Re: [CMLHope] Digest for cmlhope@googlegroups.com - 4 updates in 1 topic

2017-12-22 Thread 'Dr. Francis Farrell' via CMLHope
What is your bcr/abl? Sent from my iPad > On Dec 22, 2017, at 5:11 AM, cmlhope@googlegroups.com wrote: > > > cmlhope@googlegroups.com Google Groups > Topic digest > View all topics > Questions, - 4 Updates > Questions, > myvet...@aol.com: Dec 21 07:10AM -0500 > > To all of

Re: [CMLHope] Questions,

2017-12-22 Thread Myvety2k via CMLHope
myvet...@comcast.net Cell phone 219-973-8717 greenie In a message dated 12/21/2017 6:56:37 P.M. Eastern Standard Time, wa2...@gmail.com writes: Listen Greenie, This is what i do because of a promise that i once made to GOD. Let me tell you about this. When i was about to receive

[CMLHope] CCI12222017.pdf

2017-12-22 Thread Myvety2k via CMLHope
-- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send e

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 4 updates in 1 topic

2017-12-22 Thread Myvety2k via CMLHope
I think it came through upside down. dg In a message dated 12/22/2017 7:44:34 A.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Here is a copy of my BCR-ABL results. In a message dated 12/22/2017 7:23:33 A.M. Eastern Standard Time, cmlhope@googlegroups.com writes: What i

Re: [CMLHope] CCI12222017.pdf

2017-12-22 Thread Marty Gartenberg
Well, there you have it. MMR MAJOR MOLECULAR RESPONSE those three magical words. 👋 18's Marty On Fri, Dec 22, 2017 at 7:37 AM, Myvety2k via CMLHope < cmlhope@googlegroups.com> wrote: > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ---

[CMLHope] anemia

2017-12-22 Thread Ana Burgos
Hello, my mum is suffering from very low hemoglobine and very low iron. any of you happen the same? another question is what do you think about bosutinib, after 14 years in gleevec the doc. is thinking of changing to bosutinib what about side effects comparing it to gleevec? thanks in advanc

Re: [CMLHope] Questions,

2017-12-22 Thread 'Jeanie' via CMLHope
Hi all, Have you considered Moffitt cancer center. I go there and like it. You go to the blood center and get your blood checked and then in about an hour they are faxed over to doctor and you see him. I go every three months. I was wonder if any of you have your bones aching? My right little f

Re: [CMLHope] anemia

2017-12-22 Thread Marty Gartenberg
Hi Ana, It's not so much the question of changing one of her TKI's, from Bosutinib to Bosutinib after being on Gleevec for fourteen years. Since there a lot of things that you and your mother need to consider like her age, her general health like the low Hemoglobin and Red Cell Blood counts which

Re: [CMLHope] anemia

2017-12-22 Thread Marty Gartenberg
Hi Ana, It's not so much the question of changing one of her TKI's, from Bosutinib to Bosutinib after being on Gleevec for fourteen years. Since there a lot of things that you and your mother need to consider like her age, her general health like the low Hemoglobin and Red Cell Blood counts which

Re: [CMLHope] anemia

2017-12-22 Thread 'Jeanie' via CMLHope
Pcr Hi Greenie Doctors at Moffitt don't do BMA. They do PCR blood test. My doctor Dr Baldicci, Is my doctor and head of the senior oncology center of Moffitt and they are't doing BMA So instead of drawing 2 vials blood they draw three. Dr Balducci is retiring the first of the year but there are

Re: [CMLHope] Questions,

2017-12-22 Thread Marty Gartenberg
Hey, we got a Jeanie, and we got a Greenie in here. Life doesn't get better. So Jeanie, you have this pain in you right little finger (we used to call it our (pinkey) Hum right little finger? Well so do i. But not my legs, hands and most of my bones BUT my left elbow and my neck really hurt but es

Re: [CMLHope] anemia

2017-12-22 Thread Myvety2k via CMLHope
I would rather go back to Chicago for my test but the cost to fly at this time of the year is very costly. I was just their on Dec 6 and it was close to $600. I checked the fly's for month of Jan and I can fly their for $40 going but at $445 back.Have to see and Oncologist on Jan 2nd and s

Re: [CMLHope] Questions,

2017-12-22 Thread 'Jeanie' via CMLHope
Thanks Marty Do you take anything for or ointments for rubs? Thanks. My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center > On Dec 22, 2017, at 4:47

Re: [CMLHope] Questions,

2017-12-22 Thread 'Susan Zimmerman' via CMLHope
Hi Jeanie! Was wondering if you are on a statin drug for high cholesterol. Every statin drug causes achy joints in varying degrees for people. This is the biggest side effect of statin drugs. I refuse to go on them. Was on lipitor for awhile until I did some research. But of course everyone ca

Re: [CMLHope] Questions,

2017-12-22 Thread Marty Gartenberg
No unfortunately nothing works. But i spoke to my orthopedic surgeon who first put all of the metal devices into my arm and elbow and he told me that he would be able to remove all of the Titanium devices including the 11 screws which all of them are 2.5 inches long and i actually was able to see t