Re: [AI] Marriage and issues of same disability partners
Of course not, whatever the theoriticians say. -Original Message- From: AccessIndia [mailto:accessindia-boun...@accessindia.org.in] On Behalf Of Vamshi. G Sent: Wednesday, February 08, 2017 9:04 PM To: AccessIndia: a list for discussing accessibility and issues concerning the disabled. Subject: Re: [AI] Marriage and issues of same disability partners Can any independent VI partner be a match with a sighted partner? I am confining this to the mobility and independent living issue, and not in general about attitude, good heartedness, etc. On 2/8/17, sadaf khan <ksadaf1...@gmail.com> wrote: > considering that independence is the key to have a good and > self-sufficient life, what can one do in cases where the parents are > not open to train the child in mobility? in cases where parents fear > to leave their child to handle a gas? and in cases where the child is > independent but still the parents prefer a sighted partner instead of > an independent VI partner? > > On 2/8/17, Dinesh Kaushal <dineshkaus...@hotmail.com> wrote: >> I just realized we might be going beyond list guidelines, so this will be >> my >> last post on this issue. >> >> Saying that independence is not an issue for blind persons may not be >> true. >> Many people are actually not independent though they may be going to >> office >> etc. I think even parents would not be consciously thinking that they >> might >> have to do extra work, but they might be thinking that someone will come >> and >> they will no longer have to worry about their child. I am not sure, but >> parents of blind girls would be worried about the safety of their >> daughter >> as well. And this things may or may not be correct, but I feel lack of >> independence would be a big contributor in the belief system. >> >> And if you ask, they may not be able to articulate it, but their actions >> would reveal that. >> >> >> -Original Message- >> From: AccessIndia [mailto:accessindia-boun...@accessindia.org.in] On >> Behalf >> Of SKYLINER >> Sent: Wednesday, February 08, 2017 4:17 PM >> To: accessindia@accessindia.org.in >> Subject: Re: [AI] Marriage and issues of same disability partners >> >> Cooking & independent living happens to be no issue for blind couples >> today. >> Mostly blind women manage cusines & even if one does not, I understand, >> no >> house goes without engaging a house help in normal households too, be it >> paid one or any needy person in your family circle/relations today. >> >> As far being independent in marriages between a blind & sighted one for >> being independent, I feel it is more a myth not a reality. Definitely >> one >> cannot move about places with his/her espouse in each case, each time >> including moving to work places for advantages of having a sighted >> partner. >> >> >> Besides, we are well placed & can mostly manage affording a car for which >> everybody needs a driving assistant, raises your standard & lesser >> concerns >> to family dependence. >> >> I also would definitely state here: the families cannot chuch their >> duties >> as brothers, sisters, parents whatsoever, if they consider the blind >> newcomer in their family as cumbursome commodity needing help for every >> household chores or for personal needs. After all, everybody is >> dependent >> in family on each other for food, health & entertainment. >> >> As per beliefs of having offspring affected too, it may or may not be as >> God >> wills, in most case it may happen, but one has to be mentally prepared & >> accept it, fight it out. I have a few examples where their son was born >> totally blind by cataract, diagnosed within 3/6 months, underwent >> operation >> & recovered 70% vision. We know every sighted person is 4-5% short >> vision >> to hundred% & with aging ahead, the percentage increases gradually. >> >> One should not forget the intrinsic natural colisions in marriages on 2 >> footings of blind & sighted ones permanently cultivating hidden >> inferiority >> & superiority relating vision possessions. >> >> >> >> >> >> >> >> On Wed, 08 Feb 2017 10:14:00 +0530 Dinesh Kaushal wrote >> >>>Disclaimer: >> >> >> >> >> >> >> >> I do not have any background in genetics, but I remember reading about >> it. >> >> >> >> >> >> >> >> As a rule, there is around 1 percent chanc
Re: [AI] Marriage and issues of same disability partners
Everyone has underlined the importance of skill sets for independent living for this attitudinal barrier to be broken. So in this case, couple of issues emerge: 1. I agree with Sadaf (exceptional case so be happy), that when parents are just not open to the idea of giving skills beyond a point and given the family value systems, it is indeed difficult to object for a girl, then later on this affects your life in areas like marriage. 2. Another complexity arises when parents decide themselves on issues like marriage without considering child's opinion. 3. Even if one was to live independently, then after parents the life will be affected to an extent, no matter how good the siblings are. There seems to be no way out than to keep batteling. Regards, Amar Jain Sent from my iPhone > On 08-Feb-2017, at 9:58 PM, Vamshi. G <gvamsh...@gmail.com> wrote: > > Dinesh, > > But the decission of disability being normal should not be taken by > the parents for their children. That would amount to infringement of > the rights of the child. We can't decide that our children would not > be unhappy about their disability. I remember a case in a western > country where deaf parents wanted their child to be deaf out of their > love towards that disability which was objected by the court on this > ground. I know we are not deliberately giving birth to disabled > children as in that case. But a child should have the right to decide > whether he is happy about his disability, and not his parents. > > >> On 2/8/17, Dinesh Kaushal <dineshkaus...@hotmail.com> wrote: >> Start small. Instead of gas directly, start with microwave. >> >> >> -Original Message- >> From: AccessIndia [mailto:accessindia-boun...@accessindia.org.in] On Behalf >> Of sadaf khan >> Sent: Wednesday, February 08, 2017 8:30 PM >> To: AccessIndia: a list for discussing accessibility and issues concerning >> the disabled. <accessindia@accessindia.org.in> >> Subject: Re: [AI] Marriage and issues of same disability partners >> >> considering that independence is the key to have a good and >> self-sufficient life, what can one do in cases where the parents are >> not open to train the child in mobility? in cases where parents fear >> to leave their child to handle a gas? and in cases where the child is >> independent but still the parents prefer a sighted partner instead of >> an independent VI partner? >> >>> On 2/8/17, Dinesh Kaushal <dineshkaus...@hotmail.com> wrote: >>> I just realized we might be going beyond list guidelines, so this will be >>> my >>> last post on this issue. >>> >>> Saying that independence is not an issue for blind persons may not be >>> true. >>> Many people are actually not independent though they may be going to >>> office >>> etc. I think even parents would not be consciously thinking that they >>> might >>> have to do extra work, but they might be thinking that someone will come >>> and >>> they will no longer have to worry about their child. I am not sure, but >>> parents of blind girls would be worried about the safety of their >>> daughter >>> as well. And this things may or may not be correct, but I feel lack of >>> independence would be a big contributor in the belief system. >>> >>> And if you ask, they may not be able to articulate it, but their actions >>> would reveal that. >>> >>> >>> -Original Message- >>> From: AccessIndia [mailto:accessindia-boun...@accessindia.org.in] On >>> Behalf >>> Of SKYLINER >>> Sent: Wednesday, February 08, 2017 4:17 PM >>> To: accessindia@accessindia.org.in >>> Subject: Re: [AI] Marriage and issues of same disability partners >>> >>> Cooking & independent living happens to be no issue for blind couples >>> today. >>> Mostly blind women manage cusines & even if one does not, I understand, >>> no >>> house goes without engaging a house help in normal households too, be it >>> paid one or any needy person in your family circle/relations today. >>> >>> As far being independent in marriages between a blind & sighted one for >>> being independent, I feel it is more a myth not a reality. Definitely >>> one >>> cannot move about places with his/her espouse in each case, each time >>> including moving to work places for advantages of having a sighted >>> partner. >>> >>> >>> Besides, we are well placed & can mostly manage affording a car for whi
Re: [AI] Marriage and issues of same disability partners
Dinesh, But the decission of disability being normal should not be taken by the parents for their children. That would amount to infringement of the rights of the child. We can't decide that our children would not be unhappy about their disability. I remember a case in a western country where deaf parents wanted their child to be deaf out of their love towards that disability which was objected by the court on this ground. I know we are not deliberately giving birth to disabled children as in that case. But a child should have the right to decide whether he is happy about his disability, and not his parents. On 2/8/17, Dinesh Kaushal <dineshkaus...@hotmail.com> wrote: > Start small. Instead of gas directly, start with microwave. > > > -Original Message- > From: AccessIndia [mailto:accessindia-boun...@accessindia.org.in] On Behalf > Of sadaf khan > Sent: Wednesday, February 08, 2017 8:30 PM > To: AccessIndia: a list for discussing accessibility and issues concerning > the disabled. <accessindia@accessindia.org.in> > Subject: Re: [AI] Marriage and issues of same disability partners > > considering that independence is the key to have a good and > self-sufficient life, what can one do in cases where the parents are > not open to train the child in mobility? in cases where parents fear > to leave their child to handle a gas? and in cases where the child is > independent but still the parents prefer a sighted partner instead of > an independent VI partner? > > On 2/8/17, Dinesh Kaushal <dineshkaus...@hotmail.com> wrote: >> I just realized we might be going beyond list guidelines, so this will be >> my >> last post on this issue. >> >> Saying that independence is not an issue for blind persons may not be >> true. >> Many people are actually not independent though they may be going to >> office >> etc. I think even parents would not be consciously thinking that they >> might >> have to do extra work, but they might be thinking that someone will come >> and >> they will no longer have to worry about their child. I am not sure, but >> parents of blind girls would be worried about the safety of their >> daughter >> as well. And this things may or may not be correct, but I feel lack of >> independence would be a big contributor in the belief system. >> >> And if you ask, they may not be able to articulate it, but their actions >> would reveal that. >> >> >> -Original Message----- >> From: AccessIndia [mailto:accessindia-boun...@accessindia.org.in] On >> Behalf >> Of SKYLINER >> Sent: Wednesday, February 08, 2017 4:17 PM >> To: accessindia@accessindia.org.in >> Subject: Re: [AI] Marriage and issues of same disability partners >> >> Cooking & independent living happens to be no issue for blind couples >> today. >> Mostly blind women manage cusines & even if one does not, I understand, >> no >> house goes without engaging a house help in normal households too, be it >> paid one or any needy person in your family circle/relations today. >> >> As far being independent in marriages between a blind & sighted one for >> being independent, I feel it is more a myth not a reality. Definitely >> one >> cannot move about places with his/her espouse in each case, each time >> including moving to work places for advantages of having a sighted >> partner. >> >> >> Besides, we are well placed & can mostly manage affording a car for which >> everybody needs a driving assistant, raises your standard & lesser >> concerns >> to family dependence. >> >> I also would definitely state here: the families cannot chuch their >> duties >> as brothers, sisters, parents whatsoever, if they consider the blind >> newcomer in their family as cumbursome commodity needing help for every >> household chores or for personal needs. After all, everybody is >> dependent >> in family on each other for food, health & entertainment. >> >> As per beliefs of having offspring affected too, it may or may not be as >> God >> wills, in most case it may happen, but one has to be mentally prepared & >> accept it, fight it out. I have a few examples where their son was born >> totally blind by cataract, diagnosed within 3/6 months, underwent >> operation >> & recovered 70% vision. We know every sighted person is 4-5% short >> vision >> to hundred% & with aging ahead, the percentage increases gradually. >> >> One should not forget the intrinsic natural colisions in marriages on 2 >> footings of blind &
Re: [AI] Marriage and issues of same disability partners
I am sorry to break my promise that I will not post again. Vamshi Said: I think it is unfair towards a child to have him/her disabled if parents unilaterally feel that bringing up a disabled child is normal. Dinesh: so is disability greater than life? We are not asking to make someone disabled, but disability could be part of the person. I don't like the idea if my parents would have aborted me if they could determine that I could be blind. And my siblings would also not have born if my parents were at risk of having one blind child. -Original Message- From: AccessIndia [mailto:accessindia-boun...@accessindia.org.in] On Behalf Of Vamshi. G Sent: Wednesday, February 08, 2017 8:16 PM To: AccessIndia: a list for discussing accessibility and issues concerning the disabled. <accessindia@accessindia.org.in> Subject: Re: [AI] Marriage and issues of same disability partners There are genetic centres like LVP, Hyderabad and SN, Chennai etc. that can advise on the children getting the disability. This is something very important and should not be ignored by parents. Though I accept that a blind parent is more familiar about methods required to bring up a blind child, there are certain issues where children need support which can not be provided by that parent. More importantly, I think it is unfair towards a child to have him/her disabled if parents unilaterally feel that bringing up a disabled child is normal. On 2/8/17, Dinesh Kaushal <dineshkaus...@hotmail.com> wrote: > I just realized we might be going beyond list guidelines, so this will be my > last post on this issue. > > Saying that independence is not an issue for blind persons may not be true. > Many people are actually not independent though they may be going to office > etc. I think even parents would not be consciously thinking that they might > have to do extra work, but they might be thinking that someone will come and > they will no longer have to worry about their child. I am not sure, but > parents of blind girls would be worried about the safety of their daughter > as well. And this things may or may not be correct, but I feel lack of > independence would be a big contributor in the belief system. > > And if you ask, they may not be able to articulate it, but their actions > would reveal that. > > > -Original Message- > From: AccessIndia [mailto:accessindia-boun...@accessindia.org.in] On Behalf > Of SKYLINER > Sent: Wednesday, February 08, 2017 4:17 PM > To: accessindia@accessindia.org.in > Subject: Re: [AI] Marriage and issues of same disability partners > > Cooking & independent living happens to be no issue for blind couples today. > Mostly blind women manage cusines & even if one does not, I understand, no > house goes without engaging a house help in normal households too, be it > paid one or any needy person in your family circle/relations today. > > As far being independent in marriages between a blind & sighted one for > being independent, I feel it is more a myth not a reality. Definitely one > cannot move about places with his/her espouse in each case, each time > including moving to work places for advantages of having a sighted partner. > > > Besides, we are well placed & can mostly manage affording a car for which > everybody needs a driving assistant, raises your standard & lesser concerns > to family dependence. > > I also would definitely state here: the families cannot chuch their duties > as brothers, sisters, parents whatsoever, if they consider the blind > newcomer in their family as cumbursome commodity needing help for every > household chores or for personal needs. After all, everybody is dependent > in family on each other for food, health & entertainment. > > As per beliefs of having offspring affected too, it may or may not be as God > wills, in most case it may happen, but one has to be mentally prepared & > accept it, fight it out. I have a few examples where their son was born > totally blind by cataract, diagnosed within 3/6 months, underwent operation > & recovered 70% vision. We know every sighted person is 4-5% short vision > to hundred% & with aging ahead, the percentage increases gradually. > > One should not forget the intrinsic natural colisions in marriages on 2 > footings of blind & sighted ones permanently cultivating hidden inferiority > & superiority relating vision possessions. > > > > > > > > On Wed, 08 Feb 2017 10:14:00 +0530 Dinesh Kaushal wrote > >>Disclaimer: > > > > > > > > I do not have any background in genetics, but I remember reading about it. > > > > > > > > As a rule, there is around 1 percent chance anyone without a disability > would have children with d
Re: [AI] Marriage and issues of same disability partners
Start small. Instead of gas directly, start with microwave. -Original Message- From: AccessIndia [mailto:accessindia-boun...@accessindia.org.in] On Behalf Of sadaf khan Sent: Wednesday, February 08, 2017 8:30 PM To: AccessIndia: a list for discussing accessibility and issues concerning the disabled. <accessindia@accessindia.org.in> Subject: Re: [AI] Marriage and issues of same disability partners considering that independence is the key to have a good and self-sufficient life, what can one do in cases where the parents are not open to train the child in mobility? in cases where parents fear to leave their child to handle a gas? and in cases where the child is independent but still the parents prefer a sighted partner instead of an independent VI partner? On 2/8/17, Dinesh Kaushal <dineshkaus...@hotmail.com> wrote: > I just realized we might be going beyond list guidelines, so this will be my > last post on this issue. > > Saying that independence is not an issue for blind persons may not be true. > Many people are actually not independent though they may be going to office > etc. I think even parents would not be consciously thinking that they might > have to do extra work, but they might be thinking that someone will come and > they will no longer have to worry about their child. I am not sure, but > parents of blind girls would be worried about the safety of their daughter > as well. And this things may or may not be correct, but I feel lack of > independence would be a big contributor in the belief system. > > And if you ask, they may not be able to articulate it, but their actions > would reveal that. > > > -Original Message- > From: AccessIndia [mailto:accessindia-boun...@accessindia.org.in] On Behalf > Of SKYLINER > Sent: Wednesday, February 08, 2017 4:17 PM > To: accessindia@accessindia.org.in > Subject: Re: [AI] Marriage and issues of same disability partners > > Cooking & independent living happens to be no issue for blind couples today. > Mostly blind women manage cusines & even if one does not, I understand, no > house goes without engaging a house help in normal households too, be it > paid one or any needy person in your family circle/relations today. > > As far being independent in marriages between a blind & sighted one for > being independent, I feel it is more a myth not a reality. Definitely one > cannot move about places with his/her espouse in each case, each time > including moving to work places for advantages of having a sighted partner. > > > Besides, we are well placed & can mostly manage affording a car for which > everybody needs a driving assistant, raises your standard & lesser concerns > to family dependence. > > I also would definitely state here: the families cannot chuch their duties > as brothers, sisters, parents whatsoever, if they consider the blind > newcomer in their family as cumbursome commodity needing help for every > household chores or for personal needs. After all, everybody is dependent > in family on each other for food, health & entertainment. > > As per beliefs of having offspring affected too, it may or may not be as God > wills, in most case it may happen, but one has to be mentally prepared & > accept it, fight it out. I have a few examples where their son was born > totally blind by cataract, diagnosed within 3/6 months, underwent operation > & recovered 70% vision. We know every sighted person is 4-5% short vision > to hundred% & with aging ahead, the percentage increases gradually. > > One should not forget the intrinsic natural colisions in marriages on 2 > footings of blind & sighted ones permanently cultivating hidden inferiority > & superiority relating vision possessions. > > > > > > > > On Wed, 08 Feb 2017 10:14:00 +0530 Dinesh Kaushal wrote > >>Disclaimer: > > > > > > > > I do not have any background in genetics, but I remember reading about it. > > > > > > > > As a rule, there is around 1 percent chance anyone without a disability > would have children with disability. Not sure if it is for all disabilities > or each major disability has 1 percent chance. > > > > > > > > But if both partners have a gene that can cause same disability even if they > do not have disability themselves, they have a very high chance of a child > with disability. So many people without disability don't know that their > children could be disabled. But high chance does not mean hundred percent > chance; It could be at most 50 percent. Since I am no genetic expert, please > check. > > > > > > > > Same disability means exact cause of disability. For example, if both > pa
Re: [AI] Marriage and issues of same disability partners
Can any independent VI partner be a match with a sighted partner? I am confining this to the mobility and independent living issue, and not in general about attitude, good heartedness, etc. On 2/8/17, sadaf khan <ksadaf1...@gmail.com> wrote: > considering that independence is the key to have a good and > self-sufficient life, what can one do in cases where the parents are > not open to train the child in mobility? in cases where parents fear > to leave their child to handle a gas? and in cases where the child is > independent but still the parents prefer a sighted partner instead of > an independent VI partner? > > On 2/8/17, Dinesh Kaushal <dineshkaus...@hotmail.com> wrote: >> I just realized we might be going beyond list guidelines, so this will be >> my >> last post on this issue. >> >> Saying that independence is not an issue for blind persons may not be >> true. >> Many people are actually not independent though they may be going to >> office >> etc. I think even parents would not be consciously thinking that they >> might >> have to do extra work, but they might be thinking that someone will come >> and >> they will no longer have to worry about their child. I am not sure, but >> parents of blind girls would be worried about the safety of their >> daughter >> as well. And this things may or may not be correct, but I feel lack of >> independence would be a big contributor in the belief system. >> >> And if you ask, they may not be able to articulate it, but their actions >> would reveal that. >> >> >> -Original Message- >> From: AccessIndia [mailto:accessindia-boun...@accessindia.org.in] On >> Behalf >> Of SKYLINER >> Sent: Wednesday, February 08, 2017 4:17 PM >> To: accessindia@accessindia.org.in >> Subject: Re: [AI] Marriage and issues of same disability partners >> >> Cooking & independent living happens to be no issue for blind couples >> today. >> Mostly blind women manage cusines & even if one does not, I understand, >> no >> house goes without engaging a house help in normal households too, be it >> paid one or any needy person in your family circle/relations today. >> >> As far being independent in marriages between a blind & sighted one for >> being independent, I feel it is more a myth not a reality. Definitely >> one >> cannot move about places with his/her espouse in each case, each time >> including moving to work places for advantages of having a sighted >> partner. >> >> >> Besides, we are well placed & can mostly manage affording a car for which >> everybody needs a driving assistant, raises your standard & lesser >> concerns >> to family dependence. >> >> I also would definitely state here: the families cannot chuch their >> duties >> as brothers, sisters, parents whatsoever, if they consider the blind >> newcomer in their family as cumbursome commodity needing help for every >> household chores or for personal needs. After all, everybody is >> dependent >> in family on each other for food, health & entertainment. >> >> As per beliefs of having offspring affected too, it may or may not be as >> God >> wills, in most case it may happen, but one has to be mentally prepared & >> accept it, fight it out. I have a few examples where their son was born >> totally blind by cataract, diagnosed within 3/6 months, underwent >> operation >> & recovered 70% vision. We know every sighted person is 4-5% short >> vision >> to hundred% & with aging ahead, the percentage increases gradually. >> >> One should not forget the intrinsic natural colisions in marriages on 2 >> footings of blind & sighted ones permanently cultivating hidden >> inferiority >> & superiority relating vision possessions. >> >> >> >> >> >> >> >> On Wed, 08 Feb 2017 10:14:00 +0530 Dinesh Kaushal wrote >> >>>Disclaimer: >> >> >> >> >> >> >> >> I do not have any background in genetics, but I remember reading about >> it. >> >> >> >> >> >> >> >> As a rule, there is around 1 percent chance anyone without a disability >> would have children with disability. Not sure if it is for all >> disabilities >> or each major disability has 1 percent chance. >> >> >> >> >> >> >> >> But if both partners have a gene that can cause same disability even if >> they >> do not have disabilit
Re: [AI] Marriage and issues of same disability partners
considering that independence is the key to have a good and self-sufficient life, what can one do in cases where the parents are not open to train the child in mobility? in cases where parents fear to leave their child to handle a gas? and in cases where the child is independent but still the parents prefer a sighted partner instead of an independent VI partner? On 2/8/17, Dinesh Kaushal <dineshkaus...@hotmail.com> wrote: > I just realized we might be going beyond list guidelines, so this will be my > last post on this issue. > > Saying that independence is not an issue for blind persons may not be true. > Many people are actually not independent though they may be going to office > etc. I think even parents would not be consciously thinking that they might > have to do extra work, but they might be thinking that someone will come and > they will no longer have to worry about their child. I am not sure, but > parents of blind girls would be worried about the safety of their daughter > as well. And this things may or may not be correct, but I feel lack of > independence would be a big contributor in the belief system. > > And if you ask, they may not be able to articulate it, but their actions > would reveal that. > > > -Original Message- > From: AccessIndia [mailto:accessindia-boun...@accessindia.org.in] On Behalf > Of SKYLINER > Sent: Wednesday, February 08, 2017 4:17 PM > To: accessindia@accessindia.org.in > Subject: Re: [AI] Marriage and issues of same disability partners > > Cooking & independent living happens to be no issue for blind couples today. > Mostly blind women manage cusines & even if one does not, I understand, no > house goes without engaging a house help in normal households too, be it > paid one or any needy person in your family circle/relations today. > > As far being independent in marriages between a blind & sighted one for > being independent, I feel it is more a myth not a reality. Definitely one > cannot move about places with his/her espouse in each case, each time > including moving to work places for advantages of having a sighted partner. > > > Besides, we are well placed & can mostly manage affording a car for which > everybody needs a driving assistant, raises your standard & lesser concerns > to family dependence. > > I also would definitely state here: the families cannot chuch their duties > as brothers, sisters, parents whatsoever, if they consider the blind > newcomer in their family as cumbursome commodity needing help for every > household chores or for personal needs. After all, everybody is dependent > in family on each other for food, health & entertainment. > > As per beliefs of having offspring affected too, it may or may not be as God > wills, in most case it may happen, but one has to be mentally prepared & > accept it, fight it out. I have a few examples where their son was born > totally blind by cataract, diagnosed within 3/6 months, underwent operation > & recovered 70% vision. We know every sighted person is 4-5% short vision > to hundred% & with aging ahead, the percentage increases gradually. > > One should not forget the intrinsic natural colisions in marriages on 2 > footings of blind & sighted ones permanently cultivating hidden inferiority > & superiority relating vision possessions. > > > > > > > > On Wed, 08 Feb 2017 10:14:00 +0530 Dinesh Kaushal wrote > >>Disclaimer: > > > > > > > > I do not have any background in genetics, but I remember reading about it. > > > > > > > > As a rule, there is around 1 percent chance anyone without a disability > would have children with disability. Not sure if it is for all disabilities > or each major disability has 1 percent chance. > > > > > > > > But if both partners have a gene that can cause same disability even if they > do not have disability themselves, they have a very high chance of a child > with disability. So many people without disability don't know that their > children could be disabled. But high chance does not mean hundred percent > chance; It could be at most 50 percent. Since I am no genetic expert, please > check. > > > > > > > > Same disability means exact cause of disability. For example, if both > partners have genetic modification to cause glaucoma then it is same. But if > one has genes for glaucoma and the other has genes for another cause such as > Optic Atrophy, then the chance is as good as chance in a general population > i.e. 1 percent. So if both partners are blind due to different causes, they > should not worry too much about it. > > > > > > > > Besides, In my
Re: [AI] Marriage and issues of same disability partners
There are genetic centres like LVP, Hyderabad and SN, Chennai etc. that can advise on the children getting the disability. This is something very important and should not be ignored by parents. Though I accept that a blind parent is more familiar about methods required to bring up a blind child, there are certain issues where children need support which can not be provided by that parent. More importantly, I think it is unfair towards a child to have him/her disabled if parents unilaterally feel that bringing up a disabled child is normal. On 2/8/17, Dinesh Kaushal <dineshkaus...@hotmail.com> wrote: > I just realized we might be going beyond list guidelines, so this will be my > last post on this issue. > > Saying that independence is not an issue for blind persons may not be true. > Many people are actually not independent though they may be going to office > etc. I think even parents would not be consciously thinking that they might > have to do extra work, but they might be thinking that someone will come and > they will no longer have to worry about their child. I am not sure, but > parents of blind girls would be worried about the safety of their daughter > as well. And this things may or may not be correct, but I feel lack of > independence would be a big contributor in the belief system. > > And if you ask, they may not be able to articulate it, but their actions > would reveal that. > > > -Original Message- > From: AccessIndia [mailto:accessindia-boun...@accessindia.org.in] On Behalf > Of SKYLINER > Sent: Wednesday, February 08, 2017 4:17 PM > To: accessindia@accessindia.org.in > Subject: Re: [AI] Marriage and issues of same disability partners > > Cooking & independent living happens to be no issue for blind couples today. > Mostly blind women manage cusines & even if one does not, I understand, no > house goes without engaging a house help in normal households too, be it > paid one or any needy person in your family circle/relations today. > > As far being independent in marriages between a blind & sighted one for > being independent, I feel it is more a myth not a reality. Definitely one > cannot move about places with his/her espouse in each case, each time > including moving to work places for advantages of having a sighted partner. > > > Besides, we are well placed & can mostly manage affording a car for which > everybody needs a driving assistant, raises your standard & lesser concerns > to family dependence. > > I also would definitely state here: the families cannot chuch their duties > as brothers, sisters, parents whatsoever, if they consider the blind > newcomer in their family as cumbursome commodity needing help for every > household chores or for personal needs. After all, everybody is dependent > in family on each other for food, health & entertainment. > > As per beliefs of having offspring affected too, it may or may not be as God > wills, in most case it may happen, but one has to be mentally prepared & > accept it, fight it out. I have a few examples where their son was born > totally blind by cataract, diagnosed within 3/6 months, underwent operation > & recovered 70% vision. We know every sighted person is 4-5% short vision > to hundred% & with aging ahead, the percentage increases gradually. > > One should not forget the intrinsic natural colisions in marriages on 2 > footings of blind & sighted ones permanently cultivating hidden inferiority > & superiority relating vision possessions. > > > > > > > > On Wed, 08 Feb 2017 10:14:00 +0530 Dinesh Kaushal wrote > >>Disclaimer: > > > > > > > > I do not have any background in genetics, but I remember reading about it. > > > > > > > > As a rule, there is around 1 percent chance anyone without a disability > would have children with disability. Not sure if it is for all disabilities > or each major disability has 1 percent chance. > > > > > > > > But if both partners have a gene that can cause same disability even if they > do not have disability themselves, they have a very high chance of a child > with disability. So many people without disability don't know that their > children could be disabled. But high chance does not mean hundred percent > chance; It could be at most 50 percent. Since I am no genetic expert, please > check. > > > > > > > > Same disability means exact cause of disability. For example, if both > partners have genetic modification to cause glaucoma then it is same. But if > one has genes for glaucoma and the other has genes for another cause such as > Optic Atrophy, then the chance is as good as chance in a general population
Re: [AI] Marriage and issues of same disability partners
I just realized we might be going beyond list guidelines, so this will be my last post on this issue. Saying that independence is not an issue for blind persons may not be true. Many people are actually not independent though they may be going to office etc. I think even parents would not be consciously thinking that they might have to do extra work, but they might be thinking that someone will come and they will no longer have to worry about their child. I am not sure, but parents of blind girls would be worried about the safety of their daughter as well. And this things may or may not be correct, but I feel lack of independence would be a big contributor in the belief system. And if you ask, they may not be able to articulate it, but their actions would reveal that. -Original Message- From: AccessIndia [mailto:accessindia-boun...@accessindia.org.in] On Behalf Of SKYLINER Sent: Wednesday, February 08, 2017 4:17 PM To: accessindia@accessindia.org.in Subject: Re: [AI] Marriage and issues of same disability partners Cooking & independent living happens to be no issue for blind couples today. Mostly blind women manage cusines & even if one does not, I understand, no house goes without engaging a house help in normal households too, be it paid one or any needy person in your family circle/relations today. As far being independent in marriages between a blind & sighted one for being independent, I feel it is more a myth not a reality. Definitely one cannot move about places with his/her espouse in each case, each time including moving to work places for advantages of having a sighted partner. Besides, we are well placed & can mostly manage affording a car for which everybody needs a driving assistant, raises your standard & lesser concerns to family dependence. I also would definitely state here: the families cannot chuch their duties as brothers, sisters, parents whatsoever, if they consider the blind newcomer in their family as cumbursome commodity needing help for every household chores or for personal needs. After all, everybody is dependent in family on each other for food, health & entertainment. As per beliefs of having offspring affected too, it may or may not be as God wills, in most case it may happen, but one has to be mentally prepared & accept it, fight it out. I have a few examples where their son was born totally blind by cataract, diagnosed within 3/6 months, underwent operation & recovered 70% vision. We know every sighted person is 4-5% short vision to hundred% & with aging ahead, the percentage increases gradually. One should not forget the intrinsic natural colisions in marriages on 2 footings of blind & sighted ones permanently cultivating hidden inferiority & superiority relating vision possessions. On Wed, 08 Feb 2017 10:14:00 +0530 Dinesh Kaushal wrote >Disclaimer: I do not have any background in genetics, but I remember reading about it. As a rule, there is around 1 percent chance anyone without a disability would have children with disability. Not sure if it is for all disabilities or each major disability has 1 percent chance. But if both partners have a gene that can cause same disability even if they do not have disability themselves, they have a very high chance of a child with disability. So many people without disability don't know that their children could be disabled. But high chance does not mean hundred percent chance; It could be at most 50 percent. Since I am no genetic expert, please check. Same disability means exact cause of disability. For example, if both partners have genetic modification to cause glaucoma then it is same. But if one has genes for glaucoma and the other has genes for another cause such as Optic Atrophy, then the chance is as good as chance in a general population i.e. 1 percent. So if both partners are blind due to different causes, they should not worry too much about it. Besides, In my view a well-trained blind parent can take better care of a blind child as he or she has already learned to live a life with disability, and the real acceptance about disability would come only when people stop worrying about unborn disabled children. -Original Message- From: AccessIndia [mailto:accessindia-boun...@accessindia.org.in] On Behalf Of P. Subramani Sent: Tuesday, February 07, 2017 7:53 PM To: AccessIndia: a list for discussing accessibility and issues concerning the disabled. Subject: Re: [AI] Marriage and issues of same disability partners another aspect for discouraging marriage between 2 disabled persons is more to do with genetics, the chances of having offsprings with disabilities is quite high, although close-relation marriages are also the causes of offspring with disabilities. In my experience, less than one percent of such cou
Re: [AI] Marriage and issues of same disability partners
Cooking & independent living happens to be no issue for blind couples today. Mostly blind women manage cusines & even if one does not, I understand, no house goes without engaging a house help in normal households too, be it paid one or any needy person in your family circle/relations today. As far being independent in marriages between a blind & sighted one for being independent, I feel it is more a myth not a reality. Definitely one cannot move about places with his/her espouse in each case, each time including moving to work places for advantages of having a sighted partner. Besides, we are well placed & can mostly manage affording a car for which everybody needs a driving assistant, raises your standard & lesser concerns to family dependence. I also would definitely state here: the families cannot chuch their duties as brothers, sisters, parents whatsoever, if they consider the blind newcomer in their family as cumbursome commodity needing help for every household chores or for personal needs. After all, everybody is dependent in family on each other for food, health & entertainment. As per beliefs of having offspring affected too, it may or may not be as God wills, in most case it may happen, but one has to be mentally prepared & accept it, fight it out. I have a few examples where their son was born totally blind by cataract, diagnosed within 3/6 months, underwent operation & recovered 70% vision. We know every sighted person is 4-5% short vision to hundred% & with aging ahead, the percentage increases gradually. One should not forget the intrinsic natural colisions in marriages on 2 footings of blind & sighted ones permanently cultivating hidden inferiority & superiority relating vision possessions. On Wed, 08 Feb 2017 10:14:00 +0530 Dinesh Kaushal wrote >Disclaimer: I do not have any background in genetics, but I remember reading about it. As a rule, there is around 1 percent chance anyone without a disability would have children with disability. Not sure if it is for all disabilities or each major disability has 1 percent chance. But if both partners have a gene that can cause same disability even if they do not have disability themselves, they have a very high chance of a child with disability. So many people without disability don't know that their children could be disabled. But high chance does not mean hundred percent chance; It could be at most 50 percent. Since I am no genetic expert, please check. Same disability means exact cause of disability. For example, if both partners have genetic modification to cause glaucoma then it is same. But if one has genes for glaucoma and the other has genes for another cause such as Optic Atrophy, then the chance is as good as chance in a general population i.e. 1 percent. So if both partners are blind due to different causes, they should not worry too much about it. Besides, In my view a well-trained blind parent can take better care of a blind child as he or she has already learned to live a life with disability, and the real acceptance about disability would come only when people stop worrying about unborn disabled children. -Original Message- From: AccessIndia [mailto:accessindia-boun...@accessindia.org.in] On Behalf Of P. Subramani Sent: Tuesday, February 07, 2017 7:53 PM To: AccessIndia: a list for discussing accessibility and issues concerning the disabled. Subject: Re: [AI] Marriage and issues of same disability partners another aspect for discouraging marriage between 2 disabled persons is more to do with genetics, the chances of having offsprings with disabilities is quite high, although close-relation marriages are also the causes of offspring with disabilities. In my experience, less than one percent of such couples lead an independent life without depending on others for cooking, household work, etc. I do feel some strong reactions would be expected to my mail, but lets not be hypocratical, most blind/disabled have non-disabled partner. E-Mail: subramani6...@gmail.com Mob: 9738150192 Facebook: facebook.com/subu.subramani.16 - Original Message - From: "Dinesh Kaushal" To: "AccessIndia: a list for discussing accessibility and issues concerning the disabled." Sent: Tuesday, February 07, 2017 2:42 PM Subject: Re: [AI] Marriage and issues of same disability partners > Well, independent living skills and attitudes are interrelated. > > Family members would be opposed due to 2 factors. 1. Due to genuine > concern that whether a couple with same disability would be able to manage > or not. 2. Due to another valid concern that a disabled couple might start > depending on them for their daily needs. > > Unless people with disabili
Re: [AI] Marriage and issues of same disability partners
Disclaimer: I do not have any background in genetics, but I remember reading about it. As a rule, there is around 1 percent chance anyone without a disability would have children with disability. Not sure if it is for all disabilities or each major disability has 1 percent chance. But if both partners have a gene that can cause same disability even if they do not have disability themselves, they have a very high chance of a child with disability. So many people without disability don't know that their children could be disabled. But high chance does not mean hundred percent chance; It could be at most 50 percent. Since I am no genetic expert, please check. Same disability means exact cause of disability. For example, if both partners have genetic modification to cause glaucoma then it is same. But if one has genes for glaucoma and the other has genes for another cause such as Optic Atrophy, then the chance is as good as chance in a general population i.e. 1 percent. So if both partners are blind due to different causes, they should not worry too much about it. Besides, In my view a well-trained blind parent can take better care of a blind child as he or she has already learned to live a life with disability, and the real acceptance about disability would come only when people stop worrying about unborn disabled children. -Original Message- From: AccessIndia [mailto:accessindia-boun...@accessindia.org.in] On Behalf Of P. Subramani Sent: Tuesday, February 07, 2017 7:53 PM To: AccessIndia: a list for discussing accessibility and issues concerning the disabled. <accessindia@accessindia.org.in> Subject: Re: [AI] Marriage and issues of same disability partners another aspect for discouraging marriage between 2 disabled persons is more to do with genetics, the chances of having offsprings with disabilities is quite high, although close-relation marriages are also the causes of offspring with disabilities. In my experience, less than one percent of such couples lead an independent life without depending on others for cooking, household work, etc. I do feel some strong reactions would be expected to my mail, but lets not be hypocratical, most blind/disabled have non-disabled partner. E-Mail: subramani6...@gmail.com Mob: 9738150192 Facebook: facebook.com/subu.subramani.16 - Original Message - From: "Dinesh Kaushal" <dineshkaus...@hotmail.com> To: "AccessIndia: a list for discussing accessibility and issues concerning the disabled." <accessindia@accessindia.org.in> Sent: Tuesday, February 07, 2017 2:42 PM Subject: Re: [AI] Marriage and issues of same disability partners > Well, independent living skills and attitudes are interrelated. > > Family members would be opposed due to 2 factors. 1. Due to genuine > concern that whether a couple with same disability would be able to manage > or not. 2. Due to another valid concern that a disabled couple might start > depending on them for their daily needs. > > Unless people with disabilities become independent, they cannot hope to be > able to make decisions for their life. Well, there is another problem > which I cannot address here, that Indian parents often do not allow their > children to make their decision anyways. > > The most important skill is mobility skill. For example, it is not > blindness that prevents blind persons to be able to independently move > around, but it is lack of training in mobility and orientation skills. > During my student life, my parents didn't allow me to travel alone, but > that limited my skill development in independent living. Once I realized > it is not going to work out, I had to insist that I will travel alone. If > I didn't take that step, later my parents would have thought that I would > not able to manage on my own. I have seen too many examples of blind > persons depending on others for mobility. It is ok to ask for directions > or assistance for new places, but if you need assistance for the same > place for years or months, then you need to think whether you have made > enough effort to become independent. It is important to note that we often > ask what society does for us without pausing to reflect how much we limit > ourselves without challenging our own limitations. While I am on the topic > of independent mobility I would also caution reckless behavior. For > example trying to cross a busy road might not be a wise idea. Often I had > to wait for 10 or 15 minutes near my college as the traffic was too heavy. > > Another very important skill is how to seek help. For new places, you > cannot always go with someone whom you trust. So it is important that you > feel ok to ask for help. It is also important to have confidence that you > will manage when you face the problem. I remember when I started to trave
Re: [AI] Marriage and issues of same disability partners
Hi, Saying from my personal experience, the only thing we need for convincing is independence. On 2/7/17, P. Subramani <subramani6...@gmail.com> wrote: > another aspect for discouraging marriage between 2 disabled persons is > more to do with genetics, the chances of having offsprings with disabilities > > is quite high, although close-relation marriages are also the causes of > offspring with disabilities. In my experience, less than one percent of > such couples lead an independent life without depending on others for > cooking, household work, etc. I do feel some strong reactions would be > expected to my mail, but lets not be hypocratical, most blind/disabled > have non-disabled partner. > E-Mail: subramani6...@gmail.com > Mob: 9738150192 > Facebook: facebook.com/subu.subramani.16 > - Original Message - > From: "Dinesh Kaushal" <dineshkaus...@hotmail.com> > To: "AccessIndia: a list for discussing accessibility and issues concerning > > the disabled." <accessindia@accessindia.org.in> > Sent: Tuesday, February 07, 2017 2:42 PM > Subject: Re: [AI] Marriage and issues of same disability partners > > >> Well, independent living skills and attitudes are interrelated. >> >> Family members would be opposed due to 2 factors. 1. Due to genuine >> concern that whether a couple with same disability would be able to manage >> >> or not. 2. Due to another valid concern that a disabled couple might start >> >> depending on them for their daily needs. >> >> Unless people with disabilities become independent, they cannot hope to be >> >> able to make decisions for their life. Well, there is another problem >> which I cannot address here, that Indian parents often do not allow their >> >> children to make their decision anyways. >> >> The most important skill is mobility skill. For example, it is not >> blindness that prevents blind persons to be able to independently move >> around, but it is lack of training in mobility and orientation skills. >> During my student life, my parents didn't allow me to travel alone, but >> that limited my skill development in independent living. Once I realized >> it is not going to work out, I had to insist that I will travel alone. If >> >> I didn't take that step, later my parents would have thought that I would >> >> not able to manage on my own. I have seen too many examples of blind >> persons depending on others for mobility. It is ok to ask for directions >> or assistance for new places, but if you need assistance for the same >> place for years or months, then you need to think whether you have made >> enough effort to become independent. It is important to note that we often >> >> ask what society does for us without pausing to reflect how much we limit >> >> ourselves without challenging our own limitations. While I am on the topic >> >> of independent mobility I would also caution reckless behavior. For >> example trying to cross a busy road might not be a wise idea. Often I had >> >> to wait for 10 or 15 minutes near my college as the traffic was too >> heavy. >> >> Another very important skill is how to seek help. For new places, you >> cannot always go with someone whom you trust. So it is important that you >> >> feel ok to ask for help. It is also important to have confidence that you >> >> will manage when you face the problem. I remember when I started to travel >> >> independently, I tried to think all possible problems that I would face. >> But this paralyzed me and I would avoid to go out. but when I decided to >> take things as they come, I felt easy to start and after solving some >> challenges I got more confidence that I can travel alone. >> >> I still face challenges, but they are no longer a significant one to >> prevent me in dealing with daily life issues. >> >> I can't say too much about cooking as my skills are limited to heating up >> >> food and occasionally making things such as Maggie. But I know my friends >> >> Payal Kapoor, Veena Mehta and Pranay Gadodia, and my wife Madhu Bala >> Sharma who are able to cook as good as any sighted person. So I can >> conclude that cooking is not a problem of blindness, though it could be a >> >> good excuse if you don't want to do it. >> >> If you can afford, cooking can also be managed by hiring someone to do it >> >> for you. >> >> At the end if you can demonstrate that you can manage with or without paid >> >> or unpaid help, your family members would trust you.
Re: [AI] Marriage and issues of same disability partners
another aspect for discouraging marriage between 2 disabled persons is more to do with genetics, the chances of having offsprings with disabilities is quite high, although close-relation marriages are also the causes of offspring with disabilities. In my experience, less than one percent of such couples lead an independent life without depending on others for cooking, household work, etc. I do feel some strong reactions would be expected to my mail, but lets not be hypocratical, most blind/disabled have non-disabled partner. E-Mail: subramani6...@gmail.com Mob: 9738150192 Facebook: facebook.com/subu.subramani.16 - Original Message - From: "Dinesh Kaushal" <dineshkaus...@hotmail.com> To: "AccessIndia: a list for discussing accessibility and issues concerning the disabled." <accessindia@accessindia.org.in> Sent: Tuesday, February 07, 2017 2:42 PM Subject: Re: [AI] Marriage and issues of same disability partners Well, independent living skills and attitudes are interrelated. Family members would be opposed due to 2 factors. 1. Due to genuine concern that whether a couple with same disability would be able to manage or not. 2. Due to another valid concern that a disabled couple might start depending on them for their daily needs. Unless people with disabilities become independent, they cannot hope to be able to make decisions for their life. Well, there is another problem which I cannot address here, that Indian parents often do not allow their children to make their decision anyways. The most important skill is mobility skill. For example, it is not blindness that prevents blind persons to be able to independently move around, but it is lack of training in mobility and orientation skills. During my student life, my parents didn't allow me to travel alone, but that limited my skill development in independent living. Once I realized it is not going to work out, I had to insist that I will travel alone. If I didn't take that step, later my parents would have thought that I would not able to manage on my own. I have seen too many examples of blind persons depending on others for mobility. It is ok to ask for directions or assistance for new places, but if you need assistance for the same place for years or months, then you need to think whether you have made enough effort to become independent. It is important to note that we often ask what society does for us without pausing to reflect how much we limit ourselves without challenging our own limitations. While I am on the topic of independent mobility I would also caution reckless behavior. For example trying to cross a busy road might not be a wise idea. Often I had to wait for 10 or 15 minutes near my college as the traffic was too heavy. Another very important skill is how to seek help. For new places, you cannot always go with someone whom you trust. So it is important that you feel ok to ask for help. It is also important to have confidence that you will manage when you face the problem. I remember when I started to travel independently, I tried to think all possible problems that I would face. But this paralyzed me and I would avoid to go out. but when I decided to take things as they come, I felt easy to start and after solving some challenges I got more confidence that I can travel alone. I still face challenges, but they are no longer a significant one to prevent me in dealing with daily life issues. I can't say too much about cooking as my skills are limited to heating up food and occasionally making things such as Maggie. But I know my friends Payal Kapoor, Veena Mehta and Pranay Gadodia, and my wife Madhu Bala Sharma who are able to cook as good as any sighted person. So I can conclude that cooking is not a problem of blindness, though it could be a good excuse if you don't want to do it. If you can afford, cooking can also be managed by hiring someone to do it for you. At the end if you can demonstrate that you can manage with or without paid or unpaid help, your family members would trust you. While we are on the issue of help, remember you need to have broad set of people whom you can depend for help. Like you, everyone else also has their own life so don't expect people to help you all the time. At the end, action speaks louder than words, so if you can demonstrate that you can live independently, you have better chance of convincing your parents. -Original Message- From: AccessIndia [mailto:accessindia-boun...@accessindia.org.in] On Behalf Of avinash shahi Sent: Tuesday, February 07, 2017 11:10 AM To: AccessIndia: a list for discussing accessibility and issues concerning the disabled. <accessindia@accessindia.org.in> Subject: Re: [AI] Marriage and issues of same disability partners Realistic solutions aminate from experience. Families will have to be convinced to accept the couple and things will
Re: [AI] Marriage and issues of same disability partners
ne to do it >> for you. >> >> At the end if you can demonstrate that you can manage with or without paid >> or unpaid help, your family members would trust you. While we are on the >> issue of help, remember you need to have broad set of people whom you can >> depend for help. Like you, everyone else also has their own life so don't >> expect people to help you all the time. >> >> At the end, action speaks louder than words, so if you can demonstrate >> that you can live independently, you have better chance of convincing your >> parents. >> >> >> >> -Original Message- >> From: AccessIndia [mailto:accessindia-boun...@accessindia.org.in] On >> Behalf Of avinash shahi >> Sent: Tuesday, February 07, 2017 11:10 AM >> To: AccessIndia: a list for discussing accessibility and issues concerning >> the disabled. <accessindia@accessindia.org.in> >> Subject: Re: [AI] Marriage and issues of same disability partners >> >> Realistic solutions aminate from experience. Families will have to be >> convinced to accept the couple and things will be normal within weeks >> and months. One could take their parants to one's friends who are apt >> at living independently and cooking with their families. Remember, not >> only disability but caste, region and religion are still major >> barriers which cause tsunami in the love-life of consenting couples. >> Normally, No parants of blind people want them to marry a blind >> girl/boy, but we will have to convince them if we desire. Tensions >> might occur but things get settled as we choose the path. Parants >> should be convinced that its me who is gonna spend life with my >> partner not you. So continue to shower blessings and accept us. >>> On 2/7/17, Amar Jain <amarj...@amarjain.com> wrote: >>> Hi All, >>> >>> I am sure some of you would have faced the issue of convincing either of >>> the >>> family where parents just do not wish to consider a potential match >>> purely >>> because in their opinion, people with blindness are incapacitated to be >>> a >>> couple and independent living with family support is the only way out. >>> >>> Importantly, in such cases, skills like mobility, cooking etc are >>> absent. >>> While there are ways to address the issue of skill set, how does one >>> deal >>> with attitudinal barriers where parties are not open to hear and >>> understand >>> the ways and means adopted by other couples? >>> >>> Any realistic solutions are welcomed. >>> >>> Warmly, >>> Amar Jain >>> >>> Sent from my iPhone >>> >>> >>> Register at the dedicated AccessIndia list for discussing accessibility >>> of >>> mobile phones / Tabs on: >>> http://mail.accessindia.org.in/mailman/listinfo/mobile.accessindia_accessindia.org.in >>> >>> >>> Search for old postings at: >>> http://www.mail-archive.com/accessindia@accessindia.org.in/ >>> >>> To unsubscribe send a message to >>> accessindia-requ...@accessindia.org.in >>> with the subject unsubscribe. >>> >>> To change your subscription to digest mode or make any other changes, >>> please >>> visit the list home page at >>> http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in >>> >>> >>> Disclaimer: >>> 1. Contents of the mails, factual, or otherwise, reflect the thinking of >>> the >>> person sending the mail and AI in no way relates itself to its veracity; >>> >>> 2. AI cannot be held liable for any commission/omission based on the >>> mails >>> sent through this mailing list.. >>> >> >> >> -- >> Avinash Shahi >> Doctoral student at Centre for Law and Governance JNU >> >> >> Register at the dedicated AccessIndia list for discussing accessibility of >> mobile phones / Tabs on: >> http://mail.accessindia.org.in/mailman/listinfo/mobile.accessindia_accessindia.org.in >> >> >> Search for old postings at: >> http://www.mail-archive.com/accessindia@accessindia.org.in/ >> >> To unsubscribe send a message to >> accessindia-requ...@accessindia.org.in >> with the subject unsubscribe. >> >> To change your subscription to digest mode or make any other changes, >> please visit the list home page at >> http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in >> >> &
Re: [AI] Marriage and issues of same disability partners
Indeed substantial points. I'll bother you over this weekend to take this further. Warm Regards, Amar Jain Sent from my iPhone > On 07-Feb-2017, at 2:42 PM, Dinesh Kaushal <dineshkaus...@hotmail.com> wrote: > > Well, independent living skills and attitudes are interrelated. > > Family members would be opposed due to 2 factors. 1. Due to genuine concern > that whether a couple with same disability would be able to manage or not. 2. > Due to another valid concern that a disabled couple might start depending on > them for their daily needs. > > Unless people with disabilities become independent, they cannot hope to be > able to make decisions for their life. Well, there is another problem which I > cannot address here, that Indian parents often do not allow their children to > make their decision anyways. > > The most important skill is mobility skill. For example, it is not blindness > that prevents blind persons to be able to independently move around, but it > is lack of training in mobility and orientation skills. During my student > life, my parents didn't allow me to travel alone, but that limited my skill > development in independent living. Once I realized it is not going to work > out, I had to insist that I will travel alone. If I didn't take that step, > later my parents would have thought that I would not able to manage on my > own. I have seen too many examples of blind persons depending on others for > mobility. It is ok to ask for directions or assistance for new places, but if > you need assistance for the same place for years or months, then you need to > think whether you have made enough effort to become independent. It is > important to note that we often ask what society does for us without pausing > to reflect how much we limit ourselves without challenging our own > limitations. While I am on the topic of independent mobility I would also caution reckless behavior. For example trying to cross a busy road might not be a wise idea. Often I had to wait for 10 or 15 minutes near my college as the traffic was too heavy. > > Another very important skill is how to seek help. For new places, you cannot > always go with someone whom you trust. So it is important that you feel ok to > ask for help. It is also important to have confidence that you will manage > when you face the problem. I remember when I started to travel independently, > I tried to think all possible problems that I would face. But this paralyzed > me and I would avoid to go out. but when I decided to take things as they > come, I felt easy to start and after solving some challenges I got more > confidence that I can travel alone. > > I still face challenges, but they are no longer a significant one to prevent > me in dealing with daily life issues. > > I can't say too much about cooking as my skills are limited to heating up > food and occasionally making things such as Maggie. But I know my friends > Payal Kapoor, Veena Mehta and Pranay Gadodia, and my wife Madhu Bala Sharma > who are able to cook as good as any sighted person. So I can conclude that > cooking is not a problem of blindness, though it could be a good excuse if > you don't want to do it. > > If you can afford, cooking can also be managed by hiring someone to do it for > you. > > At the end if you can demonstrate that you can manage with or without paid or > unpaid help, your family members would trust you. While we are on the issue > of help, remember you need to have broad set of people whom you can depend > for help. Like you, everyone else also has their own life so don't expect > people to help you all the time. > > At the end, action speaks louder than words, so if you can demonstrate that > you can live independently, you have better chance of convincing your parents. > > > > -Original Message- > From: AccessIndia [mailto:accessindia-boun...@accessindia.org.in] On Behalf > Of avinash shahi > Sent: Tuesday, February 07, 2017 11:10 AM > To: AccessIndia: a list for discussing accessibility and issues concerning > the disabled. <accessindia@accessindia.org.in> > Subject: Re: [AI] Marriage and issues of same disability partners > > Realistic solutions aminate from experience. Families will have to be > convinced to accept the couple and things will be normal within weeks > and months. One could take their parants to one's friends who are apt > at living independently and cooking with their families. Remember, not > only disability but caste, region and religion are still major > barriers which cause tsunami in the love-life of consenting couples. > Normally, No parants of blind people want them to marry a blind > girl/boy, but we will have to con
Re: [AI] Marriage and issues of same disability partners
Well, independent living skills and attitudes are interrelated. Family members would be opposed due to 2 factors. 1. Due to genuine concern that whether a couple with same disability would be able to manage or not. 2. Due to another valid concern that a disabled couple might start depending on them for their daily needs. Unless people with disabilities become independent, they cannot hope to be able to make decisions for their life. Well, there is another problem which I cannot address here, that Indian parents often do not allow their children to make their decision anyways. The most important skill is mobility skill. For example, it is not blindness that prevents blind persons to be able to independently move around, but it is lack of training in mobility and orientation skills. During my student life, my parents didn't allow me to travel alone, but that limited my skill development in independent living. Once I realized it is not going to work out, I had to insist that I will travel alone. If I didn't take that step, later my parents would have thought that I would not able to manage on my own. I have seen too many examples of blind persons depending on others for mobility. It is ok to ask for directions or assistance for new places, but if you need assistance for the same place for years or months, then you need to think whether you have made enough effort to become independent. It is important to note that we often ask what society does for us without pausing to reflect how much we limit ourselves without challenging our own limitations. While I am o n the topic of independent mobility I would also caution reckless behavior. For example trying to cross a busy road might not be a wise idea. Often I had to wait for 10 or 15 minutes near my college as the traffic was too heavy. Another very important skill is how to seek help. For new places, you cannot always go with someone whom you trust. So it is important that you feel ok to ask for help. It is also important to have confidence that you will manage when you face the problem. I remember when I started to travel independently, I tried to think all possible problems that I would face. But this paralyzed me and I would avoid to go out. but when I decided to take things as they come, I felt easy to start and after solving some challenges I got more confidence that I can travel alone. I still face challenges, but they are no longer a significant one to prevent me in dealing with daily life issues. I can't say too much about cooking as my skills are limited to heating up food and occasionally making things such as Maggie. But I know my friends Payal Kapoor, Veena Mehta and Pranay Gadodia, and my wife Madhu Bala Sharma who are able to cook as good as any sighted person. So I can conclude that cooking is not a problem of blindness, though it could be a good excuse if you don't want to do it. If you can afford, cooking can also be managed by hiring someone to do it for you. At the end if you can demonstrate that you can manage with or without paid or unpaid help, your family members would trust you. While we are on the issue of help, remember you need to have broad set of people whom you can depend for help. Like you, everyone else also has their own life so don't expect people to help you all the time. At the end, action speaks louder than words, so if you can demonstrate that you can live independently, you have better chance of convincing your parents. -Original Message- From: AccessIndia [mailto:accessindia-boun...@accessindia.org.in] On Behalf Of avinash shahi Sent: Tuesday, February 07, 2017 11:10 AM To: AccessIndia: a list for discussing accessibility and issues concerning the disabled. <accessindia@accessindia.org.in> Subject: Re: [AI] Marriage and issues of same disability partners Realistic solutions aminate from experience. Families will have to be convinced to accept the couple and things will be normal within weeks and months. One could take their parants to one's friends who are apt at living independently and cooking with their families. Remember, not only disability but caste, region and religion are still major barriers which cause tsunami in the love-life of consenting couples. Normally, No parants of blind people want them to marry a blind girl/boy, but we will have to convince them if we desire. Tensions might occur but things get settled as we choose the path. Parants should be convinced that its me who is gonna spend life with my partner not you. So continue to shower blessings and accept us. On 2/7/17, Amar Jain <amarj...@amarjain.com> wrote: > Hi All, > > I am sure some of you would have faced the issue of convincing either of the > family where parents just do not wish to consider a potential match purely > because in their opinion, people with blindness are incapacitated to be a > couple and independent living with fami
Re: [AI] Marriage and issues of same disability partners
Realistic solutions aminate from experience. Families will have to be convinced to accept the couple and things will be normal within weeks and months. One could take their parants to one's friends who are apt at living independently and cooking with their families. Remember, not only disability but caste, region and religion are still major barriers which cause tsunami in the love-life of consenting couples. Normally, No parants of blind people want them to marry a blind girl/boy, but we will have to convince them if we desire. Tensions might occur but things get settled as we choose the path. Parants should be convinced that its me who is gonna spend life with my partner not you. So continue to shower blessings and accept us. On 2/7/17, Amar Jainwrote: > Hi All, > > I am sure some of you would have faced the issue of convincing either of the > family where parents just do not wish to consider a potential match purely > because in their opinion, people with blindness are incapacitated to be a > couple and independent living with family support is the only way out. > > Importantly, in such cases, skills like mobility, cooking etc are absent. > While there are ways to address the issue of skill set, how does one deal > with attitudinal barriers where parties are not open to hear and understand > the ways and means adopted by other couples? > > Any realistic solutions are welcomed. > > Warmly, > Amar Jain > > Sent from my iPhone > > > Register at the dedicated AccessIndia list for discussing accessibility of > mobile phones / Tabs on: > http://mail.accessindia.org.in/mailman/listinfo/mobile.accessindia_accessindia.org.in > > > Search for old postings at: > http://www.mail-archive.com/accessindia@accessindia.org.in/ > > To unsubscribe send a message to > accessindia-requ...@accessindia.org.in > with the subject unsubscribe. > > To change your subscription to digest mode or make any other changes, please > visit the list home page at > http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in > > > Disclaimer: > 1. Contents of the mails, factual, or otherwise, reflect the thinking of the > person sending the mail and AI in no way relates itself to its veracity; > > 2. AI cannot be held liable for any commission/omission based on the mails > sent through this mailing list.. > -- Avinash Shahi Doctoral student at Centre for Law and Governance JNU Register at the dedicated AccessIndia list for discussing accessibility of mobile phones / Tabs on: http://mail.accessindia.org.in/mailman/listinfo/mobile.accessindia_accessindia.org.in Search for old postings at: http://www.mail-archive.com/accessindia@accessindia.org.in/ To unsubscribe send a message to accessindia-requ...@accessindia.org.in with the subject unsubscribe. To change your subscription to digest mode or make any other changes, please visit the list home page at http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in Disclaimer: 1. Contents of the mails, factual, or otherwise, reflect the thinking of the person sending the mail and AI in no way relates itself to its veracity; 2. AI cannot be held liable for any commission/omission based on the mails sent through this mailing list..
[AI] Marriage and issues of same disability partners
Hi All, I am sure some of you would have faced the issue of convincing either of the family where parents just do not wish to consider a potential match purely because in their opinion, people with blindness are incapacitated to be a couple and independent living with family support is the only way out. Importantly, in such cases, skills like mobility, cooking etc are absent. While there are ways to address the issue of skill set, how does one deal with attitudinal barriers where parties are not open to hear and understand the ways and means adopted by other couples? Any realistic solutions are welcomed. Warmly, Amar Jain Sent from my iPhone Register at the dedicated AccessIndia list for discussing accessibility of mobile phones / Tabs on: http://mail.accessindia.org.in/mailman/listinfo/mobile.accessindia_accessindia.org.in Search for old postings at: http://www.mail-archive.com/accessindia@accessindia.org.in/ To unsubscribe send a message to accessindia-requ...@accessindia.org.in with the subject unsubscribe. To change your subscription to digest mode or make any other changes, please visit the list home page at http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in Disclaimer: 1. Contents of the mails, factual, or otherwise, reflect the thinking of the person sending the mail and AI in no way relates itself to its veracity; 2. AI cannot be held liable for any commission/omission based on the mails sent through this mailing list..