Lucinda,
We both became ill in July of 05. Me on the second, and view on the 31st.
That was not a good month for either of us. Hope things are going well for
you now.
Naomi
C-4 quad since July 2, 2005
Transverse Myelitis
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I have an abdominal binder that I brought home from the hospital. I haven't
worn a binder since the early part of my hospitalization(July 05). Maybe
I'll put it on since you say it will help with aligning of the spine and with
the quad belly.
Naomi
C-4 quad since July 2, 2005
Thanks for that website for women. I was unaware that it existed. I
browsed through it and it looks very interesting.
Naomi
C-4 quad since July 2, 2005
Transverse Myelitis
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Wheelchair,
Do you go to a good Rehabilitation Institute of Chicago? I have been trying
to get into the Rehabilitation Institute of Michigan, in downtown Detroit,
for months. I had an evaluation there over a month ago, for inpatient acute
rehab. I have not heard back from them yet. Did
Dave,
I sure am glad that ex-Marine was there. It gave us all here on the
messageboard, a chance to meet you and benefit from your wisdom.
Naomi
C-4 quad since July 2, 2005
Transverse Myelitis
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Hello Rebecca,
Welcome to the group. You will find there is a wealth of information to be
had as a member of this group.
My name is Naomi, C4, Transverse Myelitis_Diseases and Conditions:
Transverse Myelitis_
(http://www.hopkinsneuro.org/tm/disease_and_condition_detail.cfm?condition_id=8)
Wheelchair,
Yes, I did have a referral from my primary care physician, and I think the
whole problem and hold up is with my insurance paying for it.
Naomi
C-4 quad since July 2, 2005
Transverse Myelitis
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Merrill,
I thought it was just me, who was receiving multiple messages. I'm actually
receiving two of some messages, not all.
Naomi
C-4 quad since July 2, 2005
Transverse Myelitis
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How do I get TV shows on my computer? Do I need something extra in order to
receive the shows?
Naomi
C-4 quad since July 2, 2005
Transverse Myelitis
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Merrill,
I was able to get the TV on my computer. I just needed the website. I
watched the CSI episodes that I missed. I just got a new laptop about a month
ago. It also has Windows XP Media Center. My husband was told to bring it
back with the receipt and they would install Windows
Lucinda,
So sorry to hear about your accident. How long ago was that? You made me
hungry. Talk about those Waffle House cheesy grits and cinnamon toast.
Naomi
C-4 quad since July 2, 2005
Transverse Myelitis
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Ron,
As bad as things seem sometimes, they could always be worse. Yes, every day
breathing is certainly a holiday.
Naomi
C-4 quad since July 2, 2005
Transverse Myelitis
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Kevin,
I took Ditropan for a couple of days, period. The second day, I could not
urinate at all. When cath, I had 1200 cc of urine my bladder. My doctor,
DC'd the med immediately! I have not taken it since.
Naomi
C-4 quad since July 2, 2005
Transverse Myelitis
I take 5 mg of Ambien every night. I have been taken it for nearly a year.
I can't really tell if the Ambien still works or not, because I take it at
night time with about nine other pills, which all cause drowsiness. Most
nights I fall asleep before my head hits the pillow would stay
Professirx,
Congratulations on your 40th birthday! Thank you for sharing your pictures
with us. It looks as though you really enjoyed your birthday party and it is
always nice to put a face with the name. By the way, how did you come up
with your screen name? I chose mine because I
Jessica,
This isn't anything new. There are hundreds of websites for Devotees,
Pretenders and Wannabes.
Devotees, are people who are attracted to people with disabilities.
Pretenders, are those who pretend to be disabled.
Wannabes, are those who have the desire to be disable, sometimes to
Kathy,
That is some type of wheelchair! My chair is center drive, which I prefer.
Naomi
C-4 quad since July 2, 2005
Transverse Myelitis
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email to everyone. Find out more about what's free from AOL at
http://www.aol.com.
Dan T,
I have this same phone. It was the only voice activated phone I could find.
I have had it for nearly 2 years now without any problems. My husband just
plugged in to a phone jack. Simply saying hello will answer the phone. It
comes with a small remote control, which enables you
Greg,
Ha ha... very funny! Our current temperature 7° We were snowed in today. I
live in Ypsilanti, Michigan(Ann Arbor).
Naomi
C-4 quad since July 2, 2005
Transverse Myelitis
Dave,
Thank you very much for the book information. I will see what's necessary
to use it and take advantage of it.
Naomi
C-4 quad since July 2, 2005
Transverse Myelitis
John,
Thanks for the information. I learned a lot from it.
Naomi
C-4 quad since July 2, 2005
Transverse Myelitis
Belle,
Don't stay in the sun too long. You may get a sunburn. I did that last
summer. The sun felt so good, I just sat there to soak it up and end up with
a
sunburn.
Naomi
C-4 quad since July 2, 2005
Transverse Myelitis
Win,
I do the same identical thing. I go to bed with a heating pad on my
shoulder. During the night, my husband turns it back on again. I can only
feel the
temperature on my shoulder.
Naomi
C-4 quad since July 2, 2005
Transverse Myelitis
Dave,
So glad to hear your home again and all of your tests came back fine. Way
to Go! I agree with you. Hospital care is terrible.
Naomi
C-4 quad since July 2, 2005
Transverse Myelitis
Quadius,
Thanks for the information on the mouth stick. My neighbor was suffering
from TMJ. Her dentist told her it was due to her grinding her teeth while
she's asleep. She has to wear a mouthpiece while she's sleeping, and yes it
affected her jaw. I will obtain a mouse stick from
Where did the individuals at the VA get their page turner? Yes, send me the
book. I am open to reading anything at this point. Thanks in advance
Naomi
C-4 quad since July 2, 2005
Transverse Myelitis
Quadius,
Thanks, I received the book, and thank God it is in large print. Thank you
for all of your information and website. I will follow up on that and let
you know when I find.
Naomi
C-4 quad since July 2, 2005
Transverse Myelitis
PS. I looked up some page turners on the Internet
Sandy,
Thanks for the information on the page turner. They were a bit pricey and
not at my budget at the moment. I will have to resort to the old book stand
and whatever I could find to turn the pages with. I will let you know when
I'm up in reading where to books. Quadius sent me a
Quadius,
I agree totally. I think Florida AM University has the best collegiate
band! I was a little torn at half time. I wanted to see Prince but I also
wanted to see the band play. They should have had one or the other but not
both
together.
Naomi
C-4 quad since July 2, 2005
I want to know who do I file a complaint with! I feel as though I have been
discriminated against because of my disability.
Last weekend, my husband and I made reservations to stay at a luxury hotel
in our metropolitan area. I have a full sized van in which to transport my
motorized
Dan,
Does a mouth stick have to be specially made to fit your mouth? No, I
haven't read any good books lately. Actually I haven't read any books lately.
As
soon as I find out how to turn the page, I will be up and reading(hopefully).
Naomi
C-4 quad since July 2, 2005
Transverse
Quadius,
Thanks for those pictures. That is a very nice workstation and book stand.
Is your mouth stick custom made?
Naomi
C-4 quad since July 2, 2005
Transverse Myelitis
Dana,
Pleased to meet you. I've posted a few messages prior to this one. I have
enjoyed reading messages on the board for a while, but I don't post often. I
will try to stay more visible in the future.
Naomi
C-4 quad since July 2, 2005
Transverse Myelitis
PS. I am interested in the
I am having a dilemma. I was an avid book reader before I became a
quadriplegic due to Transverse Myelitis. Now I am in a dilemma as to how do I
manage
to read a book. I have a book stand, but it is virtually impossible for me
to turn the pages. I have looked on the Internet for page
I guess I failed to mention that I have limited use of my left arm and hand
and all use of my right arm and hand.
Naomi
I am going to get this right sooner or later!
I meant to say, I have limited use of my left arm and hand and NO use of my
right arm and hand.
Naomi
Frank you are one wild and crazy guy.
Dave,
I usually have 10 cc in my balloon also. On my last visit to the urologist,
they only put 6 cc of water into the balloon. I think my doctor decreased
the water to 6 cc because I was having bladder spasms. The doctor prescribed
Detrol for the spasms, but I never took it. Five days
Dave,
Are you from the Ann Arbor Michigan area or were you just there for your
driving test?
Naomi
Dave,
Thank you so much for that information. I have a RoH0 cushion and there's
always a mystery as to how much air should be in. Thanks, Naomi
Dan,
Thank you so much for the encouragement. It is always needed and
appreciated and I see on the message board often and I will keep in touch.
Naomi
Wheelchair,
Thank you for the positive message. Yes, I would like to thank Jim for
starting this web site where we can all go for answers, encouragement, or just
to
vent.
Naomi
Dana,
Thank you for introducing yourself to me. No, I had never posted on the
site although I have been on it many times. Now that I have met so many nice
people, I will be sure to post often and keep in touch.
Naomi
Mark,
Thanks for introducing yourself to me and welcoming me to the jungle. I
have met so many nice people on this message board, and certainly hope to keep
in touch with them all including you.
Naomi
Hi Stephanie,
I saw of posting by you on the quad message board. It caught my eye,
because I too, am a C4 -quad due to Transverse Myelitis,1 year post. Here is a
little about me and what I've been through.
My name is Naomi. I am 50 years old. I was stricken with TM on July 2,
2005.
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