Re: [QUAD-L] advice on bowel program
It sounds like most of the people who have responded go only 2-3 times a week. I'm wondering if those of you who do not go every day or every other day, have no sensation? I go every day because I have sensation and my gut/bowels feel full and bloated if I don't go every day. I have chronic nerve pain (the horrible burning and needles from my injury level down) and with the burning pain and feeling full if I don't go every day or even if I'm constipated and don't go enough, then I'm just miserable. Before my SCI (14 years ago), I went once a day, sometimes twice a day so I think it's just normal for my body to go every day. Fortunately, I use a magic bullet suppository and usually eliminate over the toilet on my shower/commode chair after 15-30 minutes. When I get back into bed, just to make sure I have got it all out, I will have a digital and get any remaining stool out. Most of the time I do not have anything left. I take 4 fiber capsules and two stool softener/laxatives every day and it keeps me pretty regular. Plus, I usually try to eat veggies and fruit regularly. I have been lucky that I have only had a handful of accidents in the 14 years I've been injured. Corie, C5, incomplete Redding, CA - Original Message - From: Elizabeth Treston To: quad-list@eskimo.com Sent: Sunday, October 07, 2007 11:17 AM Subject: [QUAD-L] advice on bowel program What is your routine? Do you take meds (i.e. senna tablets, colace, what kind of suppository; when do you take them? How much fiber? Do you take narcotics? When do you go (every day, every other day etc. As a newly injured person it takes awhile to figure out what is best for you. Many use senna tabs @ 7-8 hours before their schedule.. Some add colace to keep stool soft. Some go every MWF or every other day so they aren't attached to the toilet. Is your stool hard? Is it enough for what you are consuming? -- From: Nichole Rohling [mailto:[EMAIL PROTECTED] Sent: Sunday, October 07, 2007 1:57 PM To: [EMAIL PROTECTED]; Quadlist Subject: Re: [QUAD-L] Please, can you give advice on bowel program I DO A FLEETS REGULAR ENEMA AFTER B.P. IF I'VEE SAT FOR 45 MIN TO AN HR AND NO RESULTS - WE DO THE ENEMA THEN. SOMETIMES IT HELPS GET THINGS MOVING AND IF NOT IT GETS RID OF THE SUPPOSITORY NICKI - Original Message - From: [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Saturday, October 06, 2007 11:19 PM Subject: [QUAD-L] Please, can you give advice on bowel program I am so sick and tired of this dominating my life. It is after 12 midnight and I am considering sleeping on the potty chair. At 8 I inserted a suppository. An hour and and half later I decided to call it quits, nothin happening. It's 9:30 and am making my way to bed. THEN I needed to get back on and did not make it. What a mess. When will this get better? I am so tired of this that I am seriously considering limiting my food intake. Starting tomorrow. Taking a shower and dressing took me 2 hours and I have spent over 3 hours doing my bowel program. It has been a year since my accident. Shouldn't I have this figured out by now? I am so frustrated and angry. Sick and tired of crying to. Thanks Shelly 1 year post C6-C7 incomplete Check Out the new free AIM(R) Mail -- Unlimited storage and industry-leading spam and email virus protection.
Re: [QUAD-L] advice on bowel program
Corie, I have sensations from my head to my toes. Although, it is slightly altered below my chest I can still feel the bloating of my belly and if I have bowel left in me. The latter works to my advantage most of the time, but by morning if all I did to remove my bowel failed I know I'm going to have a miserable day. Either just by the feeling the urge to go all day or by knowing my situation and being miserable because of it. If I know fully well that I'll go later then I won't even attempted to get up in my wheelchair. My day will be shot laying in bed waiting until the feeling passes or waiting until the package is delivered onto my chucks. BTW, you had mentioned the handful of accidents...now, is that hand cupped or are you counting with it? Just kidding! Keith/34/C4-5/NJ-11yrsPost --- In a message dated 10/8/2007 2:03:36 AM Eastern Daylight Time, corie writes: It sounds like most of the people who have responded go only 2-3 times a week. I'm wondering if those of you who do not go every day or every other day, have no sensation? I go every day because I have sensation and my gut/bowels feel full and bloated if I don't go every day. I have chronic nerve pain (the horrible burning and needles from my injury level down) and with the burning pain and feeling full if I don't go every day or even if I'm constipated and don't go enough, then I'm just miserable. Before my SCI (14 years ago), I went once a day, sometimes twice a day so I think it's just normal for my body to go every day. Fortunately, I use a magic bullet suppository and usually eliminate over the toilet on my shower/commode chair after 15-30 minutes. When I get back into bed, just to make sure I have got it all out, I will have a digital and get any remaining stool out. Most of the time I do not have anything left. I take 4 fiber capsules and two stool softener/laxatives every day and it keeps me pretty regular. Plus, I usually try to eat veggies and fruit regularly. I have been lucky that I have only had a handful of accidents in the 14 years I've been injured. Corie, C5, incomplete Redding, CA ** See what's new at http://www.aol.com
Re: [QUAD-L] advice on bowel program
Before my accident I went two times a day. after my accident I seemed to go without knowing it. I was on lotsa morphine and suppose to be worried about getting constipated. After consulting with dieticians ands finally a doctor who's specialty was rehab, I got on a bowel program that works for me. This doesn't mean its universal and can work for anyone. I forget to eat somedays. I've never had any burning or tingling pain. The pain I have is more like being crushed. It begins at neck and shoulders and as the day goes on it moves over my back to my hips and knees. I take 2 hydrocodone to get in my chair and then as needed. I call it my cape of pain. I figure the pain is different for us too. Other than headaches and AD I never had much pain untill the early 90's. At first it was just unrelenting sweat untill it turned to AD. Just depressing thinking about it. I'm just saying we are all very different and it is a matter of what works for you. john p.s. sure wish I could go every day. I find the commode relaxing. Getting to it and back sucks. - Original Message From: Corie Jones [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Monday, October 8, 2007 2:01:41 AM Subject: Re: [QUAD-L] advice on bowel program It sounds like most of the people who have responded go only 2-3 times a week. I'm wondering if those of you who do not go every day or every other day, have no sensation? I go every day because I have sensation and my gut/bowels feel full and bloated if I don't go every day. I have chronic nerve pain (the horrible burning and needles from my injury level down) and with the burning pain and feeling full if I don't go every day or even if I'm constipated and don't go enough, then I'm just miserable. Before my SCI (14 years ago), I went once a day, sometimes twice a day so I think it's just normal for my body to go every day. Fortunately, I use a magic bullet suppository and usually eliminate over the toilet on my shower/commode chair after 15-30 minutes. When I get back into bed, just to make sure I have got it all out, I will have a digital and get any remaining stool out. Most of the time I do not have anything left. I take 4 fiber capsules and two stool softener/laxatives every day and it keeps me pretty regular. Plus, I usually try to eat veggies and fruit regularly. I have been lucky that I have only had a handful of accidents in the 14 years I've been injured. Corie, C5, incomplete Redding, CA - Original Message - From: Elizabeth Treston To: quad-list@eskimo.com Sent: Sunday, October 07, 2007 11:17 AM Subject: [QUAD-L] advice on bowel program What is your routine? Do you take meds (i.e. senna tablets, colace, what kind of suppository; when do you take them? How much fiber? Do you take narcotics? When do you go (every day, every other day etc. As a newly injured person it takes awhile to figure out what is best for you. Many use senna tabs @ 7-8 hours before their schedule.. Some add colace to keep stool soft. Some go every MWF or every other day so they aren't attached to the toilet. Is your stool hard? Is it enough for what you are consuming? From: Nichole Rohling [mailto:[EMAIL PROTECTED] Sent: Sunday, October 07, 2007 1:57 PM To: [EMAIL PROTECTED]; Quadlist Subject: Re: [QUAD-L] Please, can you give advice on bowel program I DO A FLEETS REGULAR ENEMA AFTER B.P. IF I'VEE SAT FOR 45 MIN TO AN HR AND NO RESULTS - WE DO THE ENEMA THEN. SOMETIMES IT HELPS GET THINGS MOVING AND IF NOT IT GETS RID OF THE SUPPOSITORY NICKI - Original Message - From: [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Saturday, October 06, 2007 11:19 PM Subject: [QUAD-L] Please, can you give advice on bowel program I am so sick and tired of this dominating my life. It is after 12 midnight and I am considering sleeping on the potty chair. At 8 I inserted a suppository. An hour and and half later I decided to call it quits, nothin happening. It's 9:30 and am making my way to bed. THEN I needed to get back on and did not make it. What a mess. When will this get better? I am so tired of this that I am seriously considering limiting my food intake. Starting tomorrow. Taking a shower and dressing took me 2 hours and I have spent over 3 hours doing my bowel program. It has been a year since my accident. Shouldn't I have this figured out by now? I am so frustrated and angry. Sick and tired of crying to. Thanks Shelly 1 year post C6-C7 incomplete Check Out the new free AIM(R) Mail -- Unlimited storage and industry-leading spam and email virus protection. Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Yahoo! Games. http://get.games.yahoo.com/proddesc?gamekey=monopolyherenow
RE: [QUAD-L] Please, can you give advice on bowel program
Shelly, I know your frustration and I hate shower day with a passion but what can we do. I started drinking a cup of green tea I buy at safeway called of all names smooth move but it works. I try to drink it at least 6-8 hours prior to my bowel program so if I'm showering in the morning I drink it before I go to sleep. Keeping the same time of your program is very important too so try to do it on a strict schedule. Hope that helps, Mark Jackson RollinOn _ From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Saturday, October 06, 2007 11:19 PM To: quad-list@eskimo.com Subject: [QUAD-L] Please, can you give advice on bowel program I am so sick and tired of this dominating my life. It is after 12 midnight and I am considering sleeping on the potty chair. At 8 I inserted a suppository. An hour and and half later I decided to call it quits, nothin happening. It's 9:30 and am making my way to bed. THEN I needed to get back on and did not make it. What a mess. When will this get better? I am so tired of this that I am seriously considering limiting my food intake. Starting tomorrow. Taking a shower and dressing took me 2 hours and I have spent over 3 hours doing my bowel program. It has been a year since my accident. Shouldn't I have this figured out by now? I am so frustrated and angry. Sick and tired of crying to. Thanks Shelly 1 year post C6-C7 incomplete _ HYPERLINK http://o.aolcdn.com/cdn.webmail.aol.com/mailtour/aim/en-us/index.htm; \nCheck Out the new free AIM(R) Mail -- Unlimited storage and industry-leading spam and email virus protection. No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.488 / Virus Database: 269.14.4/1057 - Release Date: 10/8/2007 9:04 AM No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.5.488 / Virus Database: 269.14.4/1057 - Release Date: 10/8/2007 9:04 AM
[QUAD-L] Pain in my arms at night
Lately I have been waking up with very weird pain in my arms. I feel like I'm FREEZING cold and like my arms are bruised. So bad I pull the covers tighter and want to shiver I feel so cold. The pain is as bad as the cold. It wakes me up. But, if I pull my arms out from under the covers, it goes away (well, it gets better.) It must be because my arms are actually to hot... Some kind of Auto-Disraflexic thing. But then my room is to cold to not have my arms covered, they then get actually cold. The thing is, my room is cooler than before and fewer blankets than I used before. I use to keep my room at 80, with 3 blankets. Now it's 74 and 1 blanket. I can't stand it. I'm either to cold for real, or so hot I feel cold. Anyone else ever feel this? Greg
[QUAD-L] New Van
Hey People, First off I got great news from my employer today and check this out, I not only got a raise he wanted to Double! Double! Did I say Double my salary! Wow what great news on a Monday huh? Here's the problem, if he doubled my salary which is only $1500.00 a month I would be kicked off the Alternatives program which pays for my pca. So in short I can't take a raise, does that suck or what? Now since I can't take a raise he asked me what I wanted and all I could think of was a new van which is awesome. So my question is what van I should purchase? The conversion company in my town has 2 types of vans, they have the toyota and Chevrolet. I don't like buying foreign vehicles so I'm looking at the Uplander by Chevy. Do any of you own an Uplander and if so what do you think of it? Thanks and what a day! Mark Jackson 501-840-2291 No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.5.488 / Virus Database: 269.14.4/1057 - Release Date: 10/8/2007 9:04 AM
Re: [QUAD-L] Please, can you give advice on bowel program
TABS? Ghost effect? Would you please explain what those are, Wheel? - Take the Internet to Go: Yahoo!Go puts the Internet in your pocket: mail, news, photos more.
