysreflexic so i'm really thrown off because i know something is
wrong. i'm asking for a head to toe check.

 

any ideas?

 

nicki 

 

 

  _  

You rock. That's why Blockbuster's offering you one month of Blockbuster
Total Access
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ext5.com> , No Cost.

 

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Going green? See the top 12 foods to eat organic.
<http://green.msn.com/galleries/photos/photos.aspx?gid=164&ocid=T003MSN51N16
53A> 

 

 

  _  

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<http://us.rd.yahoo.com/evt=47523/*http:/tc.deals.yahoo.com/tc/blockbuster/t
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FW: [QUAD-L] PAIN

[Merrill Burghardt]

Forgot to mention.  Every night when I lie down my body seems fine for about
30 minutes.  Regardless how warm it is, I will be shivering while under a
mountain of blankets.  I will continue to shiver for several hours until
falling asleep around 4:00am.

 

I feel this might have something to do with urinating but no idea what as I
have a supra-pubic.  A similar period was experienced years ago but included
AD.  A deposit in my penis removed resolved this for years.

 

Merrill

 

  _  

From: Merrill Burghardt [mailto:[EMAIL PROTECTED] 
Sent: Tuesday, April 08, 2008 11:11 AM
To: quad-list@eskimo.com
Subject: FW: [QUAD-L] PAIN

 

Remember most quadriplegics urinate shortly after lying down.  The pressure
is also more intense, so a small blockage will be amplified.

 

Merrill

 

  _  

From: William Willis [mailto:[EMAIL PROTECTED] 
Sent: Monday, April 07, 2008 5:32 PM
To: quad-list@eskimo.com
Subject: FW: [QUAD-L] PAIN

 

That sounds like what I'm having only mine is across my abdomen. It keeps me
awake and eventually triggers AD. Can't find the cause and it is wearing me
down. It's not a uti.

  _  

Date: Mon, 7 Apr 2008 15:33:38 -0700
From: [EMAIL PROTECTED]
To: quad-list@eskimo.com
Subject: [QUAD-L] PAIN

hey gang

 

i started having spasms in right side sat night. each time i tried to take a
breath in i spasmed which caused a horrible sharp pain under right shoulder
blade. the pain became continuous and literally took my breath away.

 

i went to er yesterday am and they did nothing. imagine that! no lift,
couldn't or wouldn't transfer me - bunch of crap. sent me home w/ lortab and
flexeril. i have appt w/ dr tomorrow.

 

i wasn't dysreflexic so i'm really thrown off because i know something is
wrong. i'm asking for a head to toe check.

 

any ideas?

 

nicki 

 

 

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ext5.com> , No Cost.

 

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FW: [QUAD-L] PAIN

[Merrill Burghardt]

Remember most quadriplegics urinate shortly after lying down.  The pressure
is also more intense, so a small blockage will be amplified.

 

Merrill

 

  _  

From: William Willis [mailto:[EMAIL PROTECTED] 
Sent: Monday, April 07, 2008 5:32 PM
To: quad-list@eskimo.com
Subject: FW: [QUAD-L] PAIN

 

That sounds like what I'm having only mine is across my abdomen. It keeps me
awake and eventually triggers AD. Can't find the cause and it is wearing me
down. It's not a uti.

  _  

Date: Mon, 7 Apr 2008 15:33:38 -0700
From: [EMAIL PROTECTED]
To: quad-list@eskimo.com
Subject: [QUAD-L] PAIN

hey gang

 

i started having spasms in right side sat night. each time i tried to take a
breath in i spasmed which caused a horrible sharp pain under right shoulder
blade. the pain became continuous and literally took my breath away.

 

i went to er yesterday am and they did nothing. imagine that! no lift,
couldn't or wouldn't transfer me - bunch of crap. sent me home w/ lortab and
flexeril. i have appt w/ dr tomorrow.

 

i wasn't dysreflexic so i'm really thrown off because i know something is
wrong. i'm asking for a head to toe check.

 

any ideas?

 

nicki 

 

 

  _  

You rock. That's why Blockbuster's offering you one month of Blockbuster
Total Access
<http://us.rd.yahoo.com/evt=47523/*http:/tc.deals.yahoo.com/tc/blockbuster/t
ext5.com> , No Cost.

 

  _  

Going green? See the top 12 foods to eat organic.
<http://green.msn.com/galleries/photos/photos.aspx?gid=164&ocid=T003MSN51N16
53A> 

Re: FW: [QUAD-L] PAIN

[Bobbie299]

 
For me, the pain that was described was mostly alleviated after my 
gallbladder was removed.
 
I also had my gallbladder removed AFTER I had a stroke and was unable to 
speak. After it was removed the stroke symptoms alleviated. That was insanely 
scary.
   PAY ATTENTION TO YOUR WEIRD PAIN, IT'S YOUR BODY TELLING YOU SOMETHING IS 
WRONG.
   


Bobbie Humphreys C-5,6.7 motocross jumping accident in 1973 at 17
Married to Sweet Pete Living in Parsippany, New Jersey



**Planning your summer road trip? Check out AOL Travel Guides.
  (http://travel.aol.com/travel-guide/united-states?ncid=aoltrv000316)

Re: FW: [QUAD-L] PAIN

[Tod E. Santee]

Dana For me, the pain that was described was mostly alleviated after my 
gallbladder was removed.

That said, I admit have other neurogenic pains plus something that "seems like" 
sciatica (IMO) in that it's a sharp, shooting, firey, burning pain from just 
below my hip all the way down my leg.  I take 900mg Neurontin plus 4mg 
hydromorphone, both 3x/day.  That's for the combo of other pains I get... not 
that related to the gallbladder.

Best!
--Tod

 [EMAIL PROTECTED] wrote: 
> So sorry Todd and Diana for your pain.
> I know I have had sharp pains  somewhere in my back and stomach before.
> Dana

Re: FW: [QUAD-L] PAIN

[DAANOO]

So sorry Todd and Diana for your pain.
I know I have had sharp pains  somewhere in my back and stomach before.
Dana



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Re: FW: [QUAD-L] PAIN

[DiannaL767]

In a message dated 4/7/2008 9:26:03 PM Eastern Daylight Time,  
[EMAIL PROTECTED] writes:

> i  started having spasms in right side sat night. each time i tried to take 
a  breath in i spasmed which caused a horrible sharp pain under right 
shoulder  blade. the pain became continuous and literally took my breath  away.
i get those in my mid to right belly. they do hurt and take your breath  
away. i've been checked for stones and i've been having them for about 5 yrs so 
 i 
chalk it up to spasms. it happens most when i'm transferred from chair to  
chair.
dianna


>  

 



**Planning your summer road trip? Check out AOL Travel Guides.
  (http://travel.aol.com/travel-guide/united-states?ncid=aoltrv000316)

Re: FW: [QUAD-L] PAIN

[Tod E. Santee]

Hi Nicole, "Mr. Willis" (I forget how you sign)

Have either of you been chcked fo gallstones lately?  Nicki's description 
sounds just like mine when 2 stones were found... both ~3/4" diameter.  Too big 
to "crush" an remove them so I had laproscopic surgery to remove gallbladder 
(1997-ish, I believe).

Just a thought.  They used ultrasound to check kidneys and gallbladder.  That's 
hopw they found 'em.

Best!
--Tod

 William Willis <[EMAIL PROTECTED]> wrote: 
> 
> That sounds like what I'm having only mine is across my abdomen. It keeps me 
> awake and eventually triggers AD. Can't find the cause and it is wearing me 
> down. It's not a uti.
> 
> 
> Date: Mon, 7 Apr 2008 15:33:38 -0700From: [EMAIL PROTECTED]: [EMAIL 
> PROTECTED]: [QUAD-L] PAIN
> hey gang
>  
> i started having spasms in right side sat night. each time i tried to take a 
> breath in i spasmed which caused a horrible sharp pain under right shoulder 
> blade. the pain became continuous and literally took my breath away.
>  
> i went to er yesterday am and they did nothing. imagine that! no lift, 
> couldn't or wouldn't transfer me - bunch of crap. sent me home w/ lortab and 
> flexeril. i have appt w/ dr tomorrow.
>  
> i wasn't dysreflexic so i'm really thrown off because i know something is 
> wrong. i'm asking for a head to toe check.
>  
> any ideas?
>  
> nicki 

FW: [QUAD-L] PAIN

[William Willis]

That sounds like what I'm having only mine is across my abdomen. It keeps me 
awake and eventually triggers AD. Can't find the cause and it is wearing me 
down. It's not a uti.


Date: Mon, 7 Apr 2008 15:33:38 -0700From: [EMAIL PROTECTED]: [EMAIL PROTECTED]: 
[QUAD-L] PAIN
hey gang
 
i started having spasms in right side sat night. each time i tried to take a 
breath in i spasmed which caused a horrible sharp pain under right shoulder 
blade. the pain became continuous and literally took my breath away.
 
i went to er yesterday am and they did nothing. imagine that! no lift, couldn't 
or wouldn't transfer me - bunch of crap. sent me home w/ lortab and flexeril. i 
have appt w/ dr tomorrow.
 
i wasn't dysreflexic so i'm really thrown off because i know something is 
wrong. i'm asking for a head to toe check.
 
any ideas?
 
nicki 
 
 


You rock. That's why Blockbuster's offering you one month of Blockbuster Total 
Access, No Cost.
_
Going green? See the top 12 foods to eat organic.
http://green.msn.com/galleries/photos/photos.aspx?gid=164&ocid=T003MSN51N1653A

FW: [QUAD-L] Pain!

[Merrill Burghardt]

When I take anti-biotics I become to feel much worse everywhere before
getting better.  Your body is under attack.  Just the same, tell your pain
to the doc, perhaps it is too strong.  As Willis says, hang in there.  You
have gotten to the right place, now let the meds work.  Request time release
morphine and percaset.

Merrill

> -Original Message-
> From: William Willis [mailto:[EMAIL PROTECTED]
> Sent: Friday, June 29, 2007 1:14 PM
> To: quad-list@eskimo.com
> Subject: FW: [QUAD-L] Pain!
> 
> Hang in there Silas. A combination of percocet and oxycontin usually helps
> me. Sometimes nothing helps. I grit my teeth, sweat, shake, and curse my
> fate. Doesn't help, but what the hell.
> 
> 
> >From: "Silas Shelburne" <[EMAIL PROTECTED]>
> >To: "'Quadlist'" 
> >Subject: [QUAD-L] Pain!
> >Date: Fri, 29 Jun 2007 07:44:26 -0600
> >
> >Started having bad pain all over, had blood work done my white count was
> >real high they found infections in my wounds and lungs.  Started me on
> ive
> >antibiotics and oral also, my question is has any of you experienced this
> >unbearable pain before and what did you do to get relief?
> >
> >Thanks Silas
> >
> >
> >
> 
> _
> Don't miss your chance to WIN $10,000 and other great prizes from
> Microsoft
> Office Live http://clk.atdmt.com/MRT/go/aub0540003042mrt/direct/01/

FW: [QUAD-L] Pain!

[William Willis]

Hang in there Silas. A combination of percocet and oxycontin usually helps 
me. Sometimes nothing helps. I grit my teeth, sweat, shake, and curse my 
fate. Doesn't help, but what the hell.




From: "Silas Shelburne" <[EMAIL PROTECTED]>
To: "'Quadlist'" 
Subject: [QUAD-L] Pain!
Date: Fri, 29 Jun 2007 07:44:26 -0600

Started having bad pain all over, had blood work done my white count was
real high they found infections in my wounds and lungs.  Started me on ive
antibiotics and oral also, my question is has any of you experienced this
unbearable pain before and what did you do to get relief?

Thanks Silas





_
Don’t miss your chance to WIN $10,000 and other great prizes from Microsoft 
Office Live http://clk.atdmt.com/MRT/go/aub0540003042mrt/direct/01/