Greenie, how are you doing? Please let us know what the tests showed. Thinking of you. and Jeanie, three months in...good for you. Thank God for Ponatinib. I just wish your side effects would abate some for you. You are a real trouper..glad you can watch your flowers grow! Take good care. Beth
-----Original Message----- From: 'Icandoallttc' via CMLHope <[email protected]> To: cmlhope <[email protected]> Sent: Thu, Mar 19, 2015 1:22 pm Subject: Re: [CMLHope] CML visit Hi Sherri. The weather is great here in fl. Spring has sprung with blossoms all over the yard. This is my favorite time of the year. I also roam around my yard every day and the fragrance of the blooms is heavenly. Time to order my third refill for ponatinib. I believe it's working good; just dealing with side effects. I hope every one is good. John are you still off med? Prayers & Blessings Jeanie \uD83D\uDC20\uD83D\uDC20\uD83D\uDC20\uD83D\uDC20\uD83D\uDC20\uD83D\uDC20\uD83D\uDC20\uD83D\uDC20\uD83D\uDC20\uD83D\uDC20\uD83D\uDC20\uD83D\uDC20. 18,s On Mar 11, 2015, at 5:27 AM, sherri swanson < [email protected]> wrote: Hi Susan You're right about it being great news that we get up every day. And now that spring is in sight and the days are getting longer, that makes getting up even brighter. Our snow here in northern Illinois is melting fast too. It is going to be in the upper 50s most of this week also. Hey I'm with your pup! I go out and roam around in the front yard, only I do it just to get some fresh air LOL! I hope you have a good trip when you come to Chicago in April. At least the weather should be nice. Here's to hoping they don't screw it up. I have insomnia so there will be no sleeping for me. But for the rest of you, I hope you all had a restful night. L'chaim, Sherri On Tue, Mar 10, 2015 at 10:54 PM, Richard H <[email protected]> wrote: I will be praying for you. Richard H. On Tuesday, March 10, 2015 at 5:31:27 AM UTC-5, greenie wrote: Hi Group, As of last Tuesday I have lost 5 pounds and I don't know why. Been eating O. K. so I went to my Reg. Doctor yesterday and I'm going over to get some blood work at 7 a.m. Comprehensive metabolic panel, cbc (no diff), vitamin B12 level and TSH, Ultrasensitive. Also he want's me to have a colonoscopy to screen for colon cancer Friday. I really don't need 2 different kinds of cancer so I'm worried. Will let you all know what happens. greenie In a message dated 3/10/2015 4:00:08 A.M. Eastern Daylight Time, [email protected] writes: Richard, That is great news about the your haemoglobin. I also think it's great that your drs are talking to one another. That is so important. Last week, I had to get a transfusion as my counts were so low. I went to my onc and he did the usual blood draw and my WBC was 2.4. That was enough to send me over to the hospital for type and cross match and a transfusion. I too am eager to hear about Marty and pray for him everyday. Sherri On Mon, Mar 9, 2015 at 11:19 PM, 'Marcie Goodman' via CMLHope <[email protected]> wrote: Richard, excellent news and I'm happy to hear that your hemoglobin has stabilized. Glad that your doctors are in sync, too, because that will certainly make your life easier. Yay! Marcie Sent from my iPhone On Mar 10, 2015, at 12:15 AM, Richard H < [email protected]> wrote: I visited my VA ONC today and both ONCs are bck on the same page. The better news is it appears that my hemoglobin has stabilized at 10.5. we are going to move forward with the testing program until the end of May. Another piece of news that makes me very happy is that both ONC's works at Kansas University Cancer Center. The VA contracts it's Doctors and Fellows (Doctors in training). They can access all my records at both offices with the new Cerner Medical Systems that are being installed world wide. I am anxiously waiting for more news from Marty, and him keeping him my prayers. Richard H. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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