Re: [CMLHope] Questions,

2017-12-25 Thread 'Jeanie' via CMLHope
Oh yes, I'm thankful for those things too. My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center > On Dec 22, 2017, at 5:19 PM, 'Susan Zimmerman' via C

Re: [CMLHope] Questions,

2017-12-23 Thread Marty Gartenberg
Hi Jeanie, First thing, don't be concerned with changing you'r doctor. Moffitt is a big place and I am sure that this new new doctor will take good care of you. just give him or her the chance to know you, and may i suggest having your current doctor get in touch with your new doctor and let them

Re: [CMLHope] Questions,

2017-12-23 Thread 'Jeanie' via CMLHope
Hi Marty Love the way you expressed that. Yes we can still do so much and we are here still to live our friends and family. Do any of you take opiates for pain or if you did and quit I would like to hear your experience with it. Weather mild in Florida for Christmas. My doctor, that I have b

Re: [CMLHope] Questions,

2017-12-23 Thread Marty Gartenberg
Don't be silly Greenie, Besides, my wife may have the last say if the toilet seat stays up or down On Sat, Dec 23, 2017 at 11:15 AM, Myvety2k via CMLHope < cmlhope@googlegroups.com> wrote: > Sorry Marty, I guess my fingers are just to fast for my keyboard. I can't > see what I'm saying cuss my

Re: [CMLHope] Questions,

2017-12-23 Thread Myvety2k via CMLHope
Sorry Marty, I guess my fingers are just to fast for my keyboard. I can't see what I'm saying cuss my eye's are in the way. greenie In a message dated 12/23/2017 10:55:28 A.M. Eastern Standard Time, wa2...@gmail.com writes: Mary, you got that right. greenie Oh Gre

Re: [CMLHope] Questions,

2017-12-23 Thread Myvety2k via CMLHope
Sorry, Marty. My fingers are just to fast for my keyboard. greenie In a message dated 12/23/2017 10:55:28 A.M. Eastern Standard Time, wa2...@gmail.com writes: Mary, you got that right. greenie Oh Greenie, Now look at what a day difference makes? All of a sudden

Re: [CMLHope] Questions,

2017-12-23 Thread Marty Gartenberg
Mary, you got that right. greenie Oh Greenie, Now look at what a day difference makes? All of a sudden you changed my "orientation" from Marty which i always thought that i had and now to Mary? I am kind of confused because I still pee the same. Did you leave out the T on purpose or are you tryi

Re: [CMLHope] Questions,

2017-12-23 Thread Marty Gartenberg
Mary, you got that right. greenie Oh Greenie, Now look at what a day difference makes? All of a sudden you changed my "orientation" from Marty which i always thought that i had and now to Mary? I am kind of confused because I still pee the same. Did you leave out the T on purpose or are you tryi

Re: [CMLHope] Questions,

2017-12-23 Thread Myvety2k via CMLHope
Mary, you got that right. greenie In a message dated 12/22/2017 4:47:42 P.M. Eastern Standard Time, wa2...@gmail.com writes: Hey, we got a Jeanie, and we got a Greenie in here. Life doesn't get better. So Jeanie, you have this pain in you right little finger (we used to call it ou

Re: [CMLHope] Questions,

2017-12-22 Thread Marty Gartenberg
No unfortunately nothing works. But i spoke to my orthopedic surgeon who first put all of the metal devices into my arm and elbow and he told me that he would be able to remove all of the Titanium devices including the 11 screws which all of them are 2.5 inches long and i actually was able to see t

Re: [CMLHope] Questions,

2017-12-22 Thread 'Susan Zimmerman' via CMLHope
Hi Jeanie! Was wondering if you are on a statin drug for high cholesterol. Every statin drug causes achy joints in varying degrees for people. This is the biggest side effect of statin drugs. I refuse to go on them. Was on lipitor for awhile until I did some research. But of course everyone ca

Re: [CMLHope] Questions,

2017-12-22 Thread 'Jeanie' via CMLHope
Thanks Marty Do you take anything for or ointments for rubs? Thanks. My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center > On Dec 22, 2017, at 4:47

Re: [CMLHope] Questions,

2017-12-22 Thread Marty Gartenberg
Hey, we got a Jeanie, and we got a Greenie in here. Life doesn't get better. So Jeanie, you have this pain in you right little finger (we used to call it our (pinkey) Hum right little finger? Well so do i. But not my legs, hands and most of my bones BUT my left elbow and my neck really hurt but es

Re: [CMLHope] Questions,

2017-12-22 Thread 'Jeanie' via CMLHope
Hi all, Have you considered Moffitt cancer center. I go there and like it. You go to the blood center and get your blood checked and then in about an hour they are faxed over to doctor and you see him. I go every three months. I was wonder if any of you have your bones aching? My right little f

Re: [CMLHope] Questions,

2017-12-22 Thread Myvety2k via CMLHope
myvet...@comcast.net Cell phone 219-973-8717 greenie In a message dated 12/21/2017 6:56:37 P.M. Eastern Standard Time, wa2...@gmail.com writes: Listen Greenie, This is what i do because of a promise that i once made to GOD. Let me tell you about this. When i was about to receive

Re: [CMLHope] Questions,

2017-12-21 Thread Marty Gartenberg
Listen Greenie, This is what i do because of a promise that i once made to GOD. Let me tell you about this. When i was about to receive my total body radiation almost 30 years ago, just before they were about to close and lock that radiation chamber door i got down on my knees clasped my hands i

Re: [CMLHope] Questions,

2017-12-21 Thread Myvety2k via CMLHope
Marty, I want to thank you for your fast reply, I hear you. I do have a Nephrologist and he had me get some blood work last month and he seems to be O.K. with the results. I do have the paper work and will scan it and send it out so you can check it out. I want to thank you so much, you h

Re: [CMLHope] Questions,

2017-12-21 Thread Marty Gartenberg
Hi Greenie, First of all, you mention that you are worried. Why may i ask are you so worried? When people worry about things that they have little or no control over then it not only effects your mind but also your body. I know all about this because that is exactly what i used to do and i learned

[CMLHope] Questions,

2017-12-21 Thread Myvety2k via CMLHope
To all of my CML friends and care givers. I took a flight to Chicago Dec. 6th to see my cancer Doctor get blood work. A week later she called me to tell me that my Hemoglobin was down to 10.7 and the norm is 13.0 - 17.5. My Hematocrit was 32.1% and the norm is 38.0 - 50 %. She wants me to

Re: [CMLHope] Questions

2015-05-10 Thread 'Marcie Goodman' via CMLHope
Marty, sorry you've been through such a painful time but so glad you are doing better. Thoughts and prayers are with you. 18s Marcie Sent from my iPhone > On May 5, 2015, at 2:51 PM, Marty Gartenberg wrote: > > HI Suzieq > > From my understanding The first patent for Gleevec expires in Jul

Re: [CMLHope] Questions

2015-05-06 Thread 'Icandoallttc' via CMLHope
Hi susieq. I think John and I are on the latest approved tki--ponatinib. If you look at the end of my post you will see what I have taken and where I'm at today. It seems we were dx the same year. I started gleevec in feb.that year. Well we are both still here. Thanks to faith and pills. I

Re: [CMLHope] Questions

2015-05-05 Thread Marty Gartenberg
HI Suzieq >From my understanding The first patent for Gleevec expires in July 2015. This is the earliest predictable date that a generic version could become available. However this will probably be something that Novartis will fight and make some minor changes to it and maybe refilled it again. T

[CMLHope] Questions

2015-05-05 Thread Suzieq
Hello there fellow CML Survivors: My 1st question: Does anyone know about the patent on Gleevec and if it's about to expire? I was thinking it had up till this month, or the last time I saw the information on it, I thought their extension ended sometime in May of 2015. I don't remember w

[CMLHope] Questions for Gleevec

2010-02-01 Thread Jeannine
Has anyone had any side effects as Parkinson's with taking Gleevec? Thanks, j -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to

[CMLHope] Questions, questions, and more questions...

2006-09-17 Thread Thaddena Hewes
Good evening everyone, I am a standard “Lurker” here and ask questions rarely, so here is my situation (again). My son is 15 now, diagnosed with CML at 14. The doctors were pushing and pushing for the transplant and thanks to feedback here and from doctors (Dr. Druker being one) we decid

[CMLHope] questions re trials & son-in-law with cml

2006-08-02 Thread marcon
To anyone with up-to-date info on trials: My friend Priscilla had to stop the bms trial because she had to go on coumadin. She's been off medicine for 3 mos. She's still in remission but the percentage of PH has increased & is expected to gradually increase over time. She knows of other trials &

[CMLHope] Questions About the BMS Drug

2006-04-30 Thread [EMAIL PROTECTED]
greetings everyone from pathope all is well. my shift button has been damaged due to these two lil angels in my household so i'm typing this in lower case but anyhoo i've got several questions about the bms/dasatinib drug. is this drug actually gleevec remade? my doctor has encouraged me to ke