Re: [CMLHope] Skip Duffie to beth and all Sprycel and new drug

2013-07-05 Thread bkbarney
- From: Marty Gartenberg wa2...@gmail.com To: cmlhope cmlhope@googlegroups.com Sent: Wed, Jul 3, 2013 6:35 pm Subject: Re: [CMLHope] Skip Duffie to beth and all Sprycel and new drug Skip, your like the rock of Gibralter! 18's Marty On Wed, Jul 3, 2013 at 9:29 AM, Skip Duffie skipd_2

Re: [CMLHope] Skip Duffie to beth and all Sprycel and new drug

2013-07-03 Thread Skip Duffie
: ICANDOALLTTC icandoall...@aol.com To: cmlhope cmlhope@googlegroups.com Sent: Tue, Jul 2, 2013 7:54 am Subject: Re: [CMLHope] Skip Duffie to beth and all Sprycel and new drug Hi Beth, I am on Sprycel and it was the only drug that put me in PCRU. I battled with Gleevec for almost 5 years and then on Tasi

Re: [CMLHope] Skip Duffie to beth and all Sprycel and new drug

2013-07-03 Thread ICANDOALLTTC
Subject: Re: [CMLHope] Skip Duffie to beth and all Sprycel and new drug Hi Beth, I am on Sprycel and it was the only drug that put me in PCRU. I battled with Gleevec for almost 5 years and then on Tasi for a few months. I was on 100 mgs daily and my onc didn't want me to cut down but I took

Re: [CMLHope] Skip Duffie to beth and all Sprycel and new drug

2013-07-03 Thread ICANDOALLTTC
Hi Beth and thanks for the update. I do suffer from ongoing right side pain but don't know what it is. I thought the group might like this to understand your cpks CPK isoenzymes testEmail this page to a friendShare on facebookShare on twitterBookmark SharePrinter-friendly version The

Re: [CMLHope] Skip Duffie to beth and all Sprycel and new drug

2013-07-03 Thread Marty Gartenberg
trwill try castor oil and see if that helps..thanks so much for your note, be well Jeannie, Beth -Original Message- From: ICANDOALLTTC icandoall...@aol.com To: cmlhope cmlhope@googlegroups.com Sent: Tue, Jul 2, 2013 7:54 am Subject: Re: [CMLHope] Skip Duffie to beth and all Sprycel

Re: [CMLHope] Skip Duffie to beth and all Sprycel and new drug

2013-07-02 Thread ICANDOALLTTC
wasting/fatigue/ weakness, But this one is new, ongoing and the greatest challenge yet. thanks for yoru help. Beth -Original Message- From: gene and guy Larcher gandglarc...@gmail.com To: cmlhope cmlhope@googlegroups.com Sent: Fri, Apr 19, 2013 10:49 am Subject: [CMLHope] Skip

Re: [CMLHope] Skip Duffie to beth and all Sprycel and new drug

2013-07-02 Thread bkbarney
icandoall...@aol.com To: cmlhope cmlhope@googlegroups.com Sent: Tue, Jul 2, 2013 7:54 am Subject: Re: [CMLHope] Skip Duffie to beth and all Sprycel and new drug Hi Beth, I am on Sprycel and it was the only drug that put me in PCRU. I battled with Gleevec for almost 5 years and then on Tasi for a few

Re: [CMLHope] Skip Duffie

2013-04-26 Thread ICANDOALLTTC
Old traditions are great! I wish we still had some of ours. The old timey family parties and etc. Put a note in for me and all our CML'ERS. We need all the help we can get. Have a wonderful trip and we will pray for you and your trip also. Jeanie3 In a message dated 4/21/2013

Re: [CMLHope] Skip Duffie

2013-04-25 Thread bkbarney
Subject: Re: [CMLHope] Skip Duffie Hi Beth, I am so glad we've connected once again. I do think of you often and wonder how you are doing. I went to a GI doctor today and they are doing a scope (down the throat) on Tues. Meanwhile, I have to get a CAT Scan and blood work done, etc. etc

Re: [CMLHope] Skip Duffie

2013-04-24 Thread C.M. Houtz
, but keeps on going. Many hugs, Millie - Original Message - From: bkbar...@aol.com To: cmlhope@googlegroups.com Sent: Tuesday, April 23, 2013 7:47 PM Subject: Re: [CMLHope] Skip Duffie Thank you so much for your post Millie. I am sorry that you are up at 4 a.m..and as usual

Re: [CMLHope] Skip Duffie

2013-04-23 Thread bkbarney
: Re: [CMLHope] Skip Duffie Hi Beth, I know you struggle with your meds and that you have had so many side effects. I'm so sorry that this new drug has caused you such problems. I am not sleeping well tonight, so decided to get up and do some things on here that I've been meaning to do. I

Re: [CMLHope] Skip Duffie

2013-04-23 Thread bkbarney
...@aol.com To: cmlhope cmlhope@googlegroups.com Cc: cmlhope@googlegroups.com cmlhope@googlegroups.com Sent: Sun, Apr 21, 2013 12:04 am Subject: Re: [CMLHope] Skip Duffie Hi Beth and Fellow Warriors: I pray for all of us to do well and live long, happy, pain free lives. What Millie wrote is so true

Re: [CMLHope] Skip Duffie

2013-04-23 Thread bkbarney
Thanks Marty. Beth -Original Message- From: Skip Duffie skipd_2...@yahoo.com To: cmlhope cmlhope@googlegroups.com Sent: Sun, Apr 21, 2013 9:03 am Subject: Re: [CMLHope] Skip Duffie Great advice Marty, white count down to 1.9 and ANC still down to less the 300 once we bring them up I

Re: [CMLHope] Skip Duffie

2013-04-23 Thread Marcie Goodman
: [CMLHope] Skip Duffie Hi Beth and Fellow Warriors: I pray for all of us to do well and live long, happy, pain free lives. What Millie wrote is so true. People who don't have CML or those who aren't related or very close to a CML patient don't get it. My sister is in from Florida because

Re: [CMLHope] Skip Duffie

2013-04-21 Thread Marty Gartenberg
Dear Marcie, I too have been to Israel and also placed several notes into the cracks of the Western Wall for others suffering from cancer. I would very much like if you could place a piece of paper in one of the cracks of that wall. My email address is wa2...@juno.com. If you would kindly

Re: [CMLHope] Skip Duffie

2013-04-21 Thread Marcie Goodman
Marty, consider it done. Thanks for the hebrew and mother's names. I will also say a mishaberach for you. You will remain on my prayer list, as I am part of a tehillim prayer group. Sent from my iPad On Apr 21, 2013, at 11:03 AM, Marty Gartenberg wa2...@gmail.com wrote: Dear Marcie, I

Re: [CMLHope] Skip Duffie

2013-04-20 Thread C.M. Houtz
Hi Beth, I know you struggle with your meds and that you have had so many side effects. I'm so sorry that this new drug has caused you such problems. I am not sleeping well tonight, so decided to get up and do some things on here that I've been meaning to do. I wanted to print out some

Re: [CMLHope] Skip Duffie

2013-04-20 Thread Marcie Goodman
Hi Beth and Fellow Warriors: I pray for all of us to do well and live long, happy, pain free lives. What Millie wrote is so true. People who don't have CML or those who aren't related or very close to a CML patient don't get it. My sister is in from Florida because our 92 year old father had a

[CMLHope] Skip Duffie

2013-04-19 Thread gene and guy Larcher
Dear Skip: So good to hear from you after quite some time. Very sorry to hear you have been so poorly but the good news is that you are getting better. You, along with Marty, have given tremendous hope to the rest of us and shown how to bear long illness with good spirits. Dear old warrior -

Re: [CMLHope] Skip Duffie

2013-04-19 Thread bkbarney
, 2013 10:49 am Subject: [CMLHope] Skip Duffie Dear Skip: So good to hear from you after quite some time. Very sorry to hear you have been so poorly but the good news is that you are getting better. You, along with Marty, have given tremendous hope to the rest of us and shown how

Re: [CMLHope] Skip Duffie

2013-04-19 Thread Marty Gartenberg
: [CMLHope] Skip Duffie Dear Skip: So good to hear from you after quite some time. Very sorry to hear you have been so poorly but the good news is that you are getting better. You, along with Marty, have given tremendous hope to the rest of us and shown how to bear long illness with good

Re: [CMLHope] Skip Duffie

2009-12-07 Thread ICANDOALLTTC
Good luck and God Bless Skip -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To

Re: [CMLHope] Skip Duffie

2009-11-24 Thread maggy...@bellsouth.net
Sending a prayer out to Skip ! --- On Sat, 11/21/09, Zavie Miller zmil...@sympatico.ca wrote: From: Zavie Miller zmil...@sympatico.ca Subject: [CMLHope] Skip Duffie To: c...@yahoogroups.com, CMLHope@googlegroups.com Date: Saturday, November 21, 2009, 1:09 PM Hi all,   I spoke with Skip

RE: [CMLHope] Skip Duffie

2009-11-24 Thread Pete Pabon
My prayers are with Skip. Date: Tue, 24 Nov 2009 18:49:19 -0800 From: maggy...@bellsouth.net Subject: Re: [CMLHope] Skip Duffie To: cmlhope@googlegroups.com Sending a prayer out to Skip ! --- On Sat, 11/21/09, Zavie Miller zmil...@sympatico.ca wrote: From: Zavie Miller zmil

[CMLHope] Skip Duffie

2009-11-21 Thread Zavie Miller
Hi all, I spoke with Skip this morning and he asked me report on how he is doing. When I spoke to him a couple of weeks ago he was in really bad shape. I didn't think he was going to make it. Today sounded well and back to his old self. At the moment he is off all medications waiting for what