Re: [CMLHope] newly diagnosed

Hi Marcie, We are all captains of our own ships because we steer our own ships in a positive direction. Do you remember me saying that Leukemia is not only a disease of one's body but their mind as well. It is how you handle yourself that makes a big difference. If someone goes around with a terri

Re: [CMLHope] newly diagnosed

Marty, What a lovely email to Sue. We are traveling together and I feel like you are the Captain of our ship! Thinking about you and keeping you in my prayers Love and 18s, Marcie Sent from my iPhone > On Nov 12, 2014, at 8:34 PM, Marty Gartenberg wrote: > > Oh yes Sue, family. Well you k

Re: [CMLHope] newly diagnosed

Oh yes Sue, family. Well you know what they say? You can pick your friends but your family is here to stay good or bad. No matter what you can't change them. As my father used to say, "never argue with a moron, fool, idiot or liar or someone that won't listen to what you have to say because no mat

Re: [CMLHope] newly diagnosed

Hi, First off, I love your terminology! (I'm a writer and editor by trade). Secondly, thanks for your support. I'm limiting who knows and who doesn't know what is going on for now but unfortunately one of the ignorant statements was by a family member. Oh well. I'm happy to have found this site

Re: [CMLHope] newly diagnosed

Thanks. I'm trying not to let the ignorant types get me down. I'm only at the very start of all this so need to put my energy into treatment and my work. I'm blown away by how many people I've heard from on this board so far today. Sue On Wednesday, November 12, 2014 4:01:25 PM UTC-5, caselma

Re: [CMLHope] recently diagnosed

Hi Susan and welcome to the group. We all have different stories in our journey fighting leukemia. I was dx in 2004 and have been on gleevec, tasigna, and now am on sprycel. Like Skip cml has thrown the works at me but I keep fighting. I find that people don't realize that chemo comes in a pil

Re: [CMLHope] newly diagnosed

Hi Sue: Welcome to the club that no one really wants to join but fortunately for us, it is here as a wonderful source of support, information and friendship. People often say to me, even after 5 1/2 years of diagnosis, the same insensitive things you are hearing. I recently learned that two

Re: [CMLHope] recently diagnosed

I love you Greenie. 18's, Marty On Sun, Nov 9, 2014 at 2:20 PM, smgedit wrote: > I was recently diagnosed with CML. I had a bone marrow biopsy and started > Gleevec last week. I'm seeing an oncologist who I met two weeks ago and > seems very competent. My question may be weird but I'm having c

Re: [CMLHope] newly diagnosed

Hi Sue, I read your post and just wanted to make some comments. Personally I think that your hanging around with some people that I would classify as Anal Orifices. And I only say that to be polite. Or even more possible they suffer from Rectal Cranial Inversion (their head is up their Azz. I hav

Re: [CMLHope] recently diagnosed

Thanks for reaching out Skip. It is all so overwhelming that I'm trying to backburner all the comments people make and the misconceptions and focus on what I have to do. I'm glad I found this website. Susan On Wednesday, November 12, 2014 2:59:35 PM UTC-5, easyskip_2002 wrote: > Susan > My nam

Re: [CMLHope] recently diagnosed

Susan My name is Skip(Stewart Duffie) I was dx in 1977, they think I am the longest survivor in the world, (go to qe2 foundation search for Stewart Duffie) I have never had the pleasure of going in remission, I fight the good fight every day. I go for infusions twice weekly. I have had cml thr

Re: [CMLHope] recently diagnosed

Thanks for replying, Greenie. I think it is great that you have such a long remissionSusan On Wednesday, November 12, 2014 1:23:59 PM UTC-5, greenie wrote: > Susan, that's a great name my daughter's name is Susan. Well here's the > deal, some people may agree with me some may not. I st

Re: [CMLHope] recently diagnosed

Susan, that's a great name my daughter's name is Susan. Well here's the deal, some people may agree with me some may not. I started Gleevec January 10th 2000 on 400 mg. I received a rash, I was in one of the first studies in Chicago. They had no idea about the rash so they dropped me down

[CMLHope] newly diagnosed

I was diagnosed with CML a little over a month ago and had a bone marrow biopsy and started taking Gleevec last week. I'm trying to learn as much as I can about CML and my oncologist is great about giving detailed explanations and answering questions. But I was wondering if anyone else ever go

[CMLHope] recently diagnosed

I was recently diagnosed with CML. I had a bone marrow biopsy and started Gleevec last week. I'm seeing an oncologist who I met two weeks ago and seems very competent. My question may be weird but I'm having co-workers, family members etc. saying things to me like "what's the big deal having to