Re: [CMLHope] Re: Sudden problem after twenty years.

2018-07-10 Thread 'Jeanie' via CMLHope
Hi all I had this problem when on Tasigna. My hmg dropped to 8. I argued with my onc as I didn’t want someone else’s blood in me. I knew if he would take me off the tasigna the hbg would come back up. He finally talked me into it and I had to stay for hours getting transfusions. As most of you k

Re: [CMLHope] Re: Sudden problem after twenty years.

2018-07-10 Thread Marty Gartenberg
Oh Jeanie, first let me take you back to something I wrote to Richard I have heard a lot of people mentioning that they blame some of the TKI that they are taking. Perhaps that may be so, but what if it isn't that at all? That is why they need to consult with their doctors because that is his or

Re: [CMLHope] Re: Sudden problem after twenty years.

2018-07-10 Thread Richard H
Thanks Marty. Yes hemoglobin below 10. and himeric below 30 is correct.. That is for time to allow it to start doing its work and then will go toward normal. If I take it just over then the counts build over the normal level. Just trying to maintain that level just below normal according t

Re: [CMLHope] Re: Sudden problem after twenty years.

2018-07-10 Thread Marty Gartenberg
Richard, now I know what your problem is. It is your kidney function being 3 what is your doctor doing about this? That is why your HGB is so low. Do you have a nephroligist near you? if so then go see him or her. Do it as soon as you can. Because it is not to late. When I had to go onto Dialysis m