Great John
I hope your counts are good on your next check up. This is the first time my
onc has used ponatinib so I guess we will play it by ear. Have you always had
to get your blood checked so often?
Good to hear from you.
Prayers Blessings Jeanie . 18,s
On Mar 19, 2015, at
Haven't posted for a week or so, but I have been monitoring the site. Sherri,
you said it is getting warmer in Northern Illinois and the snow is beginning to
melt. I guess you are planning on sending it down to us in Southern Illinois.
LOL We will all feel better when it gets warmer and the
I have hearing aids and my ears fill with wax. They hurt when I don't have
them cleaned My are checked twice a year at my hearing aid review and my
annual checkup/medical review.
Richard H.
On Thursday, March 19, 2015 at 1:26:57 PM UTC-5, Icandoallttc wrote:
I was wondering if anyone has
Hi Yes Mostly every two weeks since I have been on ponatinib as I seem to be
sensitive to it. On doses like three a week my counts go down quickly and I
would probably go on weekly basis until they get to low point. am receiving
ponatinib on compassionate grounds as I do not have the mutation
Greenie, how are you doing? Please let us know what the tests showed. Thinking
of you. and Jeanie, three months in...good for you. Thank God for Ponatinib. I
just wish your side effects would abate some for you. You are a real
trouper..glad you can watch your flowers grow! Take good care. Beth
Maybe go to a specialist for ears? could be a simple fix?!? Beth
-Original Message-
From: 'Icandoallttc' via CMLHope cmlhope@googlegroups.com
To: cmlhope cmlhope@googlegroups.com
Sent: Thu, Mar 19, 2015 2:17 pm
Subject: Re: [CMLHope] Ear problems
Oh feel stuffed and hurts deep down.
Have you had your colonoscopy Greenie? Let us know the results if you have
them.
It's about the only test I haven't had.
Prayers Blessings Jeanie . 18,s
On Mar 10, 2015, at 10:26 PM, 'Marcie Goodman' via CMLHope
cmlhope@googlegroups.com wrote:
Greenie, I pray that all
I was wondering if anyone has had ear problems? Mine has been hurting for 4
months now.
Prayers Blessings Jeanie . 18,s
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Hi Sherri.
The weather is great here in fl. Spring has sprung with blossoms all over the
yard. This is my favorite time of the year. I also roam around my yard every
day and the fragrance of the blooms is heavenly.
Time to order my third refill for ponatinib. I believe it's working good;
Oh feel stuffed and hurts deep down.
Prayers Blessings Jeanie . 18,s
On Mar 19, 2015, at 3:11 PM, bkbarney via CMLHope cmlhope@googlegroups.com
wrote:
Not me Jeanie. What kind of hurt is it? What does your doc think?
love, Beth
-Original Message-
From:
Hi Beth. He just said have to do more testing. Need to go to a good ear
doctor. More test coming up. Was trying home treatments. No luck.
Thanks
Prayers Blessings Jeanie . 18,s
On Mar 19, 2015, at 3:11 PM, bkbarney via CMLHope cmlhope@googlegroups.com
wrote:
Not me
Not me Jeanie. What kind of hurt is it? What does your doc think?
love, Beth
-Original Message-
From: 'Icandoallttc' via CMLHope cmlhope@googlegroups.com
To: cmlhope cmlhope@googlegroups.com
Sent: Thu, Mar 19, 2015 1:26 pm
Subject: [CMLHope] Ear problems
I was wondering if anyone has
Hi Jeanie. Yes I am off ponatinib until I see my onc next Wednesday. If my
counts go up I will be back on two pills a week. Sorry to hear of your ear
problems. The snow is pretty well gone now but it is still a little cool. To
think that spring is a week away. John
Sent from my iPad
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So glad everything is O.K. Greenie, please keep us posted, hopefully lump in
breast is nothing...stay positive, stay strong..chin upspringtime in
Florida...so Jeanie says!!! Take good care...
18's Beth.
P.S. has anyone heard or know anything about how Marty is doing??? The silence
is
Hi Jeanie, yes I had it yesterday afternoon and everything is O. K..But
when the nurse tried to give me the IV in my upper arm, I don't do the top
of hands. She had a hard time getting the needle in lot's of scar tissue as
the blood was running down my arm onto the floor and I'm ready to
Hi Greenie and thanks for the update. I have the same problems with ivs. I
dread them more than the procedures. Yes my nephew had breast cancer but it's
probably a cyst. Glad you came through it all good. The nurse that put in my
last IV was the best. It didn't even leave a blue spot.
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