Re: [QUAD-L] Posttraumatic Syringomyelia and related condition

2017-01-24 Thread Bobbie Humphreys
Thanks  Bobbie "You must fail in order to succeed" > On Jan 24, 2017, at 12:50 AM, Robert Vogel wrote: > > Hi Bobbie and all, > > There has already been much excellent information shard about about > Syringomelia (Syrinx) on this site including (I forgot the person that

Re: [QUAD-L] Posttraumatic Syringomyelia and related condition

2017-01-24 Thread RONALD L PRACHT
I was scheduled to go to craig and get surgery. They had looked at my mri, gave me a surgery date and all. Then they called and said they couldn't take my united healthcare insurance. I was devastated, it made my so upset. Ron On Tuesday, January 24, 2017 2:59 PM, Lori Michaelson

Re: [QUAD-L] Posttraumatic Syringomyelia and related condition

2017-01-24 Thread Lori Michaelson
I meant to say at the end of my recent post that 'Again, posttraumatic syringomyelia or aggravated syrinx makes quadriplegia a walk in the park.' On Tue, Jan 24, 2017 at 12:47 PM, Lori Michaelson wrote: > That is exactly how I found out that I had a syrinx (posttraumatic

Re: [QUAD-L] Posttraumatic Syringomyelia and related condition

2017-01-24 Thread Lori Michaelson
That is exactly how I found out that I had a syrinx (posttraumatic syringomyelia) - I had never heard about it before 1994 and after 4 1/2 years of weird symptoms (nothing with my back - pain or anything) and then after my pupil dilated... I said to myself "That's it... something is WRONG." So I

Re: [QUAD-L] Posttraumatic Syringomyelia and related condition

2017-01-23 Thread Robert Vogel
Hi Bobbie and all, There has already been much excellent information shard about about Syringomelia (Syrinx) on this site including (I forgot the person that mentioned Dr. Scott Falci Craig hospital (as well as Dr. Barth Green at the Miami Project) as being the top people in the field in

Re: [QUAD-L] Posttraumatic Syringomyelia and related condition

2017-01-23 Thread Bobbie Humphreys
It is well over 50% of spinal cord injury who develop a syrinx, some with in a month of injury some many years and then others ... never. Bobbie "You must fail in order to succeed" > On Jan 22, 2017, at 8:02 PM, Lori Michaelson wrote: > > Yes, I have known for years

[QUAD-L] Posttraumatic Syringomyelia and related condition

2017-01-22 Thread Lori Michaelson
Yes, I have known for years that 3 to 4% of persons with traumatic spinal cord injuries get posttraumatic syndrome syringomyelia and I fell into that 3% with severe symptoms whereby I had to quit work. Those "others" are able-bodied people who developed a form of syringomyelia called Chiari